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This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury
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vascular decompression?

by jenniferah8, Feb 21, 2007 12:00AM
I am a 28 yr. old female that was recently diagnosed with trigeminal neuralgia and told my treatment will be a vascular decompression.  My symptoms are: face pain, headache, ear pain, and dizziness.  The pain is all on the right side.  I started taking Nortriptyline at night.  This has helped control the pain but the dizziness has become a lot worse.  My MRI came back and I have an artery wrapped around my trigeminal nerve so that is why I was told I need to have the vascular decompression.  

The compression of the trigeminal nerve explains the face pain, headache and earache but it does not explain the dizziness.  I want to know if anyone who has trigeminal neuralgia has also experienced overwhelming dizziness.  How was that cured? Also has anyone had the vascular decmopression surgery?  If so how do you feel after?  

I just found all this out and am pretty scared, so any feedback will help.  Thank you, Jennifer
Member Comments (1)

by sunshine20618, Mar 27, 2008 05:20PM
Hi Jennifer,

My name is Missy and I am 26.  I have had trigeminal neuralgia for about 4 years now, but mine is due to lesions on my brain, possibly caused from Multiple Sclerosis. Maybe the compression of the artery could be causing your dizziness?  I have dizziness quite a bit but I think that may be part of the early stages of MS.  Do you take any pain medication that could have those side effects or any other medications causing it? I know dizziness is a side effect in a lot of meds...good luck with your surgery, and I hope it takes away your pain-it's a horrible experience that's for sure.  Take Care.
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