Posted by Donna on May 28, 1999 at 14:22:59
My 8 1/2 year daughter has faught repeated
UTIAbortion - elective or therapeutic
Autism
Autism - resources
Autistic behavior
Cutis marmorata on the leg
Cystitis - acute bacterial
Epstein-barr virus test
Excessive or unwanted hair in women
Febrile/cold agglutinins
Institutional hygiene
Mononucleosis spot test and kidney infections since she was 2 weeks old. We have had every test possible to see if there was problem with her structure. When she turned 7 she was diagnosed with a
neurogenicNeurogenic bladder-like bladder though it was not there the previous years. We have asked if there could be a small
fistulaAnorectal fistulas
Esophageal atresia
Pulmonary arteriovenous fistula
Tracheoesophageal fistula repair - series joining her bladder to her intestines. After a VCUG was done, what appeared to be a
fistulaAnorectal fistulas
Esophageal atresia
Pulmonary arteriovenous fistula
Tracheoesophageal fistula repair - series appeared. A
bariumBarium enema
Barium ingestion
Barium sulfate
Upper gi and small bowel series enemaBarium enema was done shortly after to see if that would also show this, but it did not show anything. We have been told that a fistula was almost impossible and looking for it would be too difficult. What other reasons would cause a child to have this many infections every year? We are concerned as she can only take a few medications due to an allergy to sulfa drugs. Any help would be appreciated.
Posted by HFHS M.D.-AK on May 30, 1999 at 21:03:19
Dear Donna,
First of all, it would be important to know what types of organisms are causing her infections and does your daughter have reflux.. In regards to the infections, are they the same organism? Or are they many different types? If they are the same organism, it would be less likely that a fistula is present and more likely her neurogenic bladder is not allowing her to completely empty her bladder. Incomplete voiding allows the bacteria to replicate do to stasis of urine and causes frequent infections.
If your doctor is still concerned about a fistula, the common radiologic study to work -up this problem is a CT scan. This study not only can look at the bowel and bladder relationship, but may also identify a stone, abscess, or anatomic abnormality not seen on her previous studies.
The VCUG study would identify if she has reflux. Do to her history of kidney infections, knowing if she has reflex is important. If she did have reflux, this could be surgically corrected to protect her kidneys.
In my opinion, she needs to have a neurogenic bladder work-up by a pediatric urologist. This would include a CMG/EMG with a post void residual. This will give you information on how your daughter’s bladder functions and if it completely empties. I would make sure had an ultrasound if a CT scan is not done for the fistula and a urine culture to make sure that she is culture negative. You may also consider prophylactic antibiotics for a period of time (3-6 months and then withdraw the medication and see what happens).
Try to find a pediatric urologist and bring them your old x-rays and culture results. They can take control of your daughter’s care and make sure she gets the appropriate follow-up.
This information is provided for general medical educational purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition. More individualized care is available at the Henry Ford Hospital and its satellites (1 800 653-6568).
Sincerely,
HFHS M.D.-AK
*keyword:UTI