Bladder estrophy

I AM A 32 YEAR OLD MALE THAT WAS BORN WITH BLADDER ESTROPHY. I HAVE HAD MANY RECONSTRUCTIVE SURGERY OVER THE YEARS. THE LAST OPERATION THAT I HAD WAS TO CLOSE THE BLADDER NECK(BECAUSE OF LEAKING) SO NOW I STRIAIGHT CATH TO URINATE. I HAVE A DOCTOR THAT I HAVE BEEN SEEING THROUGH OUT THE YEARS WHO HAS BEEN AWSOME. HE IS NOT REALLY A SPECIALIST IN WHAT I AM INQUIRING ABOUT. I AM HOPING THAT YOU MIGHT BE ABLE TO HELP ME OUT WITH A COUPLE QUESTIONS. RIGHT NOW I AM NOT INSURED SO I AM NOT ABLE TO SEE THE SPECIALIST THAT I HAVE HOPED TO SEE.
HAVING BLADDER ESTROPHY ONE OF THE SIDE EFFECTS THAT I HAVE BEEN DEALING WITH IS AN UNUSUAL SMALL PENIS. (2.5-3") ERECT. IT HAS BEEN VERY TROUBLING AT TIMES WHEN BEING SEXUAL ACTIVE. I HAVE ALWAYS BEE COUNCELED THAT ORAL SEX IS PROBABLY THE BEST WAY TO GO TO STIMUALTE MY PARTNER (WOMEN). YA ORAL SEX IS GREAT AND ALL BUT I WOULD LIKE TO BE ABLE TO HAVE INTERCOURSE WITHOUT SO MUCH WORK. I THINK THAT I HAVE LOST SOME REALTIONSHIPS OVER THE YEARS BECAUSE OF THIS. I WANT TO KNOW IF THERE IS ANY SOLUTION TO MY DELIMA, I HAVE TALKED ABOUT PROSTHETIC IMPLANT, BUT WHAT KIND OF LENGTH WOULD THAT GIVE ME? IS THERE ANY WAY THAT PART OF MY PENIAL SHAFT IS NOT ALL THE WAY OUT OF MY ABNOMINE. BECAUSE OF BEING BORN WITH MY BLADDER OUT SIDE MY BODY AND HAVING HAD IT TUCKED BACK IN IS THERE MORE THAT IS NOT EXPOSED. I HAVE SEEN THESE PENIAL BEFORE AND AFTER PICTURES THAT SEEM TO LOOK LIKE THEY WORK, I AM NOT SURE WHAT MY OPTIONS ARE.
IT HAS BEEN A PROBLEM PYCHALOGICAL I KNOW THAT. SO PLEASE DON'T COUNCEL ME TO SEE A THERAPIST I AM SOLEY LOOKING FOR A SOULTION TO MY VERY VERY VERY SHORT PENIS. PLEASE RESPOND AND IF YOU COULD DIRECT ME IN A WAY TO GO WITH THIS.
ALSO WITH A PROSTHETIC IMPLANT WOULD THAT BE A POTENTIAL PROBLEM TO CATH OVER THE YEARS. AND WHAT KIND OF LENGTH(IF POSSIBLE) COULD I BE LOOKING AT.
ONE MARE THING! MY PENIS IS DORSAL (SITS ON MY ABDOMINE WHEN ERECT)
THANKS FOR YOU TIME.
SINCERLY
MAHER1

[Kevin Pho, MD]

I am not a urologist, so my insight into this question is limited.

I agree that a penile prosthesis is a plausible option to your situation.  They can be of varying lengths and discussed with your urologist.  

Another option that I am aware of is to use a skin graft to lengthen the penis.  

Both of these options can be discussed with a urologist or plastic surgeon.  

Followup with your personal physician is essential.

This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.

Kevin, M.D.
kevinmd_b

[auz]

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