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syrinx misdiagnosed
can a syrinx be misdiagnosed as something else?  can a radiologist miss syrinxes all together?
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620923 tn?1452919248

  Hi...I saw ur post and wondered if u also have a DX of Ehlers-Danlos since u have a tag to ur post of a retroflexed odontoid...and if u might also have Chiari Malformation?

We do have a Chiari forum were we also have members with Syringomyelia (syrinx)- http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc

I hope u stop by : )
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unfortunately i am not diagnosed as anything at this point.  i have been in pain for twelve years and it is progressing.  i am losing strength in my arms now.  
but i have read my x ray report and it says i have pannus on my odontoid peg.
no doctors will help me figure all this out.
so i have to constantly come up with directions to point the doctors in.
i truly believe i have chiari and a syrinx.  among other things.
i am trying to convince them to do an mri.  i thought the abnormal odontoid would do it.  but they just suggested physical therapy which i think could be dangerous.
i thought if i could say that syrinxes were often over looked then i might get their attention.
i am so tired of all this.
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