Do you have experience of or information on Biofeedback for nonneurogenic neurogenic bladder (Hinman's Syndrome)?

[emily001]

My five year old son has non neurogenic neurogenic bladder condition (Hinman's syndrome). He takes Ditropan daily and self-catheterizes five times a day. We are interested in finding out more about biofeedback. Does anyone have any experience with or information on biofeedback for on neurogenic neurogenic bladder?

[rmprdl1964]

Hi, here is another link to male genital problems. There is a section on neurogenic bladders. It is towards the bottom of the list.

http://www.mic.stacken.kth.se/Diseases/C12.html

When I first got diagnosed in 1996 they could not give any reason for the neurogenic bladder. In 1998 I was diagnosed with a neuropathy condition. Right a way the urologist now mentioned that it must be due to the neuropathy. The neurologists don't seem to think this, yet there is no explanation for my bladder condition. If they are right than there is no reason for the neurogenic bladder. I have no injuries to the spinal cord and I can't think of any other reason.

Prior to the diagnosis of the neuropathy, I used to get hospitalized with UTI, kidney infections or epididimytis or orchitis about 3 or 4 times a year. Once I started on an at least twice a day catherization I ended up get less infections.

I hope that you can use the information.

Ron

[rmprdl1964]

I have some links that deal with a neurogenic bladder, however it does not deal with young patients like your son. The site is based on adults.

I know what it is like to have to use intermittant catherization. I cannot imagine what it must be like for a young child.

http://www.urologyhealth.org/adult/index.cfm?cat=03&topic=109

http://emedicine.medscape.com/article/453539-overview

I hope that this information is helpful for you.


All the best.

Ron