Urethra too small 13 yr old girl

My daughter has had urinary incontinence (small leakage) since she was about 6yrs old, however I always thought she just had not wiped well after urinating & that was why her panties stayed damp. About four years ago she started having abdominal pain & blood in the urine lots of blood. For several years the doctors treated her for urinary tract infections but it never got better.  When we went to the urologist about a year ago he did a cat scan for stones (found none), then this year an IVP (normal) then in May 06 a cystoscopy. She constantly complained that she never felt like she could empty her bladder when she went. It just would leak without any urge or warning she wears pads everyday. (right now)  He said her urethra was the size of an 8 yr old child & she is 13.  He said the scope was difficult to even get into the tube. In his words he stretched it & said he hoped it would stay, but said it may not. It was alot better for a while but about 2 wks later same symptoms occurred. Also she has not had her period yet & still has bleeding off & on. We went back to the Doctor & he said there is nothing that can be done just hope her urethra grows to fit her body.  I asked what if it doesnt & his exact words were "well she will just have to live with it for the rest of her life" she was upset & so was I. Is this true? Is this condition considered Urethra sricture a birth defect? If so please tell me that there is a procedure that could correct this to some degree. What she is dealing with at her age is very difficult & uncomfortable. Also, if there is a doctor u could suggest that is familiar with this or similar pediatric urology problems would be a great help. Someone in Florida would be great.
Thank you

[Kevin Pho, MD]

I would suggest another referral to a pediatric urologist for another opinion.  

Repeated urethral dilation can be considered, and there is a possibility that the condition may be long-term in nature.  

Depending on the severity and location of the stricture, stenting can be considered.  

I would discuss this option in conjunction with another opinion, preferably at a major academic medical center.  

Followup with your personal physician is essential.

This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.

Kevin, M.D.
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