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It is MSK dangerous

I WAS DIAGNOSES WITH MODULARY SPONGE KIDNEY, I AM 34 YEARS OLD, NO KIDS AND I AM VERY CONCERNED IF MSK WILL TENDS TO KIDNEY FAILURES. WHAT KIND OF RECOMENDATIONS YOU WILL GIVE ME TO PREVENT KIDNEY STONES AND IF MSK IS DANGEROUS OR NOT. THANK YOU.

MS. DIAZ.


This discussion is related to Medullary Sponge Kidney.
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489228 tn?1291531454
HI as Cara said you are not alone there are many of us here with MSK.  I am sorry to hear you have this and know it is scary esp. at first, but we can be here to help you!

I have to say I think we here on the MSK forum with Medhelp have the most complete and best research and information on MSK!  I am glad you found us and hope you will join with us as we seek together to find solutions, learn what to expect and treatment protocols.  Honestly, there is little research done on MSK so we have to work together to make a difference!!

Here is the link to our MSK forum here on Medhelp:
http://www.medhelp.org/forums/show/256?personal_page_id=30644

hope you will come over and join us.  There are many good articles and info to help you as well.  Infections are common with MSK since
the defects in our collecting ducts does not allow the urine to drain properly!  In the healthpages are many articles on MSK and infection as well.
http://www.medhelp.org/posts/show/565929


We do also have new patient forum started and hope to have a researchers group up and running soon:
http://www.medhelp.org/forums/MSK-Medullary-Sponge-Kidney-Disease/show/391

I look forward to you joining us and working with us to help MSKers now and in the generation to come!!

Shelly
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Avatar universal
Did you do 24 hour urines? Your answers are in that. There is a MSK forum here and it is so very helpful. There are many wonderful posts to be found there. Best of luck..Cara
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