MS or LYME symptoms

[cat457]

3 months ago I started experiencing heavy legs, dizziness and strange buzzing in legs (like a cell phone was under my skin in vibration mode) but no balance problems, no numbness,no sensory problems... went to GP... he performed blood and neuro exam... passed them all... sent me to Neurologist... he performed neuro exam and MRI... passed them all (all negative)...

Now I am wondering if I have lyme disease... the sx are:

intermittment soreness in hips and back and neck... really achie feeling even after light activity like walking.. the strange buzzing in legs has stopped. Has anyone experienced this? This isn't just typical muscle soreness from working out.. it can come and go with even the slightest activity... also strange warm spot on the heal of my hand that comes and goes...Has anyone else experience this?

I am really perplexed... never felt this stuff before in my life... Wondering if I should get tested for LYME. If so, if anyone has tested postive for lyme, what was your sx, were they similar? How did you get tested? I am anxious to get a diagnosis and seek treament... However, I have heard horror stories where it takes years for people to get a dx for MS/Lyme, etc.

[Hityty]

You'll find a lot of people here with the same symp's, and many of them have yet to get correctly diagnosed, or diagnosed period. Tests for Lyme are very controversial, often inaccurate. Find a Lyme specialist to do the testing. Your symptoms point to several different things, Lyme is just one of them but does sound like a definite possibility! Here's some links about lyme that I found helpful:

http://www.anapsid.org/lyme/symptoms/tbi-symptoms.html

http://www.canlyme.com/patsymptoms.html



Also you may want to check out Th1 inflammation diseases & "hypervitaminosis-D" symptoms at:

http://www.marshallprotocol.com/forum2/2588.html The Marshall Protocol is a curative therapy for many different autoimmune illnesses, and has been very successful at treating Lyme disease.

[cat457]

Thanks for the links... they look like very helpful resources... may i ask what your symp's and experience have been...



Here's to good health for all of you.

[ihatepvc's]

You can have your regular doctor do the Lyme test but ask him to send it to Iginex in California. This is a much more reliable test. I presented with shooting pain in my thumb, severe and unrelenting headaches, stiff and painful neck and shoulders, low grade fever, tmj, sore throat, swollen glands, brain fog, achy joints in body. I would describe it as a total body breakdown. Do you remember getting an unusual illness similar to the flu in the past but not during flu season? Do you live in Connecticut, upstate New York, Maryland, Pennsylvania... any Lyme endemic area?

[cat457]

Thanks, Ihatepvcs!

I live in San Jose, California (surrounded by foothills, grassy woodlands), which about 30 minutes from Igenex, in Palo Alto.

Here's my story... about 4 months ago starting feeling little shooting pains that were intermitent across my stomach, then some heaviness in legs.  One day, I woke up feeling seriously dizzy and went to ER. They found nothing wrong other then I was dehydrated.  They put me on IVs and then I was released.  Then I started in experienced cold feeling in heal of my feet and burning feeling in heal of left hand.  For about a week, I felt a buzzing sensation in my legs as if there was a cell phone on vibration mode below my skin. Then fatigued in legs when I climbed stairs. I started googling my symptoms which brought up MS, Lyme etc.  I expressed my concerns to my GP. He did a neuro exam for balance, strength,sensory, etc. I passed them all. He said no need for referral to Neurologist at time, put if symp's persist come back. I came back again and then he sent me to a Neurologist.  I passed the even more extensive neuro exam..no balance, strength, sensory problems... also had an MRI which was clear.  I am now even more perplexed as my symp's have developed into the following:  intermitent soreness in hip joints after evening light walking, stiffness in back and neck which comes and goes... I have never had classic symp's (numbness, imbalance, optic neuritis, extreme fatigue), but I saw a list of Lyme symp's that Mineandyours posted and that's got me wondering.  I'm your typical, active Northern Californian.. I mountain bike, hike, waterski, camp etc.  So it's very possible I could have been exposed to a bite here in the foothills.  I never felt any bite, but I heard the bite can be microscopic. Does any of this sound familiar??

[cat457]

OH... in answer to your question, I never had flu like symptoms during the off season...

[cat457]

the other thing I forgot to add is unexplained weight loss... haven't changed my diet. I'm even eating more now that it is winter time.

[ihatepvc's]

It doesn't sound like the classic onset of Lyme, then again many people begin with all sorts of odd symptoms. Why don't you just get tested to rule it out? How much weight did you lose?

[cat457]

Thanks... i lost 6 or 7 lbs, it seems in muscle mass

[cat457]

BTW, I signed up at lymnet.org and posted a msg seeking an LLMD.. any other suggestions?