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Help!!! Chronic testicle, groin, lower back pain!! :'(

I'm a 20 year old male suffering!!!

It's very difficult to describe my symptoms because they always change.  But basically, my right testicle has this very uncomfortable feeling to it.  It isn't a pain but like an achy, dull feeling to it.  It’s like a constant reminder that something is there and out of the norm. When I physically touch it, it isn't painful except for the bottom part of it where I assume is where the epididymis and testicle connect.  It's a very unbearable discomfort since it's chronic and unmanageable.  However, I do have actual pain in my right groin.  After doing my own research, I would call this my spermatic cord or my inguinal canal.  The pain is usually dull but I do have some sudden sharp pains that quickly come and go.  The other main source of discomfort is my lower right back on my pelvis area right above the buttocks.  It feels like this ache that I need to constantly massage to make it feel better.  I feel little rubbery nodules when I do massage this area.  I also feel a tender spot on my actual lower spine.

These symptoms are chronic/persistent.  However, periodically I get the same feeling on my left testicle/groin/lower back.  When it happens on my left side, it doesn't last a very long time.  But there is times when both testicles ache for almost a whole day.

Occasionally, this discomfort/pain radiates down my right butt cheek or down into my thigh or the tendons right above my knee.  When it radiates into these areas, it's only for a short period of time.  However, this referred pain never happens on the left side. Recently, I also began having some discomfort in my perineum area as well but I don’t know if this is related.

This problem first started when I was 18 years old.  During this time, I was checked for STD's and given ultrasounds of my scrotum and kidneys.  I didn't have any STD's nor kidney stones.  But the scrotum ultrasound only diagnosed me for Vericocele.  The Urologist I saw at this time told me it wasn't a big deal and prescribed Naproxen.  I didn't find that any NSAID's helped me.  However, the discomfort ended up suppressing itself for the next two years to a point where I could do my daily activities and not worry about it.

Two years later, or about three months ago, the discomfort came back much worse and persistant.  I went to see my doctor, where after a negative urinalysis; I was given Doxycycline for Epidytimitis.  Didn't help.  I was then told it was Prostatitis.  After having my prostate checked for normal results, I was still put on Levaquin and Flomax just in case.  Didn't help.  I then got a CT scan on my pelvis area where everything came back normal except for scattered lymph nodes in the retroperitoneum and the mesentery that were ignored because they didn’t meet CT criteria for enlarged lymph nodes.

Then I was told it could be my genitofemoral nerve, which runs from my back to my scrotum along my groin.  I was then placed on anti-inflammatory steroid tablets, methylprednisolone.  Up to this point, it was VERY difficult for me to roll out of my bed to do my daily tasks as if it was a simple headache.  After taking the methylpredisolone, I felt as if God was giving me a break. This medication has been the only thing that has helped.  It didn't completely go away but it got to a point where I was no longer climbing up the walls in misery.

After telling my doctor about this, he wanted to send me to a Neurologist to get a steroid shot in my spine since taking oral steroids can't be a long term solution.  However, before being referred, the neurologist suggested to make sure it wasn't a hernia.  So then I was then sent to a general surgeon where he said it wasn't a hernia and that I should get a second opinion from an Urologist.  So then I go to the Urologist where after a negative physical exam on my scrotum, I was told he couldn't help me, but a visit to a Neurologist was his recommendation.   Along with his recommendation, he also believed that it can't be my genitofermal nerve since the location of this nerve is too high and deep compared to the area of discomfort in my lower back.   He also said he would think it's a bulging disc in my spine if the pain is bilateral.  But since the discomfort is chronic on my right side and periodic on my left, I don't know if this would be considered bilateral.

Besides everything else mentioned above, I also tried visiting a chiropractor and trying acupuncture.  After a few visits to both with little to no improvements, I stopped going because I couldn’t keep affording it, especially when I wasn’t seeing improvements.   Now since all arrows are pointing to a Neurologist, I got my referral to see one.
At my initial appointment, I was given a few physical exams and was sent to get an MRI on my lower back region where results were normal.  I found this as a bitter/sweet feeling since my hunt still continued. After following up with the Neurologist, he ordered a second MRI, this time on my pelvis, which also came back normal.
I have hit a dead end and I no longer know what to do. Can anybody help me???? :(

Every time I see a new doctor, I try to have hope that I will find a solution to my agony.  But after being turned down so many times and having so many possible diagnostic solutions fail, I have a fear that I'm going to just have to life with this.  I’m always simply told to take NSAID’s which don’t even touch the problem.  Regardless if I’m laying down, sitting, or standing up, it’s STILL there. Neither sneezing nor coughing tends to make it worse.  Urinating and ejaculation is normal and painless. I can’t find any sorts of trends with this. Sleeping has become very difficult.  I also have feelings of emotional distress, anger, and tension build up since I feel so helpless.

I'm 20 years old and this pain has pretty much taken over my life. I’m now on anti-depressants to stop all the negative thinking that's caused by this (unseen cancer, chronic pain that won't ever be cured or diagnosed). I really wouldn't want to go to an extreme of getting an orchiectomy but I really can't live like this for the rest of my life.
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Avatar universal
I forgot to mention that I always work all day while standing up and I don't feel the pain. I only feel the pain in the evening when sitting down and during the night when I'm lying down.
Helpful - 0
Avatar universal
Hello, I'm 59 years old and have been experiencing the same symptoms: right lower back pain above the buttocks, sore right testicle (but not swollen) and a radiant pain on right side of my right leg down to my knee.

It started 1st with my lower back pain for 4-5 months ago and I took naproxen and/or Ibuprofen with not results.

Then, 5 days ago I started feeling pain in my right testicle along with that radiating pain in my right leg down to my knee.

I walk a lot each day at a fast pace 12,000 steps per day approximately) so I thought it could be my testicle bouncing around during my brisk walk that could be behind the pain.

Anyhow, I've read all the previous answers and I'm having an appointment with my family doctor tomorrow (October 7, 2016) and I'm sure to bring all the suggestions mentioned here.

Will let you know what my doctor says.
Helpful - 0
Avatar universal
same stuff but on my left side infrequently on the right.    when back pain was bad I would take a tennis ball on to a slightly padded surface(memory foam pillow on wood floor is what I used).  lying face up on back with pillow underneath you directly behind the area with most pain.   then take the tennis ball and put directly between the pillow and the area in pain.  slowly push ball down to buttcheeks or down and out.  this has been the only thing to actually make a difference in regards to pain.  

I hope this helps someone
Helpful - 0
Avatar universal
I have the same thing and its
been going on for years but has gotten worse recently. Its exactly like the Original poster. In the past it only hurt for awhile after sex. Now its constant. Any new info?
Helpful - 0
Avatar universal
Johnny Lee describes the symptoms I've suffered since 2009. MRI
showed disc bulge L3-L4 with nerve impingement. Complained of
these symptoms from day 1 with doctors acting like I was F.O.S..
All tasks at work and home are hard and time consuming. 2015 and
getting worse I asked for a referral to another pain specialist. I was told
yet again that my back issues are not causing my groin/testicle symptoms
and prescribed Cymbalta and referred another MRI. Cymbalta has helped
and the MRI showed several disc bulges. My research of my MRI at the
T12-L1 led me to the following. T.J.S. Thoracolumbar Junction Syndrome
and Maigne Syndrome. You'll be amazed how easily this is missed with
what I've read. They don't always show up on MRI and other tests and is
easier found with a physical examination.
I truly believe that this could be my and several other peoples troubles in
the world of back pain, especially if active and athletic.
I hope this is of some help to everyone, as I await my next appointment.    
Helpful - 0
1 Comments
I had similar symptoms. My urologist did several test and a scope and suggested it was a back problem. An MRI showed a bulging disk and degeneration.  He referred me to a physical therapist with training in treatment for the groin a testicles.  After a few weeks of what was basically trial and error we came up with a series of exercises that were core strengthening.  The pain began to ease and is pretty much gone now.  However, if I get away from the daily exercises for a week it all comes back. Two days back at it, gone again.
1. lay on your back, knees and feet up as if sitting in a chair.  Tense low back and abdominals for a five count, release then again, 30 times.
2. 30 leg lifts
3.  Knees bent, feet on floor.  Tense low back a stomach muscles.  Raise knees/feet. Repeat 30 times.
4. Lay on your side.  30 leg lifts. Reverse to opposite side.
5. Plank.  I hold it as long as I can. Usually a little over a minute.
No promises but it worked for me.
Avatar universal
What happened to JohnnyLee. I'm very interested to hear ANY update.
Helpful - 0
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