Multiple stone former/Lost one kidney

[joan]

I am a multiple stone former made 40 stones in the last 8 years.
I lost the right kidney to Uj obstruction and chronic pylo.  It made about 36 stones before the nephrectony. I have 2/3 functions left on the left kidney and have made four stones, and have lots of pylo infections. All metabolic work ups were normal except an elevate hypercalurea. I also have had GI surgery for a servered duoduem and a gastrojujuemostomy from a car accident twenty years ago.  I have GI malabosbtions of iron giving me chronic amenia.  The only way to keep my levels up are I.V. Iron injections.  Now I am getting califications in the breast with carcinoma inductal insitu. The combintations of problems I have done numerous literature searches and have found no cases of people who have made forty stones in such a short period of time.  I want to believe that their is some advice or under lying pathlogy causing my body to going  crazy! My local doctors only treat my symtoms and no answers to why my body is going crazy? I was hoping for some directions on what to look for next, as I watch and wait for my body to destroy its self?
                                 Frustrated,
                                       Joan, in Utah.

[hfhs M.D.-AK]

Dear Joan,
It sounds like you have a real problem.  You have several issues that must be resolved before a treatment plan can be derived.  Number one, you need to know what your stones are made of, are they infectious stones, calcium oxalate, calcium phosphate, or cysteine stones?  Number two, you need to know exactly what portions of your GI tract are functioning and how much was removed from your operation.  Number three, is your body functioning in a chronic acidic state? Number four, is your kidney stone free, or are there chronically infected stones that keep causing problems?  Number five, does your remaining kidney function adequately?
These are just a few questions that must be answered before you are going to make any headway.  If your metabolic work-up was not done to your satisfaction, you need to have a 24hr urine collection and SMAC CBC with minor electrolytes.  This should be followed with a second 24hr urine test on calcium reduced diet.  Finally, routine radiologic studies (IVP, KUB, Spiral CT scan or ultrasound ) need to be done to confirm a stone free environment.  In the mean time, drink plenty of fluids to keep your urine clear.
I don’t want to suggest treatments at this time because I don’t know what your metabolic or absorption problem is at this time.  You first need a diagnosis and then treatment will follow.  With the number of stones that you are making, you are considered an active stone former.  The chain of events leading to continual stone formation must be broken before prevention can be successful.
This information is provided for general medical educational purposes only.  Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition.  More individualized care is available at the Henry Ford Hospital and its satellites (1 800 653-6568).


Sincerely,
HFHS M.D.-AK
*keyword:Urniary calculi

[AK-HFHS]

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[teri]

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