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Lipodema Community?

I am looking for a Lipodema or Limphadema community. I have not found very much during my research. My weight has fluctuated throughout the years, but I have always had difficulties reducing in my legs. Even after training for the 3 day 60 mile BC walk. I followed a strict schedule for it and even though I lost weight, I didn't see much reduction in my legs.
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649848 tn?1534633700
COMMUNITY LEADER
There is a Lymphedema Community and can be accessed via the following link though I notice there's not been any activity since December 2016:

http://www.medhelp.org/forums/Lymphedema/show/1178

Lymphedema can be either Primary or Secondary.
Secondary lymphedema is usually caused by removal or damage to the lymph nodes.  This can be caused by radiation, cancer.  Have you had any of these?  Infection or parasite in the lymph nodes can also cause lymphedema.  Infection or parasites are most common in tropical and subtropical areas and is more likely to occur in developing countries.  

Primary lymphedema is a rare, inherited condition caused by one of several conditions, including Milroy's disease (congenital lymphedema), beginning in infancy; Meige's disease (lymphedema praecox), beginning in puberty or during pregnancy; Late-onset lymphedema (lymphedema tarda), beginning after age 35.

Have you been diagnosed with lymphedema?  If not, perhaps that's not your problem...

Unfortunately, many of us just have heavier legs and since we can't "spot reduce", it can be difficult to lose weight in a particular area.  My thighs are heavier and I have saddlebags; even when I only weighed 100 lbs, I had them and nothing I did would get rid of them...
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