Herpes causes interstitial cystitis/bladder pain

[sepreh]

It has come to my knowledge, the reason why no doctor or lab can figure out what cause interstitial cystitis is because it comes from herpes, now everyone knows Interstitial cystitis is the outcome.
Find a cure for herpes and we will have a cure for IC.

The cure is in your ph balance.
For some relief.
Try:
1/2 teaspoon of baking soda in a cup and fill it up with warm warter. baking soda needs to dissolve.
I am not a doctor. Please check with your doctor about the side effects of baking soda if theres any.
please do not overdose on baking soda.
Doctotors, have you ever consider thats the reason why ?????????????

[shelly1225cj]

what???where did you here that?????Im told its bacteria, not a virus,, broth culturing is showing its bacteria, based on what ive researched...

[dawn775]

WHAT???? i have IC, and my urologist who is a pro with this DISEASE!!!! for sure IS NOT; NOT FROM HERPES ANYTHING!!!! The FDA just approved not long ago the medicine called Elmiron for oral and vaginal for installations. This DISEASE is by far caused from HERPES. It is almost the same as diverticulitus, as though the bacteria grows ON the walls of a week bladder. alot of cause is due to bladder RETENTION, pelvic surgeries, a major kidney infection, bladder infection, or UTI'S, major amounts of stress. Scar tissue as a child baring mother, or endo can caus this DISEASE, IT IS CURABLE. It is little pockets of infection on the wall of the inside of the bladder. Elmiron takes several several months oral to get into the blood system to take affect, thatswhy Dr. whos it, came up with the wonderful IDEA of " BLADDER INSTALLTIONS" DONE SO BY A CATH INSERTED INTO THE URETHA AND THE MEDS ARE INJECTED INTO THE BLADDER. I have had up to 3 installations in one week, and have first hand seen the debris in the urine sample that the DR. showed me to prove that my bladder was shedding the bacteria. I have now had several installations, and my was due to pelvic surgerys and scar tissue on my bladder and having surgery on my bladder to take and repair from scar tissue. NOT FROM HERPES ive never herd of such a thing. well im no DR, but  my urologist has been study this illness for years and years and is the best Urologist in the Southeast. In order to be properly informed if you have the disease there is a test they can do....and omigosh if you have IC and this test done...YOU WILL KNOW WITH IN 10 SECONDS IF YOUR POSITIVE OR NOT.

[emtd65]

OK - I have never heard of that and I have never had Herpes. I have Lupus (SLE), and endomytriosis and have had adhessions due to surgery -  it is not uncommon for it to come alone with one or more of these conditions - but herepes? I am also very diligent in staying current on my medical conitions as well as who is treating me for them.

[fuzzyfeelers]

Um.. first Elmiron has been around for something like 10-15 years. They have no idea why elmiron works (It is NOT an antibiotic). They THINK it has something to do with coating the bladder since the GAG layer of the bladder is destroyed. Majority of elmiron users find it not helpful. The majority if IC patients will not ever find any help or "cure" for this disease.

There is no scientific reasoning of WHY anyone gets IC. Yes it usually comes with other unknown uncurable disease but doesn't have to. There is no cure.

I can't, nor can anyone, say if it is herpes related as no one knows the cause. There is no proof of bacteria in IC patients as antibiotics do not help. There is a theory that long term (year plus) antibiotics have helped a couple people but you will not find a doctor who will give antibiotics for more than a few weeks.

The tests they do for IC are barbaric. The potassium test is what Dawn was refering to. If you have the symptoms, are in bladder hell... you have IC. There is no reason to go through hellish tests to figure that out. IC patients are VERY sensitive to most ALL foods such as bananas (high in potassium). ONE test (which I would never recommend anyone doing) is to shove a catheter in an already inflamed and swollen urethra and pour potassium in it. If it hurts worse you have IC. Dumb test eh? Let's pour lemon juice on an open ulcer and see if it hurts ok? THEN I'll say you have IC. Absolutely ridiculous.

Again there is NO cure, there is NO known cause, there is NO bacteria, NO virus.

[fuzzyfeelers]

I should also remark that even though herpes shows itself externally for the most part it comes and goes and usually resolves itself. IC never resolves and is a permanent fixture in one's life.

[Petty1976]

Please, Please listen to this:  I was diagnosed with IC a few months ago, Ive been in so much pain. Im taking Elmiron and ES Vicodin daily, like candy!  So, I was chatting with my neighboor who is a Nurse and I told her what I have and she said OMG I HAD (not have, but had) the exact same condition. She told me she saw a very good doctor in Long Beach, Calif who is from Canada and specializes in Viruses!  So, I went to see this guy two weeks ago (paid cash for the visit $60 and the blood test $200) which I didnt mind at all, just find whats wrong. The doc just called me and said I am positive for Epstein Barr Virus which is a Herpes Virus and "LOVES THE LINING OF THE BLADDER".
He believes my IC is caused by this virus. Im going in to see him tomorrow to being anti-viral therapy.
So, I called the Urologist who diagnosed me and he said "Its very controversial and its not a proven fact if viruses cause IC". I then asked him "But it can right?" He said, yes it could be a cause. Call your family docotor and ask to have a VIRAL test panel done to identify if you are a carrier of:  Epstein Barr Virus, Cytomegalovirus and Coxsackie virus B1 and B4. These three viruses love the bladder.

If anyone lives in Calif and wants the name of this wonderful,open-minded, progressive Family Practitioner email me at: ***@****

[nikki48]

Well, if doctors are unsure what the cause of I.C is then i'm sure you yourself without any medical knowledge can NOT say what the cause of I.C is either ? I have had I.C since the age of 5 years old, Herpes is either a virus which gives you cold sores and makes you run down, or an S.T.I, to what i understand anyway ? I've never had cold sores and I can tell you for sure i know i didnt get an S.T.I at the age of 5. It's people like you that make people with a health problem (To no fault of there own, may i add) less able to look for help and understanding, this is a disease, it effects the bladder wall, it becomes inflamed due to many infections. it's something we all as I.C sufferers will have to deal with, so if seeing other peoples NICE comments helps us a little get on with are illness and manage are day to day life a little easier, then so be it. "Thank you" to everyone for your helpful comments, it's nice to know i'm not alone. And for people with the silly nasty comments "i think" you need to read more information before going onto a site that deals with patient comments looking for help off of (helpful people with the same problems, and doctors who are looking to help answer are questions) not be slandered