primary immune disorders User Group
Newly diagnosed CVID
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Anyone suffering from a primary immune disorder and would like to share stories,gripes,or inspirational stories.I would like to chat.

Founded by agood43 on April 3, 2011
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Newly diagnosed CVID

Hello  - I am 55 years old, female living in Canada.  I will be starting IVig in August. I'm a bit frightened of the potential risks but very hopeful of the expected improvement to fatigue, brain fog, swollen eyes and blurry vision and muscle / joint pain.   Can you tell me what you experienced if you have had IVig?  Thanks - dawn
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Hi Dawn. My nickname is Boxedin. I'm 63 year old female living in UK. I too have been diagnosed with CVID. I began IVIg in (Vigan) August. The first infusion was half the dose to see how I reacted. As everything was ok I had to return the following week for the full dose but will normally be having infusions every three weeks. I can relate to all the symptoms you describe and can't as yet feel any difference. I've been told it takes quite a few treatments before the antibodies mop up all the bad germs etc.

I am new to this site and realise you will already have started treatment. Have you noticed any difference yet?
Boxedin
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