Hi Ron:
I went to a nuerologist and after a number of tests, it was his determination that my nerve stimulator implant is causing the issue, and not the prostate, He ran blood tests which showed no infection or inflammations of any kind(which may be because I am on antibiotics). Anyway, he has me turning down the stimulator to the lowest level that still works and slowly increasing the lyrica and see if I get relief. BTW I have been on docasozin for months now (Generic equivalent to flomax) - I tried that first when they thought maybe BPH but that alone did not work. I am also going to start accupuncture today to see if that helps.
Good luck you in the upcoming surgeries - lets hope we both find relief.
Hi, Thank you for sharing the link with me.
I have had a catheter in from March 2008 up to may 2009. After this they put a suprapubic catheter in.
I will have my next cystoscopy and review in March 2010.
In my case it will be a big and complicated surgery. From all that I have read, I most likely will have a temporary colostomy as well. (someting that I dread)
Even though prostate surgery has changed, urologist will often use alternative treatments prior to using surgery. I can somehow understand as to why this approach is used. We live in a sociaty where a doctor can be sued when complications can be found to partialy be the outcome of a surgeon's skill. I know of a case where this has happened.
I'm a bit surprised that they have you taking Lyrica. This drug is used for neurological problems. I'm on simmilar medication for neurological issues. I use Amitriptaline.
The other thing that I'm surprised with is that they don't have you on drugs like Flomax or simmilar.
Prior to getting the fistula, I have been using intermittant self catherization due to a neurogenic bladder. The urologist had me using Flomax so that normal urination would be easier. Eventhough I had to self cath the Flomax made a difference during normal urination.
As for dyscomfort from the prostate, I don't know what you can do. I'm on morphine to control pain from the pubic regeon as well as for neuropathic pain. There are times that the Morphine does not seem to be able to control the pain.
Even if a urologist was to remove your prostate, it would no garrentee that it would also take care of the pain, aspecially if it is a neuropathic pain. An example of this is that I have had an orchiectomy of my left testicle. Eventhough it is no longer there, I still experience pain and dyscomfort of a testicle that I no longer have.
I hope that you will be able to get relief from your pain. Talk to your doctor about possible other medications to control pain. I used to be on Percacet (endocid), but was changed to Morphine since it targets the source of pain better.
God bless.
Ron
Hi Ron:
With the advent of laproscopy and Robotoic Assisted surgery, it seems form what I read that the surgery to remove the prostate, while still major, is alot safer and has less complications than the old standard open removal surgery. They make a series of small cuts rather than one large one, you only stay 1-2 days in hospital, only have catheter about a week, and the surgeon is better able to preserve the nerves that control ED and incontinence, redusing the risk. Maybe you should lok into a hospital/urologist that uses Robotic Assisted surgery - http://www.davinciprostatectomy.com/locator/index.aspx
Hi,
I have been bothered by prostatitis and urinairy obstruction in 1995 at the age of 30.
I received a TURP and resection of the bladderneck.
I too had asked about the option of removing the prostate. It is not as easy as it sounds and can leave you with a number of complications. ED, incontinance are just two of the complications.
Now at the age of 45, I have a fistula (hole) between my prostate and rectum. Surgery to repair tis is complicated and I had mentioned the option of removing the prostate to thereby closing the fistula. It appears that this is not the answer. It could leave me with more problems than I have now.
Ask your urologist to give you a list of all the complications that might occur by removing the prostate.
All the best.
Ron