This patient support community is for discussions relating to urology issues, benign prostate disease, penis curvature, cystisis, pediatric urology, prostate, sexual dysfunction and urological cancers.
23-year-old female had a cystoscopy today with hydrodistention under general anesthetic. Before the surgery, the urolgoist told me he was only taking biopsies if he found something that concerned him. Well, he ended up taking biopsies. But then, my mom told me that the urologist told her that everything "was fine." We have been looking at IC as a possible diagnosis, and before this surgery, I have responded well to drugs like Sanctura XR and now Oxybutynin. These meds have really taken the pain and frequency away and have improved the way I feel 100%. I also feel like perhaps I am feeling some better after the hydrodistention itself, which I hear is possible treatment for IC. Is it possible to have IC even if the uro claims the bladder "looks fine"? If not, what else would be causing such terrible pain and frequency and yet responding to typical IC treatments?
(I will get the biopsy results next week sometime, I believe)
I also have IC and the only way that it can be diagnosed properly is by doing the procedure that you just had done. The urologist should have been able to tell you at the time, before they discharged you, whether or not it was IC. Perhaps he/she is waiting for the biopsy results? I have the cystopic hydro's done every 6 months, the only other choice, in my case, is bladder augmentation, but we don't want to go there, yet. I tried using the drug "Elmiron" which is the only drug claimed to be successful, more so, at treating IC, but it didn't work for me. Now, it's just the hydro's, but the pain and frequency are always there, just less so after the procedures. So little is known about IC that they don't even know how many hydro's the bladder can take before it is harmful. I've also heard horror stories of patients who have had their bladders burst, from negligence in doing the hydro's. Sorry if I'm scaring you, but it's the truth,
Please let me know how it goes when you get the rest of the results.
And if you'd like to keep in touch, just Private Message me.
Hugs & Prayers.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.