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granulomatous mastitis User Group
One year after dbl. mastectomy
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
254 members
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One year after dbl. mastectomy

I wanted to let all of you know that after having IGM for a year I got a double mastectomy one year ago on Sunday.  I have since had tissue expanders and silicon implants placed.  This year to commemorate my 1 year "anniversary" I went to a studio cycling class, did pilates and then went stand up paddleboarding.
What a difference a year makes!
I decided very quickly that all the drugs and other treatments were not working for me, so I got the double mastectomy as soon as possible.
I wish you all the best.
5 Comments
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I was also diagnosed with IGM. And I am really considering doing this as well. ..it took almost 5 months to get a diagnosis and only because I happened to come across this and tell my surgeon about it..well it's been a year that I had it on my right breast and now I have it on my left...and Its extremely painfull..do you know if insurance helps pay the mastectomy and reconstruction
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My mastectomy and all breast reconstruction was covered by my insurance.  If you live in the US it is a federal law, you can look it up under
"1998 Federal Breast Reconstruction Law".
Also before I had the reconstruction (but post mastectomy) my breast prostheses were covered by insurance as well, including 6 bras to hold the prostheses.
The 3 separate general anesthesia surgeries in one year was not easy.  But for me it was the right thing to do and I am very happy now - pain free and off all the drugs.
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Thank you!  Yea now I just got to find a good plastic surgeon to do it...I'm fixing to have my 4 th I&D and they put me under anesthesia and I'm ready for this to be over
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Did your insurance cover the procedure?  Only one of my breast is infected right now, did you have GM in both breast?
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I am so thinking about double mastectomy..I have GM on the other breast now...and I want my life back!
Thanks for sharing!
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