This patient support community is for discussions relating to urology issues, benign prostate disease, penis curvature, cystisis, pediatric urology, prostate, sexual dysfunction and urological cancers.
I have had interstitial cystitis for over 21 years now. I did not see my urologist for 6 years. I have recently
returned to see him again because my IC seems worse now. I stopped seeing the doctor
initially because nothing really seemed to make a difference in my bladder and I felt relatively okay at that point. Upon returning, some of the ARNPs and PAs did not seem to know the tests and treatments that were available. My question is do you know of a doctor in the Western New York area that has made it a point of treating IC and may
actually have IC patients to gain experience from? The urologist I was seeing me had told me years ago that I probably knew more about IC than he did! Not a reassuring feeling at all.
I can relate when it comes to often knowing more the doctor treating you about your specfic condition. Keep in mine they have 100's of patients as well as condions to keep up on! If they are ope to reading literature you bring in and trying new things they may still be a good choice.
Dr. Moldiwn is the top doctor in the IC movement. he wrote the book THE IC SURVIVAL GUIDE I am not sure exactly were he is. Jewish something hospitial but if you goggle him you will find it. Both the ICA Interstitial Cystitis Association and the IC-network have
list of physicians in different areas aswell as support groups by reagion that might help you find a good doctor/
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.