Urogynecology Expert Forum
pelvic pain and pain during orgasm
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Questions in the Urogynecology forum are answered by Bruce Crawford, MD, J. Kyle Mathews, MD, and other medical professionals and experts. Topics covered include overactive bladders, bladder pain, fallen/drooping bladder, bowel urgency, bowel prolapse, cystitis, incontinence, pain with intercourse, rectal prolapse, surgery, urinary urgency, and uterine prolapse.

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pelvic pain and pain during orgasm

For the past three months I have experienced excrutiating pain during orgasm. I have a constant pain in my lower left pelvis. I have no problem with arousal or lubrication, and even intercourse is OK, if penetration is not deep. But the orgasm pain, even without penetration, is unbearable. It feels like a nife cutting the back of my vagina.I now am afraid of having sex.

Transvaginal ultrasound and pelvic CT scans (with contrast IV) have revealed no abnormalities. Blood and urine tests are negative. Since I had a partial hysterectomy (15 years ago), tubal ligation (17 years ago), and surgery for an ovarian cyst (26 years ago) doctors fear any new surgery might create adhesions that may aggravate the problem.

I'm 52 years old, been married for 27 years, had two children, and in addition to surgeries mentioned above, have been diagnosed with endometriosis (discovered during ovarian surgery), hypertension, and hypothyroidism. I am normal weight and exercise regularly. Any ideas as to what to do next? Thanks.
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242593_tn?1313867921
Please get an evaluation by a qualified pelvic floor physical therapist before you proceed with any non-emergency surgery. They abound in europe, and there are quite a few of them in the US.  One of them may be able to help identify the source of your pain, and if it is musculoskeletal, they can certainly help reduce it without surgery.
6 Comments
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Avatar_n_tn
Onset of symptoms came after a couple weeks of extreme fatigue and aching joints...like I had a mild flu.

Pxs I'm taking: Synthroid, Prinivil, Acyclovir, and Zoloft. I have been on all these meds for 15-20 years.
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106886_tn?1281295172
Hi, wow, I cannot believe I read this post. I am stalling because I am supposed to be exercising and I am avoiding at all costs!

We just posted a bunch of info on how to get relief from adhesions over on the Ovarian Cancer forum (the patient to patient forum). If you check out page one (unless it got bumped to page two by now, but I doubt it) look for the topic "Scar tissue" (I am doing this by memory now and will post to you again in a few min. if I am wrong on the title). A woman by the name of Paula posted the info we occasionally post and it is what saved me from sheer agony from the pain of adhesions back in 2001 after my hysterectomy...ovary removal, cyst removal, cervix, you name it...it was taken after a malignancy was found. Anyway, I do a deep massage called Bodyrolling and my weight training teacher taught me how to do it and it changed my life. Seriously. I added to the post on my most recent painful adhesion episode and how in ten min. I was able to battle the pain by breaking up the adhesion.

Feel free to post over there, but I will check back here, too, to see if you have any questions I could help you with.

I understand that your pain might not be from adhesions, but since you referenced the problem, and knowing what I went through.....well, good luck to you!

Mary
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Avatar_n_tn
Mary, Thanks for the tip...I am willing to try anything at this point. It's off to Target this afternoon! I'll let you know if it works.
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106886_tn?1281295172
Hi,

I am so glad you found the posting on the Ovarian Cancer site about the rolling. I was taking a weight training class at the time I found this...when you read the beginning of the post on the other forum and there is a comment about "she said we glue together as we age" that quote is from my weight training teacher. I needed to leave the class one day since my pain was so bad and that is when this wonderful teacher told me to come back the next day and we would try the rolling. She had just been to a workshop on bodyrolling the previous weekend. What luck for me....

I'd had a colonoscopy about 8 months prior to finding the bodyrolling. I was scheduled for that procedure because my doctors were baffled by what was causing the pain. Since I'd had my hysterectomy for ovarian cancer, they were a bit concerned that I might have colon cancer. During the colonoscopy, the doctor asked again when I'd had my hysterectomy (about a year prior) and he said, "Oh, my, you have so many surgical adhesions." He offered to stop the colonoscopy since it was proving to be very painful for me. The adhesions were collapsing the colon. So, as the little instrument was threading through my colon (what fun, huh?) it was literally POPPING the adhesions. Oh my. Otherwise the colonoscopy would have been bearable.

I got relief from the colonoscopy and the doc said I could have one every six months to break up the adhesions. Ah, no thanks!!!!!!  I am soooo very grateful to have found the exercise instructor and knowing I can roll around on a little ball (mine has a Smurf character on it!) for a few minutes now and then to keep these things away is just utterly amazing to me.

If you want, join us over on the Ovarian Cancer site for our first Anniversary Cyber Party. They are a lot of fun and you get to meet some neat women. You can mention my screen name if you want. They all know me...most anyway!

Most of the women do not have Ovarian cancer, but many came to the site to find answers and support when ovarian cysts or other problems were found. Many have stayed on after the surgeries...I stay on to offer support even though my surgery was in 2000.

Take care....I am 53 and I think you said you were 52, right? Not sure what I will do with my screen name when I turn 54! Born in 53...a good year!

Take care, Mary
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Avatar_n_tn
Thank you for the advice. I have asked my doctor for a reference for a pelvic floor physical therapist.
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A related discussion, uterine pain during orgasm was started.
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