I don't know what's wrong with my bladder?

[amandax3]

Well I seem to be having some type of bladder problems. I've have been to the doctors two times at the climax of my problems and they officially declared it is NOT a bladder infection. They said the found no bacteria, and they did a culture as well. They still couldn't seem to answer what it is.

So EVERYDAY I deal with this. I have every symptom of a bladder infection. Urgency to go pee, Pain and discomfort, and a lot of pain and discomfort after I go pee. The only thing I have found to cure it was downing a glass of water quickly. If that doesn't work, I then take an AZO pill. Neither of which is working today, which has NEVER happened to me.

Here's my timeline:

May 2008: The first time I had this, they told me to take some Urelle and it would go away. I toke some for a week straight it didn't go away. Went to a clinic they said to watch for back pains, and fever. About 2 days later I got some mild back pain and a low grade fever. I was never taken to a doctor though to check for bacteria. It went away after I downed some cranberry juice everyday for about 3 days.

September 2008: I didn't come back to this month. Now I had it EVERYDAY and it wouldn't go away. I was very miserble, and had to miss school for many days it was so bad. I was then taken to a doctor they did two bacteria tests on two different occassions. Both came up negative. The only weird thing they could find was that my urine was very acidic.

November 2008: I learned to somewhat control it with water. I still had really bad times in which water couldn't cure it. I went on vacation to Disney World, and my whole vacation was ruined because of it.

December-January 2008/2009: I have had it EVERYDAY in these months. Like I said today is a bad one so I have to stay home.

Oh and my family history with UTI's.
My grandma had UTI problems since she was a teen. She couldn't do anything about it at the time. She reports having nothing like this.
My mother had UTI problems since she was a girl. She was put on a daily antibiotic for a year. It was cured. She reports never having anything like this.
I have had UTI's since I was a kid. Around 3 I would say. I would go to the doctor, tests would come back positive, and I would get some medicine, and was treated. I have never had anything like this till May of 2008.

My info
95 pounds
5''4
13 years old.
& no I have not had my period and I am NOT sexually active.

[MSKshelly]

Has anyone ever suggested that you might have IC/Painful Bladder Syndrome!  

A good way to get an idea is to go to the Elmiron website allaboutic.com.  Here they have a Patient pain and frequency scale that you can take to your doctor that will help them determine if you might have IC.  Though  there is no cure for IC their are many treatments that can help your pain!  I have pretty severe IC pain because of some additional issues, but have great coping tools and treatments that my physician and I have found help me.

There are several great sites/organizations that can help you learn more about IC.
the ICA which is ichlep.org
the ICN which is ic-network.com

Our support group is set up mainly to network patients and medical practitioners throughout Missouri and Arkansas, but I have tried to put a lot of articles on the board to help any patient as well.

we are
moarkic.com  it stands for mo for Missouri and Ark for Arkansas and of course IC

One suggestions I would make is to find a good Pelvic Pain Physical Therapist, often they can rule out alot of other issues that might be going on along with your IC or by themselves.!

I hope that gives you some hope and direction!  Please let us know how your doing
and what answers you find!

Shelly Matthewson
Private Researcher
IC Support Group Leader
Director of MOARK Interstitial Cystitis
www.moarkic.com
"And we know that all things work together for
good to them that love God, to them who are the
called according to His purpose."Romans8:28