Neurogenic overactive bladder, what next?

I have had bladder infections since I was a young child.  I had a hysterectomy at 24 due to serious endometriosis.  In my 40s I was having bladder infections still, but also constant urination and leaking.  In the past 5 years, I have lost total urine control at least 3 times.  I mean the floor was totally flooded, not just a little discharge.  This happened with no warning whatsoever and was horrible to say the least.  That happened to me a couple of times when I was a child.  The doctors told me during the recent times that it is because I had infections.  I thought that was weird.

The urodyn tests have been run at least twice.  I have been told I have neurogenic bladder and overactive bladder.  I am on several medications and I am going through physical therapy for the pelvic floor.  It isn't too hopeful.

Should I get more tests of some type?  Are my kidneys possibly involved in any way?  A suggestion has been made to do something to me and have me totally catheter, as is sometimes done with MS patients.  I am MS possible.  

I am miserable most of the time.  I never know when I have a bladder infection until my back or legs hurt, I can't tell otherwise.  

[rmprdl1964]

Hi, I have been diagnosed as having a neurogenic bladder. This is also in standing with a neurological conditon that I have.

From 1994 to 2003 while I was still able to work, I used to come down with UTI and kidney infections about every 3 to 4 months requiring hospitalizations for about a week at a time where I was given antibiotics through and IV.

The diagnosis of a neurogenic bladder was made in 1996 after a urodynamics test. I started to self cath once a day before going to bed. The infection rate did not seem to differ. In 2000 I started to self cath several times a day and the infection rate dropped significantly.

I still get the infections but not as often or as severe as it used to be. Currently I have a suprapubic cathteter in due to other urological problems. Due to these urological problems I have had another 3 infections in the last 6 months. This is not due to the catheter but directly to the urological issues.

I feel that self catheterization does make a difference. The urologist however does think that I caused the catheter to create a hole between my prostate and rectum. Therefore getting these infections. It is a risk of self cath. but I have also had surgery on the prostate and bladderneck. it is possible that this had weakened the area.

All the best

[rmprdl1964]

Hi, I forgot to mention that I have had times where I have lost control over the bladder. This seems to be agrevated when an infection is present.
For this I use a condom catheter to take care of urine leakage. I'm not sure as to what is available for women.