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Basics- 30 year old womanWomen's way, history of gynecological problems, migraines, depression and anxiety. Does not smoke, drink alcohol or do recreational drugs of any kind. Exercises regularly.
I have NEVER had any urinary issues in my life..... until the firstFirst progesterone mc10 First progesterone mc5 First-progesterone vgs 100 First-progesterone vgs 200 First-progesterone vgs 25 First-progesterone vgs 400 First-progesterone vgs 50 First-testosterone First-testosterone mc week of February 2009. I found myself having to go the bathroom every 10 minutes or so. I didn't have (still don't) any burning, blood in the urineCalcium - urine Calcium urine test Chloride - urine Cortisol - urine Electrolytes - urine Glucose test - urine Hcg in urine Ketones - urine Kidney - blood and urine flow Lh urine test (home test) Ph urine test or pain, but just a contant nagging "urgeUrge incontinence" to go....and it's not just the urgeUrge incontinence and then nothing happens. I actually urinate every single time. It became unbearable....Everyone assumed it was a UTIAbortion - elective or therapeutic Autism Autism - resources Autistic behavior Cutis marmorata on the leg Cystitis - acute bacterial Epstein-barr virus test Excessive or unwanted hair in women Febrile/cold agglutinins Institutional hygiene Mononucleosis spot test. I went to the hospital and they did a Urinalysis. It came back negative, but I was urinating up to 40 times a day at this point, so I asked the doctor to please prescribe antibiotics. He said he would and told me to also try cranberry juice or cranberry capsules. He prescribed Macro-bid for 5 days....2 per day. Around day 3 of the Macro-bid, I felt SOME relief and thought "Hey, I'm getting better." No such luck. My conditioned worsened. I was literally having to run to the bathroom every 2 minutes....and everytime I went to the bathroom, I did in fact urinate...sometimes a lot, sometimes just a little, but always some. It became debilitating so I made an appointment with my gynecologist. She did a urine culture, took blood, did STD checks, pregnacy test, diabetes test, everything. Everything came back negative. Yesterday, I went to the bathroom over 100 times...yes, you read that correctly, over 100 times. Even after I go, I stand up, and feel the urge to go again, and CAN. I didn't know one person could make so much urine. I am in a constant state 24/7 of that uncomfortable feeling like you have to go. The feeling isn't even relieved by urinating. Even after I urinate, the feeling is still there. I could literally spend my whole day on a toilet and just keep going.
When the doctor told me today about the tests all coming back negative, I told her I was going to the ER as I had called out of work today (this is so debilitating, I cannot work)...she got me an appointment with a urologist. The urologist asked many questions. I asked him if he thought this could be IC and he said "unlikely" because I didn't have any pain and IC doesn't just happen as quickly as what is happening to me did. (I am so hoping it is NOT IC, I hear it is terrible.) Anyway, they catheterized me and said my bladder was empty...but get this, 2 seconds later, I had to use urinate, and did so...a considerable amount. The doctor said there was no rhyme or reason for this as he just completely emptied my bladder. He said he wanted to do 3 things 1) check my urine for bacteria. 2) Put me on Detrol LA to try to ease my symptoms 3) Schedule a cystoscopy and dilation because his exam with the catheter showed a narrow eurethra. I said to him "Do you think I have overactive bladder? At age 30, and out of the blue??" (Mind you, literally this happened one day out of the blue.....was going to the bathroom like normal people....2 to 4 times a day....and then the next day-BAMN- 30 times.) He said "Yes, I think you do." I then asked him if the cystoscopy and dilation would "cure" me because I can't live like this....he said "In 85% of patients, I've seen it fix them."
I am going out of my mind and don't know what to do. I am spending my entire life in the bathroom. I literally walk out of the restroom at work and have to turn around and go back in......I feel the pressure and urge to go every minute of my life. I can "hold it" for about up to 8 minutes, but after that, the pain becomes unbearable. It's not really "pain" in the classic sense, but extraordinary discomfort....like when you've had 8 cups of water and have been "holding it" for hours and hours.
So, after all of this, can anyone offer any advice? I've been told it's not a UTI, most likely not IC, I don't have any STDs, none of the medications I take daily (and have been for years) could be causing this, nothing else in my life has changed. I am just at the end of my rope. Plus, the cystoscopy isn't for 3 weeks. I don't know if I can make it that long! Also, I guess I am just confused. If my bladder is totally empty, and they can medical prove it through ultrasound, etc, how am I urinating?? What is there to "void??"- could it be this "urethral narrowing" that he is talking about? I would appreciate any advice.
I do have a history of irregular periods and excessive menstruation (14 day long periods) but I've been dealing with that for years and the doctors don't think the 2 issues are related.
Medications
Adderrall - 20 mg 2x a day for depression
Seqoquel- 50mg at Bedtime for sleep
Xanax -0.5mg as needed for panic attacks
Clonopin- 1mg as needed for panic attacks
I am new to this forum and would welcome any advice at all. I started the Detrol LA today. Obviously, no effect yet. Is there anything else I can do? Should I seek a second opinion before I let him do this cystoscopy and dilation?? Plus, I am being woken up night after night having to urinate, so I haven't slept in weeks. I am fearful of losing my job. I can't concentrate on my work because I always have to urinate, and I am starting to get dirty looks from the bosses when they see me leaving my desk every 2 minutes.
Plus, seems pretty weird to me that on February 6 I am a normal, active woman...exercises, doesn't smoke, doesn't even drink and than February 7 am a complete mess who needs to urinate every second of the day....and I had no changes at all in my life at that time.
Sorry this is so long. I guess I am kind of just venting.