This patient support community is for discussions relating to urology issues, benign prostate disease, penis curvature, cystisis, pediatric urology, prostate, sexual dysfunction and urological cancers.
I am at a loss as to what is wrong. For 8 months now, after contracting NSU, I've had a sore urethra, with a series of new, painful dark veins all over my shaft and foreskin. As well as this, I have the occasional lump on the right side of my shaft , which looks like a horizontal vein with no colour, that comes and goes. My glans (glands) is also raw, most likely from canesten, as I had no raw skin before using it when my doctor assumed I had a yeast infection.
This has all been going on for months with little improvement. For months, I have barely even thought about it, yet the doctors will palm me off as if my pain is imaginary. The head urologist at my local hospital told me I didn't need any scans or extra tests for infection and that it will probably go away when I am 'in a relationship next'. Every doctor tells me that the veins are normal when they are abundant, painful and dark in colour.
Since I haven't worried, I am not putting it down to imaginary pain. I can see the external symptoms, a bright red glans (glands), sore dark purple/black veins. But it's all 'normal' according to the health pros, aka 'we don't know what is wrong with you and we don't want to admit it, so we'd rather tell you that you're making it up'.
Anyway, I've had three different antibiotics, so I doubt it's bacterial. Any clues, what's going wrong? Why shouldn't my body be happy and healthy? I'm 22 and this is getting ridiculous. I've been reading about toxins such as fluoride inhibiting DNA repair. Definitely starting to believe that the amount of crap that we take in in our modern world is a major factor in the development of chronic disease.
Seriously 8 months of this is just awful. I've put on a brave face and ignored it for months, but this 'imaginary' pain with real physical symptoms doesn't seem to be going away. The veins literally popped up two weeks after I'd been 'successfully' treated for NSU and all I've had is doctors patronising me ever since, really talking down to me. I won't get on to what I think about healthcare and pharmaceuticals. Apparently I can't still have an infection, because urethral swabs and urine tests are clear, this has been the case since my first return to the clinic, they have never had any useful advice. I've had one, private doctor recognise that I have problems and that's it. Anyway, any advice would be helpful - leave the notion that it is in my mind, everything is in your mind anyway, I'm not playing Plato over my health.
After 8 months of suffering, I really cannot be bothered with comments like these, read my post and also learn how to talk to young men about their problems without appearing patronising.
Sorry for that, but I've heard enough of these sorts of comments, I know what my body was like before this and I don't need to justify it to yet another medical professional who appears to be questioning my rationality. I can differentiate between benign changes and painful, unsightly changes corresponding to a time of infection.
I am telling you that my dorsal vein was once one vein on its own, now it splits off into multiple painful and dark veins that were 100% never visible before. They have been sore, are hard and make my foreskin appear bulbous. I know that they weren't there, because there was one visible vessel on the top of my penis, the dorsal vein, now there are multiple, dark veins and busted red capillaries coming off all over the place that are definitely, definitely sore.
My urethra is irritated after urination and masturbation, I sometimes spend up to half an hour with dysuria after I have masturbated, waiting for the last painful drop to come out.
I have lumps that even doctors who are inclined to tell me not to worry, will admit that it could be some sort of lymph problem that will subside in the coming months.
I know these are real symptoms as they appeared two weeks after having an initial infection, when I still had pain. I masturbated and a lump was present on my shaft after I took my hand off, a lump that doctors have recognised as abnormal. This lump comes and goes.
Now rethink the safety of creams such as canesten, because I am telling you now, that when I used it, it looked like someone had burnt a layer of my skin off - which is distressing. 8 months later and where the red burn marks were (that were not there before I used canesten) is now a red area that I have to keep moisturised, even though I am uncircumcised and never had to moisturise before using canesten. If I don't moisturise, my glans (glands) becomes so dry that it constantly flakes. It flakes even when I've been moisturising regular, when I lightly dry it with a towel - is this 'normal'?
I ended up going to A&E with terrible pain in my testicles about a month ago - I thought I'd had a torsion. The head urologist there said that my epididymis was swollen and another doctor said that she thought something was wrong with me and they just hadn't found out yet, so she ordered a scan.
I then went to see the head urologist at another hospital, as the appointment was previously booked. He then told me that everything was normal and these things happen from time to time. It's been 8 months of constant pain and I now that this is not normal. If you are going to tell me that it is, (and I'm sorry to appear rude) please do not bother to reply.
So is this just not real on any level, even though I know that things aren't right?
Let's turn the topic to - what could cause prolonged symptoms such as this? Could a prostate problem be linked to new painful veins, with painful testicle tubes and urethritis?
Could anything have been triggered by infection to cause these symptoms? Is there anything I can do to sort out these problems, which have ruined my life?
Why are doctors inclined to make you out to be an irrational, worrying pedant and why do they take you less seriously the longer your problem lasts?
I know you're frustrated but try not to snap at the people on here who give up their free time to try and help. I found this advice in a thread from 2009 and sounds similar to what you described.
These swollen veins can be due to varicose veins or superficial thrombophlebitis. Penile varicose veins may bruise during sexual intercourse and thus wearing of a condom is highly recommended. Also use of lubricants is recommended during masturbation or during sexual intercourse to avoid bruising the vein.
Mondor’s disease is superficial thrombophlebitis of the penis. This is an inflammatory reaction to a clot within the vein. This subsequently causes blockages and dilation of the vein. It is typically painless, but can be painful.
I totally believe that your pain is real but I also think that the time it started and the NSU infection are just a coincidence. Canesten cream can irritate the penis is thrush isn't present so just give this time for the inflamed skin to clear. The additional moisturising cream could be adding to the irritation. I'll continue to research this matter and see if I can come up with anything else.
Sorry to snap, but I've had a hard time with the medical community offering no help and I don't consider what Grace said to be advice.
Well as I'm sure you'll know, infection can cause blood clots/ thrombophlebitis, so I doubt the fact that it occurred 2 weeks after being treated (and still having problems that I shouldn't have been), when I've had no problems with my penis before. I find it strange that I should suddenly have chronic genital symptoms if none of them had anything to do with that infection.
Thanks for the advice, but shouldn't superficial thrombophlebitis have cleared up by 8 months?
you've seen multiple providers and no one has seen anything wrong with you. they would've easily detected thrombophlebitis and recommended treatment.
anxiety is a huge issue for most of our posters. you'd be surprised what you can convince yourself off. not unusual at all to worry about something that is normal.
have you tried someone who specializes in pelvic massage at all ( I mean a professional, not someone who lists on craigs list for massage )? Sometimes you actually can cause pain from tensing up the muscles in the genital area from stress ( and the advanced yoga moves for looking in the genital area ). over the course of 8 months, it becomes a pain cycle that is hard to stop without intervention.
Grace, I was diagnosed with thrombophlebitis by a private doctor.
I hardly value the opinions of the ones who sent me away because they were seriously so rude and such inconsiderate professionals that they were inclined, like you, to put it down to anxiety.
I have considered that the pain could be down to anxiety, but considering the fact I had barely thought about it and had just got on with my life, I am going to rule out the diagnoses of anxiety related pain.
You should also be careful about diagnosing people with anxiety related pain, if they take you seriously, they could end up on antidepressants to dull the pain, a method which has no foundation or proof. The drugs rely on an imaginary illness and hold a big moral weight with administration.
I see the 'anxiety' diagnosis on here and I really do think it's very lazy. Do not try to justify that diagnosis any further please
If the pain was anxiety related, I would have been anxious. Id consider the fact it could be something to do with muscles, but I don't think the veins would affected. (You know, the myriad of new, dark and painful veins, that are physically there to see and have been diagnosed).
The thing what you're saying about muscles also couldn't be further from the truth. Men tend to spasmodically contract their muscles when urinating. I've had to learn to stop this because my urethra hurts when I stop the flow, which it never used to.
Also I have had bad pain for up to an hour after masturbating - a horrible irritating that makes me need to keep urinating. But I suppose this is all in my head.
I don't even know why I came back to this forum. I'm sure some of what you tell people is useful, but unfortunately, this is just an extension for the medical world to make the ill man feel small once again.
Just for the record - pharmaceutical companies are liars according to independent scientific journals. The medical industry can't even be fully trusted because of that. Go ahead and relate this to anxiety and my pain - it doesn't seem that people with a medical background have any problem with bridging the gaps (saying its unprovable anxiety related pain), but if someone else does that, they're quacks.
I'm sorry to talk to someone who dedicates their time to help people like that, but I'm seriously disillusioned with the medical system. You have to understand that since I went back to the clinic, I've been palmed off.
So after week 1, post treatment - id been feeling perennial pain when I sit on the edge of a seat, nurse at the clinic tells me that I'm paying top much attention and that it is a probably 'a normal twinge'. Totally immaculate description.
I go back and they tell me to not masturbate, pain is still there. I go back and get a second round of antibiotics, still the pain doesn't go away. Then I masturbate and my penis comes up in a couple of lumps, the veins go as they are now, this is about 3 weeks after treatment.
3 weeks - go to another clinic about new symptoms, the doctor says I have 'trauma' to my penis that should go in three weeks. The symptoms are still there.
8 weeks - see head urologist and I tell her that it hurts a lot of I madturbate and my urethra is very tender. This head doctor says that my symptoms are just 'normal'. I emphasise the pain and the doctor keeps on saying (loudly and over my voice), 'but that's normal!' - like I don't understand my own body and the pain I feel is just magnifications of normal sensations. If that was the case then they would be at least 100 times the pain of any twinge.
I end up going private, because of this escapade - paying 400 to get tested and given a different set of antibiotics that the NHS had refused to even give me, just in case. This is about 6 months after treatment - aside from visits to a couple of GPs, I let things lie after a while, but still had a fair amount of discomfort. When I saw the doctor, she diagnosed me with thrombophlebitis and gave me metronidazole - a second/third line treatment that the NHS refused to give me, even when I emphasised the pain I was in. The doctor said that of the antibiotics didn't resolve things then I should have a cystoscopy, which I don't think I'll be having unless things get considerably worse. She also pointed out how the glands in my groin were enlarged.
I carried on with things and didnt really feel anxious, perhaps a bit crappy for obvious reasons. Weeks later I was out walking my dogs and I started getting severe pain in my left testicle when I walked, a pain so sudden and severe that I keeled over when it hurt most. I went to A & E and the pain calmed down, the urologist examined me and told me that my epididymis was enlarged and ordered a scan. He had no comment on why my penis had been painful and sure for six months and whether it was related to my swollen epididymis.
I had a previous appointment arranged with the head urologist t my local hospital. I went to it and he told me that my symptoms will go away when I get a girlfriend, but recognised that they were (at least externally) physically happening. Ever since my infection, I've had a raised lesion (well a couple, but I'll describe this one on particular) that resembled a long scratch down the back of my foreskin and down the shaft. It is a raised lesion - like a thin line of skin. When I showed the doctor he failed to recognise the lesion (stood upright and far away from me) he recognised that there was an off colour section around the area, but said that it was where I came together in the womb.
I'm so very certain that the lesion wasn't there beforehand. Regardless, my penis wasn't discoloured, my glans (glands) wasn't red/patchy/dry, my veins were not enlarged, dark and painful before the infection. I also had random aching testicles before, but never any problems with the tubes, or any pain anywhere near as regularly or as bad. My glands are still up in my legs. I really, really wonder if my body is over reacting, or is still fighting something.
I wish this problem was limited to my mind, I really do, but I can see the damage done and I get very real pains. Can you see why I'm frustrated with the healthcare system?
Also, this is why I don't want to pay to have a urologist on here just tell me the same stuff. I have little faith in doctors now, this pain has been anxiety related from the second time I returned to the clinic. It seems like they don't like returning patients.
No help here then and I still avoid going back to the doctor, but he won't take me seriously. It's been two months now since that head urologist told me that my pain would go away when I got a girlfriend. The treatment of chronic issues is a ******* joke.
As you've seen, I've had bad experiences with doctors and they've tried to make me question my pain/ deny visible symptoms. It's like living in the twilight zone, it really is and this is what has caused this 'terrible' attitude.
I was polite to every doctor, even when they were insulting me with presumptions of me being 'anxious', which apparently automatically means that any symptoms aren't real. But, of course I was anxious, my penis is in a bad way and I thought the doctors could help. But since I don't have typical signs of infection, I get no help and I'm made to feel bad for going back to the doctor, like I'm a pest.
You cannot rely on another person with your health. The fact that this condition has been dubbed psychosomatic, only two weeks after treatment is a joke. Not only that, but it's irresponsible, imagine if i'd developed reactive arthritis? Although, that would probably be in my head too.
I have little faith in doctors and even less in pharmaceuticals. That being said, my problems are persisting and I need help.
I've woken up recently with pain all around my crotch and groin area. This is a sign of a prostate problem.
I cannot believe I let 'professionals' lead me to believe that I had nothing wrong with me. So angry for putting my health into their hands. Right now I really cannot believe the state of the healthcare systems.
Well, i was right, your advice was misguided, I've been diagnosed with prostatis unfortunately. I really wish someone would have taken me seriously somewhere down the line and treated me for it just in case, now I've waited nearly a year since the initial infection and who knows if I'll recover?
Also, every doctor has been really useless. When I went to my GP, he didn't even check me, treated me for thrush and gave me a vague idea of it being 'gone in a week, but there will still be symptoms'. So I left it for about three weeks in the end, when I'd already left it a week to see him, because I was just an embarrassed young man. He should have known better and told me to go to the clinic, since his diagnosis was so wrong. Now I'm ****** because of people's poor opinions. Life is a write-off at 22, ******* wonderful. I accept that I am to blame somewhat, I shouldn't have slept with the second girl id ever even been with, without using protection. But I've realised now that most doctors appear to be inept and value their opinions more than your well being - a step up from the scum of the streets, they use their intelligence to mock you and inadvertently ruin your life. Keep up the good work though
How did you wind up being treated with this new diagnosis? I think I've got prostatitis too though no outward signs, just pain in the scrotum and top of my thighs for months now and in the urethra as well for the past few weeks. I'm seeing a urologist in two weeks as the GP just says I look fine and prescribes antibiotics which haven't done much. Hopefully he'll take me seriously, it's definitely a big change from what I was feeling before November and not just made up, it started out of nowhere.
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