This forum is for questions and support regarding neurology issues such as:
Alzheimer's Disease,
ALS,
Autism, Brain Cancer,
Cerebral Palsy, Chronic Pain,
Epilepsy,
Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders,
Stroke, Traumatic Brain Injury
I took prescription anti-inflamatories for over a year until they messed up my stomach. I think it is really important that you find an orthopedic surgeon or physical therapist that is willing to do all of the leg work on helping you find the best plan of treatment for this uncommon ailment.
I have a lot of the same symptoms that you are talking about in your question above and have found a mix of treatments that work for me including:
- Physical Therapy for strength and inflamation treatment
- Accupuncture - helps with the discomfort
- A mixture of heat & ice also can help when inflamed. I learned that it is important to try to use natural methods for inflamation after having strong permanent side affects from using anti-inflamatories.
Good luck and I hope some of this helps. I know it is very discouraging to be in such a high level of discomfort on a daily basis.