Self catheterising

I've been self catheterising for about four months now ( looks like it will be for life ) I just wonder if anyone out there has had any of the issues I'm having.

I have a lot of pain in my urethra . Not generaly during the procedure itself but seemingly randomly. The urologist just sort of shrugs when I tell him about it !

Also for the last couple of days I have passed a substance I can only describe as 'limscale' you know like what you find in the kettle , It was quite painful and I wonder if anyone has ever heard of this before ?

[sherrieP]

Hi 1Twinkles1, welcome to the Urogynecology community!

This is a question for urology (this forum specializes in pelvic organ prolapse) so I'm going to contact administration and have them foward your post on to them.

Good luck!
Sher

[sparky2call]

What is the root cause of you having to self-cath?

[1Twinkles1]

Hi sparky2call

I have an Atonic bladder. I'm unable to void at all without using a catheter.

[rmprdl1964]

Hi, I too self cath but currently have a suprapubic catheter due to a fistula.
I too have had pain as a result of the self catheterization. At times I have had a scaly type substance in my urine. This was really effident from the collection bag's tubing.
Currently I have had this really bad and have seen my doctor for this. After a urine culture was taken it was discovered that I have a UTI again.
It could be possible that you might have a UTI as well.

For the pain or discomfort of the urethra you could ask of the following, Xylocain jelly 2% or 5% cream. For any possible bladder spasms you could ask for Buscopan. Due to other neurological and urological problems I use Morphine for pain.

I hope that you will be able to get some relief, as I know how it can wear you down.

All the best.

Ron

[1Twinkles1]

Thank you Ron , I will ask about the things you suggest.
It's good to know I'm not alone.

Nikki ( aka 1Twinkles1 )