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Dear Kim,
I don’t know the specifics about your daughter’s case, but I don’t look at a catheterizable stoma to the abdomen as a total disability. There many children that have these types of catheterizable systems that function as
normalNormal saline flush children. Yes they do have to take responsibility for the stoma and may even need to irrigate their bladder occasionally, but generally they do quite well. They can play and run around just as any child would.
In terms of medications to help suppress bladder
contractionsFetal heart and uterine contraction monitor
Fetal heart monitoring
Tension headache or medications to relax the bladder wall to increase bladder capacity, Ditropan is an excellent drug. Sometimes this drug can be titrated (smaller dose)or even used in combination with other medications. There are however other medications such as Levsin, Levsinex, or even Detrol is used experimentally by some Pediatric urologists. Other medications used to help with leakage or high bladder pressures would include Imipramine or Tofranil, and ProBanthine, but these may not be relevant to your daughter’s condition.
You could suggest these medication to doctor and ask if he feels these medications are a safe possibility. Even if you can reduce the dose of the Ditropan and then add a second medication at low dose, you may be able to avoid the side effects.
This information is provided for general medical educational purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition. More individualized care is available at the Henry Ford Hospital and its satellites (1 800 653-6568).
Sincerely,
HFHS M.D.-AK
*keyword:Bladder instability