I wanted to start this forum up again since our other one got closed. We were all wondering what is causin our vaginal fissures or cuts. They are like paper cuts and are very painful. I have recently gotten a biopsy done and I don't get the results back til AUgust 1st. Just wanted to keep this going so we can all try and help eachother.
My posting on 7/21/05 (from the old forum)........Well, I have to say that I was extremely relieved after reading this forum. I had never had vaginal tearing or fissures until about a month ago, and I ignored them. They went away and came back worse about 2 weeks later. I had been cleaning them with peroxide (OUCH!) and putting bacetracin ointment on them to try to heal them, which slightly worked. I was trying to write it off as the toilet paper, etc! But then I became more and more worried, and began to research it and that's when I came across this website. After reading everything I decided to go see my OBGYN. He of course tested me for Herpes, and even though I had read everything that you have all been through, and knowing that none of your tests had come back positive, I was still nervous. He also tested me for a yeast infection. Well, right there on the spot he said I had a horrible yeast infection and wrote me a prescription for 2 Diflucan pills. I was to take one (they stay in your system for 3 days) and then repeat 3 days later. He also gave me a prescription for a topical cream. I took the first pill, and applied the cream. The itching became 100 times worse. I kept putting on the cream until the itching became unbearable (2 days), and then I took my second Diflucan pill after three days. A few days later I got the results of my Herpes test and I am happy to say that it came back negative. And the best news is that my fissures are completely gone. I've had no signs of them reappearing. Back to normal and very happy!! Just thought I'd share my story to hopefully help someone else out. Good luck girls!!
For those of you that were looking for a common link between all of us:
I am 28
Sexually Active (not more than 2 times a week)
Have 1 cat (4 years old)
Live in somewhat humid climate
I just posted my old comments above so that I could let you all know that the fissures (tears) have still not come back! It has been over 2 weeks so I'm hoping that I am through with all of this. I truly think that the yeast infection was causing the fissures, and my OBGYN told me that was his explanation for them as well. I would recommend asking your OBGYN to test for yeast. The Diflucan pills (2 doses) took care of everything.
Good luck to all of you. I hope that your situation is as simply cured as mine was.
Yes, I have and the news wasn't as good as she led me to believe. They just said it was irritated skin...and my reaction was NO S*@t. She just gave me a different cream to apply. She said that when I go back in September if I still have the fissure problem then she is going to send me to a dermatologist. I was so upset for the whole day and so far it has effected my whole week. I thought they were going to find out what it was and give me a magic pill to get rid of it. Instead I get an answer that I already knew and told to switch creams. This is so frustrating. ANd it is not caused from yeast infections. I've been on a candidia free diet since October and every test I get back is negative for yeast and bacteria. So it isn't that for sure!! Yes these fissures do go away but after about two weeks they seem to reappear with absoultly no explanation.
Are you all on birthcontrol. I thought that may be the cause?? I take Kariva. I also work out 2-3 times a week. Maybe the sweat has something to do with it. Do you all work out and sweat alot too??
I have had fissures for about 10yrs. I even had them surgically removed and yet they returned:( I have just started on a steroidal cream. Pain is better but I am to wait a month before return visit. Has anyone had luck with this treatment?
The tears completely went away for me when i stopped the birth control pill... apparently the pill threw my hormones out of wack and caused me to produce too much yeast (eventhough paps came back negative for yeast) it's wierd but you should try it... after two months of being off the pill i'm pain and irritation free... (whatever works right?)
I was just thinking that my bc might be causing this excessive dryness, tears and pain. I'm so glad you mentioned that - I have my Dr. appointment tomorrow afternoon. What bc were you on? I'm taking Yasmin. Nighttime is unbearable - I haven't gotten a good night's sleep in three days. This has happened once before a few months ago, but it wasn't this bad. My Dr. tested me for yeast but I came up negative. He prescribed me with Nystatin cream - I can't use it now because I have open tears and it burns when I do. I am seeing a different doctor tomorrow - hopefully she will provide me with some answers and not just shove a prescription in my face. I will keep you all updated...
Another person too relieved to find this thread. Been telling my OB/GYN for a few months that I've been getting fissures more and more frequently. Never got them before this year. Wondering if it could be caused from a) taking a daily allergy decongestant (zyrtec D) that might cause vag drying. Also started taking BC pills about a year ago (yasmin) which can affect hormones that also slightly raise yeast levels - and cause drying. I've been using lubricant, but I'm wondering if even that is irritating me more.
Sunday got such sever inner fissures that I can hardly walk. Going to the bathroom brings tears to my eyes. I am getting some relief from Neosporin with pain killer.
I've been dealing with vaginal fissures for 4 years now. I'm thrilled to find this thread and know that I'm not alone. No doctor seems to know what the problem is ...nor do they seem to concerned. I've tried Diflucan pills, I've had a biopsie (it was negative), I've had an ultrasound (nothing unusual for found), I've been tested for every kind of VD (all negative), I was tested to see if I was diabetic (I'm not), I was even told that it might be ecoli attacking and eating the skin and put on anti-biotics that had no effect (except to give me a yeast infection). And everytime I have been cultured for yeast, it has been negative.
The good news is that until last week, I was fissure free for 7 months. The only thing I've found to clear up an outbreak is Terazol cream. It's a prescription cream that is used to treat a yeast infection...but it attacks a strain of yeast that most other creams don't.
The other thing I've done that seems to help is that I've stopped drinking soda and eating or drinking anything with lots of sugar in it. I've also stopped eating out . I don't take birth control. I did for about 6 months when this problem first started...it was supposed to control my hormone levels and stop the itching....it didn't work.
I seem to have outbreaks when my stress level is high.
Do you all have high stress jobs?
Is there something we all have in common that could be causing our problem?
Hello, I too have occurrences of the small paper-cut like outbreaks. I have had them for the past 15 years. I was mis-diagnosed with herpes in 1990 and only found out today that my blood does not test positive for the herpes 2 virus. According to my doctor this means I have never been exposed to the virus. You can only imagine my shock to learn that for 15 years I have lived with the belief that I had herpes. To make matters worse I have been taking daily doses of Valtrex for the past 6 years in an attempt to suppress what I thought were herpes outbreaks. Of course, the suppresseive therapy was not helping and in the meantime I have been pounding my liver unneccessarily with this drug.
This discovery came about when I went in for my yearly exam and apologized to my doctor that I was having a herpes outbreak. Upon examining me he told me that I was not having a herpes outbreak. After much discussion and him showing me some pictures it became clear that perhaps herpes was not what I was experiencing. The doctor did a culture on the open lession and a blood test to confirm the herpes anti-body presence. Both were negative. And, yes, I would like to hunt down the doctor who mis-diagnosed me 15 years ago and give him a piece of my mind.
Anyway, I believe stress is definitely a huge part of what brings these outbreaks on (whatever they are). I can count on having an outbreak at least once a month and ALWAYS right before I start my period. I have IBS which can cause a lot of straining when attempting to use the bathroom. I haven't had a yeast infection in at least 20 years. I am in my early 40's, don't have pets, have been on birth control pills 24 years.
Sorry this is so long but I just found this web site today and am still in shock in learning that I don't have herpes and do have some very strange unexplained skin condition. We MUST get to the bottom of this! Best wishes to all - k
I went to the doctor today. She too thought my bc was causing the dryness leading to the cuts. She also believes I have a slight yeast infection, because of the itching, and prescribed me Terazol cream to alleviate that symptom. Once the itching ceases, she recommended I apply topical estrogen to seal the wounds. I asked her if I should move to a different bc, one with a lower hormone dosage and she said quite the contrary, that she would actually recommend a higher dosage. I then asked if she recommended any other form of bc and she suggested I try the bc ring. The ring has a low dosage of hormone, similar to Yasmin, but with the estrogen being locally dispensed to the area I need it most, she thinks that my issue of dryness will be resolved. Apparently the ring has been said to actually help prevent infections. Hopefully this will help. I have a follow-up appointment in six weeks. I will keep you all updated, unless of course I have another incident!
Hi - I am so glad I found this forum. I have been suffering with just one reoccurring tear in my vagina for over a year now. I first noticed it after I switched BC to Yasmin. I went to see the doc and she told me to come off the pill for a few months and prescribed estrogen cream. My tear is not so bad in my everyday activities but is painfully hindering my sex life with my husband. It is so hard to not find a solution and I am heading back to the doctor tommorrow so will let you know if anything else can be done. I find it very disconcerting as my sex drive has practically disappeared knowing that it will more than likely be painful and tear again. My husband is very understanding but I want to be back to normal now! It is mentally very upsetting :(
Hi. Ok, so I just got back from the Gyno and we think we finally found a solution. Many years ago I was treated for Warts with acid and she noticed that scar tissue had formed causing a thin barrier of skin betweei=en the vagina and anus. She said that she has seen this before in women that have given birth and developed scar tissue after. She cut the skin and stitched it to the sides in order for it not to grow back. In 3 weeks I will go back to see her so fingers crossed. I will keep you updated.
Not to repeat all the posts before mine - but - I TOO AM SO GLAD to have found I am not the only one with this. My first Ob/Gyn didn't believe me and I didn't have any at the time to show her, I was just asking about it. I've only seen my new Ob/Gyn once and that's because I wanted to switch bc pills. The side effects were worse on Ortho Tri-Cyclen Lo than I've had on any other -- so she switched me to Yasmin and just said that I was dry and should use KY during sex. Yeah, well, I already do that. She rushed me out. BUT this time I'm printing this out and making an appointment to talk about this and we'll take the time! Now that I know it isn't just me. I rarely get a yeast infection, but just started to feel one come on a few days ago and took the homeopathic AZO pills - I never got the yeast infection, but did get the cuts (it is a few days before my period) but worse this time. (My gut feeling from reading all these other stories and my personal conditions tells me it has to do with some kind of yeast bacteria and the birth control pill affecting hormones - but what do we do about it!) Whenever I treat myself better: less stress, lots of water, take my vitamins, exercise, I get them fewer and further between - but I haven't had a time like that in a while. :)
For the history that we are compiling here:
I am 26
I usually get the "paper cuts" a few days before my period.
I rarely get yeast infections
I've been on the pill for 10 years
-first TriNorinyl (sp?)
- then Ortho Tri-Cyclen Lo
- now Yasmin
serious monogamous boyfriend of 6 years
negative for herpes
I have cats, but I've also not had cats and gotten them - don't think related
live in NYC, have stressful but typical office job
wear cute cotton breathable underwear - stopped wearing the thongs - made it worse!
love yoga and pilates
I'm so happy to have found this forum and hope we can keep this up til we figure this out! And hopefully that's sooner than later.
I am glad to find a group with a similar health issue. This is only my second cut/tear but after reading all of the comments on this new thread and the old one, I see the common denominator for most if not all and my own.
*All women have experienced some sort of itching related to the cut, typically just before.
*Most have experienced it just before or after menstruating (and sex)
*Most have thought it was herpes, most tested negative
*Many have also had a yeast infection of some kind that comes along with it
*Most have said they have had high stress within their life when these turn up
In my experience, all of the above have been true with the first and now my second (and I hope my last) tear or cut.
Many have tried to change it through diet and other prescription drugs. I will probably treat the possible yeast infection, (no testing for me) and then if I get another post here. Here is a question that I haven
I've also been suffering from tears for a year now, and am thinking it is the birth control pill - I am on Alesse. Is anyone else? I think I will try going off of it bec/ I am absolutely devastated with the pain these cuts cause me when urinating, during sex, etc
Keep me posted if there are success stoires of no more tears after going OFF The pill!
I really don't think these are caused by yeast. Everytime I go to the Gyn with the cuts she tests me for bacterial and yeast infections and both are negative. Always!! I have found that They tend to get worse the closer my period comes and after my period there is a week of no cuts/fissures.
I was fine all week until I decided to go to the beach so I shaved and my labia got irritated and then cuts formed in the folds. Do any of yall shave?? I am starting to think maybe its the birth control pill. Madison let us know how that goes!! Good luck.
I recently found this thread and am too experiencing the same paper cut like fissures. I as well am getting them right before my period starts and have been able to heal them with a 2% cortisone cream that was originally prescribed for a spider bite. I usually only get one above the clitoral hood (sometimes a smaller one at the same time in the same area) and have also tested negative for everything. When mine originally started years back, (I am 43 with 2 grown girls, a very happy marriage and a clean freak!) I thought it could have been caused by wearing panty liners. I thought it made sense at the time because of where my cuts were. The top of the panty liner sits right at that spot and sometimes "creases" or "folds". I assumed that the plastic on the back and edge of the liner was cutting into me. Stopped wearing them so often and found the episodes stopped for a while. Now they have been back on and off since May. I am not on birth control (husband had vasectomy) and and not noticing any dryness - yet!!! No yeast infections and the usual stress of raising two girls. Never have one when I go to the doctor but if it's still there after my period ends, I will get an appointment and get it checked. I was told a while back that it could be an allergic reaction to scented panty liners and pads so I started using unscented. Just wanted to throw the panty liner or pad idea out there and the cortisone cream for relief. It heals and stops the itch, at least for me.
Good luck to you all.
Nope, no excema. Also, just another suggestion. Get some Johnson's liquid baby soap and wash with that when you have the cuts. It does not sting like regular soap and still gets you clean. Smells good too!! I used to use all the Summers Eve personal wash products, but they are so expensive and Johnson's is really mild.
Well if it's not eczema then what could it be?? Do you guys get a wierd discharge when they appear. I normally do not have anysort of discharge but I can usually tell when these fissures are coming becuase I have this milky white sticky discharge. My gyn tested it and said it was normal well when I go back I know now for sure that this is not normal. It is like it occurs within 7-10 days before my period and then after my period I have at least a good week of no fissures...any one else experience this same thing??
No, don't have any discharge. There must be something that we all have in common and we are just missing it. What I can't understand is why no one's Dr. can give a definite cause. For some of you, it may be the birth control, but for others (like myself), haven't taken any in the last 7 years. All my other yearly physical workups both from the internist and the GYN are totally normal.
Well, I was also relieved to find this site. My problem started with soreness after sex with my husband several weeks ago. I sometimes chafe in that area, so I just washed, and applied some baby powder. Then a few days later, I started having stinging pain when I peed, and that's when I noticed that there was some tearing in the perineum area. It was very painful, and I tried to handle it by using Neosporin and warm cloths. I also found this forum, and I decided to see my gynecologist if things didn't improve. Needless to say, nothing DID improve. My doctor did a culture to test for herpes (although he doesn't think that's the problem!) He asked if I have a new sexual partner, but I only have the same old one - my husband of 21 years! He swears that he hasn't been having sex with anyone else. The doctor gave me a prescription for Keflex and told me to soak in warm water and hydrogen peroxide, as well as continuing to use the Neosporin. I'm to return in one week and if things aren't better, he wants to send me to a specialist. He also checked for tears near my anal opening, but none were there. I am just so confused as to why this is happening. I too have a discharge which is clear and has no smell. I am 51 years old, and my periods have stopped since this June. I told the doctor that I thought that the tearing may be because of dry skin due menopausal low hormone levels. But he said that he has never seen anything like this being caused by estrogen loss. I haven't taken birth control pills for 15 years.
In response to "libgb" - don't put anything deoderized on it (ie, baby powder, ointments etc) That made mine worse.
I JUST walked in from the gyno and I think I've finally figured out my problem. I switched birth control pill brands about a year ago and that is when the problem started (roughly). The last pill I was on was only 0.05 % progesterone, but the pill I was on before that (for 6 years) was 2.5% progesterone. I never had any problems with the first pill (with 2.5& prog.)The gyno thinks that because I went from one pill with high levels of prog. to a pill with barely any, this caused my cell walls to weaken. She's put me back onto a pill heavy with progersterone in hopes that this will work. But I find it more than a coincidence that the tears started 1-2 months after I switched to a pill with almost no progesterone. Who knows... I will keep you all posted after one full cycle, as supposedly my gyno has seen this "many" times and it takes that long to repair itself.
Also, if any of you are from Canada, the pill brand I was on, is called Alesse (not sure if its under same label in the States), and it caused me the problems.
Hope that helps if you have similar histories!
Good luck ladies. - Madison
In June a thread ran on vaginal and anal tearing/fissures. I read everyone's comments. I have been suffering from vaginal tears/slices above the clitoris in the folds for years. They would last 4 days, barely heal, and then another one. I was desperate! One comment was hydrocortisone cream. I had some on hand. I tried it. It worked. It doesn't cure it, it will still come back, but it actually closes overnight. A miracle to me. I only use it now when it feels or looks like a split is coming, and it goes away. Someone said since the hydrocortisone cream was helping, that it must be some kind of bacteria. I don't know, but saves your suffering. TRY IT! I don't believe mine had anything to do with lichen sclerosus, vulvar vestibulitis and all of the other ones, which scares you to death. PS The doctor doesn't know either.
Back on 8/25, I also mentioned 2% hydrocortisone. Mine was originally prescribed for a spider bite, but I figured I'd try it. Nothing else seemed to work so I gave it a shot. It really does heal/close the cuts overnight. Like the above response noted, it may not cure the "condition", but it sure does help to lessen the uncomfortableness. There is a catch that I have been told about regarding medication with cortisone in it. It does thin the skin after very long periods of constant use, so this is not something that should be used every day. Just when you feel a cut coming and maybe for one day after it has healed. Try it. You hopefully will get some relief, and it can't hurt. I still look forward to someone coming back and saying they finally found out what this is, but for now, we can only offer each other suggestions on how to deal with it. I also want to mention that I really don't think it's bacteria either. I have slight mitral valve prolape and have to pre-medicate before dental appointments with 2000mg (4 500mg pills) of amoxicillin 1 hour before the dental visit. I have had these "cuts" when I have taken the amoxicillin in the past, so You would think if they were bacterial, that 2000mg of antibiotic would definitely get rid of whatever was causing it. There is no correlation between the cuts healing and the antibiotic. AND I was never one to get yeast infections (even from that much antibiotic at once), so at least for me, that's not it either. Hope we find an answer soon. Until then, good luck ladies.
Thank goodness I'm not the only one with this problem... I thought I was going mad. I haven't seen my doctor about this specifically yet, but I have been tested recently for herpes, so it's definitely not that. These little cuts look so inconspicious, but they can be so friggen painful. For me, it seems to be related to yeast; I've had a couple infections since the tears started a few months ago.
I'm going to try not wearing underwear to bed and will get myself some OTC cortisone cream, maybe that will help. If it gets any worse, i will have to go to the doctor.. I can't take much more of this. Its making sex impossible, which is affecting my current relationship. (He's not really that insensitive, it more my paranoia that it will affect the relationship thats causing the problems.)
In hopes of helping to figure out what our common bond is, here's my 411:
- sexually active, monogomous relationship
- birth control pills (marvelon) for the last 3 years
- seems to get worse 7-14 days before my period as well
- moderate stress levels, i guess
- no cats
- comfy cotton underwear, had to give up the thongs.
- recent yeast infections, appearance of yeast around the time cuts first appeared?
- clear of all STDs, including herpes.
- cuts come whether or not I shave
Hello everyone. I am also relieved to know that I am not the only one with this problem. I have not been on birth control for about 3 yrs. now, so I do not think that is the source of our problem. My fissures are located between the vagina between the vulva and left labia. They started about six months ago. I had been taking Hydroxycut and lost 22 lbs in 2 months. I was also working out five days a week (heavily) for at least 45 min. a day. My husband is also large in the genatalia-so I think this may be a factor. I have been using vagisil to stop the itching. I do not think it is due to yeast infections, but I do believe that it is due to diet. I was only eating about 1000 to 1500 calories a day and now I am taking a multivitamin supplement and also I take vitamin C when I have a cut. They seem to only happen after rough sex or when I am not lubricated enough. I also have to wait about two days. I have been married for 9 months now, and luckily my husband has been patient, but it is running thin. I am so frusturated and I don't know what we should do. It seems that doctors can't help us. I bet if this happened to them, they would definately find a cure. I hope this helps us to further figure out what this problem is.
I have been trying for 7 years to figure out what my cut was, and I am thankful that there are others. I have seen two doctors and neither knew what it was. I read the other comments to try to figure out cause, but I am different:
My fissures started way before i had any sexual contact with anyone
And, way before I was ever on the pill.
As soon as I started having sex the yeast and bladder infections immediatly followed.
I studied fissures and found that Fissures are not necessarily caused by yeast, but there is a high probability that yeast will infect the fissures. So you have the fissure and the secondary yeast infection in the fissure.
My fissures are close to the vagina and urethra and during sex the secondary infection of the fissures (the yeast) is pushed into the vagina and urethra causing the infections. Has anyone noticed a correlation between treated closed fissures and a decrease in chronic yeast or bladder infections?
Im really worried that I have herpes - my vagina has cuts and fissures. Its weird, they dont bother me when I touch them and in fact they feel a lot better the next day. Since it feels better, I assume its safe to engage in sex - and goodness! everytime after sex it stings! it really burns down there and the cuts seem to get worse especially around the vulva/vaginal opening.
I went to the doctor today and I asked her if it was Herpes. She said I didnt have the classical symptoms but she will not rule out Herpes since Herpes can come out as cuts/abrasions. I got some swabs done and the result will be back in a week - im really scared! its like i want the answer yet i really dont at the same time.
I have a question if lets say I do not have herpes and it is vaginal cuts/fissures - although i may not feel pain if i engage in sex and it hasnt healed will it get worse? How long should i wait for it to heal? I got a Yeast swab done today and it came out negative...
Well, I have noticed we all have a few things in common. For one, our doctors have NO Clue. Two, we all have the same symptoms. Typically it's painful, especially w/ sex or peeing, and negative for herpes. I had 4 tests, all negative. Last test, doc said "this should be the test for sure, I got a good swab". Negative. He was 'sure' it was Herpes. Nope, meds never worked for it either. It's painful and emotionally upsetting. ANYONE: Has anyone's partner shown any signs? I've had this prob about 1 year. We were always careful to not have sex when I hurt or to stop if found out during sex. Just last week, my fiance was itching and hurting, but it's gone now. Mine re-appeared this week. Food for thought regarding BC's. I started on Orthotricycelin, then went to Ortho-LO about 1 year ago. Just started Depo shot one month ago, which you don't get your period. I didn't get mine, which I should have this week, and I have a "problem" this week.
-24yrs old, W/F, fiance of 1 1/2 years, no other partner, truly
-cats, but always had cats my whole life, no prob in past
-major stressful job
-4 negative herpes tests
-typically hurt after sex. This is first time I noticed it happened the week period would have arrived, don't know if that was true for past, did not notice
-Ortho, then Ortho Lo, now Depo
-Doc has no clue
-raped in May '03
-prob started about 1 yrs ago
I've had the same problem as everyone and was terrified that it was an STD, but i've had numerous PAPs and all came back fine. for the past two summers, i get yeast infection symptoms without the discharge for a week prior to my period. last summer, i switched pills (from Tricycline to Alysse), but the problem is back with a vengence this summer. during my last period (which ended sept. 1) i noticed those "paper cuts" as well. i ended up in emerge on sept. 1 (which was my anniversary with my fiance!!) because the itching was unbearable. it gegan external, but part way through my period became and internal problem as well. the itching has since decreased and it looked as though the cuts were healling, but in the past day it's became slightly worse again. I have a dr's appt tomorrow and will keep everyone updated on the results. I am from Ontario, Canada so maybe the dr's might have a different perspective/solution.
finding this site has brought me a lot of relief! its nice to know that i'm not alone. thanks everyone!
Hello, I really thought I was the only person in the world with this problem. Ive had tears on my vagina for 8 years and I just went to the Dr. last year had all the test and went to a dermatolgist how humiliating. I still have no answers and mine get worse around the time of my period. I do find mine get worse during stress also. I have tried the pills and the creams nothing is working. Iam not on bc I have been married for 16years. I wish Dr.'s would take this more serious I think we all need an answer maybe if the Dr.s got it they would research it and see what is going on. Until then I guess we have to suffer.
Hi all -
This is a repeat post from the "vaginal tear" thread. I've been dealing with this for a couple years, I get tears during sex. We've tried extra lubrication etc, but he haven't really figured out what the culprit is. It doesn't happen everytime, and sometimes it's worse than others. I know how frustrating it is. It makes me hesitant to even have sex, and when we do I feel anxious about it happening. A few months ago as I was thinking about this I thought that perhaps this has something to do with skin elasticity. Therefore, I've started a new nightly regiment constiting of gentle massage in the area after showering. I started using a cream made for pregnant bellies and for massaging the area and tissues around the vaginal opening. Obviously this is for helping with the stretching during birth. This seems like something which would possible help our problem as well. I'm using a salve I bought at a natural health store, which has comfrey, calendula and a mixture of oils (olive, coconut). The combination of herbs is known for their synergistic effects of relaxing, nourishing and rebuilding skin tissue and collegen strands as well as maintaining elasticity. Sometimes I also rub in some Vit E oil from a capsule. You could also use just Olive oil. So far I've had pretty good results, and the mental aspect of doing something as opposed to just being frustrated has helped immensly. Hope this helps someone as well. After reading some other posts, I think it also may have to do with bp pill which I started a couple of years ago (after a few years break). The pill could comprimise the integrity of the skin cells. I'm thinking of either getting off the pill, or trying another brand.
At last I'm among friends, well if that's what one should call us...
I have had vaginal tearing/fissures for as long as I can remember. At age 15 I was raped and have been on birth control pills since (Ortho Novum 7-7-7 at least 10 years, Ortho-tricyclen for a few years, and now Ortho-tricyclen-low for a few months). I've had issues with sexual arousal/vaginal dryness and can now correlate past tearing with this. I've also had BV and a few nasty yeast infections.
Thankfully I've been able to enjoy intercourse after many years of disliking it. However, the tearing has reared it's painful self again after too much sexual activity (I never thought I'd use those words).
Below are my stats, and to answer someone's question about K-Y, it might as well be Kayro syrup.
committed, monogomous relationship
never been tested for Herpes (tears did warrant testing to most recent visit to GYN Physician Assistant)
Tons of stress
Want sweets in the worst way for some reason
Very, very happy to have for this site!!!!!!!!
I can't believe so many other women suffer from this. It appears that yeast is a common denominator for many of us. I have only had 1 or 2 yeast infections in my life and since I met my current boyfriend, I've had two. We were both tested for all the STD's and they came back negative on us both. I have used the KY and the fissures started around that time. Could there be a link between the lubricant and the yeast? I had a partial hysterectomy last year so I don't have periods anymore and am not on hormones or birth control. I am currently taking the following vitamins;
Vit C - high doses
Multi - no iron
I too have had this problem for about the last year. I first noticed it after I switched from the shot (depo provera sp?), to Yaz. During that time also I was on antibiotics for strep throat and did developed a yeast infection. I was certain that it was because of Yaz. I went to the doctor and she didn't believe me and wouldn't switch me to another pill. I did see someone else and now I am on ortho tri-cylin. They seem to not be as bad but still occur 2-3 times per month. They seem to always be in the same 4 spots and after they heal it's like there is a scar there and then they reopen when irritated.
I have noticed that quite a few people said they they were or are on Yaz. You think that this could be a connection to some?
I see theres also been a few people complaining of this problem who are or did take alesse birth control. This is my first cut (doctors are unsure whether its a cut or herpes) I have not yet had sex and have been with the same boyfriend for over a year, so herpes to me seems basically impossible. ... If anyone has any suggestions that would be great. Also it it itchy to anyone else?
1st episode was over a year and a half ago. was treated for vaginal yeast infection. got diflucan and went away. ever since then, these cuts or lessions have reappeared around vagina and upto the rectum area. topicals i've used are dermaplast, vagisil, jock itch relief, and aquaphor-i'm told not recommended by doctor (but most effective?!). most recent episode resulted in a negative culture-whatever that means. my last pill was seasonale and that was over 2 years ago. currently on no other meds (rx and otc). yes! crazy itchy. discovered aquaphor because my son uses it for eczema. it relieves the itch-again, doctor did not like that i used aquaphor down there. discovered dermaplast in the maternity ward when i had my kids. it numbs the area- relief basically. thinking now maybe it's a dermatologist issue and not gyne?! another form of relief is an ice pack- so soothing.
Ive been dating this guy for 4 months and have had tears 3 times. It started 4 days ago and this time is the worse. I am going to the doctor today about it. I put hydrocortosone on it, but honestly the cuts at the opening of vagina feel deeper. when I pee, it burns so bad. i keep thinking why is this happening. i was married before for 7 yrs and never had this problem. i know before this happe my skin was dry there. I also thought a soap had done it to me. i had sex 3 days ago and he saw the small tears. it hurt for a second when he entered me, but we finished our love making. it was the next day that i found out that it was worse and that i knew ok no sex until it heals. now its been 4 days and no sex, luckily my boyfriend has been sick himself. im worried hes going to get fustrated with this situation, beacuse him and i have sex everyday sometimes more than once. help!
Ive had this problem recently too. Ive been notcing every couple of months i get a cut or two that comes along with itching and burning. every time it happens i think it is a yeast infection and by the time my gyno gets me an appointment they have already healed. ive been with the same boyfriend for over a year and neither one of us has stds. if anyone finds a way to get rid of them please help
well, holy **** - people who understand my pain. this thing sucks so much. i am totally convinced it's yeast related... i had this problem about 4 years ago - and then I went into a total remission - it was fabulous. pain free, all day, every day. had a yeast flare up and yep, it's back. feels like paper cuts everywhere. did canesten twice for the yeast -- it would go away for a few days and then just as i finished the meds, come back. so today i got diflucan. owwwww. i haven't even told my boyfriend about this, or about the whole cycle last time it happened (was with a different boyfriend then.) i did creams and diflucan and i don't know what worked, but suddenly i was cured. and now i think yeast has triggered it back. i have another diflucan prescription i can fill if this doesn't fend it off, and if that doesn't work - i don't even know. I HATE THIS. please keep posting your updates ladies :)
I went to the Dr 3 weeks ago because sex w/ my boyfriend was very painful. It had been painful for about a month off and on. So I finally go, and right away she says, "you have a tear right at the opening". She prescribed Estrace 0.01% cream and neosporin day and night, a diflucan because there was some yeast from the sample she took under the microscope and advised no sex for 10 days. On another note, i feel no pain, itching, burning, etc from this cut. The only pain i feel is when i have sex. 3 weeks go by, my BF and I have sex last night-It didnt hurt but it didnt feel normal either. I went to the bathroom to clean up and their was blood on the toilet paper. I looked @ the cut and it was red and raw. Sooooooooooo im going back to the gynocologist on Monday. This is such a pain! Not to sure what the heck is going on. Below is some info on me?
Monogamus relationship for 4 years
Herpes-Yes, 1 outbreak that i am aware of. Confirmed via culture from dr.
Well like everyone has stated right when they get here, what a relief! I'm so glad I'm not the only one going through this horrible-ness. So I started noticing this about 6 to 8 months ago. I've been really trying to watch for "symptoms" for the past 3 months. I noticed that I get the itching first right AFTER my period, never before and it usually happens about a day after the last day of my period. The tears come about 3 days later. Symptoms: starts off itchy and red a little sollen, then turns into cuts/tears. Never hurts when I use the restroom and never bleeds. Sometimes it happens on both sides of the labia majora and sometimes just one side. I haven't been able to show my doctor yet because by the time I get in there it clears up. Cali1975, I know in your last post you said you were going to the doctor, let us know how that goes and if they were able to tell you anything different. I'm really interested to find how and why this occurs and what I can do to stop it from happening in the first place. Here is some info on me:
Birth Control - No, going back on though (been off the past 2 1/2 years)
Monogamus relationship for the past 3 1/2 years
Stressed - planning a wedding
Condoms - Yes
KY - No
Age - 26
*Side note, haven't had sex since end of July (trying to make it special for the wedding night )
Its wierd actually...because we all are complaining about cuts...but not everyone has the same symptoms...
Some of you get them from sex... some of you get them because of yeast... some may have herpes... some have itching with other symptoms and some like me just get them for no apparent reason.
Its very strange to me that basically the same thing (papercut on your vagina isn't "normal" to me) is happening with so many other factors. I don't think there is 1 simple solution to this. I don't think EVERYONE is getting them for the same reasons.
Birthcontrol: Nuvaring (been on it for like 3 years)
Pretty much single for a long time
never used a condom in my life
NO bacterial infection
No soap when I wash
Cuts not from sex
Biopsy result: dermatitus (allergic reaction to something)
Ok this is my story, I am 34 yrs old and have had a long history of yeast infections dating back to childhood. Upon reading all of these comments I realized I may of had some of the symptoms that some of you have posted and didn't realize it. I had irritated skin during my menstrual cycle around my vagina and anal area, I thought it was an allergy to pads. I have not had a yeast infection since my partial hystorectomy in Dec of last year. We recently went on vacation in Fl and swam in a heavily populated pool and the ocean. When we returned home I felt like a yeast infection was coming on well one night I woke up itching so badly (Ithought I may have scratched myself itching in my sleep)and my clitoris and and area around vagina hurt and stung and felt and looked like the stinging paper cuts all of you are describing I just thought it was the yeast infection or vaginosis maybe cause from the pool. But its been a week of using neosporin and dreading everytime I have to pee (it feels like peeing glass it hurts so bad) and the neosporin doesn't seem to be helping. My husband and I are very committed to eachother so adultry is not the answer I have not had any std's nor has my husband. It really prompted me to look into this more because the neosporin was not healing this and neosporin heals everything! I am really worried this is going to be an ongoing problem and I miss having sex with my husband I am also irritated because for the whole time my husband and I have been together I have had a 3rd deg cystocele and uterine prolapse so intercourse was always painful and not enjoyable for me, that is until I got my hystorectomy then I was amazed that sex was great again! But now this, I feel I have been cursed! Any insight would be appreciated.
I have herpes and had an outbreak in July. Me and my boyfriend waited about 10 days before we had sex. It hurt a little bit that time and got worse and worse. Finally I looked down there and saw what appeared to be a cut on the left side right at the opening. My first doctor didn't prescribe anything just said it would take a week to heal. Week went by...no healing...went to a gyno. She prescribed the Estrace cream. Today is my last day of it and still it isn't any better. Me and my boyfriend have refrained from sex for 2 weeks now. It's like how much longer do we have to wait and will this ever go away? It's really really frustrating!
Based on what I have read online and have experienced myself, I think the major problem is a skin condition, likely the lack of hydration, elasticity, and lipid content.
During my period (and right after) I think I wiped my skin a lot harder, more often, and more thoroughly than when I wasn't on my period. I don't have a period any more thanks to a total hysterectomy but when I have sex, I wipe the entire area fairly vigorously afterwards. The wiping dries out the skin and the toilet paper or wash cloth abrades it.
Now add stress to the situation. Under stress we are probably not as gentle with ourselves as we are under low stress times.
Whether our hormone levels are low because of our own cycle, the birth control we are on, the fact that we are going through menopause, or we have had hysterectomies; it is possible that we are all dealing with hormone deficiencies. Hormone deficiencies definately affect the elasticity of the skin, especially in the anul, perineum, and labia area.
Once the skin is aggrevated or tears, then comes infections whether bacterial, yeast, or fungal.
Lutein has been found to promote skin health by increasing hydration, elasticity and lipid content. It is a nutrient naturally found in dark green leafy vegetables like spinach, kale and collard greens, as well as broccoli, corn and egg yolks. Although they weren't studying the skin we are talking about, studies done in fall 2006 indicate daily lutein intake of 6 mg to 10 mg may be beneficial.
I have an appointment next week with my GYN and will have him test for infections, etc. but I am also going to increase my water and lutein intake to see if that helps and make an appointment with my dermatologist.
Good luck to you all and thanks for sharing your experiences.
For what it is worth, I am 47, divorced, living with my boyfriend of 10 months.
I took birth control for a couple years 26 years ago, then had a tubal ligation. Took birth control in later years for relief of hard periods; was probably on Yasmin for 4 months in 2004 just before having total hysterectomy. Since hysterectomy I have either had no hormones or only .25 hormone patch which is next to no hormones. No sex from 2004 until December 2006. Between January 2007 and March, I was having sex twice a day. That is when the small tears started in my labia which were very painful. The tears in my perineum and anus area have only become a problem since May and have started to interfere with my desire to have sex. They itch terribly and then after I scratch, it burns terribly. I use Dermarest which burns for a second but then stops the burning and the itching. Unfortunately, it hasn't been completely healed since May for more than one day.
Thanks for the thoughts. I'll try the lutein and see how it works. I was doing pretty well, but this past week I've had a couple of cuts and my typical monthly migraine. The interesting part is I'm still waiting to get my period after going off 10 months of continuous birth control (no periods). Not sure how long it takes to get your period back, but its been a full month so far and still waiting. Interesting that my typical hormonal symptoms occur with no period..as of yet.
#1, do you all get these "paper cuts" in the same area EVERY time
#2 on average per how long do you have them? days, weeks....
#3 if it does reoccur in the same area every time, where is yours? - mine is right at the bottom corner of my outer vagina skin area close to the anus
I have herpes, but know that herpes comes and goes....I've never even had a herpes break out, but have been tested and supposedly have herpes (hoping that I might be like the one lady who though t she had it..I'll have to get tested again just to be sure). The spot has been tested twice for herpes and is not herpes. I was on valtrex for at least a year and it was still there.
I have a reoccuring "paper cut" in the same spot and it seems to be there more than not! I've had this problem for at least 3 years or so. I work out on a regular.....and it's not sex related for me because even when I wasn't having sex for a long time it seemed to still be there. It seems to just
ALWAYS be there.
It burns and I think sometimes itches but obviously not enough for me to remember to claim that. It's not soooo terribly painful that I've sought too much from the doctor..... It burns, but I guess not as bad as others since I've come to just live with it.
Dr prescribed nystatin and triamcinolone acetonide cream - relieves symptoms but never, never, never GOES AWAY!!!!!!!!!!!!!!!!!!!!!!!!!
It's like sometimes it's "inactive"...and like a raised scar tissue-is area. Sometimes it gets really irritated and swells up around the "cuts", but the "cuts" are there.....
Hi guys, I am finally not overly concerned about this, thanks to reading all your stories but would still like to know if anyone has any theories. About 12 months I noticed a tiny spot of blood after sex. Mild pain but nothing major, just soreness like when you've been too dry. With a mirror, I finally found a tiny tear just at the very bottom of my vagina. Have been to the dr twice and she doesn't seem concerned at all, but as you guys probably know, it's just a real nuisence and a real turn off in the bedroom.
The interesting bit is that a few months after it started I broke up with my partner and in the 5 months apart, I was seeing someone else and never once experienced this 'tearing'. I got back with my partner again in April and straight away it started again. Yes he is on the larger side, but we had been together for nearly 5 years with no problems, not sure why it started last year. I have been taking Yasmin for about 5 years now, am a personal trainer, so sweat is my life and have never been good at coping with stress. Also have 2 kids 8 years and 10 years, had an episiotomy with one and tore with the other, but nothing overly dramatic, although have wondered if its scar tissue.
My tear heals within days with little pain but re opens next we have sex. It does, however seem to be creating a bigger tear than it did 12 months ago. Tested negative to herpes and yeast so its not that. It's just really annoying.......any advice????
idk what it is but, i have 2 little cuts on each side of my vagina, and one side itchs. im a virgin. so idk what it could be, it dosent itch all the time, it dosent hurt to pee. but idk what to do, cuz i dont want to go to a doctor cuz its embarising so, do u have any hints of what it could be? the cuts dont hurt, they just bleed a bit. i think i have what u had, but im not sure. but will they go away without the medicine?
Have no fear, I don't think you'll die. If that were true, there wouldn't be so many women writing about this issue. You could have a yeast infection since you have itchiness, or it could be just the cuts itching. who knows. Its hard to say without seeing it. Don't be afraid to go the doctor. They deal with things like this on a daily basis. You shouldn't be embarrassed. Take care of you.
I have had this problem a few times before- but can't remember what things were evident in the build up- i assumed it was herpes- which i think was miss diagnosed after reading everyone elses symptoms. My worst case was on holiday, when i was in agony with tiny cuts in the folds and on the perineum- totally ruined my holiday and going in the sea was agony. When i got back a doctor diagnosed herpes just on a visual inspection and took no swab!!!! I am actually considering getting retested for herpes to check if i have had a miss diagnosis- would anyone recommend this??
I have a tear at the moment on the perineum. Factors i think could have contributed- just started Yasmin contraceptive. Had a recent episode of BV- took a strong course of antibiotics and another course for a sore throat- which have caused a yeast infection.Also in a new relationship so have been using hair removal cream in the area and shaving more frequently. Have noticed before using hair removal cream has been followed by tenderness but not necessarily tears in perineaum. I also exercise alot- every day.
i have these things on my clit and lots of redness and itching can yeast effect ur clit?
the fold over my clit has these wite bump-like things underneath it there not like full bumps there more like swelling tissue with a witeish dots to it. it doesnt look as dramatic as it sounds it could really be over looked by anyone doctors even, if i wasnt soo careful to look at every detail.
idk i usually get this after having sex with my bf for 5 months now. he swears to me hes clean and he got tested and came back neg i got tested and came back negative as well.
i was positive for bacteria vaginosis and i had yeast a few times in the past and before the time i got tested (pelvic, blood, and hiv) .
i am recently using monistat 7 b/c i think i have some what of a yeast infection now my discharge smells like bread.
my discharge from my first yeast had a bread like smell, but the discharge i was getting, after having sex with my bf, turned from slightly musty to foul and yellowish but clumpy like cottage cheese. i know yellow indicates bacteria so maybe its bv and yeast together.
im not sure of the effect on oportunistic bacteria on the labia and vagina as well as the clitorous.
as long as its not a seriouse sti bacteria ill feel a whole lot better, and my test results prove that to not be the case i will get tested again. but i do hope that if it is just opportunistic bacteria kreeping up causeing those tears, that there is a cure for it or some kind of treatment!!!
my doctor did not explain to me using the words opportunistic bacteria but i do know bv is associated with opportunistic bacteria: bad bacteria that multiply when the given the opportunity. if there is a chemical embalance of some sort in the vagina witch limmits the growth of good bacteria versus bad causing the bad stuff to grow out of wack.
i just hope this doesnt cause permenant dammage to my vagina and my clit. i really wonder about getting yeast on the clit is that possible????
why doesnt any one seem to know??? dont doctors do cultures anymore or do they all think there (excuse my french) ******* ingenious so much as to not go thrue with a full culture test and examination under microscope???? its litterally that easy!
I'm now 100% convinced this is not herpes.....as I stated I had mine tested twice and it came back negative. Herpes are blisters that can POP, not papercut looking tears........an ex had mentioned a name of something to me years ago and for the life of me I can't remember the damn word!!!! I thought it began w/ a v.....visceral tear or something, but I looked that up and it wasn't it...
If I could remember what he'd called it, I could look it up again. When I looked it up the first time it sounded like what I have and it mentioned sweating in the area a lot and underwear irritation etc..etc...
When the tears are more open there is slight bleeding.....but nothing drastic. The medicine just eases the symptoms of burning and itching....it doesn't heal it though.
I think it's stress related and does have a lot to do w/ being active, I see a lot of us workout or are active....I live in Florida too so I'm always sweating from the heat.
Honestly, I really am not concerned now...I've slept w/ two men w/o condoms while I had an "active" tear and one tested himself for herpes just in case...didn't have it....and the other hasn't told me of any issues (of course the first guy was over 3 years ago....the latter was recent w/ no complaints so far - not even herpes!).
I don't think I'm going to worry...it's a burden, like any other skin irritation (I have egzyma (sp?) on one of my feet...)...oh well...that's life...AHHHHHHHHHHHHHHH I'm now w/ another guy, we use condoms and it doesn't affect my sex life.......so I'll just have to deal....ha ha
I have fissures come and go and now worse than ever.
Culture recently grew strep b.
I didn't read every post above but what I did read and scan I did not see any mention of this.
I was told strep b can normally live in vagina and when outside the vagina can cause fissures. Antibiotics prescribed. Won't do this until I am convinced it is a reasonable course of action.
From the above it doesn't sound like it.
I was told by gyno to use advantan (steroid cream) off and on and that it could take months to resolve (along with the one-off dose of two different antibiotics).
Gyno also said strep b 'could very well be the source of my problems' but that it was not a given.
I asked if there was any 'natural alternatives' and answer was no.
I had thought for several years the small fissures were herpes.
I later figured out it definitely wasn't (I do have herpes by the way, no (obvious) break outs for about 10 years).
I'm rarely sexually active although having sex stirs things up.
Research on the net that I've found shows lots of info about strep b and pregnancy but not on non-pregnant symptomatic situations (none mention fissures).
I will be consulting with another gyno, and a naturopath.
On an emotional/metaphysical front, it seems I'm being directed to look at my sexuality, boundaries, etc.
By the way, advantan does settle down symptoms but it's just a band aid and suppresses the symptoms which I understand from holistic point of view isn't really the way to go.
A few items to note: I have been tested for std's, had a recent pap smear, don't have a history of yeast infection and no yeast infection revealed in last exam (August).
I do think hormonal cycle, health of overal immune system, ph of vagina all play a part in this.
Will update down the track.
Well said girlfriend!....You're absolutely right you know. This is just one of those things we really need to build a bridge for. Half of our angst comes from worrying about the bloody things. I'm not giving power to it anymore. Just going to get on with my love life with a wonderful partner, who does understand that sometimes I get a bit sore. Really ladies.....if it was anything truely major then wouldn't at least one of us have a more accurate medical opinion???? I thankyou 'enoughalready' for putting it into perspective.....for me anyway, hopefully others will follow for their own sake....:o)
So im really stressed out and after reading some of these posts i feel a little bit better about things. I had unprotected sex over a year ago with someone who has had more than one sexual partner. I was tested for STDs a couple months after that and they came back negative. Since then i have never experienced and of the usual symptoms of herpes. However, i have had an irritated spot above the clitoris in that patch of skin. It it like where my skin creases and it appears on both sides but mostly on one side, the irritation resembles a very small cut or fissure. The first time i noticed one was in April, then i saw one at the end of August and then just recently i had another experience. I went to the doctor each time and everytime the doctor said that it was not herpes just where my clothes may have been too tight and rubbed the wrong way or that sometimes the skin just does it own thing and gets irritated from it. I am also on birth control and i didn't know if that could make my skin dry and sometimes get that "cut" like it does. Also the doctor today said she also noticed a couple of fissures below the vaginal opening but that it could be due to me wearing thongs, but i also have pain in my anus that i believe is from hard stools and such. I have had problems with feeling like i have an anal fissure before i had sex so i don't think that is related to me having sex...im just worried not because all of the other doctors said that the "cut" or fissure i had noticed was fine and not herpes but the doctor today said that i may want to get the blood test for herpes because according to her studies are now showing that herpes can be related to fissures...she said my condition is most likely from tight clothing but that i might want to think about getting the blood test...what should i do?
as mentioned above I have been experiencing the same paper cuts on my perineum, usually after sex, but think the intial trigger was after a courses of antibiotics, and subsequent yeast infection. I have tried lots of things to try and rlieve the discomfort and heal- i have tried canisten cream, hydrocrortisone cream, anusol- the best thing so far has been athletes foot powder (strange i know) used after showers on the area like talc- seems to dry the cuts up quickly and helps healing. hope this helps. I hope someone does some official research into this and finds a good treatment for over the counter as it is obviously a common problem for many women and highly worrying when there is no medical knowledge, literature or adivce available on this even from many GPs.
I do experiencing the same problem. Does any of you suspect toilet tissue paper caused the problem? It might be that we are too sensitive to the chemical used to whitens it. They use chlorine or chlorine dioxide. Maybe small concentration left over the product.
I also have had group b strep problems. You're right. All the internet stuff talks about Group B Strep and pregnancy. Nothing much out there for when you're not pregnant. Try looking up Group B Strep and BV for a little more info.
Initially found out I was a "carrier" during pregnancies. No issues then. My issues started afer placing an IUD..Finally removed it, still had some issues, but it finally cleared up after many Clindamycin treatments. During my time with repeated BV issues, my tears were horrendous. With this last one, I started taking a probiotic called "Fem-Dophilus" by Jarrow. Its in the refrigerated section of your local health food store. I believe that has helped A LOT! I also got off the pill that I was taking continuously (no periods). I think the combination of those two things has helped me sooo much. I think the pill was leaving me dry down there, so sex (even with lube) was not very pleasurable. Also, dry vaginas also can lead to BV infections. So it was very much a vicious cycle. I'm now enjoying sex again (finally) and have been BV free for quite a few months now! Everything just feels healthier down there. What a relief after two years! I still get a tear or two around my period sometimes, but there not nearly as bad. At least its not tears AND a swollen, red, Hoo Hoo!
same problem!! first, freaked out and figured it was genital herpes. First remeber having these 'paper-cuts' during this summer, but could have had them before and just brushed it off as regular irritation.
Reasons why it could be herpes; no anal, vaginal, or oral sex when i first experienced these, yet i did have limited gential touching, nothing excessive i would think. So i know herpes can be skin to skin. I went and got tested for STD two weeks ago amost, my results come in this wednesday. When i first got these syptoms, redness, ITCHINESS, distinctly differnt discharge which would tell me these cuts were comming. The smell of discharge worse to put up with then acutal cut. and then cuts would develop last, i never thought it could be an STD, i was a virgin, with genital contact with one guy...ALTHOUGH the past month i have had proctected intercourse, differnent guy, it hurt ALOT, but i just brushed it off again as regular amount of pain for a first time.
and i saw a previous post comment on a stringy gel like discharge, and i also have experience this
i am worried, as my 'fissure' is right after my pubic hair before the clitioris/labia... and more to the left... i have worried myself by looking so frequent, i cant bring myself to look for anymore cuts, but i think i can feel one lower on down on the right
ALSO; because of the itching before this cuts appear, i itch for at least 3-5 days before any cut shows up, area is always red, looks tender, raw even.
sorry this post is so long, but like many of you, i am extremely worried i have a strain of genital herpes outbreaks that are not textbook, and expose as 'paper cuts'. worst luck in the world i would day.
is everyone here in total belief these are NOT herpes outbreaks, or do some belive its a strain no yet widenly known?
19 years old
never been on birth control
cuts right before period 5-7 days
not every month, but hard to remember and say for sure, frequent tho
always been around cats
high stress, university student, put tons of pressure on myself, and now when i think i have herpes
intense sweat during workouts, and work out frequent (4times per week atleast)
I have had this problem since July of this year and never thought it was this common!!!
I get the paper-cuts (fissures) in a natural skin fold next to my clit. It occurrs once a month it seems... and heals within 2 or 3 days, sometimes faster. I've noticed that I get it in the middle of my cycle. I went to the dr last month and was tested for yeast infection, bacterial infection, herpes, and they even did a culture. Negative to all.
Now today I had a "flare up" as I have begun to call it.. and I now have 2 paper cuts on either side of my clit, both in natural skin folds. It is maddening!!!!!
It seems to begin with some redness in the vulva area, and a slight itchy sensation when I am in the shower.. thats how I know the paper cut(s) are about to show up.
I have read that this type of thing could be hormonal, or even due to vaginal PH being off, as well as other fungi that cause itching and other things.
I DID have elevated white blood cells (WBC) when the dr looks at the slide last month as I waited in the exam room. That is usually a sign of infection.. So she prescribed antibiotics. But the paper cuts returned later that month!
They need to find out what this is. In this day and age, women should not have to suffer and Drs should not be clueless. Apparently, there is a cause for this. There is a cause for everything! They just are not looking in the right places or doing the right tests.. I am sure that insurance is the reason for that.
My Dr recommended a biopsy when my tests that she ran were negative. I absolutely refuse to have that done until she rules out everything! My hormones have not been looked at yet, and there are other cultures and slides that can look for other infections/yeasts/bacteria.
I will keep you all updated.. And thank you to you all for sharing this embarrassing and frustrating issue!!! I don't want to deal with this forever!! Something must be triggering this problem for us- we haven't had it forever!! What has changed?? I even looked at detergents and tiolet paper, but it isn't an allergy to those. Here are my stats:
Lesbian (no birth control! LOL)
Have not been sexually active since before this began happening
Update- I saw a different dr. today who agreed that a biopsy was not needed yet. She prescribed Clobetasol cream that I will apply twice a day and stop when this heals. I hope this takes care of it- she said they give this medication to people who have Lichen Sclerosis so it is known to be very effective. I will keep you updated...
To mindboggled -
Discharge has a different pattern for everyone, you said you notice a difference 7-10 days prior to your period, everyone has a unique personal pattern of discharge, it could be a coincidence that you get fissures the week before your period and more discharge then too.
To Everyone -
OMG I am glad to read thru this. I have struggled with these for years. Mu cuts are very much like all of yours...thin paper cut like in the creases between labia majora and minora, also low at the bottom of my vagina) Right now more than ever, I just finished treating a yeast infection, and 3 days from starting my period, recently finished a course of antibiotics for a sinus infection, which meant condoms for 1st time in a long time (Cuz antibiotics lower effectiveness of BC), and most stressfull time of year for me (end of term in University). I so thought I had herpes, as I do get cold sores on my lis when I'm really sick. I could still I know, but reading this has made me feel a lot better. I hate my Dr. so I dont feel like I can talk to him. I'd like to get tested for all STD's to put my mind at ease but am not sure where to go, and am too embarrased.
23 yrs old
Serious Monagamous relationship (5 1/2 yrs)
Birthcontrol for 6 yrs (TriCyclen)
Wear pantyliners often (thought these were cutting me too) (to: nothappy)
Extreme stress (getting two university degrees at the same time)
No cats ever
I shave (but they happen even if i dont)
Wear thongs once and a while
Use Ky occasionally (Boyfriend is well endowed - blamed that for a couple yrs)
(usually use KY after i get a cut thinking sex will be easier, but sometimes before)
- fissure has occurred 3 or 4 times now, always in the same place (above clitoris, almost on outer labia, right in the crease)
- always occurred during or right after period, except most recently, when it occurred just before my period
- been on birth control for about 3 1/2 years; ortho novum 7/7/7
- heals within 1 day
- have been tested for STDs but not herpes (am terrified that's what it is and came across this thread while searching for things it could be *other* than herpes)
- have noticed "normal" discharge has become more oily
- began getting these fissures shortly after i began with the gardasil shot series. has anyone else noticed this?
- doesn't appear to be related to sex or dryness. i have had yeast infections before, but have learned to control them and i don't feel as if i have any other symptoms related to yeast infections.
- can't tell if i'm causing them by constantly checking for fissures (stretching skin, etc!) or if they're naturally occurring.
- what kind of bacteria could do this???
I posted on 11/14 about this issue..
The update as of today 11/30 is that I have not had a recurrence of the fissures (paper-cuts) since using the Clobetasol ointment for 3 days. HOWEVER- during penetration with an "average sized" toy earlier this week, my perineum (the skin at the entrance of my vagina in the bottom) tore slightly and bled a little. It is still healing. I am dumbfounded because this happened a couple of months ago and I thought it was a fluke.
I am 37 years old and have NEVER had this problem before! I read online and it says you can do massage down there with a pure essential oil (no perfume) like almond or olive oil to try to get the skin used to stretching. Pregnant women are told to do this.
So when this heals, I'll try it. I can't help but wonder if this problem is somehow related to the paper cuts I've been getting since July.
???? SO frustrating!
Good luck, everyone.. please keep posting.
I've tried a lot of things myself after years of fissures/tears in my perineum. It's like my tendons/muscles/skin won't stretch enough when my husband and I have sex. So I frequently get injured. Unfortunately it has come to the point where my husband is afraid to have sex with me as he doesn't want to hurt me. I have found the best thing a person with this problem can do is use band-aid brand or nexcare brand liquid cut sealant. It keeps germs moisture and irritants out while the fissures heal. And use lots of lubricant when having sex. Unfortunately for my hubby it seems that more lubricant prevents him from having enough friction. So, I'm still trying to find answers and help.
Wasn't sure I would be able to post. I read every one of the above postings.
I too have fissures around my vaginal and anal areas. The anal ones have subsided after years. It was lack of fiber. Seriously. My doc said to increase my intake to 25gms. I wasn't religious about it at first (6months ago). But found this great cereal Fiber ONE. It has 50% that a women needs in one day. I stopped using toilet tissue. I use these medicated tissues sold by that hemmoroid company. I pat to clean and never wipe gently. So those fissures are pretty much gone as long as I do not waiver from the fiber intake.
BUT the vaginal tears are still around. I am 53yrs old. Hysterectomy over 20 yrs ago. I have been diagnosed with herpes 12 yrs ago. Break outs still happen with stress. My fiance of 5 yrs is well endowed - sex at the beginning was great -but I find myself dreading it lately because I think this is part of the problem. We are so lubricated it isn't funny.
I never wore thongs because of the anal fissures.
I have not been tested for yeast infections. My last gyno appt was so awful. (I chose a female physician hoping to have a gentle experience) She ripped me so badly. I can't go back to her.
I recently started with the estrogen and testostrogen cream. My vagina actually felt like it use to.
( It has shrunk so much.) After using the cream for awhile I became extremely bloated in my abdominal area. Is this possible? So I have stopped using it for a month now. I want to start back because I think things were better sexually. After I quit it, I began to hurt again with sex.
Sometimes I think I get aggravated by my panties. The folds in them rub against my vaginal folds. I seem to develop fissures then too. I think as we age our folds become weaker; easier to irritate. I threw away all my panties and bought new ones. So far that seems to have helped; but I am not fooling myself. This is not the absolute.
I told my fiance, "it is so ironic that now that we are aging, they have a little pill to help them get hard and stay hard; but we women have nothing to help us handle this friction. I keep telling him to go find a younger women. I worry that I will eventually have to stop sex alltogether. That is a very sad thing to think about. Intimacy is what makes couples couples.
It would be great to "hear" from a doctor on this forum.
Let me begin by saying I've spent the past four nights reading and re-reading this and every other forum post about this subject I could find. I am (surprise!) a hypochondriac. Though, out of every type of illness there is, I've lost the most sleep over thinking I've got an STD. Right now, I'm experiencing the symptoms you all have described - a small cut/fissure or two that appear right below where my pubic hair stops. Of course, being as neurotic as I am, I'm always stretching my labia back to examine everything down there. Constantly. I've gotten these fissures twice now. I mean, it could very well just be dry skin, eczema, irritation from me constantly yanking back my skin to see if any new symptoms have occurred or any pre-existing ones have subsided, but I've convinced myself that I have herpes. Oh, and about three weeks ago I came down with a terrible flu (or what I THOUGHT had been a flu). I had a high fever, muscle aches, sore throat for around a week. Negative for strep ("Does that mean I have AIDS?" -me "..........." -my doctor). About four days ago, I got a "papercut." That's why I think (..know) it's herpes. Even though it could very well have just been a normal flu because I do get sick a lot in the winter. And...because the day before I got sick, I was up all night drinking at a concert in a very very small overcrowded room full, FULL of sweaty people bumping into me and proceeded to sleep on a friend's presumably flu bug-infested trashy Cincinnati living room apartment floor. So, a question. Has anyone else experienced flu-like symptoms with these cuts?
This is driving me crazy. I sit here going from medical forum to medical forum reading the same thing over and over again and it just opens the door to more and more possibilities of more diseases, lichen sclerosis, even CROHNS DISEASE. But really. The one I've decided on is herpes.
SO. Tonight I signed up to an internet dating site just to see what my options will be once I (decidedly) test positive for herpes. This was discouraging, to say the least. However, most internet dating sites are just that.
So uh. Despite the fact that this is not the least bit cohesive and I don't even know WHY I'm posting this (seeing as I'm already certain that I do in fact have herpes!) but honestly just writing this and knowing that someone might read it (and maybe even get a good laugh out of it!) makes me feel a bit more at ease.
I honestly wouldn't be surprised if the symptoms were psychosomatic. But I mean, even if that were confirmed by a doctor....by a THOUSAND doctors.....I'd still think I had herpes. Even if the herpes blood tests came out negative a thousand times over I'd pass the results off as faulty or just resort to thinking that I had some new strain of the virus and lord knows my vagina might be in a textbook ten years from now.
THIS IS EPIC!
ALSO! Out of all of this, I've even come up with a simple plotline for a short film or story! Hypochondriac convinces herself she has herpes, without medical confirmation. Signs up to an STD dating site. Finds someone she likes. Becomes very close to him/her, only to find out that she in fact never had herpes in the first place. She's now in as much of a rut as she was in the first place. (Sounds like it could be a poorly done jdrama to me.)
Ah, anyway. I've also let all of my close friends know about my condition. In detail. I'm sure that they have all had enough of my vaginal issues, but when it's the only thing on my mind, it tends to come up in conversation.
This is ridiculous. I'm done.
At any rate, I wish all of you luck. I have a doctor's appointment on Thursday (not that it'll change anything). I think I'm going to go write a hate letter to hypochondriasis. I apologize for being long-winded.
Mm, also. On a more rational note (I feel a bit embarassed after rereading what I just wrote), IF by some act of a god that has yet to materialize my cuts are not herpes, I'd guess that they're stress-related or due to some sort of hormonal imbalance. The two times these have occurred, I've been under a LOT of stress. Also, I looked up "vulva eczema" on google (I'm surprised this picture hasn't been posted yet) and found these pictures:
This is exACTLY what my cuts look like when they first appear. Sometimes they're a bit redder, but the sort of white on the edges is always there. I've had skin issues before - contact dermatitis, etc. Could this be a cause as well?
I originally posted on november 13th, 2007.
I am happy to report that since using the Clobetasol ointment that my Dr. prescribed (once a day for 2 weeks), I have not had a "flare up" of this fissure and redness issue for 6 weeks!
The Dr. seemed to think that it was originally contact dermatitis that my body just needed help with healing.. But whatever. As long as it stays gone, I'm happy!
Hope you are all finding answers...
I originally posted on november 13th, 2007.
I am happy to report that since using the Clobetasol ointment that my Dr. prescribed (once a day for 2 weeks), I have not had a "flare up" of this fissure and redness issue for 6 weeks!
The Dr. seemed to think that it was originally contact dermatitis that my body just needed help with healing.. But whatever. As long as it stays gone, I'm happy!
Hope you are all finding answers...
I too am suffering from this condition and found the pictures recently posted extremely helpful as this is EXACTLY what I am dealing with. What is the best way to home-treat this? And how long until these subside?
K I'm kinda clueless as to what is going on, I have a few fissures right below my vagina and above my anal area, I have gone to the doctor and she told me it's a yeast infection, but i keep on having this feeling that it's herpes can someone please calm my nerves. I am having unprotective sex with my bf of two years but he has been tested for STDs and came back negative so he's clean. But we were broken up for about 3 months before Dec 2007 and so I had a one night stand with a guy in one of my classes but we used a condom this was back at the end of Nov. during the week while having sex with my bf it started to hurt and I then found several fissures in that area, they only hurt after sex and the first time I peed. I saw the doctor right away the next morning making it this pass wednesday, The fissures don't hurt anymore even if I touch it. They aren't producing any puss or anything like that, it does randomly itch in that area, there is no burning sensations. I have very little to no discharge and if I do they look like small clumps. Can this just be a yeast infection? or do I have herpes?
I've been reading your posts on fissures and want to comment on the ladies stressing out whether or not they have Herpes.
Well, I was diagnosed with Herpes Simplex 1 about 9 yrs ago. Thank the Lord I haven't had any known pain or outbreaks since the intial one. That first one was so terrible. Fever for many days you think you have the flu, sore throat you think it's strep, vaginal irritation you think you have a yeast infection and all test negative. Two weeks of this extreme pain. Then the little white bumps appear on the inside lips of the vagina. More pain. Like broken glass when you walk. The doctor took a swab of the sore and it tested positive. Heartbreak.
Why am I telling you all this? Because it isn't the end of the world if you DO have herpes. Don't stress, there are worse things out there you could contract. I don't even know how I got it or from who. I think it was oral sex. Anyways, I see it as a health gauge. If my immune system is low because I'm not taking care of my health like not eating nutritionally or I'm totally stressed, I sometimes sense pain in the pelvic region. I take care of my health, pain goes away.
So either way, do not stress about it. It's an annoying disease like diabetes, dermatitis, or recurring bladder infections. You just deal with it and you still live to see another day. Stress brings on all kinds of sickness. So above all, chill, don't stress.
Aside from the herpes, 9 yrs later I am experiencing some similiar issues as most of you. I went to the Gyno and he said the pain is not a herpes outbreak, but it was yeast and maybe vagintis.
Flagyl and Diflucan made the symptoms dissappear.
This originally started after taking a lavender oil bubble bath. Then two months later after enduring slight symptoms, I go to the doctor. They give me medication and it subsides. Now a week after having my period again, the symptoms are back. I haven't had sex with my husband since all this started and I haven't taken another bubble bath. I have been on Kariva for 6 months, could I just now be having a reaction? The yeast did cause some stinging irritation on my clitoris that lasted for a day. I don't think I've ever had a yeast infection until lately. Could it be the birth control?
hey everyone..maybe you can all help me... I think i have a yeast infection, ichy,redness, vary little discharge, and burning when i whipe because its dry. I started taking monistat derm cream and acidophilus suplaments to help me....but..... i also this scratch/tear near the end of my vagina going towards the anus and it burns the tear/scratch everytime i go pee. I have never had sex... i think i scratched it because of the itchyness. Does anyone have anything related to this???? or can tell me what they think???
hi, well for about a year ive been getting bumps under the skin, and most the time would stay there for like a month, or even more, which ive read usually herpes doesnt last that long and the herpes bumps usually arent under the skin, well anyway since november ive been getting these cuts/fissures, sometimes they hurt, sometimes not. ive had one above my clitoris for about a month. So anyways i didnt really know what this was, i figured it was herpes but was afraid to go to the doctor, but my friends mom told me to eat some yogurt, and itll help. well ive had this bump and cut on me and after i ate the yogurt the bump healed and the cut has mostly healed.. i think the yogurt helped because the bumps never go away that fast, and i only had it a week. and it almost immediately went down after i ate the yogurt has anyone ever used the vagisil screening kits? do they work well? because im thinking of getting that to see if it is in fact a yeast infection, so i can treat it. Anyway has anyone else experienced bumps under the skin of their labia as well as cuts?
I have only one fissure like a paper cut in a natural fold on the left side of my vulva. Lately I've been having burning and itching problems, redness, and also sometimes a sour-smelling discharge. The fissure looks like the ones in the photographs above, so maybe the problem is eczema?? Should I see a gynecologist or a dermatologist for that?
For a few years I had itching problems on only one side of the vulva, especially in the winter and I thought it was just dry skin. It seems to get worse before and after my period.
A few months ago the itching got worse, and burning and redness started, so I saw a doctor, who thought it was maybe a yeast infection or bacterial infection, and was slightly positive for yeast. The medicine didn't help at all so I went back to her and she said it might be a bacterial infection as well. I took medicine for both yeast and bacteria, and the bacterial infection medicine seemed to work for a little while but the problem came back. I went to a different doctor last week who came up with the same diagnosis: a yeast or bacterial infection but not a full-blown case of either.
It doesn't seem to be going away with the medicine this time. I thought it might be related to birth control pills, as some people have mentioned. I was taking Ortho-tri-cyclin, then I switched to YAZ, and that's around when the problem started to get worse, so I stopped taking YAZ and started taking a different brand but the problem hasn't gone away. I was going to swtich back to Ortho-tri-cyclin but maybe I should stop taking birth control pills altogether?
Also I had a problem with chlyamydia last summer, took medicine, and had 2 follow-up checks, both negative. But I thought maybe the antibiotics and the new birth control pills around the same time might have caused the problem.
I think it's terrible that so many women are having similar problems and doctors cannot figure out what the problem is. I am upset at having 2 different gynecologists tell me the same thing and not solve the problem.
I only have one fissure at the moment, but it doesn't hurt during urination or sex; possibly because of it's location inside a fold, there is little friction against it. I am not sure if it is related to the itching, burning, or redness but maybe other people have had these problems happen along with the fissures?
24 years old
sexually active (rethinking that...)
stress from job, moving, worry about health
don't use KY
don't sweat heavily
I finished taking the antibiotics from my doctor (metronidazole), stopped taking birth control pills, started eating yogurt every day, and tried the yogurt vaginal insert for one day. The fissure did not disappear but the redness and burning is almost completely gone.
I don't know which of the methods was the one that worked, but I will continue to eat yogurt just in case. I would like to go back to taking the birth control pills, and since I didn't have a problem with the Ortho-tri-cyclin LO before (the problem started around when I switched... this may be a coincidence since I started taking antibiotics at that time too... but maybe because Ortho-tri-cyclin LO has lower amounts of hormones than the others? does anyone know if there is a difference?), I think I will give them another try.
Can any of you PLEASE PLEASE PLEASE tell me the outcome of your herpes tests. I haven't been able to sleep over the issue in a week and my appointment isn't for another week. I think I might go crazy by then. I am begging you.
I hope everything works out for all of you. I wish you all the best.
I have suffered from these symptoms for about a year to a year and a half.
Here's my symptoms:
suffered symptoms of dry perineum (between anus and vagina)
small red cracks on perineum (no blood or pus, leave chronic red lines)
anal fissures that spot blood if i wipe too hard
vaginal discharge (from white clumpy to yellow mucous-like) no odor
The steroid and antifungal cream ,Nystatin and Triamcinolone Acetonide Ointment, was awesome! I thought my diaper rash like symptoms would never go away, but this stuff worked wonders. it will discolor the area for a little while(week or two) but well worth it.
I think this problem is happening due to me taking more antibiotics in the past year than I have in my whole life, ortho-triylen lo(i didn't have these problems before the pill), more stress than ever, poor diet, heavy smoker,and wearing thongs.
I still think my body is trying to tell me something, PID? yeast? bacteria?herpes? I am going to the doctor this week(a different one) and trying to get referred to a dermatologist and a proctologist. I am currently awaiting a test resut to tell me if i have herpes type 2. I don't care how much time or money I have to spend on this. I want to know what's wrong with me. I will try to stay positive, treat myself better, and definitely let you guys know what I found out. But I just want to thank you guys for sharing, I was like you in that my first thought was "oh my god i have herpes". Whether I do or don't, you guys have given me hope in a very bleak time. I needed that and thank you.
I'm still having some symptoms of yellow sour-smelling (not like fish... does anyone else have this symptom??) discharge and slight burning after finishing the antibiotics from my doctor... thinking of trying the probiotics that someone else mentioned... if anyone else has tried them, please let me know if they worked or not...
hey i was just wondering how you were and noticing a few things we have in commmon.
22 years old
stress from moving out of state
treated for Chlyamidia last fall
worry about health constantly
on ortho-tricyclen lo
i think this is yeast related overall. I have jacked up my chemistry down there because of taking antibiotics 3 times this year alone. When they treated me for Chlyamidia, i don't know about you, but I had to take antibiotics twice a day for a week. That is A LOT. I think my irritation started about a year or so ago when i went back on the pill after taking about a 6-8 break. a bacterial infection followed, then the chlyamidia, then a yeast infection.
Here's where I am...my rash is gone, I don't feel uncomfortable but a lil yeasty, my perineum still has red lines but is not irritated or open, and i experience discharge ranging from white thin or thick to yellow thin or thick.
I'm going to the doctor this week, but I really don't want anymore antibiotics. I'm waiting for my test results to eliminate the possibility of herpes type 2. My sympoms are not consistant with herpes as none of my irritation has been ***** and has lasted longer than any herpes outbreak I have ever heard of. Plus herpes is not supposed to scar. I just became so paranoid and such a hypochondriac that I felt it was nessecary to have a blood test. We'll see......
I really want to know how you are feeling, if quiting BC helped, and anything else that might help us. hope you'll reply an good luck =)
Hi there. I came across this string while looking for something else but since I too have had the vaginal cut/lesion problem I stopped here and started reading. While I think it is possible that there may be different causes for different people that may bring these symptoms on I can tell you that in my personal case I have only ever experienced this problem during the times in my life when I was taking birth control pills. I have taken BC pills at 3 different times in my life (once when I was 23-25, once when I was 28-30, and lastly when I was 34-35), each time I took them for 1-2 years at a time and my experience was that after a few months of starting the pill I would begin to have this problem (with most outbreaks occuring either right before/during/after my period and sometimes after sex) and would have the cuts/lesions on a monthly basis. Within a few months of stopping the BC pill the frequency of this problem would start to diminish until finally it went away....away that is until the next time I went on the birth control pill. My doctors GP and OB/GYN continually treated me for it with diflucan for a yeast infection but it always came right back the next month. I have been tested repeatedly for all STD's either by personal interest, when entering into a monagamous relationship, and as a means to rule out causes to some of my other health concerns (I have Fibromyalgia and they test STD's as a process of elemination for cause of presenting symptoms).
Like I said, I think there may be more than any one cause to this problem but after reading and thinking about my own experience with this I am wondering (and people have already brought this up) just how much of a connection there is between these particular set of symptoms and our hormones and is there a relation to having this problem and a woman's hormones being out of whack? Since mine seems to be related to taking birth control it probably would not be helpful for me to do this but somebody else may want to try this if they haven't already...it might be good/interesting/helpful for someone with these problems to have their OB/GYN do a baseline hormone test and then go back in 6 months and have another done (or maybe the second one done during an outbreak of symptoms) to see if there is any significant flucuation in hormone levels...this maybe important to do not just to get answers to the vaginal lesion problem but also because if there are significant/abnormal hormone fluctuations occuring it could be an indicator for problems with adrenal gland funtion or thyroid issues which can be treated (and in doing so may help the vaginal problems). If you don't want to do the blood tests, or your doctor doesn't want to, then having a full panel of thyroid tests (including the thyroid tests that are not standard) and an adrenal function test (this requires collecting your urine for 24 hours and then you take the canister of pee down to your friendly neighborhood lab) might be helpful to either rule this out or in as a possible cause to vaginal lesions, especially for those of you who experience other symptoms such as fatigue, swollen glands, or a general feeling of being under the weather to flulike during a lesion occurance. But not everyone reacts the same way to hormone changes so even without other symptoms you might want to check it out.
It just seems to me it might be worth checking out anything that deals with the body's hormones as they can change our body chemistry so easily...especially down there. Even our diets can affect our fauna, so to speak.
I know I've gotten long-winded here, my apologies, but I feel for everyone here who has posted and is looking for answers. I don't expect my suggestions to be helpful to everyone but if they help one person then I'm glad I spoke up.
Some personal stats on me:
-I'm a 36 year-old fair-skinned (but tan easily and dark in summer) of Scotch/Irish/French descent. 5'9"/120lbs. Blue eyes, Auburn hair.
-I'm a Single mother.
-I've had one miscarriage prior to the birth of my son.
-Most of my relationships have been monogamous and when they were not I practiced safe sex.
-I did not get my first period until a month before I turned 16 (my mother started hers when she was 9) and my periods have never been regular and they are very heavy and very painful.
-I was diagnosed with Fibromyalgia 4 years ago and mention that because there were times that I was on the pill and had problems with lesions that occured long before I got sick with Fibro so I don't feel there's any connection between the two conditions unless someone has Fibro and are experiencing lesions also because Fibro can compromise the immune system and if that's the case then that might be something to check out as well, including people who may have other autoimmune disorders such as, but not limited to, lupus/arthritis/Cfids etc. Immune systems that are out of whack can throw hormones out of whack and vice versa.
-My repeated STD tests over the years have always come back negative.
-I have never had any other genecological problems. No abnormal paps. No cysts, no nothing.
-My Throid tests have always come back normal (though I never sought to have them tested during a lesion outbreak)
-My Adrenal Function test results show that I have low adrenal function (borderline needing medical treatment)
And that's all I can think of to note at this time. Again, I feel for all of you. For some it may be as easy as staying off the pill like me but I know from reading your posts that for many of you the answer will not be that simple and my heart and thoughts go out to you and your partners as I know from experience that it is not easy for anyone involved.
Again, I came across this string by accident so I don't know if I will return here or not so if anyone would like to contact me for any questions or relativity please feel free to contact me, my user name on yahoo is kechbel71. ( I promise I am not selling anything lol) Just please state in the subject line something to the effect of 'person/friend/etc. from medhelp' so that I don't think you're spam.
It's great to hear your stories. I have only recently begun to have fissures. It has happened only twice and the first time was in conjunction with a pretty severe yeast infection, but not this time. I was worried I had Herpes, but the symptoms don't exactly match up and I tested negative for herpes. I think herpes outbreaks usually begin as small, round bumps and then erupt into blistery things. These are cracks - paper-cuts that just seem to appear - I think mine might have been caused by a recent bikini wax, or sex..? And, they don't crust over as they heal, I read that herpes blisters usually crust over as they heal, these just sort of close and go away. So, I searched for vulvar eczema as one previous poster suggested and found the following article, complete with pictures and discussion of causes/treatment. It was really helpful for me, and I hope it will be for you all too.
I am so glad to have found this forum, because I was convinced I had herpes even after repeatedly testing negative and I was about to give up sex altogether.
I am 24, a very stressed out student, severe hypochondriac (I am always convincing myself I am pregnant / have breast cancer / have HIV / and, lately, have Herpes), just started taking Yaz, although my first fissure episode came before I began Yaz.
Good luck, and I am so grateful to have found this!
I am 22
a very stressed out student & hold a full time job on top of school
definitely a hypochondriac,
constant yeast problems
my skin on my face, hands, and feet are all dry in the cold weather
just quit smoking & drinking
exercise 3 - 4 times a week
broke up with my boyfriend of 4 years in august, slept with one person multiple times in the meantime, until december
went on a month long trip in dec-january
came home and reunited with my ex in january
took an std test before I left (routine) and everything came back negative
I had 2 fissures in January when I came home-->I noticed it when I came back from vacation with a diet of pure sugar & carbs, alcohol, smoking, and wet bathing suits, (no sex) <-- all definite causes of yeast infections!!.. when I came home it was freezing here and I noticed my skin cracking on my hands, and i def felt the yeast infection although it wasn't enough to make me run to the doctors... i had rough-er sex with my boyfriend when I came home and thats when I got my first two fissures...I chalked it up to it being rougher than normal and me being "not in the mood".
the next two I got was also from rough-er sex with my boyfriend about a month later. This time i got nervous- I thought maybe he had given me something.
The fissures literally look like paper cuts...and all 4 times they healed within a few (3-4) days. I did experience the little bleeding when wiping. Also, they did not crust over like herpes and I never got that "tingling" feeling like ur supposed to get before a herpes outbreak, they simply closed/shrunk until they were gone. I looked at it whenever I got the chance!!! <-- hypochondriac!
I called my Gyno- she said YEAST! (which all makes sense considering my abnormally unhealthy diet). She recommended Monistat, which for some reason ALWAYS makes my yeast infection worse. An herbalist recommended "Pro-Biotic Acidophilous" pills. I take them EVERYDAY multiple times a day, drink at least 5 bottles of water, do not have any processed sugar in my diet what so ever, and I quit smoking. I am going to try this for a while. It has been a week so far, and I have had no problems AT ALL..no yeast type symptoms & no fissures.
Acidophilous & lots of water works wonders.. def try it!! I am going for another STD test just to be sure March 15, and I will let you know the outcomes.
Ladies, good luck... its so nice to know we are not alone. I wish everyone the best.
I agree it sounds very similar!! However, even after I stopped taking birth control pills the discharge ended up coming back. I'm going to start taking them again after my next period I think, because it seems to be unrelated (other people had similar symptoms who had never taken BC). But I agree that things like changing birth control brands along with the antibiotics for chlamydia might have messed up my chemistry and resulted in this situation. Stress also probably was a factor.
Has anyone heard of cytolytic vaginosis? Apparently this is an overgrowth of lactobacilli, a "good" bacteria that is found in things like yogurt and usually keeps the vagina healthy.
This is where I found this info: http://answers.google.com/answers/threadview?id=610955
Along with this article:
The symptoms are similar to a bacterial infection, but it's a different kind of bacteria, so it isn't fixed by the medicine that treats a bacterial infection. I guess that the medicine for bacterial infections doesn't help because that medicine is supposed to reinforce the "good" bacteria (but if the problem is too much good bacteria then it's no help!!)... I've been treated for both yeast and bacteria twice each since this started and it didn't help at all.
So I was thinking that an overgrowth of lactobactilli could explain why the bacterial infection medicine didn't help me, why the discharge smells a bit sour (like yogurt), and why my test came up "sort-of" positive for bacteria.
I think it would be easy for a busy gynecologist to get a wrong diagnosis since the symptoms seem to be very similar to a bacterial infection and apparently there isn't much research on the overgrowth of lactobactilli. Apparently many gynecologists don't believe that this is a real condition at all (?!?!).... maybe because they can't prescribe anything for it; the solution is a sitz bath (putting baking soda in about 2 inches of bathwater) or douching with baking soda to make the pH of the vagina more alkaline and get rid of the overgrowth of bacteria. You're supposed to do the bath 2 or 3 times a week until it's better, then maybe once a week to keep it regular.
It doesn't mention the fissures but I wonder if they are some kind of weird side-effect?? or caused by something different altogether??
Anyway, it can't hurt to try the sitz baths so that's going to be my next step. I'll let you know if it does any good!! It takes a few weeks maybe. I think the trick to getting rid of the problem will be balancing the vaginal pH...but I'm no professional... :P
If you look at the above article and think it sounds similar to your symptoms, maybe when you see the doctor you can ask about cytolytic vaginosis and see if s/he thinks it exists! :)
I started having an itchy-irritating thing about two months ago. At first I thought it might be just because I had taken a bubbly bath and since I have very sensitive skin it could have irritated me. So I simply waited and applied gentle perfume-free soothing cream, which did absolutely nothing. I started to worry after 2 weeks because nothing seemed to change...and when I had intercourse it would burn. Then the symptoms seemed to disappear a little: if I did not scratch it was way better after. I didn't feel any discomfort the next time I had intercourse. But I never completely got rid of my irritation...supposing I had a yeast infection I used natural yogurt based pills that usually cure these infections but unfortunately, they didn't. So I went to see my doctor, who told me I had a yeast infection and gave me a canester cream to apply. I started using it today and really hope this will be over in a week!! It's physically and mentally very frustrating...
I just wanted to say thank you!! I developed a fissure for the first time about 2 weeks ago and I thought it was just irritation due to shaving. It also developed shortly after I had (protected) sex with a new partner. Of course I freaked out and thought it was herpes even though it didn't look anything like herpes and like I said, we used protection. For 2 weeks I tried neosporin, ******, diaper rash ointment, and anything else I could think of. Then I found this forum and I'm so glad there are others out there with this problem. Not that I would wish this on anyone but I'm glad I could find some help. After reading the posts I went to the store last night and got yeast infection med, yogurt and hydrocortizone cream. It's been 24 hours and the fissure is almost closed completly, no longer red and pain free!
I have had plenty of yeast infections in the past and this has never happened which is why I didn't think thats what it could be. I'm just so thankful that people here have posted what worked for them. I'm not on birth control pills, I eat like **** but I've been eating like **** forever. It must have been something with this new guy I'm seeing. And if thats the case I'm breaking it off because I cannot deal with this! And we are not that serious yet!
Went to my gyno last week and she said everything looked good. She is changing my BC to see if that makes any difference. She told me that a lot of girls on ortho-lo have negative side effects. My fissures lasted a long time, but are gone now. They left scars....o joy. But seriously it could be worse. The best thing I found to heal them was the steroid cream. Having pain free intercourse and no irritation while showering, urinating, or wiping. Everything is back to normal. I am so grateful and wish you guys the best of luck in finding what is right for you.
Im 18 and have these fissures. It seems the range from 20-27 years is most common, but I guess not limited to. I've had these for a mere 2 weeks and isnt as severe as many of you, but its a pain nonetheless ad it stings. I went to the doctor where she gave me cream for a yeast infection and it took care of the itching and most of the pain, but the little cuts keep glaring at me from down there. Really frustrating. Anyone ?? Does the hydrocortizone cream really work?
This message is to tell you all about a disease that causes itching, inflammation, and painful vaginal fissures. If injury and other STD's have been ruled out, it is the only disease other than herpes that would cause this combination of symptom. The problem is the medical community knows little about it. They think it is so rare, they don't even look for it. They just assume everyone has herpes or some type of irratation. The name of the disease is Behcet's Syndrome A.K.A. Behcet's Disease (whether you want it to be BS or BD for short is your choice), it is ********, but it is not rare, it affects people of all races. It is known around the world, but in America, it has been largely ignored until a recent blood test the FDA approved for the purpose of accurately diagnosing herpes. This test has now become the first line of defense for people with BD.
The first symptoms of BD is the fissures, over time you may develop digestive system symptoms, fatigue, cranker sores in your mouth, and muscle or joint pain. It is very important to see an eye doctor regularly because eye inflammation is the last of the symptoms to delevep and can cause serious damage if not treated properly. From a few years, to ten years down the road from the time you first showed symptoms the eye symptoms develop. Most people are not being diagnosed until eye symptoms accure which is really way too late to start treatment. If we can get this out there, people can teach their doctors about this and start helping eachother. It's really important that all of you talk to your doctor about Behcet's Syndrome, also you can find out more information by going to the American Behcet's Disease Association web form and read some of the comments posted there. The lastest research shows BD is not related to any particular genes, but it does seem to be triggered by something in the eviroment, often in people who have other types of auto immune disorders in their family. That is what BD is, an auto immune disorder and stress is often the trigger for attacks. It is not contagious and it does not normally run in families. People will have remissions when they are fine, and flares when they can delevop inflammation, and sores or fissures. At the moment, doctors will tell your their literture says only about 20,000 people in America have BD, but I know from personal experience that there are new BD suffers still being diagnosed everyday. The numbers are changing because women are sick of being embarrased and are going in and showing everything and fighting back when they doctors say it's nothing because now that they know it's not herpes and it's not their fault. The are learning about BD and finally, how to stay health. Remember above all, stress is the worst enemy for someone with Behcet's disease. There are many things you can do to stay healthy, it's just a matter of having the information to fight back. The very best to all of you.
I just wanted to say yeast infections are a very common symptom of BD because the immune system is messed up, I recommend digestive advantage crohn's and colitis, or one of their milder products if your problem is not that bad, to regulate yourselves. Also hydrocortizone cream will help calm vaginal inflammation. For those of you who have been told your fissures are being caused by yeast, I beg you to question this even if you are afraid to believe it could be something else. It is very important that you know for sure.
Unprotected sex with anyone, stress, and birth control pills are the most common triggers of BD flares but that alone will not stop it's progression. You must find someone who will believe you as soon as possible.
I am 54 years old and I have suffered from vaginal fissures for over 25 years. I don't have sex with my husband of 36 years any more as I can't stick the pain of the fissures. We have not had sex for nearly 2 years, he has been my only partner, in fact we were both virgins and have never been with anyone else. Like you all I have used the pill, but only to regulate my periods. I had an hysterecomy when I was 34 so I can't say it is the pill causing it now. I still get the tears even though I have given up on sex, I have had all the tests going and they all come back negative. I am well past the menopause so it could be lack of hormones. My GP has prescribed vaginal hormone cream that I have to use twice weekly and to put some on the outside of my vagina and around my clitoris area as I get splits there too, I have been using this for over 4 months now and I can't say it has made a big difference. Like yourself I have an auto ammune disorder, I also suffer from fybromyalgia and I do have an under active thyroid gland, but I had this problem with fissures before I was ever diagnosed, so I can't see there being a connection there. Like you all I changed to loose fitting cotten briefs, I no longer wash myself with soap down below, I have used for years a non perfumed vaginal wash which I find doesn't burn when washing. I don't bath, I shower and I take the shower head to make sure that I am thoroughly rinsed off. I have also used KY gel to help lubricate and like others I dont know if this helps or causes the problem as I still got very ichy after intercourse.
I was so pleased to find this site as I had never heard of anyone else with this problem before. Reading everyones comments has finally given me hope. I have to visit my GP this afternoon and I will be mentioning this site to her. There just has to be something we all have in common to all be getting this awful complaint. I wish all fellow sufferers out there all the best. Take care.
I have posted here a few times with updates over the past few months.
I hope you are all finding answers to these annoying symptoms.
In review, I have many of the things that you do including:
Fissures (usually one that recurs in the same spot next to my clitoris in a natural skin fold), redness of the vulvar skin that will come and go, occassional fissure near the anal area, and on the perineum. In October, I also began having a yellowish discharge that was sticky, thick, and would not go away.
I was tested numerous times for everything, and I mean everything infectious including yeast, bacteria, fungus, std's, strep-B, etc etc. ALL tests have been negative. My Dr. found elevated white cells in my discharge on 3 occassions, again with no explanation.
Was given a z-pak, no results. Was prescribed Metro-gel which I used for 1.5 months, no results. I was given Clobetasol .05%, which works wonders to clear up any redness/fissures when they occur- I even went for 6 weeks without a "flare up" in November to January.
BUT, they do still occur. During my yearly exam yesterday, my gyn told me that we should probably biopsy the vulva skin to get some answers since we have looked at everything else! I even went to Reproductive Endocrinologist who tested my blood for estrogen levels (normal), TSH levels, progesterone levels, cortisol, etc - again all normal.
My Dr yesterday saw that my cervix is also reddened. My Repro Dr. talked about doing an endometrial biopsy as well (ouch) to see why on earth I have elevated white cells coming out of my uterus. I have a fibroid, but they are not known to cause that. I had one removed 5 years ago that did not cause that.
Anyway, sorry this is long.. Please keep posting your findings. It is crazy that there are no answers. My gyn feels bad that she has no answers, and suggested again the allergy issue.. have i changed shampoo, detergent etc. (no)...
I am going to see a dermatologist on May 13th. Perhaps that is the direction that we all should go, once you get infectious causes ruled out at the gyn?? After all, a skin specialist should (and I mean SHOULD!) be well versed in these things!
I will keep you updated.
Here is another theory:
I saw a dermatologist today and informed him about my now year-long struggle to get treatment for this issue. He looked at me and said it does not look like Lichen Sclerosis at all, in fact he said he thinks it could be related to Herpes type 1. Even though it's not typically a cause of genital issues, he said that Herpes Type 1 can actually sometimes cause fissures and redness, itching.
He suggested that I take Valtrex for a few months to see if the flare ups stop.
I am also having a biopsy tomorrow at my gyn. We'll see what happens.
An autoimmune disease called Behcet's Syndrome's initial symptoms closely resemble the herpes virus, causing vaginal sores, cuts, fissures, folliculitis and or inflammation in the genital area. Other symptoms develop many years later. It is different in everyone who has it. . Your immune system is in over drive. It is an autoimmune disorder caused by enviromental damage to your immune system. It could get better or worse, depending on how well you take care of yourselves and how well you are treated.
. My symptoms started at age fifteen with itching, inflammation, then folliculitis (ingrown hairs), then cuts all over the vagina from time to time. It is different for everyone who has it. Some people just have inflammation where others may get cuts, or sores aswell. Folliculitis is a type of acne and is very common in Behcet's and occurs during or before a "flare" and can be on the face or anywhere. Chronic yeast infections and BV come hand and hand with Behcet's because it is a immune system disorder that weakens the immune system because the immune system is working in over drive. You are now allergic to more things. It is not contagious and it doesn't run in families. Researchers around the world think it is triggered by strep throat or from other enviromental causes. It has been proven to not be genetic. Gential to Gential contact will cause a reaction "flare" in these people, so will a common illness, injury, or stress. It is very important for people who have this to rest often, use condoms, and take good care of themselves to avoid flares. They will also need medication like steriods and or immune suppressants, depending on their case. Someone who needs a lot of medication to start, might not need that much with a little time. Common symptoms later in the disease, if it goes untreated, are digestive symptoms, bowel inflammation, possible bladder inflammation that feels like a bladder infection, arthritis, fibromyalga, and very late in the disease serious eye inflammation and possibly central nervous system involvement. People rarely die from this illness, the main thing a person has to be worried about is quality of life. That why you want to be proactive, not scared. This disease can be managed if properly treated.
For about ten years I had the gential symptoms and was sure it was herpes. My doctors said there was nothing else it could be wvwn though all my cultures came back negative and never mentioned it again. None of the medication for herpes had ever helped me and I also noticed my husband never got sick from me. The inflammation was the worst and I was using hydrocortisone on my own by then for some relief.
I started having other symptoms like irritable bowel syndrome and fatigue. Then after I had two children my symptoms got a lot worse. FIbromyalga, Interstitial Cystitis, Epi-scleritis (inflammation of the small blood vessels in my eyes), and things like that. My immune system was attacking my body. It took years before I had enough symptoms and saw enough doctors to start getting it treated. They are still not totally sure what is wrong with me. There is a lot of misconceptions about these things because they are thought to be rare. The truth is that they are just highly under treated in the United States. They think I have something called Behcet's Syndrome, the world's oldest known disease. It is an autoimmune disease that can be very mild or more severe. It is hard to tell what it is unless you are able to get enough of the symptoms well documented and you have just the right symptoms even though your symptoms might be totally different than everyone else's symptoms. The stress in your life plays a big role in how bad your flares will be.
There are no tests that can tell if you have Behcet's. It is based on symptoms only. Vaginal symptoms that look like herpes (herpes causes inflammation, cuts, or sores), canker sores in the mouth at least three times per year, and inflammation in the blood vessels in the eyes. It can take years for enough of the symptoms to show up and they usually don't show up at the same time. You really need to fight for answers. Go to the American Behcet's Association for more information, but remember when you are there, those are the worst cases, most people with Behcet's don't have it that severe and do well with treatment.
I don't have an offical Behcet's Syndrome diagnosis yet is because I have yet to have any serious organ damage documented, which can actually be really hard to do. Not everyone has to wait as long as I have been waiting. A lot of the time small damage from tissue and blood vessel inflammation can not be seen by any tests. Often, surgery is required for them to find vasculitis. That is how they found vasculitis in me during surgery looking for endometriosis. If it wasn't for that I wouldn't still be waiting to start treatment. I am lucky because my symptoms have not been as serious as some, but it has also been a big problem because I have been suffering greatly and not gotten the help I needed many times. Most of my symptoms cannot be seen and it's been very hard to prove that something is wrong. I have had to fight back against people thinking this was all in my mind. I have had to find a medical cause for my symptoms on my own and a lot of time was wasted because it came on over a long period of time. Only one of the hundreds of doctors I've seen had ever even heard of Behcet's Syndrome, he was a GI doctor. They do not look for it. One doctor, my Rheumatologist, told me he didn't even believe it existed. This disease is very real. It's treated all over the world, but most American doctors no nothing about it. They do not know the symptoms or how to treat it. They rely on old information and still think it only happens to people in the middle east even though research has shown it happens because something has damaged the immune system and not because of your genes. It does not run in families and it is not always a text book case. You would think it would show up on MRI's, but often with Behcet't it's the very smallest blood vessels involved, and those don't show up most of the time. It takes a big incident for them to see it and prove that you have it . American doctors don't want to be liable for treating anything until they have enough medical proof to be sure that you require the treatment. It is not easy to get that far. For us, it is more important to get the treatment before something bad happens, not afterwards. I have all the symptoms and I am being treated with immune suppressants and I have had several doctors diagnosis my symptoms as Behcet's Syndrome, but with this disease the ultimate decision is up to the Rheumatologist. My rheumatologist says it shouldn't matter if I have an official diagnosis as long as it is being treated. He says he is more concerned right now that I will lose my ability to qualify for insurance once I have a diagnosis. One thing to look for as far as tests are concern would be a a slighly high white blood cell count...your nerophils mainly, but others white cells also. It could mean just that you aren't feeling well at the time to have it be a little high, but if you can gather your records and show that you have an on going problem with a high white blood cell count, that would be a first step in showing your doctors something is not normal.
One more thing....I've seen over twenty GYN's as well as other doctors and I did my own research on the possible causes for the for the cuts some people with Behcet's Syndrome get. I can tell you from what I have learned that these symptoms are not caused by any type of HPV. They also would not be caused by Herpes 1 in people with no other apparent serious health problems like HIV. Bacterial Vaginosis and Yeast Infections may cause inflammation and small cracks in the folds of the skin, they do not cause cuts in center areas of the skin, and they heal without reoccurance once the infection is treated. An anal fissure can sometimes occur in the center area of the pernium (between the front and back) because of straining or constipation. Unless you have developed more than one cut at a time at some point, or have developed cuts in different areas of the genitals other than the pernium, a pernium cut may just be a fissure. An anal fissure would be a single cut that keeps happening in the same place over and over again on in the center of the pernium. An anal fissure is caused by repeatedly tearing open the thin skin in that area from straining. Not like the small cuts that just happen for no reason the way they happen with the Herpes Simplex Virus and Behcet's Syndrome. I have one cut the comes back over and over again on my pernium area, but I also get cuts in other areas from time to time aswell. All of my hormone levels are normal. Those are the only things I've found that could be the possible causes for these symptoms. Just having the inflammation is a symptom, not everyone get's the little cuts. Not everyone get's full blown Behcet's either. If you take good care of yourself, you can do really well.
I wanted to add I have herpes 1. Just about everyone has it. It should not be causing your symptoms unless something is wrong with your immune system. I had the new herpes blood test that showed I have herpes 1 but not herpes 2. We started doing culture after culture of my cuts trying to see if it was herpes 1. I have never had a culture come back positive for anything. It took a long time to prove it, but we have finally established my cuts are not caused by herpes 1. Herpes 1 is much milder than herpes 2 and should not be causing ongoing vaginal symptoms. If it is, it still says something is wrong with your immune system. The white blood cells were the only thing they could find abnormal with my tests. They found them in my blood and in my cultures every time I wasn't feeling good. For years they would say, well that's because you're not feeling well today. Until I gathered 15 years of records showing that I am not feeling well on a regular basis, that was the first clue.
Thanks for the info. I do know that I have other auto-immune issues because I lost my first and only child 4 years ago. She was stillborn, only because my water broke too soon and my umbilical cord prolapsed after 2 weeks on bedrest. She died only hours before birth. Afterwards, I was diagnosed with Antiphospholipid Antibody syndrome, a blood clotting disorder that is treatable in pregnancy with low-dose heparin injections. A few months later, I was also found to have anti-Thyroid antibodies (Hashimoto's syndrome). The Dr. told me that due to these conditions (I don't take any meds because my thyroid levels are normal and I am asymptomatic) I would have a tendency to develop other auto-immune conditions. I know that I have inflammatory issues in my body- because whenever I get a massage I feel bruised- a typical physical symptom of inflammation. My mother has been diagnosed with M.S. and/or Fibromyalgia.
I myself am in o rush to get any "official" diagnois for the reasons your Dr. stated. I do not want issues with getting/keeping health insurance in this country at any time.
I have had much improvement over the last 2 months with my vulvar symptoms by taking something my RE recommended. It's called 4Life Transfer Factor. They have a website that explains what it is- basically it's immune factors from cows colostrum and eggs, and it boosts your body's ability to re-build/re-focus it's own screwed up immune responses. Auto-immunity simply means that your body is sometimes getting confused and is attacking healthy cells instead of real invaders. It turns on itself.
These supplements are a good tool to assist your own immune system in gaining contol over what to identify as legitimate issues and your own healthy cells.
So far, while I have still had symptoms, they have more than 50% reduced in only a short time. I do not itch, the discharge I was getting that was very profuse and full of white cells at the dr office has decreased by 75%. The fissures I used to get 2-3 times a month are down to once a month and are not as raw, they heal fast as well.
I had my biopsy results come back yesterday. Everything was normal. They looked for over 14 different things. Negative.
It did however, show "dermatitis" which is of course your generic term for inflammation.
So I am starting a course of intravaginal Clindamycin and hydrocortizone suppositories. It's the protocol treatment for DIV (Desquamative Inflammatory Vaginitis).
I am under ALOT of stress and my body has taken a beating over the last four years with losing my baby girl, the depression that followed, the stress of learning how to incorporate this loss into my "new" sense of normal etc.. Not to mention many other things that are happening in my life that alot of people could never inagine dealing with.
So I know I am stressed and that my immune system would naturally be compromised.
I am going to take my RE's advice and get serious about exercising every day like I did when I was in my mid-20's. (I am about to turn 38).
I have had him test my blood (WBC counts, cortisol, hormones, viruses, etc). Everything is normal except for the Herpes 1 that everyone has, and I also have EBV (also very common) and Herpes 6 (HHV-6), also very common and does not cause outward symptoms.
My RE has a theory that when you have all these viruses in your body (as most of us do), they can activate internally with stress. He believes that many auto-immune conditions are brought on my the body's attempts to keep all these viruses under control. Since that can be a task, the viral load causes your body to turn on itself. They are proving now that M.S. and Fibromyalgia are caused by a virus issue (EBV, specifically). Thats why so many people with those disorders respond to anti-viral therapy (acyclovir).
Anyway, I'm happy that my biopsy came back the way it did. I will see how the Clindamycin works.. and hopefully the natural supplements will keep helping. I may also do a 3 month round of anti-virals as well, but I'm waiting on that.
Will keep updating and reading here.
I'm having the same problem many others are experiencing. I'm 33 and in fairly good health but borderline overweight/average weight. I'm sure it's not herpes. I usually get them just below the vagina and sometimes in the folds of the labia. The cuts below the vagina are on either side, like mirror-images (maybe from the skin rubbing). I've noticed that I've gained some weight down there (inner thighs) in the last couple of years. When I get them in the folds of the labia and I itch it, that one side of the labia will become swollen and hard. I can usually alleviate it by taking a warm bath and the swelling will go down in a few hours/overnight. I find hydro cortisone cream works well on them. Any itching I experience is completely superficial (external), I have no discharge. It does burn, though (what you'd expect from a cut). They usually go away after a couple of days if I don't use any cream. They are just very uncomfortable. I feel most of the discomfort at night or in the morning. I am on birth control (Levora), off and on. I just started again a month ago. I skipped my period my last cycle and I do have/had yeast infections but honestly, I don't really ever know when I do because they are so mild. I was told once by my gyno that she couldn't do an exam because I was having a yeast infection (I had no idea). It's embarrassing - one should know when one's having a yeast infection, right?
I'm wondering if it's just chaffing, heat-related, and/or weight related.
Weight could cause chaffing on your inner thighs, but it would not cause vaginal symptoms. The on-going problems with yeast infections are the first clue that something is going on with your immune system. The vaginal symptoms sound like Behcet's Disease. It will not be easy to prove it, if that is what you have. There are no blood tests for this disease. It is diagnosed by symptoms only. I can take up to twenty years to have all the symptoms. It is also possible that you can get this under control and never develop other symptoms. A Rheumatologist is the type of doctor who could help you. They treat inflammatory disorders like this one. Doctors in America have a hard time with this because they have been told this is a middle eastern disease that only affects people with those genes, but it has been found that American and European patients with this disease normally don't have those genes and their symptoms are often milder than the middle eastern disease. It is now thought that Behcet's is actually a virus that affects the vunerable, namely people without proper nutrition and people who's immune system was compromised by their enviroment. Vaccines are tainted with animal viruses so they also could be a source of our problem. Behcet's Disease didn't show up in America until after the first Polio vaccines were given out. Read about the Polio vaccine failure to better understand how vaccines are made, and what they contain, and how they went about fixing the problem when they realized the vaccine was spreading Polio rather than cure it. One of the most popular viruses contained in these shots was HIV, but to this day they also contain other monkey viruses like Echo, Herpes 6,7,8, Epstein Bar, Chronic Fatigue Syndrome, and Aseptic Mennigitis as well as many other new rare dieases that I can't recall off hand. They have not yet found a way to make vaccines that aren't tainted with animal viruses because the vaccines need to be grown in animal organs.
The bottome line is that something has damaged your immune system. You can get it under control with medication, vitamins, and healthly diet, exercise, and the number one most important thing is to find ways to avoid stress and relieve stress in your life. Stress it going to cause what would have been a mild flare to turn into a monster. If you don't learn to control this now, eventually it will control you.
My apologies for being so blunt, trac777, but I've read all of your posts here and many on several other topics and you seem to think everyone could possibly have Behcet's. If Behcet's is, indeed, so rare as you claim then why are you proposing so many women have this disease?
I believe this discussion board is mostly for people who are not professionals in the medical field. These women are those who are frustrated with repeated misdiagnoses or those who feel betrayed and cast aside by those whom they trusted to give them reliable diagnoses and treatments (frankly, the thought of a doctor repeatedly misdiagnosing me makes me very uncomfortable in his/her abilities and I would probably seek the advice of another). You repeatedly post that these symptoms are those of Behcet's. Any person with rational thought could tell you that these are also the symptoms of many other diseases - that's why many of these women are here.
Unless you are a professional in the medical field could you please refrain from diagnosing practically every woman on here and other topics with Behcet's?
After some more searching on these symptoms after my initial post, and looking at pictures of vulva eczema and researching it, I feel safer in assuming that is what I am suffering from (and not a rare disorder). It makes sense to me because I have had skin rashes and ezcema on other parts of my body before. I guess I wasn't aware that eczema was even possible on the vulva but I guess it makes sense because it is skin.
At the risk of the pot calling the kettle black, I am going to assume some of these other women are suffering from vulva eczema, as well. However, it is definitely possible that there are other disorders/diseases/infections some of these women do have. To me, vulva eczema makes more sense than a rare disorder because in many cases, the ob/gyn is confounded by what they are being described, as far as symptoms and are only testing them for those diseases they know most about (i.e., herpes, HPV, yeast infections). It seems that 95% of these women in this topic alone have had tests for these such diseases come back negative. What the ob/gyn is not so familiar with are dermatological issues, hence, the confusion, possibly.
A message to these women who are frustrated with their health professionals could be, go to someone who specializes in dermatology. I understand many women today probably have health insurance issues and can't afford to visit a dermatologist (me included) but maybe at least talking to one's ob/gyn about the possibility of the symptoms being skin related.
My point of this whole post is to ask you, trac777, could you be more careful in your wording when you diagnose practically every women on here that they have Behcet's? - one would think you were advertising for the disease. Are you in the marketing industry?
I have sympathy for you and all your suffering from Behcet's, but I don't feel you are really doing anyone here or on other posts any productive good with your posts. Could you please just be more supportive to those who are frustrated and cheer them on instead of making it sound like the sky is falling on them and they are forever pinned in the corner by a rare disease. How about encouraging them to go to back to their doctor and discuss other possible causes (eczema, lichens or Behcet's) or go to someone else who will listen? Instead, you seem to have already diagnosed many of these women with Behcet's over the internet.
I'm not trying to flame here but I guess I am frustrated by discussion boards everywhere online filled with people like trac777, who seems to stop discussion cold in its tracks. I've read others posts by you, trac777, and it seems, in my opinion, that you spend way too much time on this discussion board and seem to know what is going on with people you have never met and and, at times, seem to pass on judgment without knowing the full story.
I posted originally because I wanted feedback from people who are having the same symptoms. I assume a post would go something like, "yes, I have exactly what your talking about. I talked to my doctor and he told me it's not a yeast infection but possibly a skin issue", etc, etc, etc.... Instead, I come back today and feel like I've been spammed by ***@****.
I agree, Rebamae.
I think everyone here on these forums should be very careful with making diagnosis. Even the actual professionals who post to help people on forums are not really certain,because they have not examined the individual.
I had an online Doc tell me that his opinion (after reading my symptoms) was that I had Vaginal Atrophy, which is a syndrome that occurs mostly in pre-menapausal women and post menapausal women.
I also agree, that once people have seen an OB numerous times, look up some good dermatologists in your area. I went to one, but he thought this may be herpes (even though I told him I am negative for genital herpes). He prescribed Valtrex, but I did not take it.
Better yet, look up Vulvavaginal Specialists! I did that and found a few in my area who practice through the Mayo clinic. But alas, I have Aetna insurance so I am not covered to see them!!! There is an actual Vulva CLINIC here in Arizona!!! I wish I could afford to be seen.
Anyway, I do want to ask the ladies here to look up DIV (Desquamative Inflammatory Vaginitis). While it is not as common as other vaginal/vulva infections, its' symptoms match the ones described here in many cases. Once you have been tested for every infectious organism (yeast, bacteria, fungus, etc) as well as other diseases (genital herpes, Chlamidia, syphilis etc), DIV is definately a possibility.
It's symptoms are pronounced discharge, white cell elevation, fissures, redness, itching, (with the absence of infectious causes).
Sometimes, an initial allergic reaction (down there) can escalate to this condition. I think that may have been what happened to me.
I changed detergents last year about a month before my symptoms started. I changed back to the old detergent, but continued to have problems.
After a YEAR of tests and a biopsy which was negative (but showed dermatitis/inflammation), I just finished a 14 day course of Clindamycin and Hydrocortizoe suppositories. It's been a week since I finished it, and so far so good! I haven't felt this normal in a year!!
So, as a suggestion, DIV is overlooked by alot of professionals. Search online and bring the printouts to your Dr.
Mine was great after also being frustrated that she was not able to help me, I finally brought in the printouts and she immediately wrote the prescriptions.
Best of luck to you all.. and I will continue to update here. I hope I stay symptom free now!!!
I hope you feel better. I think maybe you didn't read my messages clearly. I have never diagnosed anyone with anything. I don't even see how that would be possible. You make it sound like I am handing out medication. I have only given suggestions for the possible cause of problems just as everyone else does here. I have recommended everyone talk to their doctors and discuss the information I have offered to them. I am confident that I have provided helpful information whether it was full of roses or not. I have discussed a multitude of immune disorders and the symptoms of immune disfunction, information which is available at any local library. I am sorry that you find me to be judgemental. I have never judged anyone. It is my hope to help people understand immune disorders and get help for those problems. Immune disorders are not rare. And as far as Behcet's is concerned, how can you think rare means anything when there are people like yourself that do not even want to know the possibilities for their health problems? What harm comes from having information that may help someone get the help they need? I will continue to post messages about these topics with confidence. Even if I had just helped one person over the years, it would have been worth all the effort to me. I have had many people thank me the information I have provided to them and I feel very good about that. You do not need to read anymore of my messages if they make you uncomfortable.
I wanted to add both a rheumatologist and a very good dermatologist are needed to make a diagnosis of Behcet's Disease along with several other types of doctors that can work along with them. A highly qualified doctor will know about this disease if you ask them.
I'm wondering if anyone is still around to listen. But I've been reading these posts and it has given me some sense of calm. I just went in to the ob to have my blood test done but the doctor really didn't give me any other possibilities other than, "sometimes peoples symptons are milder than others" and gave me a pamplet which I read online days ago. I've been getting my cuts for years now and I never thought anything of it mainly because it didn't look like a bump or wasn't in clusters and didn't ooze anything.
What brought my attention to the cut was that the same night after working out and nearly working myself to death cut manifested itself, I started to notice a dry patch on my lip. I was nervous that it could be my very first cold sore ever!! My lip peeled and never turned into a sore. I just put on chapstick and drank water. I assume that I was really dehydrated since I hadn't drank any water that whole week. Just coffee and iced tea. I'm thinking both my dry lip and my fissure we brought on by the lack of hydration.
I've been with my boyfriend for a year now and he's never had any symptoms. I've never known any of my previous partners to have an outbreaks although I know this doesn't exempt me. I'm sooooo nervous that I have to wait for these results and I'm praying to God that my news is as good as the rest of you ladies.
I'm just so surprised that the medical community is so slow in addressing this problem. Even web md symptom checker leads to Herpes. It's scary as hell!
All I have to say ladies...is BE YOUR OWN DOCTOR. If you feel something is amiss and you don't feel your doctor is taking the necessary percautions....SEEK A SECOND/THIRD OPINION. Keep an eye on yourself daily/weekly.......make note of any changes.
I had a lesion the doctor never seemed to be concerned with for four years! Then just recently he decided to do a biospy because it "looked funny"....well, low and behold I had carcinoma in-situ in the vulvar area. I had to get a laser biopsy "laser surgery" to get a larger area removed w/ hopes this comes back with good news!
If it had been caught sooner and if the biopsy were done sooner, I may not have had to have the extent of surgery/skin removal I underwent. I will heal and move on......
It's just frustrating when doctor's don't give you the attention you really need and make basic assumptions for the cause of symptoms. I got my test results back and they were negative for everything including herpes. So now I have no clue where to go. If this is something normal and not harmful, then should I leave it alone. Could this develop into something worse? I'm way too busy to run back and forth to the doctor hoping they'll actually determine what's wrong.