I have been treated withRituxan for some time. So I was surprised when I heard on CNBC this morning that this drug was found, according to a drug company whose name I did not get, to cause a rare brain disorder in some patients to whom it was given. Does anyone have any information about this??
Thanks for responding to my question - the only person to do so in 5 days! This raises serious questions in my mind as to the value of this site. If there are no knowledgeable people, including any doctors or drug experts using it or supplying information then it is of doubtful utility.
The "good news" is my own discovery that the rare brain condition,PLM, which is apparently fatal and incurable has been known for a long time and is referred to on the main site I found regarding Rituxan. It seems, however, that this danger is not disclosed by many doctors ( including mine ) despite its mortal nature. Oh, well - is ignorance bliss??
I have no actual info on this only that my husband was put on it for treatment and had incredible pain starting right off. The second treatment he developed hives half way through the treatment. 3 and 4th he never made it through the whole treatment and was promtly taken off the chemo routine. So it's interesting to hear this cause I think our grandson of 9mos at his treatment time for a rare brain cancer pinealblastoma was also treated with this drug. Our grandson is now 2 the tumor is gone and to date no sign of cancer.
it's Progressive multifocal leukoencephalopathy or PML
Progressive multifocal leukoencephalopathy (PML) is a rare disorder that damages the material (myelin) that covers and protects nerves in the white matter of the brain. You can wikipedia it and obviously talk to the doctor that is giving it to you. You could request being tested for the JC Virus as well which is offered to MS patients for Tysabri and Rituxan treatment which both carry a PML risk. (I've been told that Tysabri's risk is much higher than Rituxan.)
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