Hi,
As your daughter is only 23 years old, it would be better to have certain tests done to rule out the possibility of any autoimmune disorders causing neurological pain. This will need to be evaluated by a neurologist who can also assess the cause of her persistent pain.
She appears to have gone through a lot of medical and surgical intervention in a short span of time and her body would still be recovering from the stress of it all. This would increase the time her body would take to recover and could partly explain persistence of the pain. She needs supplementation of essential micronutrients and omega-3 fatty acids to help heal the injured mucosa and to restore nerve function, though this may take longer.
Self-catheterization is obviously not a long-term option given her age and it would be better to explore options, such as indwelling urethral stents, for helping her void, if her problem is due to an overactive sphincter. If she is unable to appreciate the sensation of bladder filling, it would be difficult to correct the problem. There are few cholinergic drugs that can help with stimulation of effective voiding, but these have their own set of associated side effects.
There are other measures for pain management, such as TENS, but they will need to be evaluated based her current state of health.
Would it be possible to update her current symptoms and the medications she is on, plus the interventions and all procedures that she has undergone (other than that mentioned in your post here) along with the results for her blood tests and other investigations?
It would help to get a better idea of what she may be having, and could help with a more specific response.
regards
PLEASE HELP !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I NEED ANSWERS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
SUGGESTIONS !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
ANYONE OUT THERE ?! DOCTORS ?!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
NURSES ? Other patients that have been through this ?
URGENT !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Can't wait !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
PLEASE !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
PS....Oops....almost forgot to mention....there was also a surgery to remove stones.
(That was done before the last bladder/cystisis thing.)
Concerned Mother....Anne99