I'm hoping I can get some help or advice.
I've seen several urologists regarding my bladder problems. urinary frequency, low back pain, tenderness in low pelvic area (bladder) blood in urine (mirco 4+).
and have received no help.
Additional symptoms include bowel problems, spasms, pain L side. IBS like symptoms, fatigue
Cytoscope of the bladder shows major haemorrhages of the bladder wall. This is seen via scope with local anaesthetic jelly. No distension of the bladder has been done to actually diagnose IC. Haemorrhages are quite visibly there without any bladder stretching. Recently I have been told that it's rare to see haemorrhages like mine without much more severe bladder symptoms. I also understand that some IC patients have small haemorrhages seen upon hydrodistention. My Bladder capacity is not unusually small.
My diagnosis is Bladder haemorrhages or hemorrhagic cystitis with a negative urine culture.
What can explain haemorrhages on the bladder wall that do not seem to heal. They remain there and become severely flared up upon a infection or any other trigger. Again these are not hemoraghes that are seen by distension of the bladder.
I have not received any radiation treatment or anything and I am not taking any medications that could cause this.
Could the doctors be overlooking something like IC or bladder cancer??
Thank you in advance,