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Topomax, Weightloss,SideEffects,Pros

Please share on how you have been effected by using Topamax.How long have you used it?Why?Have you had any side effects?And if so to what extreem.What other medications do you take along with Topomax.Has you family noticed any differences in you?

On that note let me introduce myself.My name is Davette.I have been on Topomax about 31/2months.I have migrains and seizures.I have been extremely effected by the side effects.Mostly memory and spelling.I have tingling in the fingers and toes.I also have little appetite and have lost 17lbs.Witch is great for me. I am over weight.I am tired more than normal,but i did sleep alot due to migrains.I do have more side effects and stuff,but I wont over load you all at once.I know this sounds like alot, but it has gotten better as time goes on. I have started to level off and become more normal.I dont feel the tingles as much and i have more of an appetite (darn)he he.I have less migrains down from 18 days a month to about 7 or 8 at the most.I am happy about that.Please feel free to ask any questions and talk about your self. we can help each other out.
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Avatar universal
Totally agree with  girrl88 on sep 8 2009!!! I have been on Topamax 100mg for over 12yrs now to combat absence seizures (very mild epilepsy)  the first drug i was on (epilim)  HELPED me balloon to 120kg over (240pounds) so at the tender age of 16 I didn't want to look like a hippo any longer... so I asked if there was another drug that would help me to not put on weight - NOT loose it - but just not make me stuff my mouth any more!!!!  and have me feeling lathargic etc... I was given Topamax to trial! Yes I was a lucky one I lost over 60kgs (over a period of 18mnths)  but never did I go and seek a drug to loose weight, I wanted one that did not have the side effect of weight gain!  As there are so many diff drugs on the market now, you really need to know what the side effects r - cause chances r u will end up with atleast one of them, especially when u r playing with these sorts of drugs!  I also had pins n needles, irratable legs, mind fogginess, and major mood swings, All of which subsided with-in that first 12-18mnths... and while I am no longer loosing weight (thank-god at that rate! :) )  I have been able to maintain it, which I would like to attribute to my own will power not the drug!   As I was given the boost - Yes! but it takes a lot more strength to maintain the weight lose believe me!
If you are taking topamax wholey and solely for weight lose - pls think about it cause it is a very powerful drug!
Helpful - 0
535581 tn?1233753624
In December I posted this, now I would like to clarify it....
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I had a CBC done again and my liver enzymes are perfect.  Found out that I was taking too much TYLENOL for the headaches and that was the cause, not the Topamax.  

We assumed it was the Topamax b/c that was the only new med that I was taking.  I totally stopped it and Tylenol at the same time, then started taking Topamax again as a controlled experiment, so I wanted to clarify that for all of you in case you were worried about it.
Janie
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Avatar universal
Hey y'all, I hate to break it to you but Topamax is not an appetite suppressant. The weight loss factor is a side effect - that means you may or may not get it. Just like the kidney stones and the odd forms of glaucoma that Topa can cause, you may or may not get those as well. The taste perversion is also a side effect but it actually CAN help you lose weight since sodas taste icky and (at least for me) lots of sweets taste too sweet so I don't want them anymore.

If you get the tinglies in your hands and feet go eat a banana or drink some Gatorade, this will take care of it. The tinglies will eventually go away after your body has become accustomed to the dosage.

Now granted that I haven't looked up any recent clinical trials but last time I checked it had failed 2 separate trials for weight loss. The reason it had failed was because the test subjects couldn't handle the side effects. Many left due to the cognitive side effects. There is a reason that this med is nicknamed Dopeamax and Stupimax.

I am bipolar (aka manic depressive) and I take Topamax as a mood stabilizer. I'd hoped for the weight loss side effect but unfortunately I wasn't that lucky. I often recommend Topamax as a mood stabilizer or as an antiepileptic med or even as a migraine med but I would never offer it up as a weight loss med. I would never get someone's hopes up when what they're hoping for is a side effect. It's a dangerous game to play, picking a med for it's side effects, hoping that you get a particular side effect (weight loss) but that you don't get other side effects (depression or glaucoma, etc.)

So please, before you hop on the Topamax train. Take a minute to really delve into the info with your doctor. Make sure your doc tells you about all the side effects, not just the "nice" ones. If you want more info ask your pharmacist for the PI sheet. It will show you the statistics about "adverse events" during the drug trial. You can even find the PI sheet online if you want, just search for "Topamax PI sheet".  

Just be careful. You only get one body to live this life in.
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Avatar universal
I went to a diet doctor in Cary who prescribed this for me and I found it to be like a placebo; totally noneffective.  It does nothing to control appetite which is what it is supposed to do.  I am diabetic and I find that I am hungry all the time.  I have been this way my whole life.  The only way I can control my appetite is to simply find something else to occupy my mind so that I do not think about food.  Topomax is totally useless.
Helpful - 0
Avatar universal
Hello,
I've been on TMax for over one year.  I suffer from TMJ. I am very happy with TMax.  My headaches were every single day.  I thought I was going insane.  I also was given Lexapro and another med (can't remember), but during the summer I decided to get off all meds except for TMax.  When I don't get enough sleep I feel horrible all day.  I now only have headaches once a month and if I get a lot of stress the tension  goes not my jaw causing the severe headaches.  It feels like someone hit me over the head with a pan.  I did find a fantastic myofacial doctor and I wear a splint in my mouth full time which has helped 98% control my headaches.  Some people don't realize stress can go to your jaw which is connected to your skull creating headaches.  When this happens I usually put a warm towel around my jaw and it really helps relieve the symptoms of the head hurting.  In addition, I take frova a migrane pill which helps and doesn't cause heart PPT.  ....God Bless all of us.
Helpful - 0
Avatar universal
i have been on paxil, wellbutrin and now cymbalta. became depressed 5 years ago and stopped running my 6 miles. Gained 40 pounds. Got RLS. Couldn't sleep. Doc fixed RLS. Doc gave me xanax to sleep. and topomax for weight. can't seem to remember to take my pills regularly. i forget. remember the dog's pills; but not mine. no bad symptoms -- no tingling or headaches. but weight just keeps piling on. am getting more depressed. keep waiting for my life to start.  
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