A few months ago my doctor ran blood tests and said I had elevated calcium and PHT hormone. Retest done two weeks later showed the same, so she referred me to an endocrinologist. During physical exam, the endo said it felt like I have several small nodules on my thyroid, and that everything indicated I have hyperparathyroidism, but that it was unusual to have both elevated calcium and PHT. So . . . you guessed it . . . more blood work. a 24-hour urine collection, and a bone scan. Same results: still have elevated calcium and PHT, but also have severe vitamin D deficiency and some bone loss (losing huge amounts of calcium in urine). He still thinks I have hyperparathyroidism, but feels something may be masking something else, so wants me to take megadoses of vitamin D for three months and do more blood work. Now, he explained that normal daily recommendation of vitamin D is 2000 units/day which equates to 14,000 units/week. He wants me to take 150,000 units/week. A little research on the Internet led me to www.parathyroid.com, a site managed by the leading U.S. doctor on parathyroid problems. From what I can tell after viewing that website, I most likely have hyperparathyroidism. It also states that it could be dangerous for me to take megadoses of vitamin D and that it will only make things worse (they actually state that a few people have experienced strokes after taking megadoses of vitamin D).
Any suggestions?