This patient support community is for discussions relating to urology issues, benign prostate disease, penis curvature, cystisis, pediatric urology, prostate, sexual dysfunction and urological cancers.
I have been diagnosed to have nuerogenic bladder due to failed back syndrome (over 12 years ago). I was just diagnosed to also have Cauda Equina Syndrome. I have severe bladder retention with catheders every three weeks and major infections/blockage. The pain in unbearable in my bladder. My legs are numb regularily and sex is out of the question. What do they do to fix this problem? I have blood and calcification in my urine. My stools have blood, and occassion I bleed outside the catheder. I have had every test there is through the urologist,neuologists, myelograms, etc. How much pain can a person take? What can they do? My colonoscopies are clear..I have no cancer. This is all due to a tramatic experience that started all of this. I have had the catheder for over a year and a half now (changed at least every three weeks). I would appreciate your input on what can be done to repair this problem...if there is one.
I was diagnosed with a neurogenic bladder in 1996. Since than I had been using intermittant catheterization to ensure that the bladder is emptied on a regular basis.
As far as I know there is nothing other than self catheterization that can be done for the neurogenic bladder.
Currently I have a spurapubic catheter from problems that arose after many years of self catheterization. The urologist thinks that I have created a fistula (hole) between my prostate and rectum. With this I have bleeding from the catheter as well as rectal bleeding at times.
As far as I know there is no corrective surgery for the neurogenic bladder. I do know that at times pain can get the better of me. Due to other neurological problems and pain, I'm on Statex Morphine. I also use Buscopan for any bladder spasms. Even with that there are many nights where sleep does not come due to pain.
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