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recovery after vitamin D deficiency User Group
Vit D Levels are Up but still feel horrible
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Founded by bisan on February 15, 2010
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Vit D Levels are Up but still feel horrible

I originally found out my Vit D Level was at an 8 back in December.  I began taking 50,000 iu once a week, but after seeing an endocronologist he increased the dosage to as much as 50,000 iu three times a week!! After further blood testing he also had me to take magnesium 250 mg once a day and calcium citrate 3 times a day.  I began to feel better but of course not 100%.  So it has been 3 months, and I was just retested and all my levels are fine, however I do not feel good at all. Actually it seems I have new things happening to my body.  I have been having pressure in my head, shoulder blade pain, burning ears and sometime eyes, and I also recently broke into hives (rash) on my face (nothing too drastic but noticeable).  I've had numerous blood tests taken but I often wonder are they taking the right kinds of tests.  I've also seen numerous specialists, but I often wonder am I going to the right ones.  I can't help but think that I have some type of disease that the doctor is missing.  Is there anyone else that feels this way that can give me some insight, I would greatly appreciate it!!!
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6 Comments
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Avatar_f_tn
I am sorry you are not feeling well yet. My situation was similar to yours. I was diagnosed with a vit D level of 6 in november 2011 and was started on prescription supplements. When i was checked about 9 weeks later, i had gone upto 64 ng/ml but still felt really bad. It was only after about 4 months of being diagnosed that i am now noticing an improvement. I was retested about 2 weeks back and i was at 67 and holding steady i guess. Give it a little more time, i think u might start to feel better in the next few weeks. I have heard that even after levels return to normal, it can still take sometime for the body to heal. My symptoms are not all gone but i am feeling a little better.

One major symptom i still have is the breast pain which i am now thinking might not be related to the deficiency. I am still very stressed about it but nothing more i can do now since i have had 2 mammos, 2 ultrasounds and they still havent found anything to cause the pain so i just have to live with it. My other symptoms of body pain etc. have reduced so just have some faith and try to wait and see. I know how hard it can be and not think the worse but it will get better.
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Avatar_f_tn
Thanks for the reply! I will continue to pray for the best, but it's so hard to contantly have your body not feel normal and try to go on through the day normally.  It gets very frustrating and stressful, but I will continue to go through the motions and hopefully feel better soon.  Are you taking any OTC vitamins? Honestly, I am so tired of taking anything that as of late I  haven't been taking any.  What would you suggest?
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Avatar_f_tn
Yes, i am taking OTC vitamins. I would strongly advise you to not stop taking your vitamins. Please continue taking them...I have heard that once you are diagnosed with a vit D deficiency, you have to continue taking it for life.
I am taking about 4000iu per day in total with calcium supplements too. Please do not stop taking the vitamins.
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1156694_tn?1265213626
An abrupt stop in taking your Vitamin D can make you feel worse.  Also, it take months of keeping your levels up to get back to your "old" self.
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Avatar_f_tn
The only reason I stopped is because my doc sort of left me hanging when he felt like everything was fine so I wasn't sure what to take and what not take.  He didn't tell me to keep taking the vitamins or to stop to lessen the dosage or anything.  I was just really frustrated because he seemed to not care when the tests came back normal and of course me not feeling the best does not make the situation better.  At this point I am still at a stand still on what I should take.  I was taking prescription vit d calcium and magnesium, but once my doc told me my levels were fine he never gave me any more info.  Is this normal procedure? I start back taking the OTC Vit D3 but I'm unsure about the magnesium and calcium! Any suggestions on what route I should go next?? Thanks for the replies!
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1156694_tn?1265213626
Many doctors are not "up" on the latest info on VDD.  You need to be your best advocate of care.
Do research here and other places.  I take magnesium and calcium through a good multivitamin.  Others take it individually.
Vitamin D I would take 5,000iu/d and would insist on having a level drawn (if you can afford it) every 3-6 months to make sure you are able to maintain the level you had previously.
Also a doctor's office tend to be very busy.  Perhaps your file got shuffled or picked up.  Don't be afraid to call them and ask questions.  Keep calling (every couple of days) until they tell you what the plan is.
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