Subj: Scared Endometrial Cells On My Pap Test My Mother Died Of Uterine Cancer Age 49!
Date: 8/8/2008 4:34:49 PM Eastern Daylight Time
I have posted a lot on the thyroid disorders forum about my 3 small thyroid nodules that were found by accident in Ocober 2006 on an ultrasound I asked for because I had always thin all of my life and my metabolism got very slow and I had to go on a diet for the first time in my life and my thyroid blood tests have always been normal. I had an FNA on June 24th by a very good endo and I had my samples sent to another pathologist at a top hospital University of Penn for a second opinion and both pathologists didn't see any cancer and the second pathologist says he does recommend clinical follow up for these nodules and another FNA if any of them grow.
I do have some of the ultrasound features that are commonly found with thyroid cancer and The American Association of Clinical Endocrinologists says that FNA is only 95% accurate and I know it's not as easy to get a great sample when the nodules especially my other 2 or this small. So now after almost 2 years of being so afraid about this and reading a lot of scary medical information about thyroid cancer which The National Cancer Institute and The American Thyroid Association reports has increased especially in women, and they are finding an increase in very small papillary thyroid cancers often picked up like mine were by accident on ultrasounds and other imaging tests and communicated with many thyroid cancer survivors some of which had recurrences, and having the thyroid FNA, I now have to have a uterine biopsy on August 28 and my stepmother is taking me to her gynocologist for it.
I had a Pap test on July 24th and a week later my gynocologist calls me and tells me that endometrial cells were found on my Pap test! I asked her what does this mean I'm really scared because my own mother died of uterine cancer on September 1, 1985 in just 4 months after being diagnosed at the age of 49! My gynocologist didn't even tell me or explain that much and all she said was it happens sometimes and that if I was under 40 we could just ignore it, but because I'm 43 she is required to do a biopsy.She said it might have happened because my period had ended 2 days before. But my internist said that it's not very common for this to happen and that other women have Pap tests near the end of their periods but endometrial cells don't usually show up in their Pap tests.
I have also been spotting reddish browinish blood for about 3 or 4 days at a time in between my period off and on since the Fall of 2005 and it happened again in March and April and I have been getting my period since I was 12 and half but I never had any spotting in between my period before. I also have never been pregnant and I have never used birth control pills and I know that these are also risk factors for endometrial uterine cancer.
I have found women on other health boards who also had endometrial cells in their Pap tests and they are really worried too but they didn't say they had any family members especially their mother who had and or died from uterine cancer so I'm doubly afraid! I have found many very good medical studies on great academic medical sites like the journal of Obstetrics and Gynecology and discussions on OBGYN.net where both gynocologists and patients have discussions and there and they say that it's not very common for endometrial cells to show up on Pap tests but it's not rare either especially towards the beginning or end of a woman's period and that it does happen sometimes and most of the time it's not uterine cancer in menstrating women but is more often cancer in postmenapausal women but also if there is other symtoms like vaginal bleeding. But they also say that one of the causes of endometrial cells showing up on Pap tests is because of low or high grade uterine cancer! And there have been medical cases of women between the ages of 40-50 who had normal benign endometrial cells on their Pap test and they had endometrial uterine cancer!
From the time my mother died I have asked 4 different gynocologists and my internist if uterine cancer is genetic and if I have to worry about it, and they all always told me that breast cancer is more commonly genetic but that uterine cancer usually isn't. Yet I spoke with a woman at The American Cancer Society and she said that contrary to what I have been told their document does say family history is a risk factor with uterine cancer. The Women's Cancer Network also says that women with family members who had uterine cancer or more likely to get it and on the web site of the hospital where my mother died they talk about risk factors and they say that women who have family members especially a mother or sister who had uterine cancer or twice as likely to get it!
So I'm very afraid and I wanted to know from anyone on here who has had a uterine endometrial biopsy if it hurts that bad. And I would really appreciate any info and support you have about endometrial cells on Pap tests.
Also my mother had a hysterectomy and chemotherapy and they even tried alternative treatments, and after her hysterectomy and chemotherapy she went into a very short remission for just about a month and came home from the hospital but then her cancer spread to her lungs!
My gynocologist is such an insensitive f**king creep! She called me back a day after I had left 2 messages with her receptionist about getting a transvaginal pelvic ultrasound for some peace of mind before I get the uterine biopsy on August 28 which I had asked her for when she first called me and told me about this. Both The National Cancer Institute and The American Cancer Society say that getting the transvaginal ultrasound first lets the doctor know where exactly to biopsy.
In the Fall of 2005 I went to my regular gynocologist and told her about the spotting in between my period and all she did was give me a regular pelvic exam, then some months later I had the spotting again so I went back to see another woman gynocologist who was there on a day mine wasn't. And I told her about the spotting and that I was really concerned because my mother died of uterine cancer at age 49. All this gyno did was give me a regular pelvic exam and neither could answer me why the spotting is happening, she said I have to come in when it happens which is not easy to do because it skips months and the women gynocologists are not always there when it happens. She said she would be concerned if I was bleeding heavily but who wants to wait until then?!
I went to my internist in February 2006 and told her about the spotting and my concerns and when I told her that the 2 gyno's just gave me a pelvic exam, he said she wanted me to have a transvaginal pelvic exam because there are certain things you can't see with just a regular pelvic exam. So I had it done in October 2006 since the spotting had gone away for a while and it came back normal. But I just read a post on The American Cancer Society's cancer survivor's message board about women who got uterine cancer from tamoxifen to treat their breast cancer and one woman said that she had just a black and white transvaginal ultrasound with no color doppler and they missed her uterine tumor! It made me think about the fact that they didn't use color doppler with my pelvic vaginal ultrasound sound either and that was almost 2 years ago and my spotting in between my period is still going on off and on and now these endometrial cells turned up in my Pap test! It makes me so afraid to think that some tumor or tumors are in my uterus by now!!
Actress Fran Drescher sadly and outrageously was misdiagnosed with uterine cancer for *2* years by 8 different doctors when she was spotting in between her period and had pain after sex, all those doctors just minimized her symtoms as premenopausal and just put her on hormones and never did a biopsy until doctor # 9 did a biopsy and she learned that she had a uterine tumor the size of a walnut! She's really lucky to be here!
My gynocologist was nasty and annoyed with me for calling her office again and wanting some real answers about what this means my stepmother had said to me after my gynocologist first told me about this, that she scared me and didn't really tell me anything about what this is and means.
She said most of the time this is nothing, and that a family history plays a role but there is not a strong genetic link to uterine cancer and yet she still wanted to do a biopsy! She said that I should find another gynocologist and that I should see a psychiatrist! She had the nerve to also bring up how afraid I was when in November 2003 I had ,a Pap test come back showing abnormal cervical cells and I asked The American Cancer Society to send me information on Pap tests and cervical cancer soon after this and it says don't use tampons 2 or 3 days before the test because it effects the results. And I had been using tampons just 2 days before so I'm sure thats what happened there and I had 3 normal follow up Pap tests after until this one. And I said to her I had good reason to be worried then but this new result is different and much more worrisome because the other abnormal test didn't show endometrial cells which are not very common on a Pap test and my mother died of uterine not cervical cancer!
I really do want to find another gynocologist who is nicer but it seems it's really hard to find nice doctors, medical assistants and nurses some of her recptionists and medical assistants are nasty creeps too!. And she is really convenient right across the street and takes both of my insurrances.
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