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recovery after vitamin D deficiency User Group
Vitamin D deficiency
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Founded by bisan on February 15, 2010
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Vitamin D deficiency

Hello, I was just told by my doctor today that I have extremely low vit D levels. I am going to be on 50,000  of vitamin D prescribed for the next 3 months. I just wanted to say hi to everyone and thank you for posting your stories. It's like reading my own life story, it makes me want to cry. All of these symptoms are what I've been going through too. I have felt so bad for so long and I'm so thankful that I am not alone. I "knew" for a while now, that something was wrong - I was just finally lucky enough to find a doctor that actually  listened to what I was saying and helped me find the answer.

I have a question for anyone, did anyone feel "funny" after taking their first dose of 50,000 of vitamin D? my skin feels funny, my vision, my head feel strange and it's taken me much longer than it should have to write this just now. My mind is not thinking right at all. I have been rewriting this whole post because I keep spelling things wrong. Is this normal? I feel a little like I'm on a high or something. Is this normal???
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6 Comments
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Avatar_f_tn
Sorry you too have been touched by the Vit D Def bug..... I just found out last week.  Saturday I took my first dose, but I didn't feel funny.  I asked the pharmacist when the best time to take it was... He said anytime was ok, but not around other medicines.  So, I have to take meds in the AM in PM, so I took the Vit D at lunch time.  Maybe this info will help with your "side effects" Feel better!
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1156694_tn?1265213626
Sorry you are feeling so bad.  Although I didn't experience it myself, I know of several people on this forum that didn't tolerate the prescription 50,000iu of Vitamin D.  The first person that comes to mind is Phyllis2010.  She ended up taking the Vitamin D3 (OTC) and it really worked for her.  You might want to look up her posts.  I took the rx for over a year and barely was able to get my numbers into the 30's.  Then I talked my endocrinologist and had him let me take 2000iu D3 (otc) along with the rx.  I was able to get my numbers up with in 6 months.
One thing I learned is that you get better absorbtion if you take the pill with a snack or meal that has some fat in it. (cheese, peanut butter, etc)
I hope you feel better soon, but if you can't there is at least some other options available.
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Avatar_f_tn
Hi Jm and Gadgets,
Yes, Gadgets is right I was extremely intolerant of prescription 50,000 IUs of D2. I experienced (almost immediately) adverse effects that included 5 of the about 7 possible AEs listed on the package insert, including heart palpitations, urinary frequency, etc, just look on the insert. After a few days I'd feel great then my D levels started plummeting (most probably) and then I'd take another 50,000 IUs and have AEs. Of course I'm older in my sixties so my age might have had something to due with my inability to process and perhaps convert D2 to D3. But once I found the proper dose (for me) of D3 (with support from people in the Forum like Gadgets), my D levels started rising slowly but surely and my deficiency symptoms resolved. The dose that worked for me which I'm still on is D3 gel caps 4000 IUs daily. Here's hoping you feel better, hang in there and keep us posted!
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Avatar_m_tn
Glad to hear you are feeling better.  Im still messing around with dosage as 5k didnt seem to do it for me.  Up to 10k and will see what that does.
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Avatar_f_tn
Absolutely mess around with the dosage to figure out what's right with you -- if you ask the docs they will say they don't know. If you have any problems with the initial 10k dose back down and gradually work up to it. Good luck.
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Avatar_f_tn
I had the same feeling as you when I first took the vitamin d pill
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