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Avatar universal

Had my Mirena IUD removed

Had it removed 4 weeks ago exactly due to terrible problems from it. I wont post my story unless you want to know. Last week I had pain on my left ovary and today pain on my right. Its almost like a pinching feeling. Leads me to believe it (they) are cysts. When I normally am not on BC I have 28 day cycle. But not sure what to think since just having the IUD removed. Anyone have experience with this ?
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Avatar universal
My experience w IUD, terrible, never again. I had my DS aug 2013, sept 2013 I had mirena put in. Had a controversy in the office, one OB said yes do it, another said don't dare. I had a blot clot to my lung after having my son, there I was Trying to figure out the right thing to do and next thing I know I have the IUD in. (Besides the point). I bleed for 3.5 months straight. Lost half my pregnancy weight and gained it back plus ten lbs. I'm very active and eat healthly, excersice everyday-didn't matter. I have every symptom of pregnancy including morning sickness, and have even tested on a regular basis, all negative and no little bundle to make the pain worth it. Complete loss of sex drive (certainly wasn't the case before IUD). Cramping, bloating, pain during "activities", dreadful migrains that last 3 days and have me stuck in bed, optical migrains that last a whole week, and oh, the joint pain! I'm getting to the point where I just can't take it anymore. I will welcome the crash with open arms because it will eventually fade. But 3 more years of mirena? No, and never again. I have a DD 2010, and a DS 2013 and a very paitent and understanding DH. I miss being a Mom and a Wife with out all of these "sick days". I'm only 30. S**** y** Mirena- I want my life back.
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Avatar universal
worse bloody mistake i made if you havnt already had it done get it removed asap it nearly killed me and heart palitations are the first sign , doctors do not take these sypmtoms seriously enough
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Avatar universal
I had  sn iud instreted and had nothing but problems. I developed a uti infection and bleeding for a stright month with no end insight. I hated it and just couldn't stand it. I had it removed developed massive headaces. The ob said if i conuntuined with this i would have ended up in the hospital. The iud had moved and i was becoming septic. I was also had low iron level based on the amount of bleeding that i was doing. I cant tell when my mobthly begans and ends. So when the doctor asked me when was my last menstrual cycle is my respose i have no ****** clue. They just look at me like i am crazy. The doctor asked me why the iud you try to figure it out. She just shakes her head. I actually tolded don't ever recommend another brith control to me right now. I have scaring down below and it hurts to do anything. Is much as i love her i will not listen to on any subject for a while. I am simply just really mad at her and so irritated at myself for not challenging her a little more. It feels like i was in a sword fight and i lost. Please tell i am not the only one that has had problems.
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Avatar universal
I have hormonal acne since switching from HRT to an IUD (years ago). I'm 30, I was mortified by having acne at least half the month. My skin was greasy and disgusting after I stopped taking birth control pills; it had never been that way before. My dermatologist told me nothing would work. I looked for organic acne products online, and I started using Citrus Clear's control wash and moisturizer -  and it was able to get the zits off my face in 3 days. Yes, I still have a few splotches here and there, and it does dry out your skin, but my skin has not been this clear in years. It dries out your skin a bit, but it is so worth it.

I thought my face would never be clear again after stopping HRT; I was wrong. I've only been using Citrus Clear for 3 weeks or so, but what a huge difference.
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Avatar universal
I had the iud in since  2010, i did have a few problem's, the doctor couldn't find the strings, had my period once for 17 days. My cycle would change every month could be once a month to twice a month. Became depressed at one point which was very bad. I did get pregant on it and lost a baby at 3 months, which triggered my depression worse at that point. Had to go see my family doctor and he referred me back to the gynecologist. So i had the iud out 2 days ago after i just got off my period, now there is a little bit of spotting i'm not to worried about that because i kind of figured it would happen, but there is a different odor that i have never had before. I never had a odor before and now all of a sudden i have one. I'am not sexually active at all.
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Avatar universal
I was on Nuvaring for years, but since I had frequent yeast infections (and major cramps/backache during period) I decided to try Mirena. I am 40 now (39 when it was inserted) and have not had children. Insertion was HELL. I don't mean to scare people, but if you have not given birth, you might want to rethink this. I tolerate pain fairly well, but when Mirena was being inserted, I felt as if I was being torn apart from inside-out. My boyfriend heard me screaming from the waiting room.

For the first six months, things went well; no bleeding, no period. Then in November, I started spotting for a few days. My mood had also been "wonky". I never really had stereotypical mood issues with PMS before Mirena, but now I have this rage that really frightens me. I am normally a very patient, sweet-natured, calm person, but I get these feelings of rage now... I feel like putting my hand through a wall. I have also been having increasing pelvic pain. My doc had an ultrasound done to confirm the Mirena was in the correct position...he agreed to check my TSH and FSH, but that was it. He tells me I can't have endo since I don't get a period. He claims that women with endo only have pain during their periods. The way he is acting really confounds me since he was always supportive and empathetic in the past. My older sis recommended a female doc in the same practice. I have an appt on September 4th. I am going to ask about having the Mirena removed.

I am glad forums like this exist. I am so frustrated, I feel like crying :(  I just hope the appointment with this new doctor will go better. Thanks for "listening".


-Chrissy

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Avatar universal
I am currently going through a similar situation. I had my mirena removed in January 2013. Everything was good. I remained regular, even after i went on a low dosage bc pill because of my high blood pressure. After two months on the pill, my blood pressure still remained high so i stopped the pill altogether. I got my last full period in April 13 and since then, nothing. I have been bloated, weight gain, nausea, dizzy, tired, had really tender enlarged breasts, had strange cravings, yet after at least ten hpts, each one was negative. Went to the doctor and got urine and blood tests done but everything was normal, and yes, pregnancy test was negative. On both counts. I am so frustrated. To this day, i am still waiting.
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Avatar universal
Thanks Tristan. I just had it inserted and I'm so nervous about it. I know I've got to wait it out and I get so afraid about the negative stories people have. But my doctor recommended the Mirena because I am not ready to get pregnant and women in my family are so highly fertile I didn't want to risk. When I and my fiance' are ready to get pregnant, God will bless us to do so. Thanks so much for your input. I just started itching today so, like I said I have to wait it out because I know my body is adjusting and I gotta give it a chance.
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Avatar universal
This is for all women who suffer from catamenial epilepsy. Do not have the mirena, it helps at first, then after about 8 month the level of progesterone must decrease slightly. Back came my epilepsy grand mal and palpitations, possibility also a type of partial seizure. Think about supplementing your normal hormones for natural ones instead. I'm now going to suffer I imagine for a few months while my hormones get back to normal
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Avatar universal
Hi Lina,

I am going through the same thing as you atm. I had my IUD removed a month ago after having it for 5 years. I had no period at all the whole time it was in and only sometimes I would get some cramping and bloating once a month but never anything else. Now I went through the crash for 2 weeks after I had it removed, I was miserable. Every symptom you could think of having I did. Then for about 4-5 days I felt better and then I started feeling off again. It was different from the first couple weeks. These symptoms now feel a little more like pregnancy but the test still says negative. Yesterday I thought I had ovulation cramps in the right side but then today I am bleeding. IDK if its a period or if its implantation bleeding or what it is. I thought you usually got ovulation pains like a week or two before your AF so I'm a little confused. Basically now I am just waiting to see what happens. I never had a normal cycle before the IUD and pregnancy so I'm not really expecting it to be normal now. Good luck and keep us updated and I will do the same. :)
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Avatar universal
Hello All,

I was diagnosed with Endo when I was 17 and had surgery. I was pain free for 6 months or so, and the pains became unbearable. I tried all BC you can think of, and the doctor talked me into Mirena. Get in it was extremely painful and the pain was there for about 3/4 days. After that my period completely disappeared. No ridiculous cramps, no long heavy period, I was in heaven for about almost 4 years. Last year, I started getting crazy cramps again but still no period. Cramps were coming every 29-30 days. I had to take days off from work because the pains were just CRAZY!.
Doctor decided to remove the IUD to do further testing, because he wanted to make sure the IUD wasn’t causing the pain. I got the IUD removed 7 weeks ago and I still haven’t gotten my period. I have been taking pregnancy test on a weekly basis and they are all negative. Has anyone else had this issue?
I was told I should get my period within 3 weeks of removing the IUD but its been 7 weeks now almost 8. Any help would be appreciated!

Thanks
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Avatar universal
A lot of the symptoms you describe sound like a thyroid imbalance. Did you ever have any blood work run? It is possible to have flare ups of a thyriod inbalance depending on the cause. Also an inbalance may have just been triggered by the progesterone in mierna.. Birth control hormones (particularly estrogen) affect thyroid levels in the blood by bonding to them and storing them into fat. When the hormones are removed the thyroid levels rise. It's entirely possible you have a hypothyroid condition that is mild and was exasperated by the hormones causing it to become noticeable. I have agressive Hashimoto's hypothyroid and have since I was 15. I have had the mierna IUD for 3 years with the only side effect being cystic acne. I am 25 and petite. (115-120lbs; 5'3" but well built size 2 with 32 D cup) so the hormones are higher for me than most people who have a decent amount of weight on me. Anyway, brain fog, hair loss, joint pain, weight gain, lack of sex drive, slow healing, excessive sleeping, lethargy are all extremely common symptoms of hypothyroid and it is very common in women. I recommend getting a simple thyroid panel (TSH, T3, and T4) an inbalance in any of those three can identify a thyroid condition. It typically develops at any age after puberty.
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Avatar universal
I had the copper iud for about a year and when I went for my 6 month check up (bc I have had cervical cancer  twice) and the doc said that he had to remove it because my endometriosis had shed over the iud so that was a bad experience...
Would like to try the new mirena and hopefully it will be a success bc I can't remember to take the pill!
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Avatar universal
I had mine for 5 years. Im 37 and in good health. Long story short it worked for me. However fitting the 5 years I experience several bacterial infections that were extremely hard to get rid of even Wth pres friction drugs. It was embedded in my uterus at the time of removal. It was extremely painful and there was no pain meds. My insurance refused to pay anything on the removal or necessary ultrasounds but get this they would pay for me to get another one. Of course I didn't. All this went down on 1/23/13. I'm having  a terrible discharge. I will follow up with my doctor soon to what if any other problems were caused. Beware.
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Avatar universal
Shocked is the word ! Since having this Mirena Coil for over 10 years ( 2 seperate ones ) I have loved the convience of hardly ever getting a period however I have suffered in silence from fear of being rediculed & shamed by doctors ! I have had a ovarian cyst & so much pain that I ended up having to be taken down for emergency surgery ! They didnt remove it has it wasnt twisted on its self or causing a problem which I got told it shd go away ! I had a scan 4 wks later & thankfully it gone ! I asked if the Coil was to blame & no rgt or wrong answear ! I suffer from terrible acne , very dry skin & even my pigmentation is changing in large proportions , always so tired , depressed & my hair thinning just to name a few ! Ive no sex drive what so ever Im not ashamed to admit it ! I have been considering having the coil removed however & unfortunately I have a prolapse tht im still waiting to hv more test done which doesnt help has tht is causing incontinance issues !!! Anothr problem is before having the coil fitted I suffered from very bad heavy periods & mensturating every two weeks with a five day gap in between so the thought of experiencing tht again is rather daunting however one the prolapse is sorted then I will hv it removed ! Im almost 100% sure that all the dry skin , acne & servere at times etc etc It has to be a time where my body needs a break ! Its reasuring to know Im not alone & remarkable tht ppl's health has improved ! Tht itself says it all doesnt it ! Im digusted at th doctor branding any symptoms etc B******t thts unprofessional & perfectic ! Hope tht doctor doesnt run any health trails ! No one has to hv txt book symptoms ! Its if your symptoms dont match th txt book answers then thy class you has over reacting !!! Wht happened to recording new findings !? After all isnt tht whats important to establish potential increased risks etc !? I honestly think the medical profession are there to profit !!! Seriously when was yr health actually considered without judgement !? They are some very gd doctors & nurses out there lets get tht straight & without them we wd be put in a corner to perhaps eventually be dealt with !?! I also hv to mention tht we r very lucky to hv very gd doctors & nurses & of course surgeons & specialist its just a shame those rogue unsympathetic doctors who are very ignorant to yr health tht things cd be potentially missed !! If yr not getting anywhr with yr doctor persue & keep going bk until you get somewhr & demand to be sorted out ! Gd luck ! :)
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4617825 tn?1357223107
OMGoodness!  I am so glad that I have found this forum.  It has helped me connect the dots on so many things that have happened to me since I got the Merina!  I have had so many of the same symptoms as these ladies for the past three years, but thought it was because of my diet.  I finally got a diagnosis for all of the problems last year, which was Hypoglycemia.  I have had hypoglycemic tendencies all of my life, but they got really bad last year.  Preceding this diagnosis, I had an onset of migraines, heart palpitations, chronic fatigue, lack of libido, weight gain, sore muscles and joints, dizziness, weakness, shakiness, anxiety, and forgetfulness.  All of these symptoms were diagnosed as Hypoglycemia when these symptoms got to their worse.  We chalked it off to the sugar/carb consumption from being on Weight Watchers.  So, I switched to the South Beach diet, but never felt better...just continued to get worse.

Recently, I have been noticing that I have massive hot flashes and getting night sweats so bad that I wake up drenched and have to change myself and for the desire to not wake my husband, I lay a towel down on the bed to go back to sleep.  It has been getting worse and worse.  So, I decided to look up early menopause, and then found this forum, and several others!  I now realize that it is the Merina that is causing all of these issues!  I'm waiting on a call from my GYN to have this thing removed.  I only hope that I'm one of the lucky ones and the periomenopause symptoms dissipate once this thing is out!  It has been three years, and a very rough three years at that!  

Sad thing is…I have recommended this thing to so many of my friends, thinking that these symptoms were due to something else.  It certainly makes much more sense that it is related to this foreign matter inside my body distributing daily doses of hormones into my system than Weight Watchers!
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Avatar universal
I had my daughter in april 2010 6 weeks later i had the mirena put in for about the first 6 months my periods were awful i had very heavy bleeding and the cramps were horible i felt like i was in labor all over again. After the first 6 months my periods began to lighten up and by about 9 months with the mirena had almost stopped. Now i'm about 2.5 years in and have only had three periods in the last year. About 3 weeks ago i was hit with sudden abdominal pains that i also felt in my back i would have sworn i was about to give birth it hurt so bad then it stopped as suddenly as it began. almost a week later i got my first "period" in 10 months in only lasted 2 or 3 days and was very light (i mean a smear of pink on the tissue when i wiped thats it) now 2 weeks later i feel like im pregnant i have had unusual vaginal discharge and a headache for a week and a half and no amount of medication prescription or non has helped i have done 2 hpt and both came back neg so i am thinking strongly about having it removed i just hope it hasnt messed with my fertility my husband and i have been thinking about having another baby
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1625112 tn?1299289074
I have had my mirena since Sept. 2009..no problems. Light spotting for first 6 months.Then my period pretty much went away for 2.5 yrs. Nice!
The only thing I experienced so I thought..was a constant discharge so I wear pantyliners daily!
The past 6 months my period has returned very lightly for the first 3 mos., then it became a little heavier coming at sporadic times. It(period) now does what ever it wants, last how ever long it wants. Starts, Stops, Comes, Goes. Had my yearly exam in Sept.( 3yrs into Mirena) discussed my concerns. Pap & exam fine.  Keep in mind, I have numerous other health issues. But now after reading some coments I think alot of my side issues are MIRENA based. ANXIETY levels out of control, weight gain, high blood pressure with no apparent cause other than anxiety, low heart rate oddly enough and other misc. things. I was going to have an ultra sound to check for problems... which I think I will still do for "peace of mind". But I think even though my MIRENA has only been in for 3 yrs. It needs to go. I pray I don't have the wicked side effects some of you have had! But at least I know and can prepare my self for the possibilities!! Thanks to all who posted!
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3189719 tn?1347239840
After the removel of the marina did u have any bleefing at all ?? Well the question is becouse I just got it removed about a month ago and im still not seeing any spotting or nothing I know ive been ovulating but not strong inuf my hubby and I r trying to conceive that's y I would lk to know :) if u could message me plz thanks
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Avatar universal
Now that you've had your IUD removed, how are you?  This is my second IUD.  I had my first for the 5yrs with no issues and had it replaced, now I've had the second for 1 1/2yrs.  I have alot of acne cysts.  The acne seems to be the only issue, but I cannot get rid of them.  I've been seeing a dermatologist and she even says my only choice now is Accutane.  And I am not going there!  So, I'm thinking of removing my IUD to see if the acne goes away, but I wanted to hear from those who have done it already.  So...how are you doing now that you've had it removed?
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Avatar universal
thank you for your story, i totally agree with you.
women should educate themselves before chosing the mirena not just talking with their doc. I did alot of reading before getting the mirena put in, and my doc offered anesthesia which is the way to go! I had no pain afterword!
Also pay attention to your body! It will tell you when there is a problem!
I am very happy with it so far!
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3162569 tn?1343758880
My name is Kayla and I am 26 years old. I had a mirena inserted in July of 2009. At first I felt fine. My periods were always regular and still are each month. I still presently have my mirena. I just do not feel like myself anymore. I honestly cannot even remember the way I used to be. I am always worried always trying to self diagnose myself for symptoms I have never had before. I don't believe these symptoms occured until 6 months or more after insertion. I have never had allergies before and now I have constant red eyes. I have tried allegra, zyrtech and clariten and none of them work. I have thought a possible milk allergy even. I used to have beautiful blue clear eyes and now it looks like I am a stoner. I have developed cystic acne on my chin. I take great care of my face and cannot understand where they are coming from. I honestly cannot remember even having zits before. I am fine one day and depressed the next. I have no desire to have sex but I do it anyway for the sake of my relationship. Sometimes intercourse is painful for me. I sweat excessivley. I also get cystic pimples on my back and shoulders and pimples on my chest. Which makes it humiliating to where certain clothing. How can you be happy with your life if your so unhappy with your body and yourself. I also have odor after having sex with the same man I have had sex with since I was 17 years old and never had any odor of any kind. I have probably gained 5-7 lbs hence I am extremely active. I don't know if this is caused from the mirena but I can't understand why any of this is happening. I am highly fertile and this is the best contraceptive besides abstinence. I would love to try something else if it offered as much security as the Mirena. I have a daughter and we do not want anymore children. My daughter is eight.
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Avatar universal
I have been having some swelling and irritation around my clitorus and non of the yeast infrction cream has worked, they took cultures yesterday and I got this thing removed.  I do not have stds, did you feel the same with the BV?
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Avatar universal
I feel for everyone, and I, too, am disgusted with my doctor, when I asked about side effects. I had a cooper coil in for 7 years prior, with no side effects. I read the pamphlet and there was no mention of severe leg pains. I only had it in for one week, and I had a 3-day fight with my husband, which is so unusual. Then a day later, I woke up with severe pain in my legs. I am an athlete and this was inexplicable, as I hadn't done anything different. It felt like nerve pain, akin to sciatica, and thought maybe the iud was hitting a nerve. I am going to get it out asap - so my total mirena experience is 2 weeks, but I hope there are no post-iud nightmares!  I truly thank you all for sharing your stories.
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