: : In the early 80's I had first a punch biopsy, then a strip biopsy performed on my bladder due to repeated, acute UTIs. I was told the strip biopsy confirmed I had "Necrotizing Cystitus", but not "Acute Necrotizing Cystitus". The difference, I was told, was the Acute form meant the bladder was literally being 'eaten' by the disease. I was told to avoid baths, scented or colored toilet paper, and oral sex.
: : Two years ago, another urologist was confused by this diagnosis, and discussed it thoroughly. He had never heard of Necrotizing Cystitus, but believed I was describing a form of Interstitial Cystitus. Both had told me I would have cancer of the bladder if I didn;t stop smoking. I was sent to the utologist 2 years ago because I woke up passing blood in my urine, along with pain. As the GP put it, "Gross Hematuria". No cause was ever found. A cystoscopy was not performed since I had no insurance and could not afford it.
: : Is this new diagnosis the 'new name' for the old? have you ever heard of necrotizing cystitus? Is there anything I can do, besides drink lots of cranberry juice?
: Thanks Mithranda for your question.
: Necrotizing cystitis is a rare form of very severe interstitial cystitis, when the bladder wall is so inflamed it becomes infected with bacteria and cell death occurs . This is a serious condition and is a indication for removing the bladder surgically. The word acute, literally means
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