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bladder spasms even with super pubic catherer
With ms, had to have super pubic catherer put in, as oral drugs made mouth too dry. Bladder was giving me such a fit the super pubic was the way to go, per Urologist.
I now have spasms where urine does not go in leg or night bag, but comes out my uretha.It makes my life miserable as I thought this would take care of problem, but I now limit where I go.
Any suggestions? I also wear thre oxytrol patch. Does anyone else have this type of problem?
Thanks,
Sentimental
I now have spasms where urine does not go in leg or night bag, but comes out my uretha.It makes my life miserable as I thought this would take care of problem, but I now limit where I go.
Any suggestions? I also wear thre oxytrol patch. Does anyone else have this type of problem?
Thanks,
Sentimental
The drugs that you have mentioned did not help me with urological problems, like spasms and cramping. Currently on Elavil. I had been on Neurontin and just recently tried Lyrica but it did nothing for the bladder problems that I have.
The last few years I now also have started to experience bowel problems, in the form of fecal retention at times and diarhea at the other extreme. Some of the doctors that I have been seen by told me that it can be due to the neuropathy that I have.
When the bladder spasms and cramping get to be too much for me, I can get very short term relief from sitting in a hot bath. However as soon as the water cools or when get out of the tub, the pain returns. Timing my Morphine right is very important. I take it when I experience pain and then go into the tub. I have to let my wife know as I have fallen a sleep in the tub on several occasions. Also the hot water increases my hypertension, but when you're tired and in pain, it seems to be the only solution.
I had also worked with a young man who got diagnosed with MS. What I have is very simmilar but it was believed that it only effected the peripheral neurvous system. Now after having had a group of people with the same condition go through a check list of problems, they are starting to think that it might involve the central neurvous system as well.
With my condtion and also with MS, stress can trigger bouts of increased symptoms. I used to work as a heavy duty mechanic and it had a great impact on my condition. From the age of 18 to 23, I did OK and I had not been aware of my condition. Frist symptoms were in regards to my bladder in the form of several kidney infections in a year.
It was not untill I started to notice numbness, loss of muscle strength and coordination that I went for medical help. After a whole battery of test, after having had a nerve biopsy, did it show neuropathy.
If it is at all possible, avoid activity that will agravate things.
All the best,
Ron
The last few years I now also have started to experience bowel problems, in the form of fecal retention at times and diarhea at the other extreme. Some of the doctors that I have been seen by told me that it can be due to the neuropathy that I have.
When the bladder spasms and cramping get to be too much for me, I can get very short term relief from sitting in a hot bath. However as soon as the water cools or when get out of the tub, the pain returns. Timing my Morphine right is very important. I take it when I experience pain and then go into the tub. I have to let my wife know as I have fallen a sleep in the tub on several occasions. Also the hot water increases my hypertension, but when you're tired and in pain, it seems to be the only solution.
I had also worked with a young man who got diagnosed with MS. What I have is very simmilar but it was believed that it only effected the peripheral neurvous system. Now after having had a group of people with the same condition go through a check list of problems, they are starting to think that it might involve the central neurvous system as well.
With my condtion and also with MS, stress can trigger bouts of increased symptoms. I used to work as a heavy duty mechanic and it had a great impact on my condition. From the age of 18 to 23, I did OK and I had not been aware of my condition. Frist symptoms were in regards to my bladder in the form of several kidney infections in a year.
It was not untill I started to notice numbness, loss of muscle strength and coordination that I went for medical help. After a whole battery of test, after having had a nerve biopsy, did it show neuropathy.
If it is at all possible, avoid activity that will agravate things.
All the best,
Ron
Hi, I just noticed that you have the same problem with a dry mouth, most likely the results of the medications that you are on.
I have several that give me a really dry mouth. Over the last few years, I have needed a glas of water to be able to swallow my food. As a result of that I have aspired lquids and chewed food into my lungs which ended up giving me aspiration penumonia.
Just at my last swallowing tests they gave me samples of a substance that hydrates my mouth. The name is "Oralballance." There is a gel, mouthwash and toothpaste. I find that the gel realy works good.
You might want to give it a try.
Because I have had a dry mouth for several years it has given me problems with my gums being irritated and my teeth being over sensative. A dry mouth can cause problems with bad breath, tooth decay and problems with the gums.
Due to the neurological problems and a neurogenic bladder, I experience pain on a daily basis. At first they had me on Percacet, but since I was using it on an almost daily basis, my doctor recommended Morphine as it is much easier on the liver than the other pain killers.
I'm very well aware of the pain that you experience from bladder cramping and spasms. Because of the spasms and cramping you experience leakage from the urethra. The condom catheters worked much better for me than disposible absorband underwear. First it soon gets to be quite an expense and it does not really work very well. I had needed to change soaked underwear several times a day. No matter how I tried to control smells using perriwash, I could never really get rid of the odures. With a condom catheter only the penis is in contact with urine. Therefore there is no smell with it. It might take a little while before the skin of the penis gets used to the adhesive on the catheter. I'm also assuming that you are male. My apologies if you happen to be female. In case of the latter, there also are products out there that would help you so that you don't have to resort to pads, absorband underwear or diapers.
Last year I ended up in a city hospital with bilateral pneumonia. Because I got rushed in by ambulance, my wife had not been able to bring me any supplies. We live about 350 km from the hospital that I was at, and to top things off, my wife and kids got snowed in for over a week.
The hospital did not have the absorband underwear, so they put me in diapers. They would not stay on very well, if I remained in bed it was OK, but not very comfortable. In order for me to get out of my bed for other tests, the diapers would fall down.
If you can get an external catheter or device to collect urine, you are much better off. In my case the health plan covers the condom catheters and leg bags. They did not cover the absorband underwear.
I'm writing this to you because I have problems with a dry mouth as well. At times I also experience problems with keeping my contact lenses in and have to use saline solutions to keep my lenses from drying out.
I hope that this information is of benefit to you.
God bless,
Ron
I have several that give me a really dry mouth. Over the last few years, I have needed a glas of water to be able to swallow my food. As a result of that I have aspired lquids and chewed food into my lungs which ended up giving me aspiration penumonia.
Just at my last swallowing tests they gave me samples of a substance that hydrates my mouth. The name is "Oralballance." There is a gel, mouthwash and toothpaste. I find that the gel realy works good.
You might want to give it a try.
Because I have had a dry mouth for several years it has given me problems with my gums being irritated and my teeth being over sensative. A dry mouth can cause problems with bad breath, tooth decay and problems with the gums.
Due to the neurological problems and a neurogenic bladder, I experience pain on a daily basis. At first they had me on Percacet, but since I was using it on an almost daily basis, my doctor recommended Morphine as it is much easier on the liver than the other pain killers.
I'm very well aware of the pain that you experience from bladder cramping and spasms. Because of the spasms and cramping you experience leakage from the urethra. The condom catheters worked much better for me than disposible absorband underwear. First it soon gets to be quite an expense and it does not really work very well. I had needed to change soaked underwear several times a day. No matter how I tried to control smells using perriwash, I could never really get rid of the odures. With a condom catheter only the penis is in contact with urine. Therefore there is no smell with it. It might take a little while before the skin of the penis gets used to the adhesive on the catheter. I'm also assuming that you are male. My apologies if you happen to be female. In case of the latter, there also are products out there that would help you so that you don't have to resort to pads, absorband underwear or diapers.
Last year I ended up in a city hospital with bilateral pneumonia. Because I got rushed in by ambulance, my wife had not been able to bring me any supplies. We live about 350 km from the hospital that I was at, and to top things off, my wife and kids got snowed in for over a week.
The hospital did not have the absorband underwear, so they put me in diapers. They would not stay on very well, if I remained in bed it was OK, but not very comfortable. In order for me to get out of my bed for other tests, the diapers would fall down.
If you can get an external catheter or device to collect urine, you are much better off. In my case the health plan covers the condom catheters and leg bags. They did not cover the absorband underwear.
I'm writing this to you because I have problems with a dry mouth as well. At times I also experience problems with keeping my contact lenses in and have to use saline solutions to keep my lenses from drying out.
I hope that this information is of benefit to you.
God bless,
Ron
I have had a suprapubic for several years now. Because of the location being in between the navel and penis there is contact with the waist band on pants. It causes movement and therefore irritation in the bladder. I have had it so strong that at times medium to large amounts of urine came out of the penis. For that I'm using condom catheters to catch what amounts leaks from the penis.
For the cramping and spasms I use Buscopan and Morphine.
They used to have Belladonna supossetories but they no longer are being used in Canada.
I;m on Elavil currently and used to be on neurontin for pain from neuropathy and a neurological disease, but it does not do anything for my bladder. The Belladonna worked the best and I have no idea as to why it has been discontinued in Canada.
I have also had some benefit from Indocid Supposetories but again not that good. The Morphine works the best if I take it early enough. If the pain is already advanced the Morphine will dull the syptoms.
It is also very important to get a catheter with the smallest tip possible. I had a catheter put in once that almost made me pull the thing out myself. When I went for my cystoscopy, it was found that the tip of the catheter was in the prostate causing all the pain. Also don't let the nurse put in more than 5cc of water in the balloon of the catheter.
I still end up with a lot of discomfort but it looks like I'm stuck with the stupid thing for the rest of my life having a neurogenic bladder.
As for swimming, the urologist providing care for me mentioned that it is perfectly fine to go swimming with a suprapubic catheter in. Plug off the end of the catheter and make sure to keep things as clean as possible after the swimming. Bring alcohol pads to clean the opening of the catheter and the tubing of the leg bag. It is best to wear a T shirt as it make it easier to hide the catheter. Some pools can refuse you entrance as the view it as an open wound. It is just ignorance how many kids enter the pool having scabs from falling or other causes.
I have not been back in a pool for almost 4 years now and look forward to it. Two years ago I went into the river to retrieve our Lab. She got into a deeper area of the river I had quite the time pulling her out of the current. I just jumped in ang got her. Once on the river bank my wife and both mentioned my catheter. I did not end up with an infection.
All the best,
Ron
For the cramping and spasms I use Buscopan and Morphine.
They used to have Belladonna supossetories but they no longer are being used in Canada.
I;m on Elavil currently and used to be on neurontin for pain from neuropathy and a neurological disease, but it does not do anything for my bladder. The Belladonna worked the best and I have no idea as to why it has been discontinued in Canada.
I have also had some benefit from Indocid Supposetories but again not that good. The Morphine works the best if I take it early enough. If the pain is already advanced the Morphine will dull the syptoms.
It is also very important to get a catheter with the smallest tip possible. I had a catheter put in once that almost made me pull the thing out myself. When I went for my cystoscopy, it was found that the tip of the catheter was in the prostate causing all the pain. Also don't let the nurse put in more than 5cc of water in the balloon of the catheter.
I still end up with a lot of discomfort but it looks like I'm stuck with the stupid thing for the rest of my life having a neurogenic bladder.
As for swimming, the urologist providing care for me mentioned that it is perfectly fine to go swimming with a suprapubic catheter in. Plug off the end of the catheter and make sure to keep things as clean as possible after the swimming. Bring alcohol pads to clean the opening of the catheter and the tubing of the leg bag. It is best to wear a T shirt as it make it easier to hide the catheter. Some pools can refuse you entrance as the view it as an open wound. It is just ignorance how many kids enter the pool having scabs from falling or other causes.
I have not been back in a pool for almost 4 years now and look forward to it. Two years ago I went into the river to retrieve our Lab. She got into a deeper area of the river I had quite the time pulling her out of the current. I just jumped in ang got her. Once on the river bank my wife and both mentioned my catheter. I did not end up with an infection.
All the best,
Ron
I am going on a sun holiday and I would like to swim. I have a
super pubic catherer for two years and I wonder is it safe to
swim in a pool or in the sea.
Any advise would be welcome.
Anne Murray
super pubic catherer for two years and I wonder is it safe to
swim in a pool or in the sea.
Any advise would be welcome.
Anne Murray
I don't have a sp cathetar, however, I have strong bladder spasms due to damaged nerves secondary to nuerofibromatomas. I get very strong bladder spasms with the urge to urinate despite having an empty bladder. Have you tried any on the medications to treat nerve pain? ie Lyrica or Nuerontin?
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