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recovery after vitamin D deficiency User Group
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Feel free to tell your story,Let's hear your experience.

Founded by bisan on February 15, 2010
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Updates

Hey everyone!
I thought it might be a good idea to have a thread solely about updates on peoples progress. We with vdd need all the good news we can get!

I started out d therapy in November 2010. I jumped right in with 10,000 iu/ day. Starting level was 9 ng/ml. Retest was done in February and am now 38. I reduced my dose to 5000iu/day. I'm having longer periods of time when I feel sooo much better ( hours at a time)! I still have some symptoms, but, not as constant and my recovery times are muuuuch better. I can totally see the light at the end of the tunnel and think I'll be having a pain free summer!
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40 Comments
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1536712_tn?1294046901
Great idea, Seattleanne! :)

I started taking D3 in mid December 2010. I started at 2400 IUs daily, after a few weeks i upped to about 5000. In january I upped it further, to about 7400. After a while I felt that it was too much for me, and lowered my dose back to 5000 IUs.
Since late january I've been using a UV-bed for 5-7 mins. twice a week.

Starting level was 31 nmol/L (about 13 ng/ml).

Retest in march - I am now at 141 nmol/L (about 56 ng/ml)!
I then reduced to 2400 IUs daily, and will soon reduce to 2000 IUs, and 1000 on days I visit the UV-bed (and when summer comes I guess 1000 will be fine every day).

Recently I've felt some actual improvement - until now I've had good and bad days as before, but I do believe that the worst days have gotten gradually less horrible.. :p
During the past few weeks I actually have had periods of some hours where I felt as good as 'normal'! :) I also think that the bad days are less bad, as I said, and that good days come around more often.

I can't say that many of my symptoms have disappeared, but I'm waiting for it to happen :)
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Avatar_f_tn
My starting level was 20 nmol/L (about 8ng/ml).

I started Vit D3 in early January 2011 - went quickly to 10k IUs every day. Had a retest early Feb and was up to 109 nmol/L (about 45ng/ml).

I keep a score every day of how I am feeling, with 10/10 being the worst of the symptoms and 0/10 meaning no symptoms.

The good news is that for the last 3 weeks, my symptoms have mainly been in the 2-3/10 range. I am stiff and weak and achey (achy) in the morning but I have been walking for 1-2 hours a day, doing aerobic exercise for 1 hour, running round the park and cycling. I have also had less brain fog. The most amazing thing is that I am now due my period but have not had a flare up and my PMS symptoms (which were off the scale) must be reduced by 80%. Extraordinary!

This period of near remission has coincided with lovely spring weather here in London and I am absolutely convinced that this is an enormous factor in this strange condition. I say to my husband that if he wants to know how I am feeling, just look out of the window!

I have tried to lower my dosage of Vit D3 from 10k to 5k but my symptoms get much worse immediately so I think 10k is right for me at the moment.
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Avatar_f_tn
Great idea, Seattleanne. I start with a vitamin D level of 20 ng/ml at the end of May, 2010 and tons of symptoms as described in the symptom thread. I began on doses of 50,000 IUs D2 twice weekly and experienced horrible side effects (5 of those listed on the package insert). I stopped taking D, joined the Forum, and then began taking D3 gel caps. I started with 2000 IUs a day but my D levels only went up to 27 in early July 2010 and then down to 24 in late July 2010. So, I then upped my dose to 3400 IUs taken 3 times daily to maintain a steady state and by October 15 by levels had reached 30.6 and I was starting to feel a bit better. I then upped my dose to 4400 IUs and the improvement in my symptoms (after an initial problem of bone/joint/nerve dysfunction/pain) continued. By December my D levels hit 41.0 ng/ml and I was feeling dramatic improvement with most symptoms resolved or resolving. Also, I should add that my blood calcium levels which had risen to 10..4 at the end of May 2010 were now down to 9.3. At present, I'm advised by two physicians to stay on my dose of 4400 IUs; however, my instincts tell me I should up it to 5400 IUs so I may insist on a blood test earlier than July. Since I feel better in direct relationship to the increase in my D levels I'd like to get into the 60s or 70s.

Of course, I still have "issues" which I believe are probably unrelated to vitamin D. I'm healing from a pinched nerve in my back -- the D, I believe helped in this recovery, but I'm not 100%. However, I'm back at the gym 5-6 days per week and trying to gradually increase my walking. I no longer use a cane. Also, I still have migraine and it remains TBD if the vitamin D is reducing their frequency.
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Avatar_f_tn
Phyllis: I too still get migraine. I thought at first that they were going away at last, but they returned 1-2 months ago. Like you, I'm waiting to see if they are actually reduced in frequency. I'm pretty sure they have decreased in intensity and duration though.

So latest update for me is: I'm experiencing almost no bone pain, still. However, I'm getting my butt kicked by some heavy duty depression and food cravings. Not sure what's going on there. I did reduce the amount of d I was taking. Maybe I did so too early? Any thoughts?
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Avatar_f_tn
As to migraine, I hope mine had disappeared too but they have returned. It's raining a lot in NYC and the weather affects my migraines as do certain food triggers so it's too early for me to comment on whether anything about them has changed. Hey, vitamin D can't cure everything!!!!

Well, I think that vitamin D is a neurohormone and as such can influence mood (and possibly food cravings). Again it would be interesting if scientists investigated the effect of vitamin D on serotonin production etc in the brain -- but since it's not a Big Pharma drug that's unlikely. I've noticed that when I up my D dose it makes me feel kind of up almost high (as it does another friend of mine) so I imagine that decreasing it could have the opposite effect. I'd like to up my dose from 4400 IUs to 5400 IUs but the physicians want me to hold off doing so until my next blood test in June. In the absence of data, yes, based on my experience I think vitamin D might influence mood and possibly food cravings. Someone should study this.
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1156694_tn?1265213626
Good thread to start.
Found out I was VDD in January 2010.  My level was 11ng/ml  ( I asked for the test, but my MD was just humoring me.  He sure was surprised by the result)  I was placed on 50,000IU of the rx D2.  
April 2010 level was 36ng/ml and I was feeling about 50% better. (still on 50,000IUD2)
August 2010 had me at 40ng/ml.  Not much progress with level or symtoms (symptoms). (On 50,000IU D2 and we added 2000IU of the D3
November 2010 level was 53mg/ml.  Probably 75% better overall with my symptoms (continued on 50,000IU D2 and 2000IU of D3)
February 2011 Level is 57ng/ml  Holding steady on improvement. Doctor takes me off of the 50,000IU D2 and has me stay on the 2000IU.
I did catch some kind of virus in February and to this day have had difficulties shaking it.
We did check my Vitamin D in March, but it was remaining stable.  My next check will be the end of May.

Symptoms that are gone:
sensitive eyes
ringing or humming in my ears
extreme fatigue
difficulty concentrating

Symptoms that are 50% (or more) better:
blurred vision
seeing things out of the corner of my eye, but when I turn there is nothing unusual
tingling at the end of my nose and in my gums
headaches
migraines
joint pain and morning stiffness
muscle pain
muscle twitching (very rare now)
lower extremity feeling of something crawling on my skin
easily stressed
not as cranky

Little or no change:
off balance feeling..like I am on a boat
unconscious movement of one or more toes

Over all I am doing so much better than I was.  Still can't work more than 2 days in a row or I get worn out. (I am in the medical field)
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Avatar_f_tn
Just hit the  5 months (still going) of d therapy and I'm happy to say I'm feeling MUCH better! That being said, last month was a nightmare...
Just when I thought I felt improvement, BAM!, I took what felt like a dive for the worse. A few things contributed to this, I think:
1. I got great test results and per the doctor lowered my d intake by 1/2. (. 10k/day to 5)
2. I've noticed that major or even minor improvement seems to be preceded by a bad spell

So... Lowering d too fast and too soon is a baaad idea!

I'm back on 10k/day and feeling really good consistently for the first time in years!!! Not 100% but I'd say 75-80%!!!
Estimates of 3-6 months to feel improvement seem to be spot on:)
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Avatar_f_tn
Good post, great observations, thanks. I've noticed the same thing that major or minor improvements are always preceded by a bad spell...Also, you've confirmed my instinct that lowering d might be a bad idea. I wonder how to arrive at an adequate maintenance dose? Titrate down very slowly. Or, should therapy at an established dose continue long term?...I'm with you at 75-85% improved, at least at present.
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Avatar_f_tn
Phyllis: good question! I'm thinking the titration approach will be best... And during early summer months would be ideal. (when sun exposure can pick up any slack) once the fall/ winter months I plan on taking no less than 5k/day to maintain good levels. I NEVER will be deficient again :) also it's been shown that higher d levels are as good as a flu shot at preventing flu! So thru flu season I'll be taking 5k+.
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Avatar_m_tn
This is a great thread you started! I am praying to read about somebody who recovered 100%, I'm reaaally getting impatient and frustrated and sad etc..  I've been feeling weak and weird for 7 months now, although I I only discovered I was low late January 2011

Heres my update

October 2010 - Extreme Fatigue and weakness, Head aches, Dizzy Spells, inability to cope, Tingling Fingers and Feet, Sickness, Muscle Twitching, Muscle Pain

December 2010 - Tingling Fingers and Feet Gone 90% though I think it was because of B complex supplements my sister recomended. New symptom appeared; always drowsy!!

January 2011 - Found out I was 63 nmol/L (not too low like the others but I the feeling was still unbearable) Started on 2000 IU per day.

March 2011 - Muscle Pain 100% gone, Muscle Twitching reduced by 50% I think, STIL TIRED AND WEAK

Today - Still lethargic and weak,. I'm very new to the thread that is why I probably don't know much like the others. After 3 months of 2000IU and not feeling much improvement, I worry sometimes that its something else, I hope not,.. my sister said i should wait and see. after all,  thats the only thing wrong that came up in my blood test, everything else was pretty okay..



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Avatar_f_tn
Thanks for posting! At three months you might start feeling a change for the better, but you are likely to still be healing some major stuff and might experience the rollercoaster ups and downs. My fatigue JUST STARTED resolving at 5 months. Do not lower your dose until you are feeling great for several months in a row AND when you do reduce do so slowly over time - that is just my opinion... I lowered after 3 months because my dr. Said to ( after my test results showed improvement ) big big mistake!! I spiraled down for a month until I returned to 10k/ day. My theory on this is that just because the numbers are up for the first time in years doesn't mean your body is fully healed and it's still utilizing more than normal levels to keep healing. Also, because 'vitamin' D is actually a hormone, dropping intake too fast messes up the balance of everything dramatically. Hang in there! Most ppl need to be on d for 6-12 months... And even after normalized 1-2k /day forever is probably wise if you don't get enough sun year round.
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Avatar_m_tn
WOW 5 months and your fatigue is completely gone? :) Extreme fatigue is what actually brings me down because my line of work needs at least 8 hours per day. Some days just 3 hours wipes me out totally, then finishing up the day would be a struggle. After 3 MOnths on 2000 IU, My head aches are almost completely gone. I only get dizzy sometimes from being in front of the computer for hours ( I edit with my PC for work so I'm pretty much glued to it).

Just an insight on how this might have happened to me. May 2010, my office space got renovated! I got really exited to work so I did go to my office from Monday to Sunday for at least 10 hours day for half a year. I hardly got hit by the sun for half a year.

Now my observation is, alot of people don't get hit by the sun too, some even avoid it, so WHY MEEE,.. i wonder if poor diet and stress is a factor because I was really stressed and even skipped some meals if i had to work.
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Avatar_f_tn
Well my guess is that in addition to the six months of no sun, you also live in a region quite far from the equator, in a climate not known for quality sunshine except in a few months in summer- making you susceptible; also that you used sunscreen when outside? Maybe you don't even go outside much at all with your arms and legs bared? Other contributing factors are age, weight, skin type. It takes a very long time to drop to levels low enough to have most symptoms... Once you are on the borderline and continue to drop you get sick more often, start experiencing bouts of tiredness notice more aches and pains...then as you become chronically low and lower you are sick almost as often as you are well, tired to the point of exhaustion, experiencing some of the odder symptoms, torn down by excersise as opposed to being built up.... Etc. We are sort of lucky that it only takes months to recover from what took years to happen. Sort of. Could be that the ppl who don't suffer deficiency symptoms get built up enough by spending lots of time outside every summer.. Or maybe they go tanning in the winter. Or maybe they are just hovering on the right side of asymptomatic and symptomatic.. Who knows?
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Avatar_m_tn
I'm from a tropical country actually, the 6 months in the office for half a year was my guess how something like this could happen, I was locked up editing in a tight sealed room for 10 to 12 hours a day. Thats why its also frustrating how I have been sun bathing for 3 months with little progress. (I'm really thankful for the syptoms (symptoms) that disappeared btw)

Somebody gave me your typical multi vitamins, the one like centrum, is it advisable to take this also? Will it interfere with my D supplements? it has 400 Iu of D in it plus alot more like C E A iron etc..
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Avatar_f_tn
I also take a Centrum-like vitamin, though not Centrum, and for what it's worth my physicians (endocrinologist, thyroid specialist) have said it's okay to take it along with the vitamin D supplements. In my case it just adds 400 IUs more of D3 onto the 4000 IUs of D3 I take daily. I'm also taking calcium and magnesium so I'd check the vitamin to see how much magnesium you'll be getting as too much of that causes diarrhea, which can easily be reversed by cutting back the magnesium. I hope this helps.
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Avatar_f_tn
I agree totally with Phyllis :)
I am sure that sun bathing has helped a lot!
It's the most natural way to get your d after all. Man, if you all in the tropics (lucky you!) are getting deficient, we in the north are in serious $$@t! Lol! So little research has been done on d deficiency.. Though it getting a bit better. I'd love to see a study on stress and d levels. I think there is a connection, but can't prove it.
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Avatar_m_tn
Hey guys, is it true that if you take a bath, you wash away vitamin that you got from the sun? I have been doing some research and stumbled on a couple of readings that talk about it. Although I'm not sure if this is credible, the information would help alot.
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Avatar_f_tn
Well there are conflicting theories and studies on this issue. Take a look at :
http://www.vitamindcouncil.org/newsletter/more-vitamin-d-questions-and-answers.shtml

Scroll down the page and it's the second question asked.

Seems it's inconclusive. I tend to think the truth is somewhere in the middle. D production happens both on the surface and in deeper layers of the skin. So... While washing after sunbathing washes some of it away, it doesn't wash all of it away. Tanning beds have been shown to raise levels here in the US and that simply wouldn't happen if showering/ bathing negated the process. (I use the US as example because we bath almost too often ) If you're up for experimenting, you could just do a pit/groin kind of wash for the 24-48 hours after, but, if you're sunbathing 3 times a week you'd never get a bath lol! Maybe on the weekend(?) OR you could just wait to bath for 12hrs or something. I honestly don't think bathing will hurt...
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Avatar_m_tn
Thanks for the link, the entire site was really helpful. Based on what I have read, I think it is true that you lose vitamin D when you take a bath. Oh well, recovering just got a little bit more complicated than it is already. Thanks for helping me with information, I hope I'm not flooding the forum with tons of questions.
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Avatar_f_tn
That's what the forum is for :)
Yeah, you do lose some with bathing, but not all. Given that you make LOTS while sunbathing allows for loss of a portion. A study of lifeguards showed that they regularly tested at levels of 100... One can assume they both spent time in the water and bathed regularly.
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Avatar_m_tn
I got this from another website, somebody's success / update story, I hope I recover as fast as her. Hope this gives hope to somebody

Patty says:
February 8, 2011 at 4:05 pm

Back in Oct. 2010, I was diagnosed with vit. D deficiency (level was a 17). My endocronologist prescribed me 50,000 IU of D3 a week for 8 weeks. My levels went up to 56 within that time (levels should be 50 or above). I was feeling so much better: more energy, less brain fog, less aches and pains, less irritable, etc. After stopping the megadose of D3, I started taking OTC Vit. D3 (5,000 D3/day, plus multivit. with another 1,000 IU of D3)for about a month. My levels went back down to 30, so Dr. put me back on another Rx of 50,000/week for another 8 weeks. It’s now week 3, and I feel great again. I haven’t felt this good in years! I have been feeling awful/tired for years. I was misdiagnosed with Chronic Fatigue Syndrome back in the 1990s, so I thought it was that for a long time. Another doctor told me it was my diet, so I changed the way I was eating, i.e., less sugar/carbs. At least I know now what the real problem is…thank goodness! Dr. said may have to keep me on the prescrip. for rest of my life. I am ok with that as long as I feel as good as I have been feeling the last few weeks. So for those of you who want success story, I guess mine is. So far, so good.
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Avatar_f_tn
Thanks beebreeze!
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Avatar_f_tn
I thought I'd write an update since my first post.. Well, it's not much of an update because not much has changed, but I want to contribute to keeping this place alive as it's been very helpful, and I find it a little therapeutic after yet another sleepless night..

The last time I wrote something here I was having a good day and was pretty positive about my recovery, and I still am most of the time. The problem is this changes multiple times a day as I feel better or worse.. I don't know if it's like this for anyone else, but the way I feel is very connected to how much vitamin D is in my system. For me the worst parts have always been the headaches and dizzyness, and right now there are three distinct symptoms:

When I take vitamin D, I get a headache. It doesn't matter how much I take, it just affects how long it lasts. If I take, say, more than 2000 IUs, I'll also get the bone pain.

When the D "wears off", the headache disappears and slowly but surely this dizzy feeling comes back, and if I let it go far enough it's accompanied by a very different, "electric" sort of headache.

It seems strange to me that my symptoms should be so dependent on how much D I have taken. The effect is much like that of a painkiller, it's immediate, lasts for a few hours (depending on how much) and then it wears off.. I'm wondering if it's like this for anyone else? I find myself constantly wanting to confirm to myself that it is indeed VDD that's causing all this and it's just taking time..

I much prefer the headaches over the dizzyness, so I keep taking the D. I've figured out I can take a 2400 or 5000 IU pill before going to bed along with some ibuprofen (painkiller), and then I can sleep through most of it and be functional the next day.. It's not what I'd call a good nights sleep but I'll take that over no sleep like this last night.

Sorry for the wall of text, I always end up remembering more things I want to write as I'm still writing.. Wishing a good recovery to all
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1536712_tn?1294046901
Hi!
I can sooo relate to dizziness and headaches - those are the two symptoms bothering me the most lately. Accompanied by numbness/oversensitivity.

Oh well, what I wanted to say is that I have never experienced symptoms as a direct result of taking the D myself, but I guess you are pretty sure that's what it is? Could you try another brand of pills, maybe dry formula (if the ones you take are gel caps)?

Another thought is if you could try getting your D from sun or tanning instead? It is very effective, and you only need 15-20 minutes of good sun (mid-day sun when your shadow is shorter that yourself) to get more than 10 000 IUs of D3.

This recovery sure is loooooong - I'm often demotivated myself, and some days when I'm particularly 'down' and feel really bad, I'm certain that there's something else wrong with me. I think it is important for us to stay positive and believe that we'll be completely healed soon :)

Wishing you a good recovery, too!

9na
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Avatar_f_tn
Yes, I definitely had symptoms (heart palpitations, weird head sensations, bone/muscle pain) in connection with vitamin D, particularly D2 megadoses but also D3. The way I solved the problem was to gradually increase my dose of D3 and to divide my dose (I take it 3 times daily). I gradually worked my way up to 4400 IUs daily, the dose I'm on now. However, as my D levels rise, I also experience bouts of symptoms. (Now that my D levels are in the normal range it's become clear that my migraines and back issues are unrelated to D deficiency).

I think that, although sun exposure might help, you should probably stick with D supplements because, if you're significantly deficient, you'd have to stay in the sun a very long time. (The older you get the longer the sun exposure required to get adequate D).

Good luck to you with your recovery!!!!
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Avatar_f_tn
It's good to know I'm not the only one with the headaches and dizzyness, or always thinking I'm not getting better or that there's something else wrong.. When I catch myself doing that though, I remind myself how much better I feel now (at least on a good day) compared to when I was first diagnosed. The first time I can go through a day and not think about this at all, that's when I'm going to know I'm healed. And when that happens, I promise I'll come back here and write about it just so you'll know it's possible!

I've tried lots of different brands, liquid, gelcaps and dry tablets, so I'm pretty sure it's the D itself that's causing the headaches. I'm not too good at getting exposure to sunlight, so I should probably get better at that. Maybe it'll work better than the supplements. What I don't understand though is how sensitive my body is to the D. I was expecting a slow but somewhat steady improvement, and that has happened.. Overall I'm so much better now than I was half a year ago. But if I stop taking the supplements or take a too low dose for a few days, everything starts coming back, and if I take enough I'll have the headaches. This is strange to me, as I know my blood levels are good. Though it's been 2-3 months now since I had it checked, so maybe it's dropped again since then and I'm sort of hovering on the sufficient/deficient threshold..

For now I'm just going to keep taking enough to keep the symptoms from creeping back, it seems to be working. Hopefully it'll eventually have exorcised this thing out of me..
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Avatar_f_tn
I have an update and it's not good news. My vitamin D level which had risen to 41 on 4400 IUs daily has now crashed down to 28, even though I'm still taking 4400 IUs. (Remember, I'd suggested increasing to 5400 IUs daily and the endo vetoed it). Now, I'm starting on 5400 IUs to try to reclaim the ground I've lost. Fortunately, my symptoms have not returned -- a little jitteriness, back out -- but nothing like what I presented with at 20. I'm planning on having another blood test in a month. One problem I've identified is there's no way of being certain that the batch of vitamins your taking retains the labelled potency since it's an unregulated OTC product. I guess I'll stick with the same natural (not synthetic) brand of D3 since it got me up to 41 before. I've also decided not to go back to the endocrinologist but just stick with the internist and thyroid specialist and basically get my dosing advice from this Forum.
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1156694_tn?1265213626
I am sorry to hear about the lowering of your numbers, I hope the increased dose will help.  Good news, though, that it didn't set you back (symptomatically) too much.
My Doctor took me off the high rx dose in February and put me on 2,000u D3 daily.  I dropped 20 points since then.  I talked him into letting me do 5,000u D3 daily.  (He didn't know that OTC came in that stregnth)  We will check the blood levels again in October.
I did notice with the drop that I had some increased fatigue and increased dizziness.  At least the pain was not back in full force.
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Avatar_f_tn
Oh dear! I had heard that numbers can fluctuate especially when bringing them up from a low/long term deficiency... Don't be too disappointed! I think this supports the idea I have about our bodies still mending and using higher than normal amounts of d for quite some time. It also supports the notion of being re-tested several times a year until stability is attained. After my experience with my crash a few months ago, I know I won't be lowering my dose for some time.
Han in there, Phyllis!!! Glad you feel ok!!
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Avatar_f_tn
Hey all!
Some good news: Improvement is real! I have no idea what my numbers are (no insurance and can't afford the retest), BUT for the past two weeks my volunteer job has given me almost NO pain!! This is a huuuge deal. It's sort of physical work (animal shelter) and had been so painful over the past months that I had cut my hours back. Two weeks in a row now I leave with only minor stiffness and the good kind of sore you get with a workout. Granted... It's not that strenuous, but after years of debilitating pain.... Things are great! Also noticing a lot fewer symptoms overall :) I've been taking 10k iu/day since November in case anyone wonders.
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1156694_tn?1265213626
That is good news.  I hope your improvement continues.  It is so great when things start going in the right direction.  
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Avatar_f_tn
Gadgets and SEattleanne thanks for your support and encouragement -- I need it right now to combat my frustration. Gadgets it helped to hear that you're combating your drop in D with 5000 IUs daily. I guess I'll do 5000 IUs for a month then insist the thyroid specialist do another blood test. Seattleanne, the fact that you've been on 10,000 IUs a day since November makes me feel I've got a great deal of leeway in terms of upward titration if I don't get improvement with 5000 IUs. I wonder if you can develop a tolerance to D? Why do they want to cut the dosage down or maintain it as soon as a patient hits decent levels? Can long term high dosage levels of D damage the kidneys? I guess I'm going to have to figure out the dosing since the docs don't seem to know and the recent Guidelines from the Endocrine Society aren't all that helpful. I'm just afraid of regressing to where I was before the start of therapy. Again, thanks to both of you for your help.
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1670015_tn?1310592284
Hi Phyllis,  Sorry to hear about your results but at least your symptoms haven't returned so hopefully getting back on the higher doses will get your levels back up.

I haven't read anything about sustained high dosage affecting the kidneys but if you go to Dr Holicks site you can post an individual question and he or a member of his team will reply to you.  It can take a few days but at least you get an answer and they also post Q&A on the noticeboard so it helps others as well.

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Avatar_f_tn
Thanks Carrie that's a good suggestion!!! I am curious about possible long term effects of high dosage levels.
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Avatar_m_tn
I tried to post on this thread but it popped up as a separate thread.  Please read what I posted regarding inconsistencies among testing methods.  I would check to see which methodology your lab uses.  Thanks for eveyone posting here.  It has kept me sane during my bout with VDD.  Take care  
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Avatar_f_tn
Good suggestion but I've already followed it -- all my D tests are run at the same lab using the same methodology. So, I'm fluctuating not the lab....Thanks
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Avatar_f_tn
I've posted Dr Holick's answer to my question on the long term toxicity of high dose vitamin D. Unfortunately he's adhering to the party line....

Can taking high doses of vitamin D3 (5000 IUs-10,000 IUs) on a long term basis for D deficiency damage the kidneys, particularly in persons over 60 years?

Reply
admin
Posted June 21, 2011 at 2:40 pm | Permalink

I recommend that adults take 2000-3000 IU of vitamin D a day. Although it has been shown that adults can take up to 10,000 IU of vitamin D a day for up to five months without any toxicity we do not know whether continuing to take 10,000 IU of vitamin D a day for more than five months will cause toxicity including damaging the kidneys. Therefore unless you are obese I do not believe that you need to be taking 5000-10,000 IU of vitamin D a day.

fortunately, he's adhering to the party line. Here's his answer.

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Avatar_m_tn
It can be from the same lab.  The articles suggest that if the lab is using mass spec method, the test results can vary widely even from the same lab.
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Avatar_m_tn
Interesting, Dr. John Cannell of the Vit D Council says 5,000 units is not toxic:
http://www.youtube.com/watch?v=_3thFlu0-ws&NR=1
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Avatar_f_tn
Wanted to post a recovery story... about 10 weeks ago I went to the doctor with loads of nonspecific problems.  I am an otherwise healthy 30 year old woman.  I thought I was suffering from anxiety or panic attacks (though I had no history of such things).  In a list, I felt:

-extremely lethargic (was basically not able to get off the couch - literally)
-depressed
-nervous and anxious to a point that I was leaning towards nonfunctional
-had panic episodes at random times, doing things that I have never experienced panic doing before! (like shopping or hanging out with my husband)
-a sensation like dizziness, but not dizziness - more like being chronically off balance or the sensation of floating as if on a boat
-feeling "out of it" all the time, as if I was crazy or in some kind of bubble, disassociation from real life

(I should note that I live in the Middle East in a conservative country where we cover our legs and arms daily and the weather is too hot to go outside 3 months a year and too dusty for much of the rest!)

The doctor did a series of tests and everything was totally normal except for a big Vitamin D deficiency (40.64 nmol/L).  He said to me, it's no wonder you feel like crap.  I am so grateful he tested me for it right off the bat.  He put me on a megadose of 50,000 D3 for 10 weeks and told me to come back for retest after that point.  He swore that if my levels came up I would recover completely.  I was skeptical to say the least, I couldn't (and didn't) believe that a vitamin deficiency could cause such terrifying symptoms.  He explained to me that it affects everyone differently.  

So, I dutifully took the dosage once a week as prescribed and after 4-6 weeks noticed a HUGE difference.  Now, at 10 weeks out, I feel like a new person.  I realize that not everyone is as lucky as I am, but I feel great - almost normal.  I am going back next week to get my levels retested but am sure they have come back into the normal ranges.

Just wanted to share a real-world story!  Not everyone has the same symptoms or experiences, but these are mine and I hope sharing can help others.  I am so thankful my doctor was up on these deficiencies and didn't think I was crazy!


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