So glad I found this group! I was getting tired of maniacally scouring the Internet for information. A little bit of background, I lived a pretty high-stress life through college and grad school and loved it. I had no issues with productivity and enjoyed it. Then I suddenly hit a wall and got "sick" for two weeks. My head was cloudy, headaches constantly, nauseated, achey, but no fever. I went to an urgent care, and the good doctor chalked it up to anxiety. Entirely. I chose not to do medication and just kept on. Finished school (in a cloud), found a job, and found a doctor in my new city. I quickly irritated her asking for constant testing, trying to explain that there were too many physical symptoms for the problem to be solely anxiety.
Fast forward 6 months (2 years into the fog), I finally got her attention when I mentioned that I was having some strange numbness around my mouth on the left side and pulling on my left hand (not full-on claw hand, but close). She tested me for vitamins just to shake me and said that she'd refer me to a neuro, given that MS can present as numbness.
Throughout the whole ordeal, I've developed significant health anxiety. I tend to jump to the extremes to explain everything. So I didn't care for her mention of MS. Anyway, test came back with my D being down around 15 ng/mL. She put me on the standard megadose and didn't say anything else. I kind of brushed it off, thinking that a vitamin deficiency couldn't possible cause all of my problems. BUT, I did take the supplements, and a few weeks later I had a good day! Singular day, but it hadn't happened in a year. I had the realization that she may have actually found my problem.
I went back 12 weeks later for a retest (with protest from my doctor, saying that it was unnecessary), and my levels had jumped up to 58. I was having full good days, and over Christmas had an entire week of 80% my old self. I accepted that I was still going to have bad days. However, lately (1 month after normal reading) I've been having more bad than good again. I'm optimistic that it'll turn around again, but it's difficult not to be discouraged. I'm 24, and I can't wait to get back to feeling like I am.
What is worrying me now are these strange nerve issues:
* An "almost numbness" on the left-side of my face. Not entirely lacking of feeling and no lack of muscular control, but definitely tingly.
* Nerve pain down my left arm (sometimes tingly, sometimes shooting). This usually coincides with pain between my shoulder blades.
* Perceived weakness in my left leg. It's as strong as always, but just feels...odd.
I've dealt with them throughout the whole thing, but recently they've been a little more persistent. I'm terrified of something progressive outside of the deficiency. My eyes are fine, my balance is fine, no weakness, speech is fine, just abnormal feelings. I've decided to give it another few months (I've seen that it could take 6 months at normal levels to feel "normal" again) before approaching the doctor for a neuro appointment. But I would love some reassurance that other people have experienced similar symptoms. Before the deficiency, I never had these problems. There have been a host of other symptoms, but I'm trying to compartmentalize.