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Sleep Disorders Community

This patient support community is for discussions relating to apnea, children’s sleep issues, jet lag, insomnia, narcolepsy, restless leg syndrome (RLS) and snoring.
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Is Narcolepsy a Neurodegenerative Disease?

by mikaela50, Apr 28, 2007 12:00AM
If Narcolepsy is cause by the lack of a neuropeptide or hormone:
Orexin/Hypocretin, What is so difficult in just replacing what is missing? By means of a bio-identical replacement. It is easily synthesized and crosses the BBB by simple diffusion: injection in Dogs, inhalation in rats. Why after almost ten years are symptons being treated not the cause?
Member Comments (2)

by kaznev, Aug 11, 2007 03:00PM
Go ask your doc for some testing for hormones etc to see if you are out of whack.  I had narcolepsy with cataplexy many years ago.  I have now got complex sleep apnea.  I decided to look for a cause.  I found I was short in cortisol, potassium and vitamin B!2

by debsbiz, Oct 03, 2007 09:40AM
To: kaznev
I beleive we can cure ourselves . I also have narcolepsy and cataplexy. But worst of all I have a terrible problem with sleep walking.I have been doing this for over 4 years. Ive broke my nose 3 times and over 50 concussions.I cant find  help ,and Im scared Im going to die. I fall asleep even while just bending over. So many strange incidents too many to mention. However, never doing a sleep study. Although ,we discoverd my sleep apnea. I have about 40 episodes an hour.  Anyway this is my first reply to anything on line!
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