HI! I was dx'd last summer(2010) w/ a vit d def., by my cardiologist. My level was 20. I had been exhausted for 2 yrs prior, & felt broken from the waist down. It felt like the muscles were being ripped off my hips, and my lower back was killing me & hips were on fire. Noone found the problem, until I went to the Cardio for tachycardia and palpitations.(Thank God I went to the cardio dr) anyway, I took the labwork to my new GP & he put me on 50k a wk for 8 wks, w/ follow up bloodwork to be done at 8 wks. After the 2 nd week, I was in excruciating pain, worse than when I started. Is that normal??? I also got very constipated. I was'nt sure if from lortab (for pain) or from the vuit d, but think that I had a small obstruction. It resolved itself, but I thought I was going to die. I went back to my gp, & he did not want to run another vit d test, so I stopped it b/c if noone is going to monitor it, what the heck is the point? Anyway, I decided to take 400 ius daily (started 3 months ago) started to finally feel a little better, but then got tired again, and pain came back, not terrible, but uncomfortable. Anyway, I started back on vit d. I got the liquid, 1k per drop. The 1st night, I did 2k, the 2nd night, 3k...by the 4th night & 5th night, I took 5k ius both nights. The pain became excruciating again. My hips & back & could barley walk. I heard on some sites this is normal, as it is the calcium going back into the bones, but my goodness, I can barley move & the lortab barely touches the pain. If anyone else experienced pain increase after being on vit d, please let me know. I don't know what to do, afraid if I don't take it, I will be exhausted, w/ weak muscles, but if I do take it, I will be in severe pain, & it takes months to go away. I have started this 10 months ago, I can't live on lortab. This is crazy. I am worried as to what is causing the vit d deficiency to start w/. My cardio said my para-thyroid was normal,I am worried about my kidneys being the problem. Also, I noticed I pee a lot on the vit d, and am very, very thirsty, which thirst & frequent urination go hand in hand. Thank you for reading this. I am worried about the pain, I also work, so this is getting to be a big problem, & I can't take the pain that I am getting after taking the vit d.
Yes. The recovery is as painful, if not worse. It dies get better, but takes 3-6 months. Sorry. The good news is that you will get better!
The way I figure, it took years to lose all the calcium and have d levels drop. And because it was so slow the pain wasn't too overwhelming until it reaches a really low point. As we replace d and our bodies repair over a relatively short period of time, it can feel excruciating. Sort of like gorging after a fast. Reversing and the repairing in 6 months what took many years to develop is jarring to the system. Also, because d is actually a hormone that affects every cell and every system in your body, you might feel pain or discomfort everywhere and anywhere in your body for a while. That said, I'm starting my 6th month and really feel the difference. Not 100% yet but well on the way !
Thank You for your response. I am wondering what types of symptoms you had prior to taking the vit d & if you were in pain before the vit d replacement as well as after vit d supplementation. My pain is in the hip & waist & lower back area. I have also developed curvature of the spine, and my posture is awful now. How much vit d were you given, & how much do you take now. Do you have any idea how long you were deficient? I think I was deficient at least 2 & 1/2 yrs before it was found. I have also noticed a sensitivity to sunlight-my eyes burn & can not take the sunlight at all & is it is so painful for my eyes. I am also experiencing a tremendous amount of hair loss & am wondering if you had that problem also, & did it get better when you took the vit d? Are you experiencing pain? did it at some point go away? I have been to my dr so many times, it is ridiculous. I was'nt told that the suplementation would make pain worse. Thanks so much for responding- it is a relief to know someone else can relate to what I am going thru!!!
I'm writing because I had some of your symptoms (see symptom thread) though of course we're all different. I had issues with walking and an MRI showed multiple problems in my lower back. I also had hair loss though not as much as you describe. (I have nodules on my thyroid though my labs are within normal range) My D levels were 20 and after 6-7 months my d levels went up to 41 and many of my symptoms resolved, including hair loss.On the way up to vitamin d levels of 41 I did experience pain and other symptoms which I believe were attributable to the vitamin d itself. However, once I got my dosage right AND my levels rose to over 30 now in the 40s I found I could tolerate vitamin d supplementation just fine. The problem I've had is that my doctors don't seem to know very much about vitamin d, just that I need to get my levels up.(Of course, I'm always going to have back problems and migraine -- the d can't resolve that though it might help).
Oh yes, I was in pain for years before I started d therapy! I think started being deficient and showing symptoms around 7-10 + years ago. I was in single digits at the lowest point, when it was discovered. You should check out the vitamin d deficiency symptoms thread.. My and many other peoples list of symptoms gives you a complete view of the range of symptoms that can occur. I can't remember putting it on my list, but yes, I lost a lot of hair at one point. I'm almost pain free these last 2 weeks... Not quite 100%, but after the past years and months it's heaven!
Copyright 1994-2017MedHelp International.All rights reserved. MedHelp is a division of Aptus Health.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.