Bladder hemorrhages

I'm hoping I can get some help or advice.

I've seen several urologists regarding my bladder problems. urinary frequency, low back pain, tenderness in low pelvic area (bladder) blood in urine (mirco 4+).
and have received no help.

Additional symptoms include bowel problems, spasms, pain L side. IBS like symptoms, fatigue

Cytoscope of the bladder shows major haemorrhages of the bladder wall. This is seen via scope with local anaesthetic jelly. No distension of the bladder has been done to actually diagnose IC. Haemorrhages are quite visibly there without any bladder stretching. Recently I have been told that it's rare to see haemorrhages like mine without much more severe bladder symptoms. I also understand that some IC patients have small haemorrhages seen upon hydrodistention. My Bladder capacity is not unusually small.

My diagnosis is Bladder haemorrhages or hemorrhagic cystitis with a negative urine culture.

What can explain haemorrhages on the bladder wall that do not seem to heal. They remain there and become severely flared up upon a infection or any other trigger. Again these are not hemoraghes that are seen by distension of the bladder.

I have not received any radiation treatment or anything and I am not taking any medications that could cause this.

Could the doctors be overlooking something like IC or bladder cancer??

Thank you in advance,

[Kevin Pho, MD]

The cystoscopy is a comprehensive test for bladder cancer.  If not seen, bladder cancer would be unlikely.  Repeating the test can be considered if the diagnosis is in question.

IC can be considered, and lead to some of the symptoms you describe.  Cystoscopy can miss IC in almost 60 percent of cases, so this is not the most sensitive test.  A potassium sensitivity test can be considered for a more thorough diagnostic approach.

These options can be discussed with your urologist, or in conjunction with another urologic opinion (preferably at a major academic medical center).

Followup with your personal physician is essential.

This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.

Kevin, M.D.
kevinmd_

[chrissy12]

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[chrissy12]

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[Matthew007]

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