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Had my Mirena IUD removed
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Avatar_n_tn
thanks for your concern!  I haven't checked back in a while.  Everything got better after a couple of weeks.  I called the doc and they said that it is relatively normal..... so thanks again.   Good luck to all of you here.
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Avatar_n_tn
Hi Avrora:) I have been thinking of you and hoping you are doing okay! That makes me so mad for you that the nurse was not standing by your request for a blood test. It is very smart on your part to be thorough and force them to verify their diagnosis 100%. Has your doctor done anything to help you with your recent bacterial infection? This is so very painful!  I am so sorry friend! The doc needs to get you feeling better! Have you considered going to a naturalist and getting some herbal remedies?This may be an option since it sounds like the meds the doc keeps putting you on are causing more harm to your body. There are homeopaths that can recommend some natural products to help with side effects and symptoms. Just an idea I wanted to throw out there for you! Please let me know how things turn out! I am glad to read that you are getting along well with Mirena. I know that cramping and pain in the ovaries can occur with Mirena but I will be crossing my fingers that this will be short term and with some time hopefully will get better. Please do keep an eye out for this because Mirena can cause cysts to occur so if you find the pain in the ovaries does not get better you will want your doc to check and make sure that there aren't any cysts. Not wanting to be an alarmist:) just watching out for you!:) You do not need any more stress friend sorry, hope this is not adding additional stress! I have to agree with your post that information is good to have, it helps us on individual level make informed decisions about our health. I hope that you are able to get some quality care from your doctor so you do not have to suffer anymore! I will be hoping things go well at the next visit. Please do post again and update when you get some time! Take care my friend. Sending you some healing hugs!!!!!:)
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Avatar_n_tn
Hi DMBfan41, thanks so much for posting back! I am so glad you are doing better! Please take care and do post back from time to time to let us all know how you are doing! Smiles to you!!!:):):)
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Avatar_f_tn
Thank you girl) Well i went to another doctor, as mine went to Hawaii for a week, perfect timing))) So i went to another very good  OB, he checked me for everything and said that i don't have yeasts or bacterias and he has no clue why do i have this outside terrible itch, so he prescribed me some cream that contains steroids to stop itching... i just started using it and in 3 days i've got bleeding...and pretty heavy bleeding i can tell with cramps...like i usually had my periods, i am a bit upset because i thought i'm done with bloody stories but seems like not yet, hope it's just my delayed period and i'm going to be ok. I'll keep you posted how i goes. And thank you for yr advice about herbs. During the herpes outbreak i was actually using calendula, which is the strongest antiseptic and healing herb/flower. I am very pro herb treatment though some peopl don't believe in it)))
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Avatar_n_tn
Is there anyone out there who had been on Depo for many years and then went to Mirena?
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98410_tn?1197496728
I found this forum while looking for possible side effects of the Mirena.  I got it the beginning of November and have been bleeding ever since.  The bleeding is now getting heavier.  I have also had a horrific outbreak of acne.  I knew I have been feeling weird...I even mentioned to my partner that I need to go and get a physical cause something just doesn't feel right.  I can usually go two days without washing my hair and now daily I must wash because of the oils.  I have been having weird headaches that come and go and the other day I hit a curb twice and parked about two feet from one curb that I am used to parking by.  Its like I'm in this fog...I didn't even think that it might be the Mirena, and it still may not, but that is a big coincidence.  The one thing that concerns me greatly is that I am an avid crossword puzzler, but I have had to put down my favorites and go buy an easier book because I just could not do the tougher ones any more.  I thought I was crazy until I found this site.  I'm really concerned now.
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98410_tn?1197496728
I have now been doing a little research (and it keeps getting more and more interesting)  The Mirena releases levonorgestrel (a synthetic progestogen)  that not only binds to the progesterone receptor (what you want it to do) is also binds to the androgen receptor (the receptor that testosterone binds to which effects libido, energy, immune function, and protection against osteoporosis), and the mineralocorticoids receptor (receptor for aldosterone whose activation leads to the expression of proteins regulating ionic and water transports).  These are not the only sites that this hormone binds to, but you can already see why side effects are seen when putting this type of hormone into your body.  When the receptor sites for these other hormones are being used by the synthetic hormone then your body thinks there is too much of the other hormones and stops producing them.  That is why when you have the device removed your body takes a while to get back on track, because it has to figure out again what levels of these hormones to produce again.  Also when this synthetic hormone attaches to these other sites the functions of the cells do not work properly for protein production and you get all kinds of troubles brewing.  Our bodies our like clockworks and use precision to get everything right.  Now that I have done this research and will continue to do more I will have my mirena removed and will look into more natural BC methods.  I’m not going to put a synthetic hormone in my system that can wreak this much havoc.  We do not know what damages we are causing our bodies with this type of confusion.
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Avatar_n_tn
Hi friend! I do think your side effects are Mirena related. I know first hand because the first side effect I experienced was a "foggy head" combined with dizziness and this happened immediately after insertion and never went away that is until I removed.(not to mention many other side effects that did not go away until removal) I think it is safe to assume that if these issues have happened to you after getting the Mirena inserted it is most likely due to the chemical in Mirena. I have also done hours upon hours of research and have found that not only does the hormone that is released in Mirena not always local to the cervix but the makers of this product cannot give a completely accurate account of how and when it gets metabolized out of our bodies. The chemical that Mirena releases can mess with our hormone balances and I personally experienced a state of estrogen dominance after the Mirena was removed most likely because my body started to make up for the loss of the chemical by producing too much of one hormone and not enough of another causing a state of estrogen dominance to take place. Though this is certainly not the case for everyone as most women will feel better after removal and continue to feel better as the chemical works its way out of the system.I will paste some websites for you to visit. One of them is the official Mirena website that the docs have available to them when they insert but rarely share with their patients.

http://www.contracept.info/docs/mirena-doctors.pdf        

http://www.netdoctor.co.uk/medicines/100001706.html

I hope that you are feeling better very soon! Please do post back and keep us all updated! Hugs to you!:):):)
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Avatar_n_tn
Hello my friend! I think it is actually a good thing your doc is gone since you were able to see a new one who hopefully will be more sucessful in getting you feeling better soon!!!!! Is the cream working that the new doc prescribed? How is your bleeding? Have you tried taking the red raspberry leaf tea at all to help with it? It may be that your period has decided to show up or it is also possible that you are having some irregular bleeding. Hopefully either way it has stopped for you! I also am pretty pro herb as well. The least amount of chemical that goes into our bodies the better! I do so hope that you are doing much better! Keep in touch! Hugs!!!!:):):)
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Avatar_n_tn
Hi there! While I was not on Depo before getting Mirena I have been told by my OBGYN that Depo and Mirena are both a progesterone only BC and have similar side effects. How are you doing on the Mirena? Hope everything is working out well! Take care and do post back when you get the chance!
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Avatar_n_tn
Hi there! While I was not on Depo before getting Mirena I have been told by my OBGYN that Depo and Mirena are both a progesterone only BC and have similar side effects. How are you doing on the Mirena? Hope everything is working out well! Take care and do post back when you get the chance!
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Avatar_n_tn
Wow, what an eye-opener reading this forum!  I am sorry for so many of you who have had bad experiences with Mirena. I am one of the lucky ones.  I had been on ortho for 16 yrs prior to insertion of Mirena 4 yrs ago. I have no children (BC works for me!) so doc was a little concerned about insertion. Ortho wasn't working for me anymore (worse periods, cramping, etc), so he told me about Mirena.  He put me on a low dose of Progestin-only pills (to make sure my body would react favorably to Progestin), for 6 months.  Once we were confident my body was reacting favorably, he inserted the Mirena, or tried to. My uterus is tipped pretty far forward (as the ultrasound showed) and there was the difficulty. He was worried about perforating my uterus during insertion.  In order for me to have a successful insertion, he had to pull my cervix to get my uterus straight (OUCH) and then insert and release my cervix.  It took quite a few ibuprofen to get over that one. I had the same cramping others had right after insertion (and light-headedness but I think it was understandable considering what my body had just been through!), but by the next day I was feeling significantly better.  In a week, I was 100%. The only thing I notice now is that when I have gas, and my bladder is full, I start cramping.  I think this my be because of my tipped uterus and the position the Mirena is sitting inside of me.  I just make sure to pay attention to my bladder/gas.

I stopped bleeding within 2 months on Mirena.  I haven't had a period in 4 yrs.  I do notice a lowered sex drive, but that may be related to other things.  I have not ever experienced the depression, weight gain, or acne that others have reported having.  For those out there who have never been pregnant:  make sure you understand the side effects, make an informed decision (if you're reading this forum, you're well on your way), and make sure you trust your doctor.  My doc was very cautious and pro-active about my situtation.  He never treated me like I was everyone else.  He took the time to switch my pills to make sure that my body would react favorably, and ordered the ultrasound when the first insertion didn't go well, and then called other doctors to find out how to properly insert this into a patient with my problems.  Doctors have more difficulty inserting this IUD into patients who had never experienced child birth since our cervixes are much tighter.  I will be having a second Mirena installed next October '08 because it is the greatest thing I have ever done for me.  
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Avatar_f_tn
Hey girl) Well the bleeding turned out to be a period, but damn that was the nastiest period i ever had, the blood flow and cramping were as on the first day for 6! days. I had to stop using cream because of my period, so  i guess i will try now again. I drank raspberry leaf tea it helped me with cramps. Then within  6 days everything just suddenly stopped and right now i still have very light spotting. My OBGYN told me that spotting could continue up to 4 month...well I'm not going to wait any longer. I don't know why did i have such a heavy period on the 3 month of having Mirena, 2 previous were nothing but spotting. I'm not actually happy with another OBGYN because though he had this pretty frame doctor-of-the-year on the wall, he had no clue of the origin of the itch and it's been already 2 weeks i have it, i don't think it's an allergy. Oh well, i'll post here if anything new happens) Take care!
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Avatar_n_tn
This all is so scary to read. I thought I was the only one. The Merina still new on the market when I got mine almost 5 yrs ago. I got tired of the weight gain, breakthrough bleeding, cramps, pinching, mood swings, low sex drive to name a few. I figured I need to allow my body to regulate. I knew it was time when I could not fit my maternity clothes...UH! THE HUMANITY! So..If we have a baby we have a baby but at least I have all those darn hormones out of my body. I got my IUD removed on last Wed and I started bleeding Friday and have not stopped. It's starting to taper off though. I tried to read through the thread but there is a lot. Has anybody else had this issue...this soon after removal??
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Avatar_n_tn
I am sorry to hear that so many of you have had a bad experience with the Mirena IUD.  However, i do want to remind you that the Mirena has worked very well for many, many women.  it is a wonderful method of birth control (for most of it's users) and i highly recommend it to anyone who asks me about it.

I've had my IUD for a little bit over four years now .  I was 19 (am now 23, nearly 24) when i had it inserted.  I had to fight my doctor for it, as it was relatively new on the market and it is not ideal for people who have not had children.  (the uterus isn't stretched from pregnancy, and it requires a minimum uterus measurement of 6cm).

my gyno suggested everything else under the sun (patch, nuva ring, other pills)- but I stood my ground.  I wanted an IUD.  In fact, i had to sign a waiver that stated that I was aware of my increased risk of expulsion.   (I should state that it is now much easier for younger women without children to get an IUD.  but it is the success of women like me who have made it possible for them.)

as it turns out, my uterus was just barely 6cm.  Insertion hurt.  i'm not gonna lie- it was pretty horrible.  I could feel it snap into place as the little "T" arms expanded.

I followed my doctor's instructions and took two Aleve, twice a day, for 3 months after insertion.  (keep in mind, i was at very high risk for expulsion).

at one point, i forgot to take the aleve for a few days and i found myself doubled over in pain.. everything was swollen and sensitive.  i quickly took some Aleve and by the end of the day, i was fine.

I spotted for a few months after insertion, but it eventually subsided.  I did not have a full blown period for four years.  Occasionally, i would spot- but it was never fresh blood.  This fall is the first time that I've had a period since i got my iud.  and it only lasted a few days and was incredibly light.  i was able to use panty liners.  

there have been the occasional night where I've had (seemingly) cramps that were so bad that i could barely move.  in the past four years, i have had two of those nights.

I'm not going to say that my experience with the IUD has been perfect.  I did experience some acne (when i was a teenager, my skin was perfect.. now at 23, my skin is worse than it ever was.  sometimes it's clear, other times it's totally broken out.), my weight has fluctuated a little bit, and i do spot.  after reading these posts, i can also attribute the hair loss to the iud.

however, these side effects are not enough for me to trade MY iud for any other form of birth control.

i plan to get another mirena iud next fall.  in fact, i can't imagine being on anything else.

nothing is perfect.  it's just a matter of finding what works for you.  and i'll take the side effects if it means that i won't have periods or get pregnant.  
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363495_tn?1211760532
greetings all... i had mirena put in 4 days ago and i'm 9 wks postpartum... it was quite uncomfortable getting it in, but i took ibuprofen afterwards and i've been okay pain-wise since.. i have however been spotting since then too...
when my dr suggested mirena it sounded okay, as we had discussed tubal ligation as well, but since i'm younger (23) with two children it seemed drastic as i don't know how i'll feel about more kids later on in my life...
anyhow, what i didn't realize is that it comes with all these side-effects... and make it worse, i'm breastfeeding, and i didn't know that the hormone can get into my mlk... my dr said the iud is better than the injection because it's localized in the uterus, while the injection is in my bloodstream...
now i'm thinking about getting it taken out but what other really good BC is there for me?
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Avatar_n_tn
Hi there! It is great that you are doing well with the IUD and its side effects for you are bearable but I think you are incorrect to assume that the IUD has "worked well for many many women." There are some women that the IUD works for and some that it does not work for and there is no way of knowing the true statistics of just how many women are on either side of this. Unfortunately I have read too many personal accounts from women who were using this product and were recommending it to all their friends only to find out that their onset side effects were Mirena related and the docs did not give them any heads up nor did they give any credibility to the side effects being due to the IUD leading to these women being in the dark about their side effects for quite a time. It is a personal choice whether you want to take the risk with this product but it needs to be addressed that there are MANY of us women who have gotten this IUD and suffered seriously because of it. If you are getting along well on it then that is good but it is important to be aware of what can happen when using this product and to be responsible in sharing the "whole truth" about this product and its pros and cons with use. Side effects can happen at any time with use of this IUD. There are women I have talked with who did great on the first Mirena then after the five years they got a new one put in then experienced side effects. There are others who get them immediately. Still others don't get any until after a few months and there is a % of women who will never experience them. We always love to hear positive experiences and it sure helps many women struggling with the decision whether to use this BC or not to read the positive accounts that are posted. I just want to make sure we are careful not to pass on false hope that this BC is infallible. The doctors would like us to believe that it is a miracle BC for all of us but there are TOO MANY who are and have suffered because of it. Sorry  I sound a little preachy. I truly wish you the best with this BC and I hope that it continues to work well for you.  Please do post back and continue to share your positive feedback about your experience with Mirena. Take care!:):):)
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Avatar_n_tn
Hi firebaby,
I would like to congratulate you on your newest addition:) How are you doing friend?
The doctor that recommended Mirena had a responsibility to give you the possible adverse affects from Mirena  It disturbs me that you were not made aware these side effects the chemical in Mirena can cause. Mirena's own literature states that the doctor is responsible for offering the prescribing info to the patient. This info lists some of the possible side effects but the docs rarely give this to their patients. Instead they opt for the tiny handout that mentions a few of the side effects and cautions. I cannot stress this enough, the chemical in Mirena can and does circulate in the bloodstream and is not always local to the cervix. The doctors like to say the hormone is local to the cervix and they project Mirena as their miracle BC but remember that with each one they insert they get some money in their pockets. You might say Mirena and BC in general are the bread and butter of the Obgyns. I do not mean to sound so negative but I am angered when I see the docs take such an ignorant position on this BC when there are so many women who are suffering because they did not share the truth about what can happen! It does not mean all women will experience side effects but by not giving you all the facts the doc in a sense is taking away your ability to make a completely informed choice about your healthcare.

Mirena is not recommended as a first choice for breastfeeding Moms but it doesn't stop the doctors from pushing it. I will post some additional info regarding cautions of Mirena for breastfeeding Moms in my next reply.

I am here if you have any additional questions or concerns. I will paste some websites for you to visit so you can read for yourself the cautions and side effects. It may be helpful to print these out and bring them to your doctor. I hope that you are feeling better very soon! Please post back and update us as to how you are doing!:):)


http://www.contracept.info/docs/mirena-doctors.pdf        

http://www.netdoctor.co.uk/medicines/100001706.html









  



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Avatar_n_tn
Hi chocolatechildnkc,

Just wanted to check in with you and see if your bleeding has gotten any better? After removal of Mirena, my doctor cautioned me that the bleeding could be significant and that there could be clots along with it. If you are saturating a pad an hour or more you need to be seen at the hospital ASAP. The bleeding is most likely from removal and should settle down within a few weeks but please do go back to your doc if it does not get better.
Your period can take up to a year to get back on track after using BC for a significant period of time but some women see this get back to normal much sooner(even within a month or two).
I do hope that the bleeding has settled down for you and that you are seeing your other side effects get better after removal. It can take sometime for the chemical to get out of the system so take it easy for awhile. Please do post back and let us know how you are feeling! Sending you a hug!!!!:):):)
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Avatar_n_tn
Hi there,

Here is the info I mentioned about the recommendations of breastfeeding while using Mirena. Take care!:)


Found the following on Wikipedia regarding Mirena in breastfeeding mothers.





Nursing mothers
There is an increased risk of perforation in women who are lactating.[18]

Progestogen-only contraceptives such as an IUS are not believed to affect milk supply or infant growth.[25] However, a study in the Mirena application for FDA approval found a lower continuation of breastfeeding at 75 days in IUS users (44%) versus copper IUD users (79%).[26]

Levornogestrel is found in nursing infants at 7% of the concentration found in their mothers using the Mirena IUS.[7] A six-year study of breastfed infants whose mothers used a levonorgestrel-only method of birth control found the infants had increased risk of respiratory infections and eye infections, though a lower risk of neurological conditions, compared to infants whose mothers used a copper IUD.[27] No longer-term studies have been performed to assess the long-term effects on infants of levornogestrel in breast milk.

There are conflicting recommendations about use of Mirena while breastfeeding. The U.S. FDA does not recommend any hormonal method, including Mirena, as a first choice contraceptives for nursing mothers.[7] The World Health Organization recommends against immediate postpartum insertion, citing increased expulsion rates. It also reports concerns about potential effects on the infant's liver and brain development in the first six weeks postpartum. However, it recommends offering Mirena as a contraceptive option beginning at six weeks postpartum even to nursing women.[28] Planned Parenthood offers Mirena as a contraceptive option for breastfeeding women beginning at four weeks postpartum.[6]







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Avatar_n_tn
Thank you for posting! I am glad to see that there are some competent docs out there who are putting their patients well being front and center! I wish you continued success with Mirena! Hugs!:):):)
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Avatar_f_tn
ok i'm back to my previous OBGYN, she diagnosed the itch very easily - a second outbreak... so as for the heavy period i've got out of a sudden, she said that mirena may adjust up to six months, so if u stopped having periods and then got them back it could be normal, unless there are some abnormalities. What makes me laughing is how my doctor is against of herbal treatments. On my question if i can use Calendula spray to help the ulcers heal faster, she said that nothing works better than Valtrex and this is it))...oh those doctors...  
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Avatar_f_tn
I managed to get through almost half of the discussions on this page and I was very suprised. I thought that I was the only one experiencing the wrath of mirena. I'm sure it does not affect everyone the same way being that we are all individuals and our bodies will always react to things differently. I had my mirena removed 2 years ago and stopped taking birth control pills in March of '07. With the mirena I experienced weight gain, I went from 123 to 152, and major hair thinning. I also had the pain that was on the lower, left pelvic area. It was so bad I would'nt be able to get up and would take pain meds for it. After I had it removed the pain stopped and my hair has gradually began to get thicker again. I am also back down to 132 pounds. So I do know that there are some side affects that a few of these ladies had that are true. Also, I was looking for someone who was unable to concieve (conceive) after having the mirena removed. Now I did use pills for one year after having it reemoved but it has been almost a year since then and I have been unsucessful concieving. :( What do you think? I enjoy you're discussions.
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Avatar_n_tn
Hi there my friend! I am glad you were able to get the itch diagnosed appropriately. It is ridiculous that your doctor does not leave the door open for considering the herbal route. Maybe she isn't the right fit for you to be your OBGYN. Though I guess if the docs pushed the herbal alternative they may put themselves right out of a job LOL! It still seems to me that she should at least attempt some further investigation into it since you have mentioned the herbal treatments to her as an option. My md is on board with the herbal treatments and always attempts this as a first choice to any ailment I may be experiencing. Sometimes the herbals work and sometimes I end up with a medicine if it doesn't but at least he gives me the option. We need to transport him to where you live:):)So as far as your heavy bleeding/period how is this doing? Hopefully this will get better with time for you as your doctor has mentioned. Have you gotten your doctor to check your blood levels to see if you have become anemic? This could be an issue if you continue to get this heavy bleeding! So I will continue to look for your updates and I will be hoping that everything settles down soon!!!!!!!! Take care my friend!:)
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Avatar_n_tn
Hi there! I wanted to ask if you have had your hormone levels checked? Mirena is a progesterone only BC and it can really mess with our hormone balances as can many other types of BC. There are a few of us online who have been researching a possible estrogen dominance connection because of Mirena's ability to send the hormones into whack. This is certainly not true for all women who use Mirena but if you are having side effects that do not go away after removal this could be what has happened. In your case you mention that you have been unable to conceive which can be caused by a hormone imbalance like estrogen dominance. I would suggest that the Mirena may have initially allowed this to occur then additional hormones from the pills continued to keep the balances uneven. Even after stopping BC your body may need some natural help to get its balances back to normal. It is definitely worth getting your levels tested to see where you stand because if estrogen dominance is the cause it can easily be fixed with some natural progesterone cream. You can order a saliva test right online to get your levels tested and go from there. I would like to add that it is important to have a competent doctor address these issues with you and make sure there are no other causes for the the infertility.

I thank you for posting your experience with Mirena. I wish you a happy healthy future friend! Please do post back and keep us updated on how everything turns out!
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Avatar_f_tn
Hi girl) Thanks for the answer, i wonder how you get time to answer to all of us)). Well my OBGYN said that this was still usual bleeding, she said it may happen again, but it won't be regular, so i hope it was due to the stress i am going through with herpes etc. But i will definitely keep you updated about any changes) And i don't care of my doctor's opinion about herbs, i just know what to use and I still use it even if she thinks it's useless)
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Avatar_n_tn
Hi again!  I usually monitor this forum and one other Mirena forum after my twins go to sleep:) Though I wish I had more available time to be more prompt with my posts and replies:) Okay, so I am assuming the bleeding has stopped for now hopefully?! It would definitely make sense that stress could be a contributing factor to why the bleeding has been so heavy. Stress can definitely throw our bodies off that is for sure! You sound very strong and smart about your health care decisions and I think it is great that you and only you are in charge of whether you use the herbals or not. I feel the same way!:) I will be looking for your updates my friend! Hugs to you!!!!!!
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Avatar_f_tn
I am 27, married and not planning to have children in the near future.  I have been using Nuvaring as my BC method for almost two years but am discontinuing due to frequent yeast infections and increased discharge.  My doc has recommended Mirena.  I have been doing as much research as I can and see a lot of negative side-effects.  I'm wondering if anyone has any positive stories?  I am so hesitant to use Mirena, I just canceled the "culture" appointment that I guess is pre-required prior to placement of Mirena.  In the past I used ortho-tri lo, depo-provera and will not temporarily use Loestrin 24Fe.  I liked depo, however my doc "doesn't like depo" because of "bone loss".  I for one don't want hair loss as some of you've discussed, I don't want sex drive loss, etc...  I'm so conflicted.  Its like this decision shouldn't be so difficult, but I feel like a daily pill isn't my most favorite option, I'd like something more long term where I don't have to think about it each and every day.  Any thoughts, I welcome!
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Avatar_n_tn
Hi jesselissa! It is good that you are doing the necessary research so that you have all the pros and cons available to you before making any decisions:) I have read posts from some women who are doing well with the Mirena. There are also some of us who have not been so lucky.My first concern is that you are hesitant to try the Mirena. I know that after reading some of the posts from many of us who have suffered some of these side effects it can definitely make you think twice. This product affects each of us differently so there is really no way of knowing how it is going to affect you. Some things to think about with the insertion of Mirena if you haven't had children are it can be extremely painful so if you decide to have it inserted I would recommend having your doctor give you a local anesthetic. The doctor needs to discuss this with you completely since they sometimes try to minimize this pain. Also, I will paste the official Mirena site so you can read through the docs prescribing info. There are definitely pro Mirena sites too and it may be helpful for you to visit some of those sites as well. Most of the women who post on this site have suffered side effects from Mirena myself included. If you scroll back you will find some positive experiences too:) It is a serious decision whether to use this product or not and it is always best to get all the facts so you are completely knowed up on the product. You will find support here no matter what you decide. I wish you all the best! Please post back with any concerns or questions. Also do let us know how things work out for you! Take care!!!!:):):)



http://www.contracept.info/docs/mirena-doctors.pdf         (this is the official site, hope this helps)

http://www.netdoctor.co.uk/medicines/100001706.html


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Avatar_f_tn
Hi. Thanks for responding. Can't get on here everyday but I'm sure going to try! I am going to enjoy having conversations with someone who has something interesting to say! I have'nt gotten my hormones checked out but I am going to. I thought about it before and now that you said it I think that I will. Could really be the issue since I have been on some form of birth control for years. Pretty sad and upsetting, you never really think that its taking such a toll on your body.
Thakks! I'll keep in touch. :)
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greetings... thanx for responding... i would've come on sooner but i couldn't find the forum! :-) anyhow, for an update-- i did a little bit more research this time and i've decided for a copper one instead (nova-t)... i have the appointment with my ob/gyn and everything so it's all set... at least this way i don't feel so guilty everytime i nurse my son...  
since i've had it in, it's been only one day i haven't bled, and everyday it gets progressively heavier... i know with my first son i didn't see a period again until i started him on solids at about 4 and a half months, but can't it be that or just those ol' hormones messing with my system?
anyways... thanx again for all the info... take care...
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I had my first mirena back in Jan. of 2002 had it removed 4 years and 8 months later.. The extraction was the most painful thing I have ever experienced, but that was due to an incompetent Dr. who litteraly yanked it off of me.. I had the strings cut so short they wouldn't bother my husband during intercourse. They were cut so short I couldnt feel them @all.. That was not the problem, I had my annual every year & it was always in place but somehow got attached or ingrown,(to the cervix) and had the most uncedated, unsurgical, removal of the iud. Just to give an idea....it felt like he gently stuck his fist down my throat and grabbed my ovaries and yanked them out....(not exagerating)
But I did learn by consulting another Dr. that that was not the proper procedure for an IUD removal.
I did think about not putting it back in....I mean the pain was hell, but not ever having a problem with it and not getting a period, or bloated or pregnant which was my main concern.  I got it inserted again and I have never experienced such an extraordinary birth control system....THANK GOD 4 MIRENA......
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I really can't believe I found this site and all the bad info about Mirena.  I just decided to do a search to see if my side effects could possibly be from this IUD and boy was I suprised.  I have had the implant for 5 months and I kept thinking that I felt the same way I did when I was pregnant...depressed, sudden mood changes, nausea, memory loss, bloating, no dex drive, and even food aversions.  I've become someone I don't recognize.  I'm thinking the Mirena has got to go!
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Has anyone had milk coming out of their breasts, or had alot of pregnancy symptoms while having Mirena in?  Also, first you have to know that my iud moved and I had to go through all kinds of tests and they said it was still alright where it was at, but I have had bleeding during sex, and now I really feel pregnant.  Any suggestions or anyone like me?
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I have had mine for 3 years and have not had any problems. Maybe you just got a bad Merina.
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greetings... well, i've had my mirena removed, but since i've been bleeding everyday (except one) since i had it put in, my obgyn decided not to put in the copper iud same time, but wait and let me "heal".... it's been 5 days since and i'm still bleeding away... how long will this last?  
and i know the copper iud has the potential to make my periods longer and heavier...
the things we women have to go through... i guess it really is a good contraceptive device, cause with all this bleeding you can't have sex, and if you don't have sex you can't get pregnant! :-)
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oh yeah... the removal process for me was a walk in the park... i didn't even believe my doc til she held up the device to show me it really was removed... i didn't feel a thing, unlike putting it in, which took about 3 or 4 tries...
however, i did take ibuprofen an hour before removal, but none before putting it in, so maybe that had something to do with it...
my main concern is the breastfeeding and hormone, but besides that, my side effects (apart from bleeding and headaches) were minimal...
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Hi detcitygirl! Sorry I did not respond sooner. The holidays are pretty busy for us and probably for you too:) I am glad to see that you are going to get your hormone levels tested. Were you able to order it yet?  It is so terrible that for some of us it can have short and long term affects! Hopefully you will be able to get to the bottom of things by getting your saliva test done! I will be thinking of you and hoping things are going well for you! Take care and please do post back from time to time to let us all know how things turn out for you!!! Hugs!
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I've had the Mirena for 3 years and never had a problem until recently. I've been getting cramps from Hell and my breasts have been hurting everyother week. My periods are light and usually last about 3days. But the real problem that is unexplainable to me is why does my boyfriends penis puff up like a marshmallow after sex. We both had yeast infections and the doctor gave us pills for it and it went away. We both got checked (and double checked...lol) for std's. None of that is the problem. The doctor seems to think that he is allergic to the hormone in the iud. And we've been together about 5 months and this has been going on about 3. He says it feels like a burn on his penis. He peels the skin off. He travels alot and I think by the time it is almost gone we have sex and it flares back up. How is it if the Mirena only produces a little amount of hormone that it can damage him like that? I've never seen anything like it. I'm truley considering having it removed. Hes not home thru the week to go to the doctor unless he takes off...which costs alot of money. WHAT CAN I DO? HELP ME....I'd like to have a normal sex life.(LOL
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Hi firebaby,

I am so glad to see your removal was successful. I think it was very wise of you to remove. My thinking is if there is any risk or doubt it seems better not to chance it!:)  I am also glad to see your doc did not start the new BC right away. Your body needs time to recover from the Mirena and certainly your bleeding needs to be under control since the copper IUD can cause heavy bleeding to occur. How is your bleeding? I know it is so frustrating to bleed constantly while Mirena is in only to get it removed and have the same be true! It usually does get better for most women after it is removed. For me, this post removal bleeding cleared up pretty quickly but it is not uncommon to have clots and heavy bleeding initially after removal and even for a week or two after removal. If your bleeding does not stop or gets worse you need to get back to see the doc ASAP. I found that red raspberry leaf tea helped my bleeding significantly. If you like using herbal products this may be helpful to you! I think if at all possible you should try to relax as much as possible, drink lots of H2O, and give your body the time to naturally detox all the Mirena chemicals out. I do think the bleeding you experienced has been Mirena related however if you find it does not get better you may need to be reevaluated to see if there are any underlying conditions to blame. Hopefully you are already doing better now!!:) How are the headaches? I hope they have gotten better too. Please post back and let us know how you are doing! Take care of yourself! Happy New Year too!!!!!!:):):)

  



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Wow! You have truly been through an ordeal with your Mirena and it is incredible you can still be so positive about it! Did you sue the doctor who removed it incorrectly? I cannot imagine how painful that must have been. I am glad a qualified doc put the new one in and that it has been a great BC choice for you! Take care and do post back and keep us updated as to your positive experience on the Mirena! :):):)
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Hi there! Glad you were able to find us! Yes Yes Yes your side effects do sound Mirena related. You are on the ball to mention your side effects are similar to pregnancy ones. BC can trick the body into thinking it is pregnant which is why some of us start getting pregnancy symptoms. It is always best to get a pregnancy test done just in case since even on a BC that is over 99% effective you can still get pregnant. Most likely your body is reacting adversely to the progesterone that is released by Mirena. The docs like to say the hormone is only local to the cervix but this is deceptive of them since Mirena's own literature explains a certain amount is released into the bloodstream. Furthermore, Mirena cannot explain how and when this chemical gets metabolized. This is what is most disturbing to me since you have this chemical storing up in the bloodstream and do not know when and how it gets out. Unfortunately, this is most likely the reason for why we experience side effects. There are some women who get little or no side effects and for them it is most likely the chemical stays pretty local to the cervix. However that being said side effects can happen at any time so even if initially this is the case it is best to know what can happen if the hormone should move into the bloodstream and cause side effects. I will post some web sites for you to visit so you can do the research about your side effects. Your doctor may minimize your side effects being from Mirena but I suggest you print out the info from the sites I post and bring them with you to your visit. I read a journal artical recently that says doctors are not listening to their patients concerns about side effects they are experiencing from their meds, BC included. These drugs are not studied intensely enough for these doctors to say 100% the side effects experienced are not caused by a particular drug. Should this happen to you, it is important for you and only you to decide about Mirena and its pros and cons for you! Hope the info helps you make an informed decision! Take care! Hope you are feeling better very soon!!!!HUGS:):):)


http://www.contracept.info/docs/mirena-doctors.pdf        

http://www.netdoctor.co.uk/medicines/100001706.html



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Hi there! I read a similar post on Curezones Mirena forum not too long ago. In that post the women referred to leaking milk from her breast as well. Mirena can trick our bodies into thinking they are pregnant which is why you are probably experiencing pregnancy symtoms (symptoms).  I am not sure what causes the milk production to occur but if you visit Curezone I am sure the ladies over there may have a better answer for you. It is best to rule out pregnancy with a test since you can get pregnant while using Mirena though it is rare. Have you been back to the doctor for any further follow up? You may need to get another opinion if you feel the doctor is not addressing these concerns adequately. I hope that you are feeling better! Please post back and let us know how you are!!:):):)
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Hi There! It is great that you have not had any problems with your Mirena.If you go to the official Mirena site you will see the reality of what can happen and has happened for some of us. We have all gotten the same Mirena that you have the difference is for some of us the chemical that Mirena releases goes beyond the cervix and circulates into our bloodstreams(sometimes in high amounts) in turn causing side effects to occur. I appreciate you sharing how well Mirena is working for you. There are other ladies on our site who are getting along well with it too. There are plenty of us who have not been so lucky and as such we appreciate the understanding and empathy of women like yourself. I wish you continued success with Mirena. :)
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Hi friend! Unfortunately, side effects can happen at any time on Mirena. I read a post from a women who had hers removed after 5 years with no problems only to get her new one put in and then she got extreme side effects and had to remove. I am sorry this is happening to you! I would monitor these side effects and visit the websites I listed in a previous post so you are 100% informed. As for the chemical causing allergic reactions, I have heard other women who were actually getting allergic reactions to the progesterone in Mirena however I did not know it could cause a partner to get similar side effects. I think you may get some feedback from the ladies on Curezone's Mirena forum. I think if the Mirena is causing you and your boyfriend these side effects then it may be time to consider removal. Please do post back and let us know how you are doing! HUGS!:):):)
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Thank you for your posts.  I have been considering getting Mirena and started doing research this evening.  After reading the web site I thought Ok, this is alright. Then I found this forum and after reading half of the posts, I have to say hell no!  I am sorry you all had to find out the hard way, but I appreciate the fact you decided to share your personal accounts.
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I had Mirena for 1 year. The insertion was painless. Having no periods for a year was great. I too could not lose the weight and swore to my provider that it made me crave sweets, especially chocolate (not normal for me). I also had extreme bouts of depression. The provider mistook something I said and placed in a mental facility due to suicide watch and it took me three days to get out. I never said I was going to hurt myself, I just cried the whole time we talked. Anyway, I I contacted another provider because I wanted to concieve (conceive) my third child and have the Mirena removed. It was removed Nov 6. Three days later I began to bleed and thought it was my first period. It wasn't painful but I would lose clots bigger than a silver dollar. Just whole chunks. It was like my insides were falling out. I had to change protection every 20 minutes or ruin my clothes. That went on for two weeks and when I called the doctor, she said to come in. They did some checking and there was a cyst on my left ovary. I have since had a very mild period and then an ultrasound showing the cyst is gone. Now I'm a day late and the pregnancy test comes up negative. I'm glad you women have post this info.
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Well after alot of consideration I have decided to get the Mirena removed and get my tubes tied. I have 2 beautiful children and I shouldn't have anymore. I had hard pregnencies with my kids. I had a son that passed away from premature labor and problems after birth so it's just better off. However now my boyfriend is afraid that I'll go crazy on him. I just want to know if anyone knows about the side effects of getting tubes tied. Is it anything like having a hysterectomy?
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I had Mirena for about 2 years... the worst 2 years of my life! I didn't actually realize how bad I felt until after I had it removed. I actually thought I was going a little crazy! Memory loss, foggy head, EXTREME hair loss, zero sex drive, rashes, moodiness. That device is horrid and I cannot recommend it to anyone. Hopefully my hair will grow back....
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hi i had the mirena in for about 9 months the worst 9 months of my life  especially the last 4 months the mirena is a horrible evil contraception my side effects were joint pains, really bad dizziness, pins and needles in the hands and feet , numbness , blurred vision, chest pain , heart palptations, really bad anxiety you name it i had it i have had it out now for 9 weeks and i feel so much better not 100% but nearly there so if anybody is thinking about getting this thing dont
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I had the Mirena IUD placed in November of 2006. I had pretty bad cramps and spotting the first 6 months but after that, it seemed like things were going great. I liked the hassle-free sex and lower dose hormones compared to the pill. However, I've been gaining weight (about 5-8 lbs) over the past year and I'm not sure if it's because of the Mirena or if I'm not exercising enough/eating right. I'm beginning to think it's a combination of the two.

I also have no sex drive - I can go for months without it.

I will try eating healthier/exercising more but if it doesn't work, I think I'll have it taken out. I will let you guys know if I see improvements afterward!
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I had my IUD put in right after I had my son and loved it I had no problems for about 3 years. I had it took out about a year ago because we wanted another baby the doctor told me that I could have a baby soon after it was took out well it has been a year and still no baby. My periods are so off they are either on time ever month or like now I will bleed for 2 monthes stright. I was just hoping someone could tell me how long it took them to have a baby after they had there IUD took out and how long it took for there periods to stay on time. Any help is welcomed haveing this baby means alot to me and my husban.  THANK YOU :)
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Well my new updates. 1) My periods are total mess. They start pretty much on time, but the flow is the same all 6 days, like on the first day. Doesn't get any better. Right after periods spotting starts as well and continues something like till 1 week before another period((((. 2) MY hair! OMG! I have long very very long hair, they became soooo oily, i wash them everyday now though i usually did once in 2 days. Sometimes i wash them in the morning and in the evening they are all messed up. 3) I have evening cramps, exactly when i go to bed, i have no idea how's it related, but pretty annoying. 4) Skin is back to normal...at least something is recovering. 5) As for the weight i realized that i gain it as easy as i loose it. So it's not an issue. But craving for food definitely increase, so more attention to the work out is necessary as well as to what you eat.  I'll keep posting my changes)
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I had the Mirena inserted in August 2007 and since then I have bled or spotted more days than not.  I finally decided after have 3 1/2 days of nothing and then starting again, to see another dr and have it removed.  I was able to get in the next day and today will be the start of my new life.  The past few months have been horrible.  Minutes after it was removed, I felt like a different person.  I then started a real period.  Let's hope.  I have 40 years old and never had children.  If you have not had a child, I would not recommend this type of birth control.  
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I guess I'm not going crazy after all.  I had my Mirena inserted at my 6 week pp check-up and I haven't stopped bleeding since!  My emotions are nuts.  I've been having episodes of rage and suicidal thoughts.  My heart pounds in my chest and I have difficulty sleeping.  I am very distracted and can't focus, but that is probably due to my ADD.  I have never felt so out of control before.  This is my fourth child.  I have experienced some minor PPD with my other children, but nothing like this.  I guess I will look into having it removed, but then I have to find another BC option.  The pill is no good b/c I can NEVER remember to take it and my husband doesn't like the idea of me using the patch.  I hate that anyone else is experiencing these same symptoms, but I'm glad to know I am not alone.
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Wow, everything you lovely ladies have decribed is how I feel and have to put up with, everyday of my life since turning 42 years old . But I don't have the mirena as yet. I will be getting it inserted on the 21th of jan 2008. I have cysts on my overies, I have polys that are about to be removed, I have continuing spotting everyday between my periods, and when they come its faint city. They are heavy and painfuull and full on. I didn't think I had that blood in such a small area. I faint around the second and third days. I try and sense when Im about to faint but never make it .My head hurts, I had stiches numbers of times, and now I hate hospital, (lol). I can't work when I have my periods as they are heavy .I think maybe it was a age thing.My doctor said its not menopause. ( Im looking forward to menopause). I have put on weight, (maybe a middle age spread)? . Sometimes I wake in the morning and I have seen to recieved a breast inlargement, which I wasn't aware off. Im 16C but it seems to go up and down .

I wake up in the morning with loose hair in my mouth and pillow. My mum is 78 and is going bald, so I think is going to be the same for me. When I was pregant I lost alot of hair but this is quite normal as everything goes faster for the baby. I have very bad PMS, I cry for no reason, but I do have teenagers!. Im in contieuing pain a week before and during and a week after my periods.

I have diarrhoea thoughout my periods. I feel sick but not so I want to vomit. Some days I eat like a pig and other days the sight of food makes me sick. Im 78kg.(156 BLS) so I don't have a eating problem. My periods are never on time either five days late or five days early. They were great before I hit 42. Oh well for me I think I will have the mirena inserted. I have read everything you lovely women are going though. If my problem gets worse, (I wonder, could it get worse?????. ).But right now Im going to try this mirena iud. Maybe I could get lucky and it might work for me. LOL , if it gets worse ,(how would I know? lol), I will have it removed so quickly. I will let you know what happens. Goodluck to us.
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I had my Mirena removed Nov 2nd 2007 and periods went back to normal fast. The mirena was pure hell. Even after removal my hair is falling out and have not been able to conceive. I used to be so fertile you couldn't stare at me too long if you know what I mean. I'm getting married in April and I we can't even conceive. I wish I knew this before the Mirena I would choose my hair and fertility over this ****.
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I had my mirena put in last friday, it was very painful to me, I am wishing I would have read this before I went and got it. The doctor assured me it would be okay. I have been on the pill the nuvaring and depo and all caused weight gain acne and my hair was comming out in chunks with this nuva ring. I was so optimistic about this mirena and now I think I made the wrongdecision. I have to get a check up in 6 weeks and I am wondering if I should get this removed and the paragaurd put in instead! help!
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As far as my experience with Mirena goes, I am completely pleased and satisfied with this method.  I too have had mild cramping and/or bloating, but would overall reccomend this method.  As far as the numerous side effects are concerned, I have had NO difficulty finding them listed in any pamphlet or anywhere online.  I assume some of you women who have posted that have been so devistated by side effects or just outraged at not knowing about them have access to all the internet information available.  Mainly I am concerned by the fact that for someone who is not educated enough to read or research a product they are hardly qualified to use the whiny scare tactics to instruct others to avoid said product.  In particular, to the woman with the (indeed tragic) news of learning of her ovarian cancer, do you really expect us to believe that your cancer was caused by 3 short weeks of the use of Mirena??  I mean, really???
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I really wish I would have done a little more research on Mirena before I had it placed. I originally got pregnant from forgetting to take the pill a few times and did not want to have another unplanned pregnancy so I thought Mirena would be best. I was wrong, the pill would have been SO much better than the IUD. I had cramps for the first few months, then every once in a while I would have EXCRUCIATING cramps. So sever that I thought my appendix was bursting. I also have had terrible, sever acne ever since I had it inserted. I was just getting over my acne I had during pregnancy and then I got Mirena and BAM, my acne erupted. I am embarrassed at how awful my face looks and I am getting married in 4 months and I am going to look awful. not even the best make up you can buy can cover up my acne. Not only that, i have had mood swings like crazy and have been feeling depressed more often than not. I truly think it is the Mirena that is causing these symptoms.You never think you are going to be the 1% that has the side effects listed for a product but, i guess i am the unlucky 1% that does. But looking online and researching a little more it seems a lot more than 1% have the same symptoms as me. I think it is Mirena job to inform us a little better and not just tell us that these symptoms are "rare" but are likely to happen. I feel like i have wasted time and money with mirena. If any of you ladies are considering Mirena PLEASE do your research and become informed on ALL your options. I wnet with the eaisest birth control product i thought available and i got slapped in the face with all these problems thta come along with it.
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I forgot to add this also: I was breastfeeding when i had mirena inserted, because i was told by my doc that it was safe and would have to effect on my milk supply. That was completely opposite of what happened. I completely dried out and was pumping 1 ounce in each breast withing a week of getting mirena, when before i was pumping 4 ounces in each. I had to give up breastfeeding my 5 month old baby because i simply wasn't producing enough. i tried pumping more and longer, every hour for 15 minutes. It didn't increase and it just took up my time. so if you are breastfeeding, i do not believe that it has no effect beucase it DEFINITELY does.
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Well this is very interesting and could explain a lot! I had Mirena put in about 4 years ago and recently had it taken out. I googled Mirena to find out how long before my periods came back, it has been about 5 weeks since getting it out. If you asked me 1 year ago what my thoughts were on it I would've sold it to a nun, I liked it that much.

Why did I get it out you ask? Well, about a year ago I was diagnosed with an ovarian cyst, which I was told by Dr. that it had nothing to do with the IUD. This year I still have a cyst and I told him I wanted to remove the IUD regardless because I had no history with cysts and if the only thing that had changed with me was an IUD I didn't care what his thoughts were but I wanted a foreign object out of me. He did remove it.

Here is the interesting part. I had no clue what the side effects were and had no clue about them until finding this site! Not long after having it inserted I started to lose tons of hair! I had a ton to start with so it wasn't noticeable to most. I found hair everywhere , my stylist told me to go to the Dr. when she washed my hair and it was falling out in her sink. I went to Dr. he said it could be anxiety, stress  or horomones. Had hormones checked out  and they were fine. The hair loss happend for about a year and subsided. I had an incredible pain on my left side, it was debilitating pain, I felt like my uterous was going to fall on the floor if I stood up about twice a month. If I had gas the gas moving around my ovary killed me! It was the cyst I had grown. Since I've had the Mirena removed I've only had the pain once and it was much, much less, possibly to my cyst shrinking due to removal. I am going in a few weeks for a recheck of cyst. I have had ZERO sex drive. I never had a high libido but it was gone, it's still not great but better. I am on anti depressants now and hopefully when going to dr this week can explain to her my Mirena issues and get off of them. I have never had any issues with my state of mind...ever. I went on them a few months ago for the 'blahs and anxiety'. I had some numbness a few years ago that was unexplained, I went to a neurologist and the educated guess was that my body wasn't processing something right and was having an allergic reaction to something. It wasn't severe , it was more that my sense of touch was 'off ' . I have had a light fatigue for a really long time now, I feel good after a nap but if I don't get that nap I am whooped. Since getting the Mirena out I have had zero fatigue, infact I almost have too much energy!

This is so enlighting! It explains so much about the last few years. I switched Dr's last year due to my frustration with him trying to talk me out of getting the Mirena removed, and this was before knowing all this info. I can't wait to meet with my new Dr this week to dicuss this IUD!

Thanks to whomever decided to start this enlightening forum.
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Hello everyone. So far i have been having Mirena for about 4 month. This month i didn't have a normal period. I know that's due to Mirena's function but still it is kind of scary feeling as  i have spent 25 years with the knowledge no period = pregnancy. I did a pregnancy test just to calm myself. Negative. Spotting doesn't go away though. I give it 2-3 more months and take it out if spotting doesn't stop. I spend more money on everyday pads than i have ever had in my life and it's just annoying as well as frustrating. During the period time i had all the symptoms of a period - cramps, bloating etc. My skin is again a mess, my hair is no better, weight is stable though i don't know for how long)).
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I've had the mirena for almost a year now and my bleeding is still very irregular. I get occassional mild cramping. The bleeding, though, is terrible. I have maybe 10 days a month that I don't bleed. It's usually pretty light but sometimes get  heavy and last bleed 3 wks straight. I'm afraid I'm going to bleed to death!! lol jk about that last part. So is this something to be concerned about??
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I've had the mirena for almost a year now and my bleeding is still very irregular. I get occassional mild cramping. The bleeding, though, is terrible. I have maybe 10 days a month that I don't bleed. It's usually pretty light but sometimes get  heavy and last bleed 3 wks straight. I'm afraid I'm going to bleed to death!! lol jk about that last part. So is this something to be concerned about??
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I have had the Mirena for 3 yrs.  I love it.  Someone mention an odor.  I've had 2 bacteria infections and now I think I have a yeast infection.  I still spot after 3yrs.  And sometimes after intercourse i spot a day or two later.  What's up with that?  I question my dr about the spotting and she told me it could be stress.  I've only tried the pill and the ring.  I am a flight attedant and i am way from home 10-20days out of the month.  Taking the pill at the same time every day doesn't work for me and oversea you cannot buy the ring.  I truly love the Mirena, however it's like I do not feel fresh anymore and always wondering about how I smell.
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Mirena was fitted 1st time with absolutely no side effects. Second Mirena fitted last year and has been a nightmare. I have been bleeding continuously and have become very frustrated as a result. My gynae says that we might just have to remove it. Pills and injections are just so high-maintenance. Going to investigate other options. I am so surprised at the input on this forum - I had no idea that there were so many issues related to this product!
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I have had the Mirena for almost a year now. For most of this time I have been, well, irritable would be an understatement. How about an f-ing b****! I have felt like I was suffering from depression and I've been completely unable to control myself when I am angry or frustrated- and I have a 14 month old! I am always frustrated! Well, I've been in therapy, I've had tons of blood work and I am on B-12 injections. Just last week I think to myself- what about the Mirena? So I go online and here all of you are! I am so glad i found this because as some of you pointed out, doctors are not going to tell you that this is the cause of the distress. I am so sad that I have spent my child's first year feeling this way- I've considered my depression/ manic irritation a real emergency since I haven't even recognized myself and never knew what I was going to be doing next- thankfully I have always been able to control myself enough to never have really frightened my child, but I sure have been scared. I have an appointment to have the IUD removed next Thursday. I feel like a huge weight has been lifted from my shoulders at the discovery that there may be an answer to my problems and prayers. My poor husband has really borne the brunt of this. I hope this works! I really need to get back to normal! I read a posting that mentioned a class action lawsuit- does anyone know about this? Of course i could never get the last year back from them... Wish me luck! And thanks for being here.
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I had the Mirena placed in May of 2006 after the birth of my DD. The insertion didn't hurt at all, but I did bleed for about 6-8 weeks.  The first year was fine,I had some symptoms (heart palp, cramps, light dizziness, headaches, hair loss), but I could live with them for the ease of the BC, oh and I haven't had a preiod (period) since I had it inserted. I should also mention that I have no sex drive and sex is painful (but I chalked this up to breastfeeding)

In Sept of 2007 I started having some serious issues, mainly severe dizziness and headaches that won't go away with medication.  I almost ended up passing out in Wal Mart and having to go to the ER.  Since then I've been dealing with pretty severe dizziness on a daily basis in addition to all the symptoms listed above, and they've done several MRI's and ultrasounds to check everything out, along with dozens of blood tests (thank God I have insurance!!)  Everything has come back completely normal.  My PCP recommmended that I see a therapist, thinking that all my symptoms are anxiety related.  So, I've been seeing a therapist and nothing has been helping.

It wasn't until the other day I was trying to think what have I done differently and wracking my brain to think of potential causes to the dizziness that I thought about the Mirena.  After doing some research I've decided to have it taken out and see if it's the answer.  At this point I just don't want to leave any stone unturned and I'm so tired of feeling this way!  I want to be back to normal!   I'm calling my OB/GYN tomorrow to schedule the removal!  Thanks to everyone who has shared their experiences, it's nice to know that I'm not alone in feeling this way!
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Hi - I have had the Mirena for five years, just got it out and have found out that I have osteopenia.  I am forty, have two kids, have always been a runner and athletic but not skinny or fat - no eating disorders AND I don't understand how i could have osteopenia. When I read all the posts I began to realize that the acne that I have developed, along with the uncontrollably itchy skin and dx to go along w/it (atopic derm) AND the yeast infections that come like clockwork could all be tied to this Mirena IUD that I actually loved, loved, loved!  Could it be possible that the Mirena has caused all these problems? If so, then I am glad that it is out and I won't get the new one in next month.  Ideas or thoughts, ladies?  Nancy
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Hey Ladies!  Thanks so much for all of the information.  I have had the Mirena for almost three years now.  Insertion was very painful and I experienced cramps for a few months, but I've been relatively fine since.  I can say, that I have been much more forgetful the past few years, much more bloated and sometimes more down, but I never would have thought to attribute those symptoms to my IUD had I not found this site.  Overall, I have to say that I've been happy with the IUD; however, I am scheduled to have it removed this Friday and am nervous about the bleeding and the possiblity of not being able to conceive.  I plan to talk to my doc about the things I've learned here but am wondering if there is anything else I should ask about.  I am more than ready to have a child and want to make sure that I am as informed as possible at this point.  Any advice would be greatly appreciated.  Thanks!  
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The more I read, the more frustrated and upset I get. I had my Mirena IUD for a little over a year now, and it has been trouble since day one. for starters, I have to agree...they do Not advise all the possible problems and complications when you get. It was downright excruciating to have it put in. My Dr. pretty much dilated my cervix (which was almost unbearable). I broke out in a sweat and almost passed out quite a few times in the car on the way home. Not to mention, I was in allot of pain for at least an entire week (if not more).The pain was that comparable to labor contractions. I was literally in tears as my cervix contracted back to it's "normal size". I could remember felling a strong pain coming on (just like contractions), and feeling my face turn red and flushed and also dizzy. That was just the beginning. The bleeding (spotting) did not stop for at least 2 or 3 months, then my periods became obsolete. The cramps were there but that was it. That I could deal with. the most frustrating part (besides the pain) is the weight gain. I gained went from 110 to 136 pounds! Something I have never weighed until I got pregnant. I have always managed to keep my weight under control until my IUD. No matter how much I eat right or work out, it just doesn't seem to come off. I won't even get into the emotional roller coaster... All-in-all, had I known any of this before I got my Mirena IUD, I would have NEVER gotten myself into this mess.

....please do comment on my story.



Truly,


Diane
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Hello....I have had my Mirena removed after 5 years. I thought it was the best thing ever & recommended to everyone. It stopped my heavy bleeding & I had no periods at all! I felt like a new woman.It was brilliant!!After about 1 year I started to get what I thought was thrush..about once a month & treated with pills or creams & it would go away...until the next month. I was surprised as I had never had thrush before. This carried on for a couple of years....I started to get very sore & of course sex was not such fun anymore. I talked to the doctor & she said it wasn't thrush at all..the mirena was making me extremely dry.The creams & pills I had been using were only masking the symptoms. She gave me hormonal replacement therapy...which I thought I was way too young for....it gave me some relief...but my moods went crazy....My man told me to stop the HRT because of what is was doing to me....& the headaches were shocking. I felt sooo much better off the HRT....but the dryness was getting progressively worse & the Mirena was causing the lining of my uterus to thin too.Sex was getting more painful everytime & I would rub raw & have to heal before the next time(even with lots of KY). My sex drive disappeared. The Mirena was wreaking my relationship. The choice was... have no periods & no sex & lose the man....or remove the mirena & hope my body would fix itself. I so didn't want my periods back, but I am way too young to be a nun. Anyway the doctor reluctantly removed it(I didn't feel a thing). I bled the next day for a few days, then it stopped. 2 weeks later I had my first proper period & they have continued as pre mirena(I still hate them). Its been out for 4 months...I have  dealt with severe mood swings, headaches, sore boobs etc.I take lots of vitamins to assist. I have noticed a steady but slow improvement in the dryness(no thrush symptoms) I feel so much happier in myself..not sure why? I am sleeping so much better... after suffering really bad insomnia the last couple of years. So I am coping better with the kids..... So from my own experience I think perhaps the mirena should be used for a maximum of say 2 years...then have a break for a year so it doesn't stuff up your sex life. I think it induces early menopause symptoms..yes that's right...I was starting to get hot flashes on the mirena....& I'm not menopausal!!! Yeah I think 5 yrs is too long..they need to research the effects more & take notice of what ladies are experiencing. Oh my hair is thickening up too...It had gotten really thin, my sex drive has returned..vroom..vroom. For ladies with the mirena, just keep an eye on any subtle changes before they sneak up on you. Doctors will not relate any issues you have with the mirena.Make your own judgement....you know your own body...good luck :-)

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I have the mirena a little over a month and it was the worst mistake ever. I feel ill and mean all the time. I even started having panic attacks and feel as if I cant breath sometimes. I feel like I may be pregnant becasue the mood swings are horrible and I am feeling depressed. I am 22 years old and I prefer to use a condom than this. Just my opinion. I will have it out soon. I cant wait becasue I feel lost with this thing in me. Its not normal and I dont think God recogmends us to do this. Thats why we are all having problems with it. And it causes cyst. Was I crazy. MAn I want this out forreal. I even get nausios sometimes. I know it will free me what I am going through.
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I much rather be pregnant than feel like this.
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wow thanks so much for the info, I thought that I was going crazy, and taking my family with me(my husband sent me to this site).  After 10 months of feeling off I read all of your posts and thanks to all I calmly walked into the bathroom washed my hands and removed my own mirena.  No pain sort of like removing a tampon.  
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My gosh...I was just doing a little checking before having my Mirena placed next Monday. I'm 45, a little early for menopause, but not too old for pregnancy. With two toddlers, we just didn't want to take any chances on #3, and I didn't want to take BC anymore..yuk on taking chemicals everyday.  I am going to cancel my appointment in the morning.  I am not easily swayed, but reading the 100 or so posts has done it for me...no reason to take a chance...there are so many other options for birth control.. none perfect, but certainly some better than what this sounds like.  I don't know what women did before the web...so much money spent by drug companies to have doctors act as their salesmen.  I'm sure it works for some, but I don't want to see if it works for me at the risk of losing my mind, my skin, my sex drive, my temper, and possibly my life.
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Now Im scared to death to go and get a Mirena put in. I have an appointment in two weeks to get it done...I just may change my mind....I did however have an IUD put in in 2000 after my son was born and after reading this, I am sure I had alot of these symptoms with that one, but was told repeatedly by my doctor that it wasnt from the IUD. I had Headaches, no sex drive, and cramping all the time.  I had it removed after only being in for 8 months. So now that I have read all these...I am starting to wonder if maybe I should just get my tubes tied.
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Hi Friend!

I am sorry I have not been monitoring this site in awhile. I will try to come back more often to post! I am sorry to see that you are still experiencing the bleeding! How are your other side effects? Have you been keeping a journal of your side effects for reference? This may be helpful. Really the most helpful thing would be if the side effects just went AWAY!!!!! I am thinking of you friend and wishing you well! Hugs!!!!:)
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Hi there,

I am so happy that this site was helpful to you. I am concerned that you pulled the Mirena out yourself. There are plenty of women who have done this successfully however there are some risks and I would encourage you to get an exam done to make sure that the Mirena did not pierce anything on its way out. How are your side effects after removal? It will take your body some time to right itself again post Mirena but hopefully it will happen quickly. There are many women who feel better pretty quickly after removal. Please keep us all posted with your progress! Hugs!
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Hi Diane,

I am so very sorry to hear of your suffering with Mirena. It is unfair that the doctors try to say this is a miracle BC for all women. Clearly the fact that there are so many of us who have suffered or are suffering is reason to rethink this "miracle" label they give to Mirena. I saw a specialist recently for previous head trauma I sustained in 02' and he told me the Mirena should not have been recommended to me because of my memory, brain issues. He told me the hormone in Mirena attacked this weakness in me and I experienced worse memory problems, brain fog, concentration issues, to name a few. I shared this info with the OBGYN who inserted my Mirena and HE HAD NOTHING TO SAY! His so called miracle birth control theories did not hold much water after a fellow MD gave credit to my side effects being directly related to Mirena. I was almost completely healed from this trauma and wondered why after Mirena had been inserted I had an immediate relapse. I can promise the rage I experienced while on this BC would have put me and my husband in divorce court. I completely empathize with you my friend and I wish you a swift recovery from this Mirena! Please post back and let us know what happens! Take care and I am sending you some hugs too!!!!!!!:)
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Hi there everyone! For those of you who are doing well with Mirena I wish you all continued success. For those of you who have suffered or are suffering I send you my heartfelt wishes for a quick recovery and a healthy happy Mirena free future! Take care everyone and I will try to post back often!

HUGS TO ALL!!!!!!
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I just had my IUD removed and am anxiously awaiting my return to normalcy!  I had mine inserted six weeks after my third child was born and he is now 28 months old.  I have been complaining of my hair thinning for quite a while and everyone has just kind of shrugged it off.  Recently I went to my GP and a dermatologist and all they could tell me is that my iron was on the low side.  Feeling less than satisfied by that recommendation, I continued my research.  Fortunately I came across a website for a hairloss clinic in VA which states that most women's alopecia is hormonally triggered .. generally due to the synthetic hormones found in birth control.  Once I found that it was like a light bulb went off in my head and I realized that my hair loss started right after the insertion of my IUD.  In addition to that, I have been complaining to my doctor for the past two years about my weight.  I've had my thyroid checked twice and it's fine.  I was able to get in decent shape at one point during this timeframe but that required 1.5-2 hours per day 5-6 times per week of exercise.  As a working mom of three children ... who has that amount of time for exercise?!?  I have been battling with anxiety and have also developed skin problems and have completely lost my sex drive.   I am so happy to have found this website and others like it that tell the truth about the common side affects of this drug....one that I clearly should have researched more before having it inserted into my body ....something I thought about right after it was put in.

If anyone else has suffered hair loss and then had the IUD removed .. please let me know if the hair loss stopped and if new hair started to grow again .. I'm keeping my fingers crossed!

Take care ladies!
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Thank you to all of you ladies who have taken the time to post your experiences, be it good or bad.  I was scheduled to get the Mirena in about a week.  My N.P. was also not entirely honest about the side affects; and a few of pointed out-just as I had noticed, that the pamphlet does not offer complete info so that a woman can make an informed decision.  I suffer from many of the things mentioned without Mirena: (high blood pressure, PCOS & had gestational diabetes twice (both of these things affect your insulin resistance already) Hypothyroid, depression, anxiety, fibromyalgia pain, adult acne, migraine headaches, attention defecit disorder, I am overweight & have a number of risk factors for stroke and Type II Diabetes)  I physically, nor emotionally can tollerate oral birth control pills ( I get EXTREMELY DEPRESSED), I already have mood swings and terrible PMDD.
Yet my N.P. was willing to insert this device into my body
-when it could clearly exascerbate most of these conditions I already have!!!!!!!!!  WHY????  How much money are practitioners making off this thing???  A lot of pharmacuitical companies give kick backs to their highest sellers, big vacations etc...  It's a scarey world we live in!!
I'm so glad the person in my doc's office couldn't answer my question re: if the Mirena was effective immediately, which is all I came searching for, and thank GOD and the rest of you LADIES for what I have found.  Thank you all for saving me !!!!! Things happen for a reason!
I sincerely hope that those of you who have suffered, fully recover, and continue to spread your knowledge to other women so that they too can make an informed decision that is appropriate to their own health issues.
No one knows our own bodies / health the way that we do.
Sorry for what all of you have been throuugh.  Hope that better days are ahead for you.
Know that you are helping others & smile!!
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Just remember ladies - all of our bodies are different and we all react differently to medications. Nothing is fool-proof and no method of birth control is right for everyone.
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Hi, I just wanted to say that regardless of all the bad experiences listed here, i am going in April to have the Mirena inserted.  I think it's really important to remember that the people that talk the most about their experiences are the ones that have bad experiences because it's traumatic and they need to get it out of their system, which is understandable.  My doctor recommends this for me due to the fact that I am only looking to slow my periods.  My boyfriend is fixed and therefore bc is not needed.  i never had an issue on any pills and there are many things that can cause anxiety/depression.  I already have these issues and am already being treated for them.  I have never had any acne problems...never had any problems on the BCP, didn't have any problems after pregnancy except for hair loss as i grew LOTS more hair during my pregnancy :)

Also, stress and anxiety can cause you to have less patience...so the anger towards children who are constantly pushing our buttons anyways :) would be a normal thing to experience.  I think any changes in hormone levels in the body whether localized or not are going to cause some reactions as your body adjusts...so I plan on trying it and will stick it out for a year and see what happens.

Also everyone has a different tolerance level...so others might be fine with certain side effects, and others might not be able to deal.

I do have one question though of those that had recurring yeast infections.  Did you ever have yeast infections before having the IUD?  I have never had one in my life and am not prone to them at all so I was just curious.

april

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First, I have to stress to those who are saying they were not told of the side effects for the Mirena, you must not have looked hard enough.  Not only is their own site fairly clear a web search of about.com and webmd.com reveals a list that includes all of  what you have mentioned above and then some.  And second, have the thing removed if it's not working for you.  I read this site carefully and printed out a list of side effects found elsewhere that I carried into my doctor's office.  And we deciced together that this was still the best soultion at the moment to ease my VERY heavy periods that casue extreme anemia.  I am five weeks into my ownership of a Mirena and have a few side effects - I wish the bleeding and spotting would stop already!  But I am giving it six months and will see where I am at that stage.

And lastly, please remember medicine is a business, somebody is trying to make money from these things and they do not always have YOUR best interest at heart.  Question everything and arm yourself with all the information you can.    

J
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Hi there,

A lot of women trust their docs and the shortened pamphlet that is given to them when they go to the doctor. I was armed with all sorts of facts and the doc dismissed them. It is not just as simple as saying "you must not have looked hard enough" because Mirena has only been around for a short time and not all side effects that women ARE experiencing have been accepted by their doctors as side effects. If you go to the actual Mirena docs prescribing site( I will post it if you want it), this is the actual info that should be handed out to the patient.

Make no mistake that side effects can happen at any time and the goal of women sharing their negative experiences here is only to give awareness. There have been quite a few women who have posted that are doing great on Mirena but most have mentioned that they are watchful and aware of the possible side effects. The bottom line is this, WE are the ones who have to live with our bodies, not the docs. If you feel the positive outweigh the negative with Mirena then that is great and I for one will be cheering you on. If however this is not the case the benefits of Mirena need to be revisited.

You are absolutely right about Mirena being a business. For each one the docs insert they get $ in their pocket. What bothers me the most about docs and their "miracle BC Mirena" is that they are so arrogant to ignore their patients concerns and dismiss any notion that their precious Mirena could be the cause. It is not only Mirena they do this with. There was a study done in the AMJ that showed legitimate side effects were being dismissed by docs on a regular basis because they hadn't made the cut in clinical trials. Just because it is not in the "listed" side effects this article said that there were real side effects being dismissed by docs because they were "not listening to their patients."

I am glad to have you here gardenerJ and I hope you are one of our success stories with Mirena. :) Take care!
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Well said! Our bodies ARE different and all the more reason to listen to them if they start talking or YELLING in some cases! Sometimes, the problem is simply we aren't aware that a medication we are taking IS the cause of some of our health problems because we have a doctor who isn't validating our concerns. Just my thoughts! Take care!
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well... i just wanted to mention above that not everyone's experience is negative.
people are also more likely to complain about something than praise it.  

i am sorry that you ladies have experienced so many difficulties related to having an IUD.

for some people, it is not a good option.  for others, they can't imagine anything else.  being 19 at the time with no children, i was NOT an ideal candidate for an IUD- But i have been tremendously successful with it for the past 4.5 years.

it's a toss up.  people don't tend to form groups to praise things.  


as far as the money aspect is concerned, i do know that the actual COST of the IUD is very high for the doctors.  in my case, because my insurance did not cover contraceptives or the appointment to have my IUD inserted, my doctor gave me a 25% discount off the total bill.  this was amazing of them and I essentially had my insertion for free.  

i realize that not every doctor is like that... but it's not about the money.  i don't think that they care if i take a pill or have an IUD- i doubt that they take commission.  

all i know is that it's been good to me and has changed my life for the better.  it's a shame that not everyone can have such a positive experience with it, but alas all of our bodies are different and react differently.  what works for you may not be good for me at all & vice versa.

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I got my mirena in 8/2004 6 wks after my daughters birth ( never had a period, exculisely breastfeed for 2.5 years) just had it taken out a 3/18/2008.. but the cause of removel (removal)  was I've had other health problems that docs couldn't find out whats causing dizzness, legs swealling up, waking up stiff so bad it was hard to walk down stairs without putting hands on railing and wall, bad acne, excess weight gain and loss. 5lbs in a day to week 25 lbs gaining and lossing. getting a secon opion on uturin pain she said I had cysit rupture, a bit odd between 3 ob visits had several pregnacy tests done.

My concern is on 3/6/08 intercouse lead to a cyst rupturing, the timing of that to lenth of firtlization, implating to removel (removal) of Iud 3/18/2008 and having light pink spotting for a week now I am  wondering could I be pregers.....  the tests from the docs were neg but I am very liree, saspisous of them, the timing has the fromula of Posiblities of Pregnecy.. I am just over thinking this..
ak2008 off in wondering land... If i am then let it be if not phew but letting my body breath..

After I had my Iud out my body felt a sense of relief, reawaking I felt better but still had uterine spamazimes, fellings of having 10 fingers shocking my uturies.... My ugly acme cysitic like almost MERA tough popping... Oh yeah I had M.E.R.S.A  superbug on my arm while my iud was in me in 2006.....

I agree with all other who fell that the poor health was from the IUD, I am glad my mom was on my side.. even though the merina 15 years old but the my mom, her friends have said negitive things about copper iud's in the 70's and 80's ....
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Hi there,

Thanks for your post! I am so very happy to hear of your success with Mirena! I hope you will come back and share your positive take on the Mirena. There are women who do GREAT with it. I have quite a few friends who have it and love it. I am seriously jealous LOL!

The doctors DO get kickbacks for giving Mirena to their patients. The Mirena is to the OBGYN practice what immunizations are to the peds docs- bread and butter.(the pediatric docs get a lot of $$$$ for giving those shots) There is a growing trend among OBGYN's to recommend this Mirena as a "miracle BC" and dismiss concerns regarding side effects with their patients. This disturbs me because it shows that the docs may not be looking out for their patients and may instead care more about their pockets. It is too bad the good docs seem to be few and far between for a lot of us on here!

Well, I wish you a very Happy Easter and hope you will post back from time to time to give us all updates! Hugs!!!!
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Wow, I am so very glad that you found us and the info helped you make an informed decision about Mirena. Based of the health conditions that you listed, Mirena really would not have been a good choice and shame on your NP for being so incompetent. Everything does happen for a reason and I wish you a happy healthy future! Happy Easter too!!!:)
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Hi there friend!

I am sorry to hear of your suffering with this Mirena BC. How are you feeling now? Were you able to find out a definite answer about if you are pregnant? Please do let us know how you are doing! Hugs to you!:)
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Hi there,

I wish you all the best with the Mirena and I hope it truly works for you. I have one concern to mention and it is this: Mirena can mess with hormone levels and it is important to mention this because many of us experienced mood swings, rage, and debilitating depression on Mirena. I am not saying this will happen because unfortunately it is only known if it will affect you this way AFTER trying it. I think it is best to be armed with knowledge as a precaution since you mention being under a docs care for depression/anxiety and Mirena can add to this. Just something to watch for! I am hoping it works out for you! Please take care and post back! Happy Easter wishes to you too!!!!:)
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Hello,

Thanks for your post! I did not experience hair loss but I did experience my hair turning grey AFTER its removal. It has not gone away completely and I am 8 months after removal. It has gotten better. My doc thinks that it was from a hormonal imbalance that happened because of the Mirena being in and then its subsequent removal. I do hope this side effect gets better for you. I used to go over to Curezone's mirena IUD site where they have many informative posts and it seems to me many of the ladies there have discussed hair loss from Mirena. Maybe it would be worth a visit. Take care and please do post back and let us know how you are doing! Happy Easter!
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Here are some site to visit to see side effects from Mirena. I haven't posted them in awhile so I thought I would put them on here again! Take care everyone!




****

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Hey girl) haven't heard from you for a while. Since march 2008, which is about 5-6 month since i have mirena inserted bleeding finally stopped! Thank God! I experience right now only one issue - one month i have no menstrual bleeding at all, not even spotting, the next month it's going to be a heavy flow for 6 days as if i have no IUD at all. I'm going to check up with my doctor i guess, because i can't explain it. And my skin is still a mess. All the rest of the symptoms are gone, and i am so happy about it. I'll keep posting about any changes.
Hugs!
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Hello there my friend! I am so glad to hear from you! My life was so hectic and busy for the last few months I did not have any time to come and post here. I am so glad to be back and so happy to hear that you are doing well! YEAH!!!!!! Hopefully your doc will be able to shed some light on the irregular cycle. Does she think it will work itself out eventually? What does she say about the skin problems you are having? I hope like your other side effects that this one goes away too!!!!! I will be looking for your updates and sending you wishes for continued health and well being!!!!!! Take care Avrora! Hugs back!!!!!
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Hi everyone,

I will try to post these again. They got deleted somehow in the last post. Take care all!


http://www.contracept.info/docs/mirena-doctors.pdf        

http://www.netdoctor.co.uk/medicines/100001706.html

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Hello.
     I have a 3 month old at home and was interested in trying this until I read all of the stories. I have had a hard time finding info so thanks for the sites. I really want to check it out for myself and then decide. One thing I am really concerned about and can't find is cost. Can anyone tell me a ballpark figure? Again, thanks for all of the sites.
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Has anyone tried Mirena as an alternative to progestin-only pills? I have had no problems on Nora-BE norethindrone (generic) and since Mirena has theoretically the same hormone, maybe I could expect similar effects?
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I have the iud i have had it for a year i love so far other then the extra pounds. i had a horrible time with the patch so after i had my last baby i chose the IUD. we have 3 girls and we want to try later for a boy. lately my Brest have been very tender i wonder if that has any thing to do with IUD?
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Peekawho. Thank you for educating the people who may otherwise be listening to wisegirl (uh... pun intended).
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Hi,
i think the price depends on the area, i paid in California about 500$ and my insurance didn't cover it, insurance is aetna
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Hey girl, how're u doing? Well the updates are the following, my doctor told me that my periods will stabilize , when ...well sometime LOL, skin is a mess because of hormones, skin is doing slightly better though, periods are still like a total mess, yeast infection is now my constant friend, and being emotional is something that is killing me, no matter what i see or hear i start crying and can't stop myself...and i am a woman who'd never ever cried before .... like ever...the rest is ok LOL
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Please read through all this information even if you don't think all these symptoms apply to you.

An autoimmune disease called Behcet's Syndrome's initial symptoms closely resemble the herpes virus, causing vaginal sores, cuts, fissures, folliculitis and or inflammation in the genital area. Other symptoms develop many years later. It is different in everyone who has it. The immune system is in over drive. It is an autoimmune disorder caused by enviromental damage to your immune system.  It could get better or worse, depending on how well you take care of yourselves and how well you are treated.

My symptoms started at age fifteen with itching, inflammation, then folliculitis (ingrown hairs), then cuts all over the vagina from time to time. It is different for everyone who has it. Some people just have inflammation where others may get cuts, or sores aswell. Folliculitis is a type of acne and is very common in Behcet's and occurs during or before a "flare" and can be on the face or anywhere. Chronic yeast infections and BV come hand and hand with Behcet's because it is a immune system disorder that weakens the immune system because the immune system is working in over drive. You are now allergic to more things. It is not contagious and it doesn't run in families. Researchers around the world think it is triggered by strep throat or from other enviromental causes. It has been proven to not be genetic. Gential (genital) to Gential (genital) contact will cause a reaction "flare" in these people, so will a common illness, injury, or stress. It is very important for people who have this to rest often, use condoms, and take good care of themselves to avoid flares. They will also need medication like steriods and or immune suppressants, depending on their case.  Someone who needs a lot of medication to start, might not need that much with a little time. Common symptoms later in the disease, if it goes untreated, are digestive symptoms, bowel inflammation, possible bladder inflammation that feels like a bladder infection, arthritis, fibromyalga (fibromyalgia), and very late in the disease serious eye inflammation and possibly central nervous system involvement. People rarely die from this illness, the main thing a person has to be worried about is quality of life. That why you want to be proactive, not scared. This disease can be managed if properly treated.

For about ten years I had the gential (genital) symptoms and was sure it was herpes. My doctors said there was nothing else it could be wvwn though all my cultures came back negative and never mentioned it again. None of the medication for herpes had ever helped me and I also noticed my husband never got sick from me. The inflammation was the worst and I was using hydrocortisone on my own by then for some relief.

I started having other symptoms like irritable bowel syndrome and fatigue. Then after I had two children my symptoms got a lot worse. FIbromyalga (fibromyalgia), Interstitial Cystitis, Epi-scleritis (inflammation of the small blood vessels in my eyes), and things like that. My immune system was attacking my body. It took years before I had enough symptoms and saw enough doctors to start getting it treated. They are still not totally sure what is wrong with me. There is a lot of misconceptions about these things because they are thought to be rare. The truth is that they are just highly under treated in the United States. They think I have something called Behcet's Syndrome, the world's oldest known disease. It is an autoimmune disease that can be very mild or more severe. It is hard to tell what it is unless you are able to get enough of the symptoms well documented and you have just the right symptoms even though your symptoms might be totally different than everyone else's symptoms. The stress in your life plays a big role in how bad your flares will be.

There are no tests that can tell if you have Behcet's. It is based on symptoms only. Vaginal symptoms that look like herpes (herpes causes inflammation, cuts, or sores), canker sores in the mouth at least three times per year, and inflammation in the blood vessels in the eyes. It can take years for enough of the symptoms to show up and they usually don't show up at the same time. You really need to fight for answers. Go to the American Behcet's Association for more information, but remember when you are there, those are the worst cases, most people with Behcet's don't have it that severe and do well with treatment.


I don't have an offical Behcet's Syndrome diagnosis yet is because I have yet to have any serious organ damage documented, which can actually be really hard to do. Not everyone has to wait as long as I have been waiting. A lot of the time small damage from tissue and blood vessel inflammation can not be seen by any tests. Often, surgery is required for them to find vasculitis. That is how they found vasculitis in me during surgery looking for endometriosis. If it wasn't for that I wouldn't still be waiting to start treatment. I am lucky because my symptoms have not been as serious as some, but it has also been a big problem because I have been suffering greatly and not gotten the help I needed many times. Most of my symptoms cannot be seen and it's been very hard to prove that something is wrong.  I have had to fight back against people thinking this was all in my mind. I have had to find a medical cause for my symptoms on my own and a lot of time was wasted because it came on over a long period of time. Only one of the hundreds of doctors I've seen had ever even heard of Behcet's Syndrome, he was a GI doctor. They do not look for it. One doctor, my Rheumatologist, told me he didn't even believe it existed. This disease is very real. It's treated all over the world, but most American doctors no nothing about it. They do not know the symptoms or how to treat it. They rely on old information and still think it only happens to people in the middle east even though research has shown it happens because something has damaged the immune system and not because of your genes. It does not run in families and it is not always a text book case. You would think it would show up on MRI's, but often with Behcet't it's the very smallest blood vessels involved, and those don't show up most of the time. It takes a big incident for them to see it and prove that you have it . American doctors don't want to be liable for treating anything until they have enough medical proof to be sure that you require the treatment. It is not easy to get that far. For us, it is more important to get the treatment before something bad happens, not afterwards. I have all the symptoms and I am being treated with immune suppressants and I have had several doctors diagnosis my symptoms as Behcet's Syndrome, but with this disease the ultimate decision is up to the Rheumatologist. My rheumatologist says it shouldn't matter if I have an official diagnosis as long as it is being treated. He says he is more concerned right now that I will lose my ability to qualify for insurance once I have a diagnosis. One thing to look for as far as tests are concern would be a a slighly high white blood cell count...your nerophils mainly, but others white cells also. It could mean just that you aren't feeling well at the time to have it be a little high, but if you can gather your records and show that you have an on going problem with a high white blood cell count, that would be a first step in showing your doctors something is not normal.

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One more thing....I've seen over twenty GYN's as well as other doctors and I did my own research on the possible causes for the inflammation and for the cuts some people with Behcet's Syndrome get. I can tell you from what I have learned  that these symptoms are not caused by any type of HPV. They also would not be caused by Herpes 1 in people with no other apparent serious health problems like HIV. Bacterial Vaginosis and Yeast Infections may cause inflammation and small cracks in the folds of the skin, they do not cause cuts in center areas of the skin, and they heal without reoccurance once the infection is treated. An anal fissure can sometimes occur in the center area of the pernium (between the front and back) because of straining or constipation. Unless you have developed more than one cut at a time at some point, or have developed cuts in different areas of the genitals other than the pernium, a pernium cut may just be a fissure. An anal fissure would be a single cut that keeps happening in the same place over and over again on in the center of the pernium. An anal fissure is caused by repeatedly tearing open the thin skin in that area from straining. Not like the small cuts that just happen for no reason the way they happen with the Herpes Simplex Virus and Behcet's Syndrome. I have one cut the comes back over and over again on my pernium area, but I also get cuts in other areas from time to time aswell along with severe inflammation. All of my hormone levels are normal. Those are the only things I've found that could be the possible causes for these symptoms. Just having the inflammation is a symptom, not everyone get's the little cuts. Not everyone get's full blown Behcet's either. If you take good care of yourself, you can do really well.


I wanted to add I have herpes 1. Just about everyone has it. It should not be causing your symptoms unless something is wrong with your immune system. I had the new herpes blood test that showed I have herpes 1 but not herpes 2. We started doing culture after culture of my cuts trying to see if it was herpes 1. I have never had a culture come back positive for anything. It took a long time to prove it, but we have finally established my cuts are not caused by herpes 1. Herpes 1 is much milder than herpes 2 and should not be causing ongoing vaginal symptoms. If it is, it still says something is wrong with your immune system. The white blood cells were the only thing they could find abnormal with my tests. They found them in my blood and in my cultures every time I wasn't feeling good. For years they would say, well that's because you're not feeling well today. Until I gathered 15 years of records showing that I am not feeling well on a regular basis, that was the first clue.

I am determined to tell as many people about this disease as I can. Look around on this message board and you will be floored with how many woman are having these symptoms and have not gotten any real answers from anyone. It makes me sick. It is really all about money. This disease pushes doctors out of their comfort zone, it forces them to  work harder than they are use to doing, harder than a lot of them really are will to work. Infact, they have designed a system to help them avoid people like you. They will send you to specialist after specialist making money off your insurance company hoping eventually you will just give up and quit faking it. It is the idiology that nothing bad happens to good people. That you just need to toughen up and quit complaining because you look normal and your tests are fine. It would cost a lot of money to treat us, so they ignore it and only treat those who are on deaths door and tell them they couldn't have known what it was because it's so rare. The justify it to themselves by pointing out there has are full treating the things they do know about. I think it's time we send these doctors back to school and up the patients right to sue doctors that doctor meet our expectations. Why should anyone need to settle for less. I believe any halfway intellegent person would have been able to put together what has been happening to us a long time ago if they were at all interested in finding out.

One thing I know is woman with Behcet's have a lot of problem's with their periods. Their periods often bring on flares. They can have inflammation in their uterus which leads to extra period cramps and may lead to heavier bleeding.

I mentioned to you that I had surgery looking for endometriosis. I was given many different types of birht control when they thought that was what I had. From talking to other woman with Behcet's and from what I experienced, all of the different birth control medications I took made symptoms a lot worse. I do not know why exactly, but I have not come across any women with Behcet's who did not have some problems with these drugs. I took depro, a lot of woman have problems with that, but I also tried an assortment of different pills that al caused my flares to get really bad. When I would come off of them I got better. The last thing I tried was the Mirena IUD. I would recommend this to other woman, but not to woman with my problem. My GYN didn't realize how inflamed my uterus was, he thought is would help everything get better, and for most woman, I bet it would, but not for me. It was pure agony.  I keep waiting and hoping the pain would go away, that it just needed to settle, but it never did, I had to have it removed. I believe the Nuva Ring, just like the Mirena, has a small amount of hormones in it. This might be the problem, it seems even a little bit of these hormones can trigger a flare. As long as all of your hormone levels are normal you should avoid them at all costs. With Behcet's you are at risk of vascular inflammation which can lead to things like strokes, so horomone suppliments of any kind are a really bad thing for people with this problem.

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Don't just let your doctor tell you that you have a hormone problem just because that's what it looks like. Make sure they checked your homone levels. Also, see a dermotologist to make sure your acne is not actually folliculits which looks like teenage acne, but it's not.
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Look around on this message board and you will be floored with how many woman are having these symptoms and have not gotten any real answers from anyone. It is really all about money. This disease pushes doctors out of their comfort zone, it forces them to work harder than they are use to doing, harder than they really want to work. It is not like t.v. Infact, they have designed a system to help them avoid people like you. They will send you to specialist after specialist making money off your insurance company hoping eventually you will just give up and quit faking it. It is the idiology that nothing bad happens to good people. That you just need to toughen up and quit complaining because you look normal and your tests are fine. It would cost a lot of money to treat us, so they ignore it and only treat those who are on deaths door and tell them they couldn't have known what it was because it's so rare. The justify it to themselves by pointing out there hands are full treating the things they do know about. I think it's time we send these doctors back to school and up the patients right to sue doctors that don't meet our expectations. Why should we be threaten by doctors who won't treat us without all their fancy medical insurance. Why do we want doctors like that? We shouln't listen to these threat. We should demand better of them. I believe any halfway intelligent person would have been able to put together what has been happening to us a long time ago if they were at all interested in finding out.

One thing I know is woman with Behcet's have a lot of problem's with their periods. Their periods often bring on flares. They can have inflammation in their uterus which leads to extra period cramps and may lead to heavier bleeding.

I mentioned to you that I had surgery looking for endometriosis. I was given many different types of birht control when they thought that was what I had. From talking to other woman with Behcet's and from what I experienced, all of the different birth control medications I took made symptoms a lot worse. I do not know why exactly, but I have not come across any women with Behcet's who did not have at least some problems with these drugs. I took depro, a lot of woman have problems with that, but I also tried an assortment of different pills that al caused my flares to get really bad. When I would come off of them I got better. The last thing I tried was the Mirena IUD. I would recommend this to other woman, but not to woman with my problem. My GYN didn't realize how inflamed my uterus was, he thought is would help everything get better, and for most woman, I bet it would, but not for me. It was pure agony.  I keep waiting and hoping the pain would go away, that it just needed to settle, but it never did, I had to have it removed. I believe the Nuva Ring, just like the Mirena, has a small amount of hormones in it. This might be the problem, it seems even a little bit of these hormones can trigger a flare. As long as all of your hormone levels are normal you should avoid them at all costs. With Behcet's you are at risk of vascular inflammation which can lead to things like strokes, so horomone suppliments of any kind are a really bad thing for people with this problem.




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Hi, look when i just started reading your post i was horrified because it seemed to me i had all the symptoms. I started using UID Mirena just recently, 8 months ago. And right after that i went through a lot of serious stress lasting up to 6months, and one day developed some vaginal cuts or sores just as u  have described. And i'm married! In fact just got. And doctor diagnosed me with herpes i believe type 2 as it's genital, but i really hoped it is not what she said because my cuts are very small with no inflammation. So i was reading carefully yr post, but u've said that your results came back negative to herpes type 2, and i don't have type one but came back positive for type 2, and my husband is clean. So i sort of confused now, how is it possible ... but none of the GYN i went could give me an answer
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What herpes test did you have to determine you have herpes 2? For ten years I was told I had herpes 2 even though my cultures were coming back as negative because the doctors all thought by the appearance that there was nothing else it could be. If you aren't sure, you have to find out if your cultures were actually ever positive. Another thing that is possible is to have a false positive culture. The cultures are not very accurate. The good news about this is that they came out with a blood test just a few years ago that can tell for total sure if you have herpes 1, or herpes 2 or not. So you have to have the blood test to know for sure. I recommend anyone who thought they had herpes to get this test and make sure that is actually what they have. If you have any questions about anything in the future please feel free to ask. I check back regularly.
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And don't forget, herpes 1 does not cause genital symptoms in people unless they have a seriously damaged immune system.

Researches believe it may be caused by Strep throat. Like many people with Behcet's,  I had a bad strep throat infection just prior to my first symptoms. It could also be trigger by other things in the enviroment they still don't know for sure.
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i'll do the blood test first thing, because my GYN was insisting on not doing it because as she said a culture test is enough, and i had serious doubts about that.
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I  have had my Mirena IUD for over 2 years.  I have suffered only a little of the side effects that most of these women have had.  I do feel more tired all the time and unmotivated which is not like me.  I lost my Dad just before I had mine inserted and put the lack of energy down to that.  I have also had some moodiness and slight depression.  Reading all of these articles have seriously making me think of getting mine out.  Other that some of these symtoms (symptoms)  the mirena has been a good BC for me.  My question for myself now, is it worth taking the risk of keeping it when there are chances that it is effecting my wellbeing.  Thank you all for your letters and all the best for others with Mirena IUDs.  I will let you know what I decide.  Also im from New Zealand.
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I was on the Merina IUD for 4-5 yrs and recently got it taken out...whoo hoo.
I am 34 and have been preg 5 times with 3 children as outcomes...2 of those were mid term miscarriages....in which i had to be induced and deliver.
I have never had a problem with fertility before, and now i am having issues with AF and such and was just wondering how do i tell what is ovulation spotting, implantation spotting, or just a irregular period? or even my period.

I went in april 21 to get a pap and was spotting, then went in may 2 and was bleeding...had IUD removed, doc said that on the 2nd i was bleeding heavier than on the 21st.  which makes me think that it was AF.  i am not spotting now, so could my cycles just be leveling out, or should i watch for when i am suppose to start?

also whether it be by masturbation or intercourse...when i have a orgasm, i have been spotting...this never happened before i got the IUD or before it was taken out, could it just be my cervix response from the trauma of the thing being pulled through?

thank all...and i sprinkle baby dust on all of you who  want/need it....
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Hi there!  I am 36 and have had my IUD for almost 4 years.  My husband and I have decided to try for a baby so I am having my IUD removed this July.  Can anyone give me an idea of how long it might take for me to conceive after removal?  I am no spring chicken and would like to be pregnant within one year.  I got pregnant really quickly when I had my daughter but that was 16 years ago.  How much might my age affect my conception after having the IUD removed?

By the way, I have been a Mirena success story.  I have had no problems at all and have really enjoyed the light (almost nonexistent) periods.

Thanks!
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I am a Mirena user, recently had it removed on June 10.  I had it placed in 2004, 6 months after my second daughter was born.  My periods gradually stopped, that was wonderful, but now I am worried that they won't come back to get pregnant, we want to try for another one.  Though it's only been a few days, I'm feeling some cramping.  Now I'm wondering if it's from the removal, which was painless, or if it's a period.  If there's anyone out there that can shed some light on this, please do so.  My doc said it could take 2-3 months to get back to normal.  I sure don't miss the cramps or anything else that has to do with this wonderful thing that women have been blessed with :)  But I will say this about Mirena, it was exatcly what I wanted in BC, something I didn't have to remember to take everyday, or place on myself, or go to the doc every 3 months, and if we are lucky to have another baby, it will be my first choice for bc afterwards.  Thanks for any comments!!


)I(  Jen0104
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I recently had the mirena put in and have so far been pleased.  My husband said the other night that he could feel the strings and that they irritated his penis.  It was scratched a bit and was uncomfortable for him.  DO the strings move easily or should I maybe have them cut shorter?
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Hello everyone! I had the Mirena put in about 6 months ago and had it removed about 5 weeks ago. I have developed an all over body itch (which can be a rare side effect of the Mirena) in the past few months. It usually helps if I take antihistamines, to subside the itch. Has anyone else ever experienced the itching? And if so, how long did it take to go away after the Mirena was removed? I just thought I would see if anyone was in the same boat! Thanks!
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I am very concerned, scared, worried, just to name a few.  I had my Mirena put in just a little over a year ago.  It sounded great and the doctor had nothing but praise for it.  The insertion was so painful... never wish to feel like that again, it felt like contractions!!  I chalked it up to not having a vaginal delivery (I have had 2 planned c-sections).  I bled for about a week, but have not had a period since.  I also lost all 24 pounds of my babyweight, plus an additional 30 pounds!  All that has been great!!  

However, recently (within the last 6 months) I have been having really weird feelings and been very emotionally distraught.  I have even accused my husband of cheating on me because he was texting a female (about 10 years older than him) co-worker.  And if I can't get a hold of my husband, I start feeling this feeling of dread and thoughts of "oh my god what if he is dead?" start filling my head.  My hair is falling out similar to when I was pregnant.  I feel terribly stressed all the time, and very alone, even though I have friends and I know my husband loves and supports me very much!!!!!  And the most recent trick my body is playing on me is hives!  It started only happening at night, I would wake up just hot and sweaty in the middle of the night, while my husband would be freezing, and then I starting noticing hives.  Now the hives appear whenever I am exposed to heat.  I live in southern Arizona, so this is totally unacceptable.  Doctors cannot give me a straight answer as to the cause but say it has nothing to do with the Mirena.  I have not used or eaten anything new, so that can't be it either.  I just passed it off as bad genes, until about a week ago a friend of mine who also has the Mirena also started breaking out with hives from the heat.  The only thing we have in common is our Mirena IUD's.

So I came to the conclusion that I need to get it removed.  I am going next Tuesday.  I figure take it out, see what happens, if it doesn't improve I can have it replaced, but if all goes back to normal... I know the cause!!!!!!!
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Im also a Mirena success story.  Had it for 3 1/2 years, no periods (awesome, right?).  No horrible side effects, no pain at all.  The only thing was that at first the stings hurt my husband, so the Dr cut them shorter...The it was perfect!
Removed it on Dec 07, had my period on February, 08 and got pregnant in march!
So far, Im 20 weeks pregnat and everything has gone great.
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UPDATE:
Well I went to the doctor to have it removed... unfortunately after hunting around, the doctor said she is unable to find the strings to remove it!  So next Wednesday I have to have an ultrasound and possibly surgery!!  I am never having something foreign put into my body again!!!  We are looking into vasectomy...
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Thank you so much for your POSITIVE contribution.  I have been considering removing mine and want to make a decision based on a balanced perspective.

I have been having many different things happening to me since getting the mirena, not all of which I thought were connected to it. After reading this thread, I am realizing that the chronic pain in my wrists may well be due to the iud.  I have asked medical professionals if the chronic yeast infections could be due to the iud and all have denied a connection.  I wish they would read this forum and tell me there's no connection in earnest.

loss of libido, bleeding after sex on occassion and shear exhaustion all the time- even after a great nite's sleep are all symptoms I've had and only the loss of libido did I think was connected to the mirena.  What an eye opening experience to read all of the experiences of others!
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omg, I wish I would have found this site before I had the Mirena IUD inserted! My sister has one (after her 3rd child) and loves it. No such luck for me. It was the worst physical pain I have been through (1,000 times worse than when I accidentally sliced my thumb in half - just a tip - don't try to slice a partially frozen bagel with a really big, sharp knife - get a bagel slicer).

I had the IUD inserted in June, 2007. BTW, I have not had a child. What a horrible insertion experience! It took a few weeks to stop bleeding and cramping. My periods eventually got lighter, but I spot and have a period for 2 weeks every month. I get bad cramps at odd times that don't seem associated with ovulation or my period. I sneezed and had excruciating cramps and pain for a couple of days. I get shooting pains here and there, cramps (some severe), and I feel pretty darn lethargic. I have no energy or desire to do anything.

I am having my IUD removed next week. I am calling for some pain meds in advance in case it is anywhere near as bad as insertion. I hope the GYN can remove it without problems. Some of the posts are scaring me about the removal process. I hope I don't need it surgically removed. I feel like my body is fighting this thing and I want it out ASAP! I need to give my body a rest. Good luck to you all!

And insurance doesn't cover the IUD, so it was about $800 out of my pocket. What a waste!!!

My advice is to steer clear of the Mirena IUD.
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I've had my mirena inserted for 10 days. the insertion wasnt that bad i just experienced cramps so as the day goes on i start to have the worse cramps ive ever experienced and they continued pretty much all that day. I was spotting a little nothing major. Since then i havent had any bleeding but i'm still having cramps they arent as bad as they were when i first got Mirena but their noticable. My doc advised me to take Motrins which helps but i hate cramps other than that i havent experienced any other problems except my boyfriend can feel the removal string but he says its not a big deal. The other problem is that my insurance didnt cover Mirena so  I've had to pay for it myself and its expensive but i think its gonna be worth it
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I have the Mirena inserted last month. I have been bleeding now for nearly two and a half weeks. the insertion was badly painful. I was in question when I read all of the warnings and I asked my doctor about all of my lady problems before having it done. She assured me that my history of polycystic ovarian, HPV, herpes (gifts to me by a lying boyfriend), endometriosis, tubal pregnancies and the like were not going to affect anything. I had it done. I have been bleeding pretty much ever since. It followed up with the most terrible infections I have had to date. I bled orange for about five days sometimes in the middle. I am in bad pain. I am having it removed on the 22nd - the earliest appointment I could schedule. I signed up just to reply to this post becuase I had to put my experience on here. I have had severe headaches. Not to mention my boyfriend sustaining the injury of mild rope burn when I finally gave in. I have zero sex drive. This has been a awful experience.
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Hey there, i am very sorry to hear how painful it is for you. And if you start reading everything from the very beginning you will see  in my posts the same problems. I almost lost my mind when got  Mirena inserted that painful it was, but i thought  it was because i have never been pregnant, then i was in pain for  2 and a half weeks, i couldn't sleep at nights, or was barely walking during the days, i was about to take IUD out because couldn't handle it, but my doctor prescribed me vicodine and within 2 days of taking it the pain went away. But then bleeding was non stop for 6 months, then my skin turned into a real mess, then my hair got so oily, and then fuzzy head feeling when you don't clearly understand where you are and what did you do an hour ago. So it took me actually almost a year now to feel normal and i don't say you should go through the same besides all bodies are different. I was just too stubborn to figure everything out, how far i can go, but if my bleeding didn't stop within 6 month, i would have had IUD removed immediately! Right now i sometimes have this crampy feeling right before my period and this is it. But i'm not sure if i want to go through the same process when this IUD expires.
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Thank you for your response. I did not have the thing taken out even though I really badly wanted to. My Dr. told me to wait it out to see if the bleeding would stop. It is causing me terrible pain. I am on pain killers and I take them daily for back pain due to a messed up spine. I would think that 30mg of Kadian would cover it. My boyfriend says it gives him a kind of "rug burn" so I go in to have it trimmed. She then pokes the string into the cervix to hide it. I am alarmed this might allow the IUD to run free in the uterus. I feel like these doctors are being paid to keep the things in us to avoid a lawsuit. You would think that the Dr could be libel is it came down to them leading you from having them removed when you have problems. I am still bleeding rampantly. It is not "emergency" bleeding - just enough to make me feel tired and ill all day long. I had an emergency ultrasound that shows I have cysts all over my left overy - functional poly-cystic, they called it. I do not know what to think. I feel emotional and I do stupid things all of the sudden. Sometimes when I am driving I feel like I am in a haze. It is hard to explain but by your description I think I might have the same problem. I am writing to you girls here becuase I feel like my boyfriend does not understand. He gets upset with me for being a ditz but I never was before.. I would hope not I am going into Psychology lol
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i thought that i loved the IUD, but now looking back I see the side-effects, subtle as they were. together my hubby and i have 6 kids. after the last i had the mirena inserted, and promply loved it... insertion was a breeze, and i never bled again. after 1 year, hubby decided that he wants to have one more child....WOO HOO. hubby himself actually pulled the thing out while checking if the strings were still there, during which i felt nothing. Dr. was p-o'd for sure. i got yelled at during my next visit. it has been almost 2 months now and only one period has occurred. several at home tests...negative, and 2 professional in office tests neg.know how long before i can safely concieve (conceive) number 7. someone out there must know of a link for me to follow, or where i can find REAL info, because the mirena site is very vague about this.  Someone help me please.
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I just had my mirena removed today and I feel overjoyed but also scared.  My husband and I have 4 children and he REALLY doesn't want anymore but due to previous health issues, there are few options for me in the birth control dept.  The dr. tried fitting me with a diaphram but said due to the kids, my something or other protruded posteriorly and the diaphram was sealing the cervix- not really good if you don't want kids.

I had sooo many side effects over the two years that I have had the mirena most of which I didn't realize could be connected to the iud.  I was always embarrassed to tell people I had an IUD but as soon as i made the appt to remove it I felt so happy- I was removing this terrible thing.

The dr. had a bit of a difficult time removing it - he said he didn't know if he was going to be able to get it as the strings had gone up into my cervical opening and he couldn't reach them- but it was not all that painful.  I took some aleve anyway when I got home.  Some minor bleeding and a new concern- avoiding pregnancy but thrilled that hopefully all the UTIs, kidney, bladder and yeast infections will not be every few months.

I welcome anyone to suggest an alternative to IUD that is easy and reliable- no hormones allowed.

As to when fertility will return, I asked my doctor, he said it could return immediately but more than likely it'll take a few months.  Everyone is different and the body has to readjust to the loss of the hormones that caused the lining to continually shed.  You may be conceiving but the lining of the uterus may not be sustaining the zygote.

Good luck!
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Yes this is what i meant by saying feeling fuzzy, when everything is like in haze and you feel really distracted especially behind the wheel, and i am very concentrated person, so it was tough for me. I'm still emotional and i believe this won't go away, cry like a baby over anything. And my husband wasn't really understanding either, but definitely suffered seeing me in such a pain, and the time when i had no drive at all he was cursing this IUD)), and as i said i tried this device, not crazy about it at all and after i take this one out i'm thinking of choosing something else...
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I've just had my Mirena IUD removed. I had it inserted a little over a year ago after an unplanned preegnancy and termination. I read all the pamphlets I was given, they didn't really have any info on the possible minor side effects so I went ahead with the insertion, distraught as I was.

I loved it. I had spinal surgery in January this year and with limited bleeding it was great.

I guess for me the effects were gradual not really noticable till they all compounded and swamped me. I seriously thought I was going insane, with everything that had happened to me over the year I put it down to that. But everything got worse. I was so depressed and anxious I almost lost everything. And couldn't understand why I was reacting the way I was. I'm very lucky I have such a patient and understanding husband and wouldn't let me destroy us. I was in a downward spiral he kept pulling me up from. I had no idea what was going on. One minute things were great, the next it felt like the world was falling out from under me. I didn't want sex, and having previously had a very high libido, this was impossible to understand. I was anxious all the time. Everything felt worse than it really should have. Talking about everything with my husband helped put things into perspective again, but wouldn't help things make sense. Putting on so much weight wasn't helping with my moods, up and down as they are and having had back surgery I find it very hard to lose any weight. But the weight gain was very unreasonable, even with the surgery it was excessive. And having such irregular periods/bleeding it was difficult to plan anything! Once it decided to 'arrive' it was literally like heamorraging! So fast! but would ease off and i'd have spotting for about 2 weeks.

We are in the middle of moving countries and jobs, trying to make a fresh start. A forced change of lifestyle, warmer climate, beach and plenty of activity.

We decided to look into having kids in the next few years, and knowing it can sometimes take a while to concieve (conceive) after having a mirena removed, I started doing some research about 2 weeks ago. I came across a site intended for doctors and came across a list of side effects. Suddenly a penny dropped! I called my husband and told him to just listen for a minute. I started reading the list one side effect at a time. He said "yeah baby I know thats how you've been feeling but it will all be ok we'll get help" and I was like "no listen this is a list of possible side effects from the Mirena." "Oh God, get it out" was his response. I made an appointment and continued my research. Which was when I found this site, it was such I relief to know I'm not the only person going through this. My stress levels dropped ten fold.

I got it out today. The removal was fine, other than a panic attack from me! and the strings had started to embed into the cervix and was a little difficult to find (this didn't help the anxiety) But the removal was not at all painful. So far I have had minor pain, no where near as bad as the cramps I have been suffering! I haven't bled at all so far, but we'll see how tomorrow fares.

I know that this may not have anything to do with the Mirena, but it could also have everything to do with it. Until I found out that the things I had been going through were possibly related to the Mirena I was relatively happy with it. I'd been on the pill and on depo in the past, which did not work for me.

My advice to all those out there looking to go on the Mirena, is just do it informed, that way when/if you start noticing side effects you'll know what they are and be able to deal with it. I'm happy to have had it removed, so I can now see whether things settle down in my life and I return to the happy, fun loving person I used to be.

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I also should say, a was getting migraines every week or two. And we were positive I was pregnant at one stage about 4 weeks ago! Prenancy test said no. So was very confused by that, we were so sure, and very worried because of the risk of ectopic pregnancies. Any way, a problem shared is a problem halved as the say. Its great to find so many women willing to share thier experiences in order to help others in similar situations xxx
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Hi everyone! Just popping in to say hi and send you all wishes for happy healthy days! If you have Mirena and Love it, wishes for continued success. If you have it or did have it and HATE IT, I hope you are able to find the support and understanding that you will need, here from all the posters! I will check back as often as I can to try to answer any questions.

Take care and Healing Hugs to all of you,
Springwater5000
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Just writing back to say after having my IUD removed in August (which thankfully was quick and painless), I feel great!!! No more cramps, lengthy periods, and I don't feel crazy and depressed anymore. What a difference! I am actually starting to lose weight again, which I put on during my 14 months with the IUD. Only bad thing is having to deal with non-hormone birth control methods. But I'll take that over the IUD issues I had any day. Good luck to all of you, and best wishes for healthy days ahead!
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I HAVE AN ODOR, ITCHING ,DISCHARGE VERY TIRED NO REAL PERIODS BUT UNEXPLAINED SPOTTING AND DRYNESS. OH HE IS ALSO RAW AFTER SEX.
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I am writing to warn all of this method of birth control....I had the Mirena inserted over a year ago, I had been on every other birth control, have 5 children and was talked into this by my OBGYN instead of having my tubes tied. I began experiencing hair loss...not a few hairs here and there...I am a professional in the beauty industry and so is my mother in law....we both knew it wasn't normal..periods, weight gain..then weight loss...mood swings....a loss of sexual appetite that has basically destroyed my relationship, not to mention having sex and the pain involved because of dryness...yeast infections and ovarian cysts that I never in my life had till the Mirana....My doctor never connected the cysts with it after many ruptures and many visits...she actually told me that birth control was the only way to keep the cysts at a minimum further discouraging me from having the Mirana removed....depression ,anixiety that caused me to seek help from my primary doctor who could only suggest I be put on Adavant for the anxiety...which made me feel worse, I quit taking medication only to end up having another condition come along due to stress and anxiety that the doctor has no explanation for or a reason why I would have this ...Raynuuds Disease, which has taken over my life almost made me loose my fingers because of ulcers developing due to a problem with circulation caused from stress that I am now on many medicatios and seeing a rheumatoligist and my future with my profession is being put on hold....all of my symptoms no doctor has been able to put together until I spent a bout last night again doubled over in pain with my usual cyst occurances...with no sleep I got on the computer and did the research on my latest gut feeling.....This damn Mirena!...I was extremely healthy and happy until I had this...all the dates of medical problems point to the exact time this Mirena was inserted...after reading for 3 hours warnings, that by the way are not even explained when you get this,stories from people just like me whose lives were destroyed or almost destoyed from the Mirena I called my OBGYN to tell her of the evidence I had found and maybe this was the answer of course being a Saturday...no help.. I was told to go to the emergency room to make sure the cysts were not infected again and to call on monday......really it was like a slap in the face ...for a year I have not been the same...and nobody once thought that this was a cause?...I went into the bathroom and removed it myself...I have been to specialists..OBGYNs, and every doctor who could not understand why I was having these problems and only 32....I am still going to call my doctor on monday..go in and ask her why I was never informed of this...and hopefully within time I will get my life back...in the meantime this company will pay for the time it took from me and my family, I plan on doing anything I can to get the word out on this and hopefully go forward with a civil suit when the time comes...they owe it to women like us...we can not get back the time this Mirena has taken from us, but hopefully we can put the word out to other people that this should be taken of the market!
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I had my Mirena inserted on March 25th. Aside from a small pinch and a short lived bout of dizziness immediately after I was fine. I had a tiny bit of spotting for 2 days after insertion and then nothing. No cramping  or anything like I had expected.

Last week I got my first period pretty much right on schedule as before. Very heavy this time. Lots of clotting and few days of pretty awful cramps. I should have made note of the day it actually began but I think it's been about 8-9 days with only a small amount of spotting as of last night and today.

A few mood swings. I noticed right after insertion and these last few days of my period. I'm used to that though. I usually have a little St John's Wort during my period and that helps me.

Birth control never seems to work with me. I have given birth to 4 children 1 failed using condoms only, 1 on depo, 1 on the natural and the last one was a condom followed up immediately with the Plan B. I never have had good reactions to the hormones so it's been over 10 years since I had any hormonal birth control.

I decided to go with Mirena after reading all these side effects because I really do need something. I swear I could be in Guinness for fertility lol

It's only been a few weeks and other than this morning when my gums bled pretty bad while brushing my teeth, something that never has happened to me outside of pregnancy, I have been great. After all those incredible clots this past week I think it's safe to say I'm not pregnant and I'm chalking it up to moving and using my fiance's toothbrush for a week (he does have issues with his mouth)

I pray that this works for me. Even if it's just for the first insertion because after that I plan to have another child (maybe!) but I just cannot bear to completely eliminate my fertility.

I am so sorry to that so many of you have had such serious problems with the IUD. Thank you so much for sharing your stories! It makes it so much easier for me to be on the lookout for anything that could go awry in my own situation.

~Sharr90
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Long term use is scary

I had my first mirena coil fitted when I was 20. I have had 2 further coils fitted since. Having had the mirena for 13 years without a break, I had it removed 6 months ago.

I loved my first mirena. I also loved my second mirena. I was quite happy having had the mirena for 10 years when my third was inserted - then the trouble really came to the surface:

Hair: I have lost about half of it - not sure if it will come back
Polycystic ovaries
Excess Facial Hair
Depression and anxiety (currently on prozac)
Bad skin
Severe bloating
Severe water retention

Since removal hair and skin have improved. Very bad nausea and headaches for first 3 months and very weepy (I am not a weepy person). Periods still not normal after 6 months. Clots for the first 4 months and now painful cramps and bloating - they only last 3 days.

And the worst problem since removal - severe diarhhoea at onset and end of period - so severe that I am house bound. I hope that this will settle itself down and not become a permanent disability - I am currently unable to work for the first time in my life due to this but am determined not to have another mirena inserted for any reason.

My message is that mirena may look good at the start - even for a decade but eventually is will screw up your body. I dont know if there are any other long term users out there that have had diarhoea - I would really like to here from you whether that cleared up.
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Hi everyone,

My name is Georganne. I got the mirena removed about 4 months ago. I had it for 9 months, the worse 9months of my life too! I had all of the symtoms (symptoms) you all have listed.. It was extremely hard for me to loss the rest of my pregnancy weight. I had like 15 lbs to lose and I would work out at least 5 days a week running and lifting. I just maintain the same weight. After I removed it I began to feel better instantly. I have now lose 16 lbs and I am good if I work out 2 days a week. I am busier now maybe that's why. I don't crave sweets as much and I get fuller faster and I can't eat as much anymore. Did anyone else here have weightloss after their removal of the mirena?  Georganne.
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Hi, I'm 20 years old and am thinking about getting Mirena. I have had no children, and it seems that many of the "horror stories" that i read are with women who are much older than i am and who have had children. is there anyone out there who is my age and has not had children that has had a good experience with mirena?
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I too have had the horrendous journey.
I had the Mirena inserted Dec 08, as soon as it was in I didnt feel myself. trusting in what I was being told by medico that it will take some time to adjust. well i wonder if they want you to have it in for a time so you get so toxic you become punch drunch and neeed a carer 24/7. this is the most belittling experience.
I waited until march for it to settle in , then decided to do my research.
Well I have joined the club, the anti mirena club.
my health mental emotional and physical-are suffering,ARRRRGGG
My Symptoms;I dont feel myself, lethargy, dizzzy, foggy, cannot recall information easily,get confused,have difficulty being interested,eysight is blurry and have use reading glasses all the time,slight hair loss(40%) and oily hair,slight acne,hirsutism has excellerated growth, red spot like burst capillaries on chest and neck,
spasmodic rapid heart rate with panic and paranoia. Dark Dark suicidal, self harm feelings, desparate, helpless, hopeless, feeling dread and dispair,teary over anything,negative monkey mind.
really spaz digestion, all over th place from indigestiongas,pain under ribs.
Bloated, feel puffy even though I havnt gained. I was nauseas from January to march that i lost some weight. I felt I was pregnant had all the symptoms but no. This really tipped me off that the mirena was at the cause of my ailments.
And now I have constant lower back pain , and aching joints, a strange moving sensation in my uterus that feels like a baby moving occasionaly.and  a sensation of streching slight burning inside.
and of course just recently NO Love desire.
plus my partner has strange thrush looking chemical burn on the rim of his manhood , which the Dr diagnosed as thrush but has not vanished with abstinence and the cream. It flares up immediately after loving then peels in a spot. we reckon that when we first had the mirena the strings were cut to short and it poked and scratched his willy which allowed the hormones to penetrate under his skin. He is very clean of chemical intake and has been a vegetarian for 40 yrs and luckily has experience as a psych nurse or I would not be here
So I made appointment to get mirena out had to do the waiting game, finally spread on the table and DR says "oh whats this, I cant get to your cervix, Oh its a vaginal cyst, Oh ok , well let me get this IUD out then we will attend the cyst. Oh Oh I cant see any strings sorry we will have to do a D&C "She really has been very supportive and did everything in her power to book me in asap.Had ultrsound which identified IUD in utero and cyst the size of an egg which was not there when I had IUD inserted.
Checked into Hospital, procedure done. IUD,I am waking in recovery to the Dr saying she couldnt find it and how sorry she is,I will have to go to a Gyno as it will require there skill
At my follow up appointment she suggested anti-depressants for which I refused , so it was suggested I take St Johns Wort.After 3 days of St johns I had a hysterical fit ,madness ,crazy fit this night, so insane that I cant believe it was me. Lucky again that my partner was in attendence. this has all put such a strain on our relationship. I researched St johns wort and found on netdoctor that it is not good to take" as these may speed up the breakdown of the levonorgestrel by the body"Yep I had a massive progestin surge and since then Im only focussing on getting through each day till this toxic poisoner is finally extracted from my body.
So here I am waiting for this Friday 19 june 2009 for the next step inthis next round to rid myself of this tyranny.
(did you know that mirena has barium in it, and barium can transmit signal or bounce signals , are we women being used to transmit??did you know they spray the skys globally with chemtrail which contain barium?)

I have changed from being a really healthy women, why did I get the mirena.

Love to you all
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Hi everyone, just thought i would share my experience. I had the Mirena fitted 11 days ago. I must say being honest it was horrendous. So painful i was climbing the hospital wall. I then had contractional like pains for 2-3 days was in so so so much pain. Went back to docs who gave me stronger pain killers and some anti biotics just incase of infection. The next 3-4 days i generally felt unwell then about 4 days ago i started getting all over body itching to the point it was keeping me awake at night and it was driving me insane. Ended up in A&E yesterday morning having it removed as i was having an allergic reaction to it.
I so so so wanted this to work for me. I have endometriosis, i've had many surgeries, got IBS, im 34, no kids, single, no prospect of that happeneing. I just want a normal life. I want a hyst but they wont give me one.
So now im back to square one.
I'm so sad today, coz i just feel its never gonna end.
Hey ho, just keep plodding on.
Thanks for listening.
Lisa.
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I am so glad to know that I am not crazy or at least any crazier than I already was...I have had the IUD for a year now and I cannot lose weight no matter what I do, I am always bloated and I have been on sooo many different anti-depressants/anti-anxiety meds that still did not seem to help. I have no sexual interest what-so-ever and when I do I am so dry it just hurts and I lose interest. I have had nothing but stomach problems since about 2 months after having it put in and my doctor told me that if it were the IUD it would have happened much sooner than that. She told me I had Post-Partum and wrote me a prescription for Lexapro. I began gaining weight at a rapid speed, like 2 pounds a week, and I could not lose it for anything. After 6 months of trying to lose weight, eating 1200 calories a day and working out like 6 days a week, I went back to my doctor and was told it must be the Lexapro. Lexapro really worked well on my depression and anxiety but I just could not quit gaining weight, so I decided I didn't want to take it anymore. After 6 months I was off the meds and I still only managed to lose like 10 pounds of the 40 that I had gained. Since then I have been on everything from Prozac to Wellbutrin XL but nothing seems to help!! I have had several issues with ovarian cysts and such bad stomach issues that they thought I had crhones disease. I have been reading all of the different websit blogs regarding other womens issues with the IUD and decided that I am getting this thing out of me. I go to have it removed on September 15th. I can't wait!!!
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I have decided to remove my Mirena after 3years this October, in two weeks. I am sitting at my computer with the air from the computer below my waist blowing the wretched stink that I get the first few days before my period and the last few days after my period. I have had it!!! It is the most nastiest smell. No woman should have to smell like this. I have been to Gyns and they tell me that my tests come back negative.When I am on the MTA bus I am so afraid to get up slow when I sit next to people. I try to get up fast so no one would catch the smell. Someone did yesterday, only if you couldv'e seen her face. I was soooo embarassed. I have been redouching myself with baking powder and water in the am by 10am that horrifying smell reappears. My husband said "Oh I smelled it but I didn't want to say anything". He almost vomited from the odor. My young children walk in the room and say "What is that smell?" Now that I see what happens with some of the womens' mental health, I never even thought that that was the reason I was going crazy. And my husband cheating thing. I didn't even think of why I was thinking of those things. Now I know, this will be a long road for recovery. Hopefully menopause kicks in because I tried every BC on the market except the Ring. He needs a vasectomy because I am tired of this.......!
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i just had my IUD removed this afternoon after 3 yrs of having it. I loved it and hated having it removed. I had been bleeding for 3 weeks and it just kept getting heavier, so I went to the doctor and they checked it, fine, then they did the ultrasound and to my surprise it had flipped and I had to have it removed, that was the cause of my bleeding. I hated having it removed I still had 2 more yrs with it, but it didn't hurt at all a lil' pinching, but nothing like having it put in. Good luck and hope all is well.
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I truly believe we need to have a class action lawsuit against Mirena for not listing all these adverse effects.  Who knows what other long-term effects it might have.  The doctors are useless too.  We can't go after the doctors together but we can go after Mirena as a group.  Just from this post alone, there are 347 replies, and this is only one posting.  There are many more just like it on other sites.  If you ladies know any medical lawyers or is one please look in to this.  I'll be happy to tell my story in court.      
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I am having my mirena taken out on friday. Does anyone have any advice? I am nervous about what will happen after. I have been having horrible side effects, weight gain, think hair, acne. I didn't know it was my mirena until I had to go to a cardiologist and he did bloodwork. My ob never told me any of this could happen. Hopefully I will feel better soon, I hope I get my energy back and just overall become myself again.

Any advice would be greatly appreciated
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Hi, I have had the Mirena in for the last two years and have been completely unaware that all the bad side effects have been from the Mirena.  My Gyn. told me that it was due to my Hormones balancing after the baby.  Recently I chattted to a friend of mine about these side effects and realized that it was actually from the Mirena.  She had the same side effect and had the Mirena removed after finding out that she had grown fibroids! She suggested natural Progeterone cream which seems to be helping a little, but, from reading up I am not sure that I'm doing the right thing.  My friend also suggested I sue the doc for not giving me sufficient information, shows you, you cant trust anyone when there is money to be made!  I am in the process of booking to have the Mirena taken out but my Gyn cut the strings too short and It looks like it will be a major process and expense to remove, but I am more motivated than ever to have it done now.  Thank you to all the ladies that have put in their comments I thought I was going mad but its good to know that when you think your body is telling you something, take note, chances are you are right!
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I just want to add that I had my Minera IUD placed November 2009.  When the doctor told me about it, she made it seem as if it was soooo simple and it was really quick.  I made an appointment because I had an hour to squeeze into my day.  Little did I know that there was so much to be discussed because of all the side effects.  Anyways, I let her continue with the procedure.  It was definitely uncomfortable and bled for two days with cramps for at least 5-6 days.  So here is my assessment:

Pros:
- Love not having to take something routine/monthly
- Love that it allows me to be spontaneous and not have to worry about missing periods, pills, etc.
- No weight gain, who doesn't love that!!
- No loss of sexual appetite

Cons:
- Major, major, major hair loss (I have beautiful jet black, thick long hair that is falling in chunks - clogged my drain twice last month)
- Uncomfortable cramps spontaneously
- Mild acne
- Get moody

Decision:
Having it removed this month.  I love my hair and I can't see it fall like this.  I'm going back to using the patch.  I can deal with the weight gain from the patch but not the hair loss from the IUD.
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I just had my Mirena removed today.  I had had it in for 4 yrs and could not get any answers as to why I was having so many different symptoms.  I had headaches that would last for a week, heart palpitations, anxiety, extreme mood swings ect..  At my appt this am I told my doctor why I wanted it removed and he told me that there was NO way that the Mirena had caused these symptoms even though I got them not to long after it was inserted.  I am now going to start traking how my symptoms are and if they clear up, which I am certain they will, I am going to let him know just how wrong he was.  He actually tried to talk me out of getting it removed!  I am so glad I started researching this topic on my own and found others who have had similar experiences.  Thank you!!
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I don't know about all these symptoms.  I haven't had any of that except my period never went away like other peoples.  However, my IUD went through my uterine wall and now I have to have it surgically removed.  Has anyone heard of this?  This is my second IUD, I had no problems with my first.  So, this is a big shock to me.

Kristy
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I have had my mirena in for 2 1/2 years now and thought it was an excellent form of birth control. I started noticing some symtoms (symptoms) such as migraines, acne, fatigue, and harsh cramping/abdomen pains. It felt similiar to being in labor or bad cramps.  I came to the conclusion something is WRONG with me! I thought maybe I had an STD or something. Got tested and it was negative. I also had depression, crying over everything. I cried watching lion king! lol. My boyfriend thought I was just making up sicknesses and i was lazy because i slept so much. I was planning on getting my mirena removed to donate eggs and did a search online about the removal and thats when i came across soooo many other woman with the SAME symtoms (symptoms)! Coincidence? I think not. I was never warned about side effects such as these. Im getting mine removed in 2 days and cant wait!!

Pros- Effective Birth control
Made me have little/no period

Cons- Fatigue
Acne
Constant abdomonal pain
Depression
Migraines- I never had one in my life prior to mirena
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I have had the Merina IUD for 4 1\2  years and I have never had as many symptoms as you all did.  My symptoms when I am on my menstrual cycle have seemed to get worse over time mostly with migraines. I love having the Merina IUD I don't have to worry about my birth control failing atleast I haven't for the past 4 1\2 yrs but it is soon time to come out, but I will definately be having another one placed in the future.
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My daughter had it inserted 31/2 yrs. ago after the birth of her first child.  She has been so sick for so long and we have not understood what was going on.  Unbearable pain thought to be repeated kidney stones and finally found out that the device has grown into her body and resulted in a terrible infection , and has to wait for the infection to clear up for this awful thing to be removed.  The amount of damage done to my daughters health is absolutely inexcusable because this product should have had further testing for side effects.  Anyone interested in a class action lawsuit just let me know.  My family will be seeking legal help immediately.  If you have this in you,  get it out!!!!!!!!
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the iud hater : {
I am a 29 and i have been onthe  iud the cooper on since 03 after i had my baby girl i had it for nearly nad had terrible heavy bleeding it was like ihad my period for 3 wks and spotted for 1 week and then it was time for my period again i went to my ob a lot of times. on of the visits ws on a  week that i was not on my period and as im laying their this gush of blood came out and i saw the dr panic and i told the dr.you see that is the kind of bleeding i am talking about so he immdiatley had it removed and replaced it i a new "top of the line iud" mirena it was all good in the beginning everything was normal . then little by little everything was going down hill a foggy hill and i could not even point out as of why this was happening to me  to finally i saw this web site a relieve i have scheduled an appt. to have my mirena iud remove next week. i had scheduled it a bout a like 3 weeks ago. i actually felt in a fog and the only time i came out was to scream at someone or to chew some ones head of (not literally) and i already had terrible headaches andso ithought that was normal i starded getting  acne on my face back and feeling depressed always in pain consistent bcak pain i would always blame it on my oversize cargo (boobs) but it is because of this little piece of s#!t. i was actually felling crazy and just thought i will take it out myself but of course i wouldnt do that but just to give an example of how bad iof shape i am in right now but i really am looking forward to next week and im really going to look for a more natural bc method idk what but if any one has any suggestions let me know.
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I thought I was crazy all! Thank you for this website...no one will beleive me for past 5 years I have been dealing with hair loss, extreme moody and panic, major weight gain, acne and face rashes, pelvic pain, heart palpatations and pain, depressed and tired.  I was never ever heavy, always bounce back after each pregnancy and was actually thinnest with my last child (third)....got Mirena after OB told me there was not any hormones in it!  LIE!  Long stiry short, I got it out 1 year later after Dr. put me on all sorts of drugs thinking it was not related to the iud, and finally made the choice to get it out on my own by gut feeling....4 years later I am still overweight and work out 5 days a wk with spin/ yoga, eat most organic and whole grain/ healthy, plus keeping up a family of 5 and 2 dogs.  I am just stuck on what to do next!  I have done cleanses and teas and take care of myself.  Any other ideas on what to do?  I went to the Dr. and they laugh and try to send me to a nutritionist and tell me it's a calorie restriction....nooooooo it's not.  After reading through this I know I am not alone after 5 years of being told I was crazy.  
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i honestly feel obligated as a woman to share my mirena experience with anyone considering having this foreign object placed inside their uterus.  i am a 31 year old mother of a 15 month old and i have Hepatitis C.  i asked my doctor what the side effects were and he literally told me "none".  i also asked him if the hormones would affect my liver at all because of my HepC. he said that it was perfectly safe.  i had my mirena placed in August of 2009. i immediately went for a ride on a hormone rollercoaster.  that lasted about a month or less and i thought that the worst was over. i was WRONG. i started experiencing a number of symptoms that all seemed to be unrelated: heart palpatations, dizzziness, constant and unbearable sciatic nerve problems, eczema, ovarian cysts, back acne, bloating, gas, fatigue, irritability and anger, zero sex drive, hair loss....     i was seeing a PCP, a dermatologist, a gynocologist and a chiropractor. i bled everyday since i had gotten mirena---not like a period, but enough that it was a nuisance.  i spoke with my gynocologist on several occassions about my symptoms and he assured me that because the hormone is released directly into the uterus and not at all into the blood stream, none of it was related to the mirena and scheduled me for laproscopy to remove the cysts.  he even suggested that maybe i was imaging it!  after several months of bleeding, doctor's appointments, bloodwork, heart monitoring and ultrasounds i had finally had enough and decided to see for myself if it was in fact the mirena.  i had the damn thing removed in April 2010. some of my symptoms immediately vanished: the constant bleeding, bloating, gas, back pain and dizziness.  the rest of the symptoms vanished over a period of about a month except for one: extreme fatigue.  as it turns out my liver enzymes, which had been stable for six years, are elevated to the point that it is now reccommended that i start interfuron treatment. just today i read on the mirena website that mirena is NOT APPROPRIATE FOR WOMEN WITH LIVER DISEASE.  i wish i had done my homework before having mirena placed. It was a nightmare that could have been avoided. and unfortunately some of the damage cannot be reversed.
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I had the mirena iud put in at 12.15pm today, very painful, cramping, was advised this would happen plus was given the list of all the side effects... left the clinic room, went into the reception area, felt sick and dizzy, fainted, had a seizure ... was well looked after by the gynae, then twenty minutes later had the iud removed.
would not recomment this iud.
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I just had my Mirena IUD removed.  I had my first one inserted in 2005.  The 5 years flew by without too many side effects.  I did notice a bit of weight gain and moodiness. My sex drive has always been insane.  So if that went down I didn't notice too much.  I had 2 children already and decided to put another Mirena in.  Well...2-3 weeks later I couldn't even pull my jeans on.  Literally.  It was like I just bloated up.  I was depressed, sex drive definitely went down, super moody, this "fog" everyone is talking about....really real. Headaches all the time, and extremely tired. I am a nursing student so forgetting things was a definite no no.  Everyone (my doc, my sis in law who is a NP said these were not from Mirena).  I did extra research and finally educated them all.  My sis in law finally told me to get it out after seeing some patients similar to me.  It has only been a few day since I got it out.  I am having bleeding and cramping.  Lots of clots coming out.  Gross.  My sister in law said the medical feild is not at all educated on the IUD and it is scary.  I must say the IUD may work fine for others....just do the research, know the pros and cons, NOTICE if you are having these symptoms and get it out if it is really affecting your life!
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Mirena is bad!!! I had mine taken out! I feel sooooo much better. I almost killed myself over acne because I couldn't clear it! I went to dermatologist and did the Retin-A which worked for awhile. I got a chemical peel and all hell broke loose on my face. Massive cystic acne that hurt sooooo bad!! I've sat under blue lights to kill the bacteria under my skin. I've been on antibiotics only to get a yeast infection. Mirena has been nothing but a nightmare!! PLUS I had horrible, horrible mood swings! Couldn't stand my kids, sad to say. I was always ANXIOUS w/ my heart beat ready to beat outta my chest. I never, NEvER linked it to the mirena. 1 week post mirena, feeling wayyyy better, face has cleared a lot, moods R better and I'm able to be around my kids without flying off the handle. I am taking 5htp to help w moods. Which can be bought over the counter. Liver cleanse to rid my body of this evil poison that has robbed me of my life. I'm just glad it's out!!!!  
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I had the Mirena in for 3 1/2 years and had it removed a month ago because my husband and I are ready for another baby.  I had absolutely NO problems with it in, not an inkling of what so many are talking about.  My only  problem is NOW.  I started my first period after removal on Aug 21, it lasted 6 days.  I didn't have any cramping when I started or anything, but 4 days into it I did and they were a little worse than I had ever experienced before and nothing seemed to help them, but they were gone when I woke up the next morning.  Last Monday I started having some cramping again and within an hour I was hurting so bad I couldn't stand up.  I was fixing dinner for my kids and couldn't sit down to eat with them.  Within an hour I was calling my mother in law to come get the kids and telling my husband to meet me at the hospital.  Ended up in the hospital until Wednesday because of cysts on my right ovary.  I've never had cysts before.  It was the most horrible, excruciating pain I've ever experienced.  Evidently, one burst and I still have 2.  Has this been an issue for anyone else AFTER having Mirena removed?
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So here's my story.........I had my Mirina IUD taken out just short of four years during my annual exam. I decided to have it taken out due to horrible periods, cramps, and bleeding that would last for anywhere for 2-4 weeks at a time and a heavy flow and cramping the whole time. So I was bleeding more than not. When the doctor took it out it was beginning to grow into my Uterus. The doctor finished my exam and then told me that my Uterus felt swollen and he wanted me to have an UltraSound done. I went in and had it done and the doctor called me about a week later to tell me that I have a large Pelvic Mass that looked pretty solid. He told me that it was possibly a Dermoid Cyst. He also told me that it was about 10 cm. He stated he believed it was a cyst that developed in or on my left ovary. So he scheduled me a surgery to have this "mass" removed with the possibility of my left ovary being removed. So in the surgery he ended up having to take my Left Ovary and also told me that my Right Fallopian Tube is blocked so having anymore kids would be hard if ever. I have two beautiful children, I just wanted more. It's hard to cope with. I just hope the cause of all this wasn't the IUD. Kadie
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I am 44 years old and had my Mirena inserted over 5 years ago, when I was 39.  I've been so busy, I didn't take the time to have it removed yet.  I just had a pap smear done, so the doctor has to wait to see the pap smear results before removing and inserting a new one.  I am just curious to know if any research has been done to see what the pregnancy chances are if the 5 years have passed.  I'm over 1 1/2 months overdue for my period but all of the urine HCG tests, including 1 from the doctor's office, came back negative.  I'm thinking I'm going through pre-menopause.  
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I have had the Merina in for over a year and have had NO problems.  i am 43. I dont have a period either!! My friend also has one and she has had no problems.  I have a co worker that just got hers taken out after 2 years and 3 weeks later she was pregnant with their 2nd child. I completely recommend the Mirena.  I am sorry others are having bad luck but it has been a breeze for me.
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I.got the merina in 6months ago at first thought it was great no periods but as time went on I started to become to feel very low like nothing mattered any more everything was like a big task for 3 months I had insomnia  stayed awake for 3 days tell my doctor gave me sleeping tablets was on them for awhile I had severe insomnia my body would just come alive soon as I went to bed    I got it out 3 days ago and feel my old self coming back and I have slept the last 3 nights I feel great we should put something artificial in our bodies that's just my opinion
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I got Mirena placed five months ago and for the past month and a half I have had terrible itching and discomfort!! Does anyone have or has anyone had these side effects?
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I just had my IUD removed 3 weeks ago. No one told me about the after affects other than a normal period. I wanted to go on a form of birth control that I could take out if that week my BF and I wanted to start trying instead of having to wait for a Dr. appointment which could take weeks. The nurse practitioner told me that I needed to insert the Nuva ring after 4 days of my first period. Since I had no clue as to when my period would start because the Mirena messed my cycle so bad, I planned that I would 'clean out' and then my second period I would put the Nuva ring in. Well, I have my first period and OMG!!!! I feel like I am delivering the afterbirth for the past 3 days! I have clots the size of bananas coming out of me! I go through a super tampon and a super pad in an hour! Is this normal after 4 years of 'build up' in my uterus? I am starting to feel more tired than I should. I don't want to put the Nuva ring up there if I have this much stuff up there that should come out right? Does any one know what I am talking about?
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I had the mirena put in after the birth of my second child on October 26, 2010. The last two weeks or so I have been itching non-stop with hives all over my body. I'm beginning to think it is because of the mirena. Has anyone else experienced this? And how long does it take to go away once the mirena is removed?
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I have had my IUD a little shy of 5years. I have NOT had any problems. No periods, no cramps or anything I swore by the Mirena, until now....  I chose to replace it early with my annual exam. They tired to take it out and it didn't come out. the doctor gave me some medication to soften my cervix to help get it out and scheduled me to come back the next day. At this point I am thinking it will come out no problem... WRONG!!! After 2 different doctors (1 female first, 1 male 2nd) pulled 2 -3 times each no luck.Which is soooo freaking painful. The male doctor with his last tug broke a piece of the IUD. Sad thing is first thing he says is this isn't a Mirena... Are you sure its a Mirena, he asks me. Yep thats what they said I was getting 4.5 years ago... Uhoh!!! So now that half of the IUD is still stuck and I am now scheduled for surgery next week but now I have this overwhelming concern about what the hell the doctors put in me in the first place. Please everyone please be careful and just make sure you are getting the correct birth control you requested. Take care everyone! Please don't let your friends get any IUD's who cares what the name is. DO NOT DO IT!!!!
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I had mirena put in 12 wks after my son was born in 2009. What a huge mistake that was. At first I bled for 4 mths, heavily. Then onto weight gain on top of the baby weight that I had successfully lost prior to insertion, to date I have gained a very stubborn 40 lbs. that will not leave. Then I entered into major depressive state which I have been medicated for w/ very little relief. And now my dearest husband, whom I truly feel sorry for, has been putting up w/ my erratic aggressive mood swings, which did not occur  until I had this stupid BC inserted. I hate this thing, and how it has made me feel. I seriously thought I was losing my mind. In fact I became so depressed and anxiety ridden I contemplated checking into a behavioral unit. And now after 18 months I am making myself an appointment w/ my gyn to have it removed. To date I have suffered from: depression, migraines/weekly, aggressiveness, irritability, excessive weight gain, bloating, breast soreness, major hair loss, and now onto the most distressful symptom that I can not bare any longer is the hives/itchy skin that has just recently reared its nastiness again. I'm not bashing mirena as it is very successful BC options for some, but if you are looking into getting one, Please research it and all the side effects. At first I recommended it to my other friends who were looking into their options, but after going through all of these side effects, I remain neutral and do not make any recommendations. Can't wait till this BC leaves my body so I can hop on the road to feeling like myself again. No BC is worth all of this. Thanks for listening, and to those out there suffering, You are not alone. And to those researching, It's completely your decision. How everyone has a Wonderful day.
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So now I am extremely weary about side effects of Mirena, since I am going to get one put in this week. I have one question, you have all mostly answered it but there are so many posts, can't read them all. WHO HAS GAINED WEIGHT FROM MIRENA? I stopped Depo cause I gained 20lbs. in one month and I dont want to go through that again.
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There is an IUD that doesn't use hormones... This is the one that I have..I had all kinds of reactions to birth control bills that i didn't want to put any more hormones in my body. I've had it for 7 years and have had no problems.. So all of you having reactions... Try for a ParaGuard... it can stay for 12 years instead of 5.. you do still have your periods, but in my book that's better than hormones and how they can affect you...
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I completely agree 100% with wisegirl! I got the mirena 6 weeks after the birth of my child & it has been a nightmare! I had it in for 2 mos & had it removed in February 2011. I experienced severe headaches, dizziness, extreme hair loss, abdominal pain, sore muscles, hot flashes, mood swings, constant bleeding, night sweats, exhaustion, weight gain, acne.... I am still experiencing all these side effects even after having the device removed! I have two children to take of & wish I could feel normal again so I can enjoy time with my family instead I'm just irritated & miserable all the time! Does anyone know how long before these side effects go away & will my hair come back as before? I welcome any advice!!
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I have severe endometriosis to the point of pethadene every month, missing days off work.  That is until Mirena. I have had it now for 8 years (2 insertions) and I love it. No side effects. I would need s hysterectomy if I didn't have Mirena. It's s god send for me. Life was unbearable without it.
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I must say that I didn't know much about Merina until today.  My daughter (age 21...no kids) had Merina put in about 2 hours ago and said that it was the worse pain she had ever felt...ever.  She had foot surgery last year where they broke her toe, shaved off a quarter-sized bunion, put steel pins in her toes, etc.,  and having Merina inserted hurt worse!  I'm scared to death for her after reading these posts.  I'm going to try to talk her into going back and having it removed!!!!  God help me...    
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I had felt the same as you! I would drop things more than usual. I would accidentally bump and hit my body on walls when turning corners in the house etc.  I had some headaches, some acne, some pelvic weirdness but most of all my husband could see a real change in my personality. He said that i was very quick to get irritated. I felt like i was PMSing a majority of the time.  My doctor, who is a true believer in the Mirena, said that some women are just more sensitive to the Mirena Hormone even though it isn't a large dose. I could never do any hormone pill for birth control so i was afraid the hormone would have an effect and it did.  You're not alone.  Basically you have to weigh the pros and cons. I was more irritated and not feeling good more times a day then we made love so the pros didn't outweigh the cons. Hope this helps. BTW, getting it removed was very quick and painless. Not like putting it in.  
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Just came back from the doctor. I had my Mirena IUD removed today after 11 months. I'm ashamed to say I did absolutely no research before having it inserted, so it took me far longer than it should have to connect the weight gain, blurry vision, irritability, and morning sickness symptoms to the Mirena. Even after I connected the dots, I was so sure the symptoms would go away, so I left it in longer than I should have. When I went to see my doctor she didn't push me to leave it in, though it is clear she thought I was making up my symptoms. Here's waiting for my body to go back to normal. Like so many others have stated, while I would never wish all the things I experienced on anyone else, I do feel vindicated that others have had similar experiences.
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I am 25 yo and I just had my IUD put in today. It was the worst pain I have ever felt in my life, and I had to call out of work. Since the insertion, I've been having horrible cramps and no amount of Ibuprofen has worked. Is this normal? How long is the pain supposed to last? Thanks everyone!! I'm terrified after reading all of these comments but I've had two unexpected pregnancies and I'm not willing to go through that again until I am ready.
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OMG! i have had my mirena for about 4 years i got it placed in november of 2007 just after my daughter was born in sept. of 2007.. oh my i just thought the mirena was great i didnt have to worry about pregnancy ! well for some reason i start noticing maybe in like 2008 really bad skin irritation(eczema) i havent had since i was younger, i have to be careful because now i am illergic to certain kinds of perfumes, UGH!  i feel sick about every night, my poor boyfriend i dont mind being without SEX i cant say that i even get horny and thats is just not ME! ugh but no sex drive at all. i would wake up every morning with swelled hands, constantly cold while at work, always getting bacterial infections smh, i didnt think of it being the mirena until 2010  i would feel terribly depressed and feeling dam angry WTF ! i was saying to myself this is exactly how i felt when i first found out i was pregnant....so i looked up all these side effects to the IUD and was shocked** which i should have looked them up before getting the IUD...but about a month ago i made an appt and ASAP got the mirena out and replaced with the PARAGUARD copper iud hormone FREE! but i still feel these side effects at times i have only had my copper iud in for and 30 days.......i now get my period after not having one for a few years....can anyone tell me why i am still feeling some of these side effects i really would like to know how long will it be until i feel like im back to my normal self :(
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I am a 45 yr old woman who has had children.Had the coil in for 18 months, wish i had read the forums b4. At first seemed a godsend to the heavy bleeding despite the agony of several attempts to put it in! After 6 months i had a massive bleed so had a scan to see if still in place as no strings seemed to be there. It was there, but the sonographer queried why i had it as i had multiple fibroids around it, strings had disappeared inside me too. Anyway few months ago after 30lbs weight gain despite an active 6 day a wk job, migraines all the time, no sex drive, extreme tiredness,irritability, itchy skin and scalp i wanted it out of me. Ended up going private as NHS got me nowhere, had it out very painlessly 6 days ago. First day no probs, but severe bleeding and passing clots since, had to come home from work today after feeling so sick, so much cramp on my left side an di feel awful. When will these withdrawal effects start to ease does anyone know. Thank god i had it out, was ruining my life.
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I had the mirena put in just over a year ago.. IT was so painful. i never thought to link my mood problems with mirena. i was diagnosed bi polar but since the birth of my son in 2007 i have been fine, my bf always said what wrong or why are you so b*tchy. in february i had a very large cyst removed and since then have had nothing but problems.. i got the mirnea removes about 4 weeks ago. i bled like crazy, and have craming all the time now.. i feel like i am giving birth. its so painful. spent 2 days in the hospital, they did an ultrasound to make sure i had no cysts again.. and nope i didnt... i am now about 5 days late for my period i am terorfied i am pregnant? my OBGYN said i had to wait 6 weeks before going on the pill.. is it normal to not get a period right after getting mirena removed? i did bleed for 2.5 weeks after getting it removed? plz help!
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I just wanted to say that I had Mirena put in about 5 years ago and am just now getting it taken out because well it is 5 years old and I want another child.  I have over the course of 5 years developed weird pains in my abdomen that doctors can't figure out what is wrong.  I lost my period all together, which I actually don't like because I am constantly bloated and I feel tired all the time.  I am extremely moody and sometimes throw fits like a child when I disagree with my husband.  I started getting severe migraines about 6 months after getting it put in.  My migraines are so bad sometimes that I throw up from them.  I do feel sick to my stomach of and on.  My lower back hurts all day every day.  I also have about 10-15 pounds of weight that I just can't seem to lose.

I am glad to here that I'm not the only person that has experienced this and that I am not crazy to think it is because of my IUD.  My comes out on the 16th.
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aside from from everyone has put on this forum I had my mirena since 2007 and NEVER had any problems or pain with the doctor putting it in or after. I had my period as normal for 3 1/2 years these past couple of months my cycle went from what was normally 4 days to 2day and very light. My mirena was due to be removed june 2012 however i had it removed today after my period stopped for the past two months. I am one that believes my period is a cleansing period and i want to have my womanly. so i choose to remove it for a couple of months and have another one replaced. Several of my friends have it and never have any complaint either. Also the removal process was as easy as 1, 2, 3!! I give the mirena thumbs up!!!!!!!!!!!!!!!!!!!!
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I have had nothing but problems with mine. I got it about four months and I'm still bleeding. The Dr won't give me some to stop till six months. I have a tilted uterus. They said that would make a diff but I have pain at least once a day from it. The pain is bad enough it stops me in my tracks.  now I have a uti and yeast infection and they said I would Prolly still get them from wearing tampons or pantty liner and pad all the time I can't get mine out for a year because of the base rules. Sooo......8 more months of pain.
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I had mirena removed about a year ago. I couldn't take the side effects.. anxiety, panic attacks, acne, cramps, heavy bleeding, painful sex (if I wanted to do it at all) weight gain. I had it removed and symptoms have not gotten better. Well, maybe a little, but very small margin. I have had 4 miscarriages to date, beginning in August of 2010. Today is June 21, 2010 and the last one was last week. FINALLY a doctor in the emergency room where I was seen had an answer for me. She had encountered the same problem. After having the progestrin hormone for a year, my body decided it did not need to produce progesterone on its own. 4 out of 5 women will miscarry in their productive lifetime. 4 in a row and there is something wrong. I am disillusioned with doctors and I fall into a deep depression I can't climb out of. Am I crazy???
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So I got my Mirena IUD about 5 weeks ago and have been spotting for the last 3 weeks. Besides that frustrating side effect I have had no pain or other negative side effects. I also have not had any real period. Frustrated about the spotting though! I got the IUD so I could have sex but with this non-stop bleeding it isn't happening haha. And there have been no decreases in my libido either, making this more frustrating. I was wondering how long this lasted for other women?  The doctor just kept saying 3-6 months but does that mean I will be spotting non-stop for that long or will there be breaks. I stopped taking the pill because I was spotting so much so I guess this is just how my body adjusts. Would be thankful for other people's experiences with this so I know more of what to expect? If it keeps goin how long is a reasonable amount of time to wait until I consider getting it removed?

Other than that love how easy the IUD is!
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Had my mirena put in about two months ago.

Horrible.
Horrible.
Horrible.

Lack of sex drive, HORRIBLE bouts of acne... so bad that they are all over my face and my eyelids and it literally hurts to blink.
Tried to have it taken out the first time the acne occurred after reading this forum and being convinced but my doctor wanted me to try to keep it for 6th months.
no. aint gonna happen.
I have also noticed that my face is getting fuzzy.  No black hairs... but the normal blonde hair on my face was never long and since i've had this thing I swear it has gotten longer.  weird.
With all this and the huge amount of acne all over my face I dont even feel pretty anymore... I'm attributing the loss of sex drive not to the mirena directly but to the fact that with my face looking like a pizza I just cant feel sexy anymore.

I'm getting this thing out tomorrow at 2:30.  I was advised not to have sex for five days before removal, but I blew that.  I would rather risk it than keep this in for five more days.
Hope the removal isn't as painful - as the insertion made me literally ill and I was in pain for hours.

Just wondering, after removal... how long did it take you for your skin to get back to normal?
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I am 45, single with no children.  I have an appointment for my Mirena IUD removal on Friday July 1st.   I originally was told it would help with my heavy menstrual cycles that lasted 3 to 4 days, but after Mirena they last almost 2 weeks!!!   I have had the mirena for one year and 3 months and in that time have had more than 6 HEAVY cycles and passed clots bigger than I could ever imagine!!  I do get the "foggy head" feeling but no decrease in my sex drive, which is frustrating when you have a cycle lasting 2 or more weeks!!!    I am looking forward to the removal and hope my body and mind can recover from it.  
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Interested to know is how long it takes to feel better after removal and if bad symptoms come back after a while
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I had the mirena put in March of 2009.  I thought I was going to pass out from the pain of insertion.  It was so painful!  

Before I had it put in I had very light periods.  They lasted maybe 4 days and I could make it using light tampons without having to change/remove them until I got home from work.  Supposedly they are supposed to lighten even more or stop.  Not the case.  My periods started lasting 2 weeks.  Nothing heavy but 2 weeks if not a few days longer.  Also, after I had it put it, same thing, the acne was crazy.  I was always breaking out.  Can't give an opinion on the moods because I'm naturally "high maintenance".  LOL!  Anyway, after having my annual the next year (2010) my Dr. noticed that he couldn't feel the threads after looking further he couldn't see them either.  He wanted me to make a follow up with an Ob/Gyn.  This led to an extremely painful visit.  She tried finding them.  She used some tool of torture that actually made me cramp and bleed.  She decided that I needed to have an intrauterine sonogram.  The tech was able to find where it had moved to within my uterus.  After discussing the results with my Ob/Gyn she told me it needed to be removed and my options were to try again in the office or have it surgically removed as an out patient (aka $1000 deductible!)

I have a son in college, looked at my finances and decided I would try the office attempt once more.  She said I could take several Ibuprofen beforehand.  Without going too much into detail about my horrible wait..  Through the grace of God (after I'd sat in the exam room looking over the tools of torture) the threads of the iud had miraculously appeared!  She said they were coiled like a pigs tail.  She straightened them out, pulled, and it was out.  I didn't feel a thing!  Very much unlike the insertion.

I thought my problems would be over once I had it taken out.  Wrong!!  Since then the acne has cleared up.  However my periods are so heavy.  I bleed through my super tampons after 4 hours.  If I don't wear anything at night (which I never had to before) my sheets/clothes are soaked.  I have the hugest clots I have ever seen.  I have bled through my clothes countless times.  I wear a pad and use super tampons now trying to avoid it.  Not to mention I bleed for 3 weeks now.  I am miserable.  I have an appointment July 22nd because, through self diagnosis, I think I've become anemic.  I am exhausted all the time.  No matter if I get a good night sleep or not I am exhausted by 10:30 am and can barely drive home in the evening.  I'll keep you posted as to my Dr. appointment.
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I'm so relieved that I'm not crazy for hating my Mirena. I got it placed Dec 2008 shortly after my son was born. I had a 6 month long spotting stint, followed by roller coaster struggles with my weight (I run half marathons, and still can't keep my weight under control), horrible cystic acne (face and back), depression, libido issues... It's even interfered with intercourse, causing harm to my husband (the strings). Running long distances causes tons of pain and discomfort (allegedly should not feel it at all at this point).
I wanted my tubes tied after giving birth to my son. But since I was only 31 and he was my only child the doctors said I couldn't make that decision for my self, and recommended this thing instead. Like many above, I was told little to no side affects.
Blessedly, I have it scheduled to be removed and my tubes tied next week.
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It would be interesting to see what your doc says. I am still waiting to get an ultrasound to find out where mine is then it's coming out.
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Hi all

I had the merinia put in on May the 18th 2011 and had it removed on July 1st 2011. It was the worst pain ever i gained weight felt like hell 24/7, got acne, had a severe sweet tooth, constand bleeding and cramps, and major mood swings. So i finally decided to take it out it is now the 4th of July (3 days later) and i still wont stop bleeing. IM GOIGN CRAZY. i swear to f if i dont stop bleeing soon im goign to go mental. Its been almost 2 mnths. I talked to all the doctors and they said that no it doenst affect anything in your acne or eating habbits! HOOP THEM THEY KNWO ****!, STUPID ***** MADE ME FEEL PRESUURED TO HAVE IT IN WHEN THE WHOLE TME IT WAS PAINFUL AS FKCU. i couldnt have sex, and i was bitchy all the time just miserable the i u d is fuckedd im so glad its out but when will i stop bleeding any idea ladies? has anyone else had this same experience?! It eally ***** too causze i cant take any other kind of birth control and have been with my man for 5 yrs and dont want children at 22! I'm oerwight and i smoke so they cant give me estrogen. IDK its ****** i almost want to say fkck sex all toghtethe rits just not worht it any more the i u d was a ***** to get in and a ***** all the way through till it as out and im still having side effects and it doenst look liek its gogn to be stop bleeinding any time soon! anyways thank you for this post page i welcmome any advice ;)
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Hello, I am scheduled to have Mirena put in on the 12th or should i say was scheduled to have Mirena put in on the 12Th! After reading ALL and i mean every single comment on here i have decided against it. I know most would say that what happens to one may not happen to another but these are side effects that i am NOT willing to take a chance on . I actually used the nuva ring before considering Mirena. Besides a little weight gain i found it to be the best BC method i had ever used and it appears as though i will be continuing to use it .I really appreciate everyone who put their experiences with Mirena out there so that others can make a more informed decision . I being one of them . Again Thank You
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I don't know if this thread is still going as it's way too long to get to the bottom but I just wanted to share my experience on here.
I am 27 with one child and am on my 2nd Mirena and now coming into my 9th year. My first Mirena did nothing to assist with my heavy, painful periods which was the reason I chose this as my
Contraception, however I didn't get pregnant so still a win in my eyes. When I got my second one 80% of the pain stopped and I almost never get my period now, however I still have a regular cycle if that makes sense?
Anyway since I got my first Mirena inserted at 18 I have put on a total of 30kgs, not that it looks like that much at all! I have also experienced a big portion of that weight gain in the last two years not long after I got my second Mirena inserted.and more recently sore, tender breasts, increased mood swings, low sex drive, feeling 'blue' more than usual and large clumps of hair coming out in the shower. (I should mention here that I am yet to meet someone with as much hair and as thick as mine so I can afford to lose A LOT of hair and it doesn't make a difference)
Anyway I started googling weight gain and weight lose which lead me to finding sites like these where woman share their bad experiences on the Mirena. Well I was hooked and suddenly all my problems got worse and was blaming it all on my Mirena but still didn't go see my Dr coz I was 'self diagnoaing' on the Internet by comparing my problems with what others were going though.
To cut a long story short I am still on the Mirena and rate it highly for BC and helping my heavy painful periods (I know it doesn't do this for everyone) as do you know what my actual problem was? I got lazy with looking after myself coz I'm a busy working mother and wife. I gained weight because I ate processed food everyday instead of making my lunch, I felt blue, had a low sex drive and shedding hair at a rapid rate coz I was overweight and was leading an unhealthy lifestyle, not because of my Mirena. I was just blaming it coz i got hooked reading everyone else's bad experiences and it was easier to do that than admit that I'm lazy and unhealthy.  As soon as I stopped reading them and changed my unhealthy lifestyle habits I dropped the weight, am happy all the time, have stopped shedding so much hair and have my sex drive back. Back to normal and back to loving my Mirena
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Avatar_n_tn
I had the mirena put in after I had my daughter back in 2002. I had absolutely not problems for the first 5 yrs, with the exception of some spotting each month for about 3 months but not enough to really complain about. I had it replaced in November 2007. In February 2008 my hair started falling out and I didn't know why. I was ok after that until January 2011. It seems like that's when all hell broke loose. I started feeling like I was pregnant every single month. I had the bloating, dizziness, nausea, cramps, crazy dreams, hightened smell, back pain, etc. You name it I had. I started getting cramps so bad that I could barely sit down. Call the ob and of course they said that it was still in place and thought that none of this had anything to do with the mirena. I started spotting every month when I felt like I was ovulating. I know that they say that the mirena make you "think" that you are pregnant, but it does more than that. The  mirena does not stop the egg from releasing or getting fertilized. If you have sex and a egg releases you can get pregnant each and every month. Normally it will end in miscarriage. What the mirena does is thin out the uterus so much that an egg should not attach. In a lot of cases it does attach so their info is not accurate and women do carry their babies to fullterm. I had mine removed a few days ago because I was tired of the side effects and doctors not taking my concerns seriously. They don't want to admit that there is something seriously wrong with this form of birthcontrol. I'd rather not use anything than have that foreign object put in my body not know whats gonna happen down the road. Good luck!
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Avatar_f_tn
I had mirena since late 2008, after my son was born.. I did attempt to try Mirena as a BC method after my daughter but it was so painful after they put it in.. I had it removed after 6 months. My OB convinced me after my son to get it again, so I agreed. It did take a couple months for my body to adjust to it but after that I felt like everything was fine until last year, I started having a discharge. I would see the doctor so much because I wanted to know why I kept having a discharge. They had no answer for me at all. I would get tested for everything from yeast to Stds and my test would come back negative. The discharge would clear up for maybe a week but it would come back. So after a year I decided I would rather have a period for one week instead of a discharge for more than half the month. As of July 20th, I had my Mirena removed. Since mine has been removed..I have gained acne on my body. I did have these pregnancy symptoms but once I took 2 tests and they said negative, those symptoms have left (moodiness, cravings, tiredness, bloated), breast tnederness).. I felt all those symptoms the first week it came out. I keep reading forums because I havent have any spotting or a period yet and its going on week 3. I wasnt for sure as to how long I should wait.. Everytime I start to feel like yep this my period right here because I may have a cramp or two, there is nothing. If I havent gotten my period by next week, then I will head to the doctor to see what is going on..
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I am SO glad that I found this forum.  I am a nurse practitioner- I of all people should have done better research on this thing.  I HATE it.  I had it inserted about 4 months ago and had had a waxing and waning vaginal odor since then (bacterial vaginosis BV).  To make matters worse it smells even WORSE after intercourse which I know know is due to the alkalinity of the semen combined with the BV - ugh.  I didn't sign up for this.  He has had an irritation as well ??  I have been dizzy and having heart palpitations.  And last, but certainly not least is my mood.  OMG.  it has been so distressing- like I am out of control.  It has been developing since getting the mirena but worse over the past few weeks.  I have to get this thing out asap.  
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