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Urology (Expert Forum)
Re: New name for an old disease?
Questions in the Urology forum are answered by Dr. Stephen Liroff, affiliated with the Henry Ford Hospital. Topics covered include benign prostate disease, penis curvature, cystisis, kidney stones, pediatric urology, prostate, sexual dysfunction, urinary tract infections (UTI), and urological cancers.
Re: New name for an old disease?
by HFHS M.D.-MS, Jan 01, 1995 12:00AM
Posted By HFHS M.D.-MS on June 15, 1998 at 18:01:54:
In Reply to: New name for an old disease? posted by Mithranda on June 11, 1998 at 08:41:57:
In the early 80's I had first a punch biopsy, then a strip biopsy performed on my bladder due to repeated, acute UTIs. I was told the strip biopsy confirmed I had "Necrotizing Cystitus", but not "Acute Necrotizing Cystitus". The difference, I was told, was the Acute form meant the bladder was literally being 'eaten' by the disease. I was told to avoid baths, scented or colored toilet paper, and oral sex.
Two years ago, another urologist was confused by this diagnosis, and discussed it thoroughly. He had never heard of Necrotizing Cystitus, but believed I was describing a form of Interstitial Cystitus. Both had told me I would have cancer of the bladder if I didn;t stop smoking. I was sent to the utologist 2 years ago because I woke up passing blood in my urine, along with pain. As the GP put it, "Gross Hematuria". No cause was ever found. A cystoscopy was not performed since I had no insurance and could not afford it.
Is this new diagnosis the 'new name' for the old? have you ever heard of necrotizing cystitus? Is there anything I can do, besides drink lots of cranberry juice?
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Thanks Mithranda for your question.
Necrotizing cystitis is a rare form of very severe interstitial cystitis, when the bladder wall is so inflamed it becomes infected with bacteria and cell death occurs . This is a serious condition and is a indication for removing the bladder surgically. The word acute, literally means of sudden onset. These names are probably synonymous. Hopefully you have insurance now or can afford a cystoscopy to further specify your diagnosis.
More individualized urological care is available at the Henry Ford Hospital and its urban campuses by calling (1 800 653 6568). We can also arrange local accommodations through this number if this is your need. Please bring any physicians notes and lab test results that you may be able to obtain. These will help us greatly.
This information is provided for general medical education purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition.
Sincerely;
HFHS-M.D. MS
* Keyword: necrotizing cystitis, interstitial cystitis
In Reply to: New name for an old disease? posted by Mithranda on June 11, 1998 at 08:41:57:
In the early 80's I had first a punch biopsy, then a strip biopsy performed on my bladder due to repeated, acute UTIs. I was told the strip biopsy confirmed I had "Necrotizing Cystitus", but not "Acute Necrotizing Cystitus". The difference, I was told, was the Acute form meant the bladder was literally being 'eaten' by the disease. I was told to avoid baths, scented or colored toilet paper, and oral sex.
Two years ago, another urologist was confused by this diagnosis, and discussed it thoroughly. He had never heard of Necrotizing Cystitus, but believed I was describing a form of Interstitial Cystitus. Both had told me I would have cancer of the bladder if I didn;t stop smoking. I was sent to the utologist 2 years ago because I woke up passing blood in my urine, along with pain. As the GP put it, "Gross Hematuria". No cause was ever found. A cystoscopy was not performed since I had no insurance and could not afford it.
Is this new diagnosis the 'new name' for the old? have you ever heard of necrotizing cystitus? Is there anything I can do, besides drink lots of cranberry juice?
---------------------------------------------------------------
Thanks Mithranda for your question.
Necrotizing cystitis is a rare form of very severe interstitial cystitis, when the bladder wall is so inflamed it becomes infected with bacteria and cell death occurs . This is a serious condition and is a indication for removing the bladder surgically. The word acute, literally means of sudden onset. These names are probably synonymous. Hopefully you have insurance now or can afford a cystoscopy to further specify your diagnosis.
More individualized urological care is available at the Henry Ford Hospital and its urban campuses by calling (1 800 653 6568). We can also arrange local accommodations through this number if this is your need. Please bring any physicians notes and lab test results that you may be able to obtain. These will help us greatly.
This information is provided for general medical education purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition.
Sincerely;
HFHS-M.D. MS
* Keyword: necrotizing cystitis, interstitial cystitis
