Follicular Cystitis

[-concerned...-]

Does anyone know anything about follicular cystitis?  My grandmother has had what the doctors call a bladder infection for going on a year now.  They've given her antibiotics for it, which haven't helped.  Then she went in for a biopsy on her bladder (supposedly a 15 minute procedure) which put her in the hospital for 3 days unable to urinate and in so much pain she could barely move.  Now they're saying she has follicular cystitis.  I tried to do a search online but i didn't come up with much.  If anyone has any input it would be greatly appreciated.  Thank you!

[PennyP]

I found this on another forum...hope it helps!
Penny

Follicular cystitis (cystitis follicularis) is a non-cancerous response to chronic bacterial infection. Treatment options for this is limited and may overlap with those for interstitial cystitis.

Pentosan polysulfate sodium and dimethyl sulfoxide are approved for the treatment of chronic cystitis and may be of benefit. You may want to discuss if these medications can be applied to you.  

This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.

Thanks,
Kevin, M.D.

[-concerned...-]

thanks for the info...i'll tell her to ask her doctor about pentosan polysulfate sodium and dimethyl sulfoxide and see what they say about it.  Thanks again!

[granash]

I have also been diagnosed with chronic follicular cystitis and at present am being treated with an antihistamine drug "Atarax" (hydroxyzine hydrochloride), for the first time in years I am now getting benefit from prescribed treatment, although I have been told by my consultant that nobody knows the cause of this condition but, form reading these articles it does appear to be linked with  certain forms of arthritis of which I suffer, (spondylosis and spondolitis) I hope this information helps you. Linda

[jeanhastwo]

I am a nurse. I have had cystitis'  for five years. After using antibiotics off and on I was finally referred to a specialist. I went in the hospital for a routine biopsy. The doctor perforated my bladder and my bowel. I spent ten days in the hospital. Nothing by mouth and a catheter in place for fourteen days. I was suffering so much pain and burning. I went back to the specialist and he said, " I am not a magician I can't just wave a wand over you and cure you! " I researched so much and found that if you can find a  large watermelon with big black seeds. Take all of the seeds, chop then up. I did this in a blender with a small amount of water!  Make a strong tea. Boiling the chopped up seeds. I keep it in the refer. Every time I open the refer door, I take a sip or a big swallow. This has brought me great relief and I feel that it is  healing me ever so slowly. Summer is over and watermelons are hard to find. I don't know what I will do for the winter but, I am pretty much pain/ burn free.