Blood in Urine for years

[MrsMacDugle]

Okay, I'm beginning to get really upset with my urologist as she doesn't seem to think I should be as fearful as I am or as worried as I am about still having blood in my urine without a UTI or Kidney Infection.  This has been going on for years now & she has performed many tests but apparently she doesn't keep very good notes in my file as I'm a US Vet & she's only on staff once a month for a tax write off I think.

I'm a 47yr old with a full hysterectomy already done because of precancerous tissue, as well as endometriosis. My family history is cancer filled.  And I already have several diseases/infirmaties that were also tied heavily into my family history.  Thus I'm fearful that the cancer that inflicted several members has a strong chance of being my next problem.

I've had the blood in my urine now for several years of my knowledge & probably more years without my knowledge as I know that it has always had a color, and smell.  The most recent u/a showed that there were 5 blood cycles per whatever is used as their base in their findings. Which is more than the last time from 6 months ago, As I said I've had this going on for years at least 12 yrs that I'm aware of & more that I wasn't.

Help what can I do I need more advise.

[JoyceTan]

Have you done a urine culture?

[MrsMacDugle]

I've just gotten back from my most recent visit to the urologist.  She still doesn't feel that I should be to aweful worried but she is scheduling more test to be run next year if the specialized U/As that she is running today still show the same if not worse amounts of clusters of atypical cells.  She keeps trying to reassure me that there is nothing to worry about with the blood in my urine but I can't help it.  And now she's running a Fish test whatever that is, she'll be rescheduling my CT of the bladder & kidneys, as well as do another cystology & cystocopy.  I'm not sure what the URO findings means in my current dipstick test that they ran but it still showed the blood in tact & a couple of other levels were out of balance but she didn't exactly explain the entire findings, as she wanted to have the lab do a more thorough work up on my urine before giving me anymore information.  She just told me not to worry & that she will contact me before Christmas to give me the findings.

[MrsMacDugle]

I've had the cystocopy & as I said she doesn't seem to keep good notes as she couldn't find them about her findings for the cystocopy.  I've had the next test that was required.  And several more u/a's since we're keeping track to see if the blood will ever leave my urine.  I'm tired of hearing that many people can have blood in the urine without problems, I'm not the typical case nor am I normal like many of the people.

I'm a Diabetic, chronic pancreatitis, chronic Epstein Barr Virus, Chronic, Irretible Bowel Syndrome, Fibromylagia, etc.  The list is so long that I've been classified as 100% disabled due to the multitude of illnesses.