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Sclerosing Lymphangitis treatment?
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Sclerosing Lymphangitis treatment?

About a week ago, I developed what appears to be Sclerosing Lymphangitis after extensive research on the internet.

I was quite alarmed when I first noticed something so hard under the penile skin. I could tell it isn't a vein because there was no blood in it. Since it was earthworm in size and moved freely under the skin, I thought for a moment that a parasite had got into my penis. I dismissed the idea fairly quickly since the hard "vein" branched at the base of the penis head. (And that I had not been anywhere exotic to get such a terrible parasite.)

The inflamed lymph node starts mid left shaft and then branches into a ring which circumsizes under the head about 190-220 degrees around. The content appears to be opalescent and is made up of several close together nodules and is very firm to the touch. There is no pain other than some external irritation "rub raw" feeling at the point of genesis half way up the penis shaft. I believe I've had this same irritated feeling at this point before the SL appeared, so I can't say it is strictly SL-related. Although, maybe it was a precursor to the SL flaring up.

There seems to be very little information on this condition and no pictures that are that clear. I took a picture of mine so it helps people ID potential other cases.

Since the etiology and resolution is unknown, I'm not sure why people are recommending no sex or masturbation. What is this guidance based on? If it could last for months or years, I don't think this is realistic "wait and see" guidance for someone married like myself. I haven't seen anyone confirm that continued agitation makes the condition worse or prolong it's recovery. I'm also not sure what "worse" would look like.

The internet sources says this is harmless and will go away on it's own. Again the etiology is unknown but seems to appear after rigorous sex or masturbation. I can confirm that I tend to be rigorous during my sex, and this did appear the morning after a rigorous session.

Does anyone has additional information on this? I also found a couple references to surgically removing it but it was generally discouraged since it tends to resolve on its own. Not sure what prompted the surgeries in the cases that are referenced.

Is it accurate that there have only been ~150 cases of SL ever reported? If so, this would explain why there are only a handful of people on the internet seeking answers and very little information out there. I'm surprised there are no updated pictures that I could find except from the 1973 article.
Tags: sclerosing lymphangitis, hard vein, lyphocelle, penis
29 Comments Post a Comment
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1711789_tn?1361311607
Hi there!

Sclerosing lymphangitis of the penis is a common condition that occurs due to partial or complete blockade of lymph vessel due to clot formation after traumatic sexual activity. Usually one may experience a dilated lymph vessel which may feel beaded with mild discomfort. The condition is usually benign and settles on its own as the clot dissolves and hence sexual activity needs to be cut down to promote healing.
Hope this is helpful.

Take care!
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Avatar_m_tn
Thank you for your reply. I didn't realize this was a common ailment.

As an update, after about 1 week, the issue resolved. I think this is a bit faster than is usually reported.

Of note is that I did not reduce my sexual activity although this is generally recommended. I still haven't seen why reducing sexual activfity is recommended since it's not really an inflammation problem but a blockage issue. I would even argue that maintaining normal sexual activity would cause faster resolution because you're stretching and opening similar areas of the penis that caused the issue in the first place.

I also want to mention that the hardness did not completely go away, there is a thin hard line where the lymph is. I saw a urologist and he said this is probably scarring from when the lymph was expanded and it would not go away. Fortunately, there is no pain associated with the remnant scar tissue.

I hope that more information can be made about this condition since it is very scary when it happens and you don't know what it is. I'm guessing men are reluctant to talk about it so it goes under reported.
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Avatar_f_tn
Hey I'm not so sure the thin hard remnant of what was there is permanent scarring and not going to go away.  I am in that same state you are with this after about a 3 week bout with this scary condition.  But, my understanding from all the literature I have read on both SL and Mondor's is that both generally resolve completely, even if it takes months.  Plus, they generally don't leave behind sufficient permanent scelrosing like you are referring to.  So, keep the faith man.  I still think our thin hard lines will either gradually fade away or suddenly disappear one day. Don't u kind of agree? Few doctors know enough about this stuff to know that what we are dealing with at this point is permanent.
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Avatar_m_tn
Should the clot formation not resolve itself after several days is there a surgical or non-surgical remedy?
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Avatar_m_tn
I have what looks exactly like this, though it is at the base of my penis and rather than feeling hard it is soft as if it was fluid filled. It is also only visible while erect but the only pain and discomfort as described by the original poster is a rubbed raw feeling at the point of genesis
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Avatar_m_tn
There is some bad info here, and lots of bad info on sclerosing lymphangitis/lymphocele on the web.
Webmddotcom urology subforum is the best place to learn about sclerosing lymphangitis. If you keep irritating it from sex/masturbation it will keep getting worse. I know all about it I had if for YEARS after incompetent urologists told me I had nothing. Endgame was after a while even touching my penis flared it up and it hurt. It is definitely an inflammatory process. Some people are lucky I guess.
The original posters penis looks REALLY bad, and it went away quick. Mine is hardly noticeable on visual inspection, but my god did the symptoms get bad, we are talking pain, and lasted many years, because I kept irritating it, it only started getting better once I started a hands off policy. it can take weeks or in mine and others case many months.
Be smart, you only get one penis.
STOP touching it, unless your very lucky, it is the only way to make it go away....
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Avatar_m_tn
Thank God I'm not the only one experiencing this problem. Whew! I've had it for a week now, and it has not subsided. I really wish there's something I can take or apply to speed up the recovery. I haven't touched my penis since it says that it will only worsen up the inflammation. But damn, its hard. Thank you robotmanblue for posting this. What you said really did make me feel better and less worried. But guys, will putting ice on it help? Or maybe a warm compress? I really wish it disappears soon.
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Avatar_m_tn
I really don't think you have SL.

SL:
is not painful to the touch
it is noticeably large
it has a hard, beaded feel to it
does not flare up upon touch
does not last for years

It sounds like you have more of some time of auto-immune response. Have you tried some sort of class 3 anti-inflammatory cream like Elocon?
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Avatar_m_tn
Just a quick update 5 months later, I don't have any sign of SL and don't even think about any more unless I get a notice that someone made a post here.

I still stick with my original advice of just continuing with your normal sexual behavior and the SL will resolve itself on its own. Normal movement will allow the fluid to return to its source. Reducing activity will only prolong recovery since the fluid will just sit there longer.

Although SL is a scary and strange thing it is only temporary!

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Avatar_m_tn
Yeah, it is definitely sclerosing lymphangitis. It doesn't always look freaky like yours.
And this is bad advice you are giving people. COMPLETE ABSTINENCE is what is needed.
It is an inflammatory condition/ INJURY, touching and pressure will not make it go away. And in many cases will make it worse. Repeatedly messing with it could cause scar tissue to form.

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Avatar_m_tn
In your defense there is a lot of bad info about sclerosing lymphangitis on the net:
you wrote:
is not painful to the touch  (it sure can be)
it is noticeably large  (it doesn't have to be, look up pics)
it has a hard, beaded feel to it (it can but doesn't have to)

does not flare up upon touch  <---THIS IS THE CAUSE

(you cannot imagine the hell my life has been since I applied a bunch of pressure to it, the sky is the limit to how bad this condition and it's inflammatory response can get: think. Bloated swollen red entire penis, painful erections that lasted months)
AND YES, that is sclerosing lymphangitis

does not last for years (if you keep messing with it it can, that's why mine has)

Bottom line, learn about it in the links I posted.

And I'm just trying to make it so people don't have to go through what I did, you cannot imagine. It is slowly getting better, but only because I don't touch it.  
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Avatar_m_tn
Do not put ice on your penis. that could cause permanent damage. And since this is an inflammatory condition (heat), a warm compress isn't a good idea.
There is a cream that I and many others are using for this condition. I have no affiliation with the company that makes it.
But I at least FEEL it REALLY helps to speed up the healing process. Truly I never thought a "cream" could have such an anti inflammatory effect, but this really does the job. I highly recommend it, and wish I started using it earlier.

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Avatar_m_tn
unreal......looks like some places are more about ad revenue than helping people.

exchangesdotwebmddotcomslashurology

also you can search google

"What is this hard "vein" and swelling on my penis"

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Avatar_m_tn
too bad they took down the pic.

sclerosing lymphangitis is a very specific condition ... sclerosing means "hardening" and lymphangitis means "swelling of the lymph node." SL specifically is just the hardening of what looks like a vein in the penis as described in the original post and what the picture looked like. it does not affect the entire penis and it does not flare up when touched.

there are many inflammation conditions that can affect the penis. SL is not an inflammation condition. it is caused by specifically by a blocked lymph node that can not drain the lymph fluid which is what causes the lymph node to swell and become hard. it is not an injury and it is not permanent.

wronged - i really believe your condition is some type of inflammatory condition. it has no symptoms of a blocked lymph node.  i encourage you to seek an anti-inflammatory course like elocon cream. i think you find your solution there.
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Avatar_m_tn
Hi RMB,

I found your post really helpful, so thanks for being so thorough with it.
I may have a case of the same thing, and have had it for nearly a month, and would like to show you my medhelp post and ask if it is similar to what you had.

The post is here:
http://www.medhelp.org/posts/STDs/Lymphocele-or-something-more-serious/show/1966784#post_9230248
The picture of my case is here:
http://www.medhelp.org/photos/show/9230230?type=posts

The feel of it today is more cordlike under the skin, though there is still a beady, small blisterlike bump in the middle of the formation.

The description of what you had sounded mostly very similar to what I have.

Does this sound like what you had at all? Seemed like yours was more extensive and quicker to disappear. I'd appreciate a moment of your time to take a look and get back to me.

Thanks.
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Avatar_m_tn
Hi CG.

Thanks for your post and your pic.Sorry they took down my pic. Unfortunately I can't find the pic I took and obviously can't recreate it.

It does look like the same thing and location on the penis but just a fraction of what I had. Mine circled the whole shaft and also had another piece running up and down.

All your other symptoms (cord and bead-like) are also consistent with SL so I'd be comfortable with diagnosis.

I think the worst part is just the mental part of knowing it's there. Fortunately there's no pain associated with it. I hope your resolves soon. Again, contrary to most advice, I encourage continuing normal sexual activity to try and unblock the lymph so it can drain.
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Avatar_m_tn
I found the original picture. Here it is:

http://i1156.photobucket.com/albums/p567/robotmanx/Medical/IMG_4251.jpg
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Avatar_f_tn
When my penis becomes erect it pains me sseverly and it started after I masturbated vigorously. That was since febuary of this year. Unfortunately I haven't indulged again up till this moment but my penis still hurts when I get early morning erections. Very painful in my own case the penis looks very normal but it pains me severly. I would love to take medication I need advice.  
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Avatar_m_tn
I also have this condition off and on, it has healed on its own then returns usually after using a constriction ring. So , just want to caution this can also be caused by constriction rings. While I am not a Dr. I assume this is an absolute no-no for anyone with this condition as they will lessen the flow from the area. Especially no constriction ring while this is condition is present.  I would appreciate feedback if this is the cause of others....

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Avatar_m_tn
Hey man.  I've had the same thing happen to me and it hasn't gone away for years.  It also happened after a week of engaging in lots of sexual activity with my girlfriend at the time (we didn't live in the same town) and I went to two urologists who said it was nothing (and charged me for it).  Fast forward almost 5 years later and it's still there.  I still have the ring underneath the head but do not have the vein that goes down the shaft in your pic.  Newer health sites like healthtap have started recently so I asked their community.  A verified urologist also identified sclerosing lymphangitis and noted to use an inflammatory cream if there's discomfort.  There's no discomfort but it's odd the ring is still there.  One of your posts said you have a 'scar' ring remaining?  Did your ring eventually go away completely?  I'm wondering if a general anti-inflammatory cream would work.  I'm tempted to try.
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Avatar_m_tn
Re: Constriction rings- I never had this condition before using a constriction ring(having only done so twice when it occurred to me using them was probably a VERY bad idea). I would discourage men from EVER using constriction rings  for this reason as I feel doing so can cause problems like this and it just isn't worth the trouble and strife in the long run.
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Avatar_m_tn
Re: Constriction rings- I never had this condition before using a constriction ring(having only done so twice when it occurred to me using them was probably a VERY bad idea). I would discourage men from EVER using constriction rings  for this reason as I feel doing so can cause problems like this and it just isn't worth the trouble and strife in the long run.
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Avatar_m_tn
Things are still not to clear for me that's why i'd ask #wronged and #RMB since they seem to know the most on the subject what they think the situation is in my case. Under the head of my penis i have a similar vein like bump and its been there for almost 6 months now. Usually when not abused it totally disappears and is totally painless, but often it is slightly visible, and after masturbation it increases again just slightly, but after sex it really pops out grows to 5-8 times its size although it remains relatively painless. I'm guessing it is disturbed by touch and like i said sometimes its very noticeable sometimes not at all visible. My question is to redmanblue is that does your problem remain visible at all time, does the appearance change at all, to wronged what kind of cream did you advise (possibly not limited to US because Im european) and to both of you would you say it is maybe Sclerosing Lymphangitis or Mondor disease? Thanks for the help and here is a picture my problem looks significantly similar to this one:

https://www.google.hu/search?q=Sclerosing+Lymphangitis&rlz=1C1CHMO_enHU551HU552&espv=210&es_sm=93&source=lnms&tbm=isch&sa=X&ei=Lk_QUrvAFq-AyAP6ooGwCg&ved=0CAkQ_AUoAQ&biw=1366&bih=623#facrc=_&imgdii=_&imgrc=GWVsV1T9neq9JM%253A%3BfmB6fiYNFTc2JM%3Bhttp%253A%252F%252Fwww.eskin.com.tw%252FDB%252FUpload_SickOnline%252FL20080209135347.jpg%3Bhttp%253A%252F%252Fwww.eskin.com.tw%252FSickOnline.asp%253FBlockName%253Dview%2526SO_ID%253D3770%3B640%3B800
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Avatar_m_tn
Also i had a medium grade varicocele and also i dont know the english word for it but the cord on the bottom of the penis connecting the tip with the rest (frenulum) was short and gave a bit of a straining feeling during intercourse and i was thinking maybe this two things caused the possible Sclerosing Lymphangitis but its just a guess. 3 weeks ago i had a surgery for the varicocele and frenulum and it might have had a positive resolution for the Sclerosing Lymphangitis problem although im still in the healing process and haven't had sex since the surgery. On a second note what confuses me the most is that my symptoms are sort of the combination of yours wronged and RMB because my problem has been going on for a while now and it isnt that noticeably large at all only after sex!! but it doesn't really hurt either
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Avatar_m_tn
noticed i tagged wrong in my first post so please read above as well
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Avatar_m_tn
Hey, I got this after wearing a **** ring for 3-4 hours too
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Avatar_m_tn
I too have medium grade varicocele and now this. Has the surgery helped? is it painful?
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Avatar_m_tn
An update about 18 months later...

This has reoccurred a few times over the last 18 months and I concur with rk_voyager that it is always when using a constriction ring and being a little vigorous, taking Cialis so I'm extra hard, etc.

Here are my current conclusions:

►  The constriction ring blocks the lymph flow by turning the lymph channel opening into a of one-way valve. It only lets fluid into the channel while the ring is on. (That's also how a constriction ring works on a blood vein to keep you hard, also--blood flows in, but it can't flow out.) Through vigorous play, the lymph is being pumped in to the lymph channel, building up the lymph pressure. Eventually the lymph pressure against the channel opening gets to a point where it is high enough where the valve can't open to let the lymph fluid out even after the ring is removed.
  
► Contrary to most advice--and as I have mentioned several times above--more activity will make it resolve faster. Although i don't think anything bad will happen by not touching it, I do think it resolves instantly or very quickly if you are a little rough. My theory is that this "reopens" the blocked channel by stretching the opening in a certain way to allow the lymph fluid to squeeze through the valve opening, allowing the valve to open more, and the lymph to drain.

► I have even been successful at "milking" the lymph fluid back out of the channel through the point of where the constriction ring was. By putting firm pressure on the top of the hard lymph channel and sliding downward the shaft, the liquid will drain. Since the lymph channel is under the skin, it's easy to slip around so you do need to apply firm pressure as you slide down the shaft. I find it easier sometimes to start closer to the constriction ring point, clear that area out first and then work your way out so you're only moving a small amount of lymph at a time.

Hope this helps. This again is my experience with what I believe is SL. You're experience will vary...
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Avatar_m_tn
hey guys so ive seem to come down with this ******** ive had it for a week now i didnt know what it was till just now i maintained normal activity and its still here, i will say tho when i have an erection the sl was barely noticable anymore but then when the erection subsided the sl was back so idk what to do keep maintaining normal activity or stop everyone is saying two different things i wish there was research done on this so men in the future know what helps it go away quicker
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