Hi. I have had a pretty bad couple of years !!! That's an understatement :). To make a long story short...
I have been diagnosed with Diabetes Type two with amazingly unstable Swinging levels ranging between 1.8 and 29mmol ( equivalent to 32 and 522mg ). Diagnosed with Hypertension, massively high reading around 236/127 and that's on 4 different Hypertension medications. Doctors just cant get it down. Then i was diagnosed with Cushing's Disease, High cortisol and ACTH levels. I had surgery to remove my pituitary gland earlier this year. Surgery was unsuccessful. I still have high Cortisol and ACTH. Months later after constantly telling my Endocrinologist i am so fatigued, My muscles are getting weaker, my bones ache, i get so cold even on a 30 degrees celcius day i want to hop in the fire to warm up. Finally it all came to a BIG crunch and i had a total melt down and was diagnosed with major depressive disorder ( no wonder with all i was going thru !!). When i had the melt down the Endo looked at me...probably properly for the first time, checked my strength in my arms and legs and said, Goodness you must be Vitamin D deficient !!! Sent me off for a blood test. Result. Vitamin D 13nmol/L ( 5.2ng/ml ). Yep its low. Anyway, I am seeing the Endocrinologist to discuss results in 6 days.
What sort of questions should i be asking the Endo?
Im also wondering how much of my issues can be related to Low Vitamin deficiency.
Other Symptoms... Nausea since January 2013 ( almost every single day !)
Diarrhoea ( 8 to 15 Motions per day most days )
Blurred vision
Visual field deficit in left eye
Frequent UTI's
Very thin skin, bruise easily
Depression as mentioned, really weird anxiety episodes ( quite Bizzare in fact) ( I am seeing a Psychologist and was Put on 150mg of sertraline )
Lower back/ Hip pain
Burning sensation and pain in both knees
Pains in fingers can lift a small plate but a dinner plate causes pain
Find it harder and harder to get up from a sitting position
Dry Mouth / Sore tongue
Swollen glands under jaw ( had an ultrasound with showed no problems other than they are enlarged.)
My Jaw Clicks and is painful from time to time. I grind my teeth when in the car and sleeping
Headaches ( I am now seeing a neurologist due to visual field issue, He thinks its " Post Op " migraines post pituitary removal )
Pain in my upper right abdomen
Liver function tests are totally deranged ( on waiting list to see gastroenterologist )
I get a skin rash/ sensitivity to the sun
There has been so many issues. But i guess thats a good start :)
So i repeat What questions should i have for the Endo?
Should they be doing any other testing?
PS My calcium is normal, Iron is normal, Thyroid profile is normal, Creative protein is high, ESR is high, Prolactin is low. Anion gap ALT GGT and ALP are all Very elevated, Cholesterole has gone from 6.1 to 3.4 after 1 month of statin treatment ( I honestly think the 6.1 was a lab error as my Cholesterole has never been above 4.5 in the past ). Hba1c is 8.9
Thanks for reading i know there is a lot there ! :)