I wished they would find something that would help with IC. I've had IC since 1992. I does not get better. I have tried everything to get relieve without long term success. I am in horrible pain most of the time. Get very depressing over time. Did Botox help?
I also have IC and am an IC support group leader for patients in Missouri and Arkansas. Though there is no cure for IC there are many things that can help, many coping tools.
The first big thing is diet. If you are not willing to put the effort into not eating the trigger foods your going to stay in pain! The big triggers to avoid are caffeine (including coffee and chocolate,) tomatoes, soda, alcohol, and cigarettes.
There are many treatments that can help however finding the coping tools that work for you take time and work. My IC is kept pretty flared up by some secondary issues, but with a lot of work, trial and error we have found many things to get my flares under control.
Have you tried bladder instills with rescue instill meds, lidocaine sensorcaine a steriod etc. If you have an they didn't work you might try having them use medications with no preservatives. This made a big difference to me!
There is a lot of info out there from the ICA and the IC-Network that can help you.
You can also pm me for the more information, as well.
Director of MOARK Interstitial Cystiti
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.