Hi there,
I am at my wits end here. I really don't know what to do because everything is out of my hands. My son is 8 weeks old and when he was 4 weeks old he had a very bad urinary tract infection. He became lethargic and wouldn't eat. I took him into emerg and they sent me home. The next night he spiked a fever of 39.5 so I took him into the hospital. Things moved pretty quickly, the pediatrician was called in and he told us that he had a uti. At first he thought it may have been meningitis but it turned out after a TON of tests that he had a kidney infection and septicemia (blood infection). He almost died, if I hadn't of taken him in that night he could have went into shock and had a seizure. I trusted my gut that something was wrong and I thank god everyday that he is still here with us. He was on I.V antibiotics for a full week in the hospital.. what a nightmare that was. We thought everything was fine after all that, they put him on oral antibiotics for a week and then we saw the pediatrician again. He said everything looked fine, didn't check his urine or anything and sent us home telling us to stop taking the oral antibiotics which he had originally prescribed for 2 months.
Ok, so here we are 4 weeks later and I took Jacob into emerg again on Friday because he has been extremely irritable and not calming down.. Waking up every hour screaming. So they do Jacob's 5th catheter and it comes back as he has ANOTHER UTI! They prescribed me Keflex and sent us home. He is taking it every 6 hours for 7 days.
Now here is my issue, I don't think Jacob is responding to these antibiotics because he has become extremely irritable again. My gut says to take him back to emerg and I should trust that... however I am so frustrated w/ the pediatric unit in our town. They were supposed to have me come in today, they never called so I called them. We can't get in there till Wednesday, at first she told me next week.. and I told her "No, Absolutely no way!".
He almost died from this exact reason last time (it started out as a uti and then to the kidneys and then into the bloodstream). Shouldn't they be taking this a little more serious?? I want his blood tested and I want his urine taken again. I want to know why this is happening to my newborn baby!!! I want to be able to go to sleep at night and not wake up every hour w/ him. I want to know that he is not developing a kidney infection! I want to know what our next steps are because this is extremely rare in a male newborn to have developed 2 UTI's in 2 months!!
He has been tested for urinary reflux and it has come back negative. He has had a ultrasound of his kidneys done and they look normal.
Does anyone know the steps that will need to be taken next? What kind of further testing will he require? What happens if I don't notice another UTI and it then again goes into his bloodstream and kidneys??
I have never been so scared in my life, I just don't know what to do and none of the doctors are even giving me any answers.
Please help!!